Skip to main content

Assessment-Tools in der pädiatrischen Rheumatologie

  • Living reference work entry
  • First Online:
Pädiatrische Rheumatologie

Part of the book series: Springer Reference Medizin ((SRM))

  • 72 Accesses

Zusammenfassung

Die standardisierte Beurteilung rheumatischer Erkrankungen bei Kindern und Jugendlichen ist wichtiger Bestandteil einer adäquaten kinderrheumatologischen Versorgung. Für Therapiestrategien mit einem Treat-to-target-Ansatz ist die routinemäßige Bewertung der Krankheitsaktivität eine unabdingbare Voraussetzung. Neben den Einschätzungen aus ärztlicher Sicht muss auch die Patientenperspektive berücksichtigt werden. Patienten-berichtete Outcomes liefern wesentliche Informationen zum Therapieansprechen und zur subjektiv empfundenen Krankheitslast. Eine standardisierte Bewertung anhand definierter Scores findet zunehmend auch in Arthrosonografie, Röntgenaufnahmen und Kernspintomografie Anwendung. Das Kapitel fasst Assessment-Tools zur qualitativen und quantitativen Bewertung der Aktivität, Schwere der Ausprägung und Folgen der häufigsten chronischen entzündlich-rheumatischen Erkrankungen im Kindes- und Jugendalter zusammen.

This is a preview of subscription content, log in via an institution to check access.

Access this chapter

Institutional subscriptions

Similar content being viewed by others

Literatur

  • Baars RM, Atherton CI, Koopman HM et al (2005) The European DISABKIDS project: development of seven condition-specific modules to measure health related quality of life in children and adolescents. Health Qual Life Outcomes 3:70

    Article  PubMed  PubMed Central  Google Scholar 

  • Bertamino M, Rossi F, Pistorio A et al (2010) Development and initial validation of a radiographic scoring system for the hip in juvenile idiopathic arthritis. J Rheumatol 37:432–439

    Article  PubMed  Google Scholar 

  • Brunner HI, Lovell DJ, Finck BK, Giannini EH (2002) Preliminary definition of disease flare in juvenile rheumatoid arthritis. J Rheumatol 29:1058–1064

    PubMed  Google Scholar 

  • Brunner HI, Klein-Gitelman MS, Miller MJ et al (2005) Minimal clinically important differences of the childhood health assessment questionnaire. J Rheumatol 32:150–161

    PubMed  Google Scholar 

  • Brunner HI, Higgins GC, Klein-Gitelman MS et al (2010) Minimal clinically important differences of disease activity indices in childhood-onset systemic lupus erythematosus. Arthritis Care Res (Hoboken) 62:950–959

    Article  Google Scholar 

  • Brunner HI, Mina R, Pilkington C et al (2011) Preliminary criteria for global flares in childhood-onset systemic lupus erythematosus. Arthritis Care Res (Hoboken) 63:1213–1223

    Article  Google Scholar 

  • Brunner HI, Holland M, Beresford MW et al (2018) American College of Rheumatology Provisional Criteria for global flares in childhood-onset systemic lupus erythematosus. Arthritis Care Res (Hoboken) 70:813–822

    Article  PubMed Central  Google Scholar 

  • Brunner HI, Holland MJ, Beresford MW et al (2019) American College of Rheumatology Provisional Criteria for clinically relevant improvement in children and adolescents with childhood-onset systemic lupus erythematosus. Arthritis Care Res (Hoboken) 71:579–590

    Article  PubMed Central  Google Scholar 

  • Bullinger M, Schmidt S, Petersen C, and the DISABKIDS Group (2002) Assessing quality of life of children with chronic health conditions and disabilities: a European approach. Int J Rehabil Res 25:197–206

    Article  PubMed  Google Scholar 

  • Consolaro A, Giancane G, Schiappapietra B et al (2016) Clinical outcome measures in juvenile idiopathic arthritis. Pediatr Rheumatol Online J 14(1):23

    Article  PubMed  PubMed Central  Google Scholar 

  • Dempster H, Porepa M, Young N, Feldman BM (2001) The clinical meaning of functional outcome scores in children with juvenile arthritis. Arthritis Rheum 44:1768–1774

    Article  CAS  PubMed  Google Scholar 

  • Filocamo G, Sztajnbok F, Cespedes-Cruz A et al (2007) Development and validation of a new short and simple measure of physical function for juvenile idiopathic arthritis. Arthritis Rheum 57:913–920

    Article  PubMed  Google Scholar 

  • Filocamo G, Davì S, Pistorio A et al (2010a) Evaluation of 21-numbered circle and 10-centimeter horizontal line visual analog scales for physician and parent subjective ratings in juvenile idiopathic arthritis. J Rheumatol 37:1534–1541

    Article  PubMed  Google Scholar 

  • Filocamo G, Schiappapietra B, Bertamino M et al (2010b) A new short and simple health-related quality of life measurement for paediatric rheumatic diseases: initial validation in juvenile idiopathic arthritis. Rheumatology (Oxford) 49:1272–1280

    Article  Google Scholar 

  • Foeldvari I, Ruperto N, Dressler F et al (2001) The German version of the Childhood Health Assessment Questionnaire (CHAQ) and the Child Health Questionnaire (CHQ). Clin Exp Rheumatol 19(4 Suppl 23):S71–S75

    CAS  PubMed  Google Scholar 

  • Giannini EH, Ruperto N, Ravelli A et al (1997) Preliminary definition of improvement in juvenile arthritis. Arthritis Rheum 40:1202–1209

    Article  CAS  PubMed  Google Scholar 

  • Holland MJ, Beresford MW, Feldman BM et al (2018) Measuring disease damage and its severity in childhood onset systemic lupus erythematosus. Arthritis Care Res (Hoboken) 70:1621–1629

    Article  Google Scholar 

  • Holzinger D, Foell D, Horneff G et al (2018) The German version of the Juvenile Arthritis Multidimensional Assessment Report (JAMAR). Rheumatol Int 38(Suppl 1):211–218

    Article  PubMed  PubMed Central  Google Scholar 

  • Jabs DA, Nussenblatt RB, Rosenbaum JT, Standardization of Uveitis Nomenclature (SUN) Working Group (2005) Standardization of uveitis nomenclature for reporting clinical data. Results of the first international workshop. Am J Ophthalmol 140:509–516

    Article  PubMed  Google Scholar 

  • Jones JT, Carle AC, Wootton J et al (2017) Validation of patient-reported outcomes measurement information system short forms for use in childhood-onset systemic lupus erythematosus. Arthritis Care Res (Hoboken) 69:133–142

    Article  CAS  Google Scholar 

  • Lazarevic D, Pistorio A, Palmisani E et al (2013) The PRINTO criteria for clinically inactive disease in juvenile dermatomyositis. Ann Rheum Dis 72:686–693

    Article  CAS  PubMed  Google Scholar 

  • Malattia C, Consolaro A, Pederzoli S et al (2013) MRI versus conventional measures of disease activity and structural damage in evaluating treatment efficacy in juvenile idiopathic arthritis. Ann Rheum Dis 72:363–368

    Article  CAS  PubMed  Google Scholar 

  • Malattia C, Tolend M, Mazzoni M et al (2020) Current status of MR imaging of juvenile idiopathic arthritis. Best Pract Res Clin Rheumatol 34:101629

    Article  PubMed  Google Scholar 

  • Miller FW, Rider LG, Chung YL et al (2001) Proposed preliminary core set measures for disease outcome assessment in adult and juvenile idiopathic inflammatory myopathies. Rheumatology (Oxford) 40:1262–1273

    Article  CAS  Google Scholar 

  • Mina R, Klein-Gitelman MS, Ravelli A et al (2012) Inactive disease and remission in childhood-onset systemic lupus erythematosus. Arthritis Care Res (Hoboken) 64:683–693

    Article  CAS  Google Scholar 

  • Mina R, Klein-Gitelman MS, Nelson S et al (2014) Validation of the systemic lupus erythematosus responder index for use in juvenile-onset systemic lupus erythematosus. Ann Rheum Dis 73:401–406

    Article  PubMed  Google Scholar 

  • Moorthy LN, Peterson MG, Baratelli M et al (2010) Preliminary cross-cultural adaptation of a new pediatric health-related quality of life scale in children with systemic lupus erythematosus: an international effort. Lupus 19:83–88

    Article  CAS  PubMed  Google Scholar 

  • Oddis CV, Rider LG, Reed AM et al (2005) International consensus guidelines for trials of therapies in the idiopathic inflammatory myopathies. Arthritis Rheum 52(9):2607–2615

    Article  PubMed  Google Scholar 

  • Oommen PT, Schütz C et al (2019) S2K Leitlinie Therapie der juvenilen idiopathischen Arthritis. https://www.awmf.org/leitlinien/detail/ll/027-020.html. Zugegriffen am 18.01.2021

  • Ozen S, Demirkaya E, Duzova A et al (2014) FMF50: a score for assessing outcome in familial mediterranean fever. Ann Rheum Dis 73(5):897–901

    Article  PubMed  Google Scholar 

  • Piram M, Frenkel J, Gattorno M et al (2011) A preliminary score for the assessment of disease activity in hereditary recurrent fevers: results from the AIDAI (Auto-Inflammatory Diseases ActivityI ndex) consensus conference. Ann Rheum Dis 70:309–314

    Article  PubMed  Google Scholar 

  • Poznanski AK, Hernandez RJ, Guire KE et al (1978) Carpal length in children a useful measurement in the diagnosis of rheumatoid arthritis and some concenital malformation syndromes. Radiology 129:661–668

    Article  CAS  PubMed  Google Scholar 

  • Ravelli A, Ioseliani M, Norambuena X et al (2007) Adapted versions of the Sharp/van der Heijde score are reliable and valid for assessment of radiographic progression in juvenile idiopathic arthritis. Arthritis Rheum 56:3087–3095

    Article  PubMed  Google Scholar 

  • Ravelli A, Consolaro A, Horneff G et al (2018) Treating juvenile idiopathic arthritis to target: recommendations of an international task force. Ann Rheum Dis 77:819–828

    PubMed  Google Scholar 

  • Ravens-Sieberer U, Bullinger M (1998) Assessing the health related quality of life in chronically ill children with the German KINDL: first psychometric and content-analytical results. Qual Life Res 7:399–407

    Article  CAS  PubMed  Google Scholar 

  • Rider LG, Aggarwal R, Pistorio A et al (2017) 2016 American College of Rheumatology/European League Against Rheumatism Criteria for Minimal, Moderate, and Major Clinical Response in Juvenile Dermatomyositis: an international myositis assessment and clinical studies group/paediatric rheumatology international trials organisation collaborative initiative. Arthritis Rheumatol 69:911–923

    Article  CAS  PubMed  PubMed Central  Google Scholar 

  • Rider LG, Aggarwal R, Machado PM et al (2018) Update on outcome assessment in myositis. Nat Rev Rheumatol 14:303–318

    Article  PubMed  PubMed Central  Google Scholar 

  • Rossi-Semerano L, Breton S, Semerano L et al (2020) Application of the OMERACT synovitis ultrasound scoring system in juvenile idiopathic arthritis: a multicenter reliability exercise. Rheumatology (Oxford) 60(8):3579–3587

    Google Scholar 

  • Rossum MA van, Boers M, Zwinderman AH et al (2005) Development of a standardized method of assessment of radiographs and radiographic change in juvenile idiopathic arthritis: introduction of the Dijkstra composite score. Arthritis Rheum 52:2865–2872

    Google Scholar 

  • Ruperto N, Ravelli A, Murray KJ et al (2003) Preliminary core sets of measures for disease activity and damage assessment in juvenile systemic lupus erythematosus and juvenile dermatomyositis. Rheumatology (Oxford) 42:1452–1459

    Article  Google Scholar 

  • Ruperto N, Pistorio A, Ravelli A et al (2010) The Paediatric Rheumatology International Trials Organisation provisional criteria for the evaluation of response to therapy in juvenile dermatomyositis. Arthritis Care Res (Hoboken) 62:1533–1541

    Article  Google Scholar 

  • Ruperto N, Pistorio A, Ravelli A et al (2011) Criteria to define response to therapy in paediatric rheumatic diseases. Eur J Clin Pharmacol 67(Suppl 1):125–131

    Article  PubMed  Google Scholar 

  • Ruperto N, Pistorio A, Oliveira S et al (2016) Prednisone versus prednisone plus ciclosporin versus prednisone plus methotrexate in new-onset juvenile dermatomyositis: a randomised trial. Lancet 387(10019):671–678

    Article  PubMed  Google Scholar 

  • Sieper J, Rudwaleit M, Baraliakos X et al (2009) The Assessment of SpondyloArthritis international Society (ASAS) handbook: a guide to assess spondyloarthritis. Ann Rheum Dis 68(Suppl 2):ii1–i44

    Article  PubMed  Google Scholar 

  • Tibaldi J, Pistorio A, Aldera E et al (2020) Development and initial validation of a composite disease activity score for systemic juvenile idiopathic arthritis. Rheumatology (Oxford) 59:3505–3514

    Article  CAS  Google Scholar 

  • Varni JW, Seid M, Smith Knight T et al (2002) The PedsQL in pediatric rheumatology: reliability, validity, and responsiveness of the pediatric quality of life inventory generic core scales and rheumatology module. Arthritis Rheum 46:714–725

    Article  PubMed  Google Scholar 

  • Varni JW, Burwinkle TM, Szer IS (2004) The PedsQL Multidimensional Fatigue Scale in pediatric rheumatology: reliability and validity. J Rheumatol 31:2494–2500

    PubMed  Google Scholar 

  • Viola S, Felici E, Magni-Manzoni S et al (2005) Development and validation of a clinical index for assessment of long-term damage in juvenile idiopathic arthritis. Arthritis Rheum 52:2092–2102

    Article  PubMed  Google Scholar 

  • Wallace CA, Giannini EH, Huang B et al (2011) American College of Rheumatology provisional criteria for defining clinical inactive disease in select categories of juvenile idiopathic arthritis. Arthritis Care Res (Hoboken) 63:929–936

    Article  Google Scholar 

  • Weiss PF, Colbert RA, Xiao R et al (2014) Development and retrospective validation of the juvenile spondyloarthritis disease activity index. Arthritis Care Res (Hoboken) 66:1775–1782

    Article  Google Scholar 

Download references

Author information

Authors and Affiliations

Authors

Corresponding author

Correspondence to Kirsten Minden .

Editor information

Editors and Affiliations

Rights and permissions

Reprints and permissions

Copyright information

© 2021 Springer-Verlag GmbH Deutschland, ein Teil von Springer Nature

About this entry

Check for updates. Verify currency and authenticity via CrossMark

Cite this entry

Minden, K., Niewerth, M. (2021). Assessment-Tools in der pädiatrischen Rheumatologie. In: Wagner, N., Dannecker, G., Kallinich, T. (eds) Pädiatrische Rheumatologie. Springer Reference Medizin. Springer, Berlin, Heidelberg. https://doi.org/10.1007/978-3-662-60411-3_11-1

Download citation

  • DOI: https://doi.org/10.1007/978-3-662-60411-3_11-1

  • Received:

  • Accepted:

  • Published:

  • Publisher Name: Springer, Berlin, Heidelberg

  • Print ISBN: 978-3-662-60411-3

  • Online ISBN: 978-3-662-60411-3

  • eBook Packages: Springer Referenz Medizin

Publish with us

Policies and ethics