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Living with Epidermolysis Bullosa: Reviewing the Impact on Individuals’ Quality of Life

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Blistering Diseases

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Abstract

Quality of life is an abstract, multidimensional construct assessing the physical, psychological and social aspects of an individual’s condition. Quality of life measurements are especially pertinent in dermatological conditions due to the high level of psychosocial impact they have on the individual. In epidermolysis bullosa (EB), generic quality of life assessments have been used to compare the burden of EB with other dermatological conditions as well as assess the social, emotional and psychological burden of living with EB. Other more recent studies have developed EB-specific quality of life measurement tools, and qualitative studies have descriptively examined the experience of living with EB. Future uses of quality of life measurements in EB may include assessment of new therapeutic interventions as well as longitudinal quality of life studies.

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Author information

Authors and Affiliations

  1. Department of Dermatology, Royal Prince Alfred Hospital, Sydney, NSW, Australia

    John W. Frew MBBS (Hons), MMed (Clin Epi)

  2. Department of Dermatology, St George Hospital, University of New South Wales, Sydney, NSW, Australia

    Dédée F. Murrell MA(Camb), BMBCh(Oxf), FAAD, MD, FACD, FRCP

Authors
  1. John W. Frew MBBS (Hons), MMed (Clin Epi)
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  2. Dédée F. Murrell MA(Camb), BMBCh(Oxf), FAAD, MD, FACD, FRCP
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Corresponding author

Correspondence to Dédée F. Murrell MA(Camb), BMBCh(Oxf), FAAD, MD, FACD, FRCP .

Editor information

Editors and Affiliations

  1. Department of Dermatology, St George Hospital, University of New South Wales, Sydney, New South Wales, Australia

    Dédée F. Murrell

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Frew, J.W., Murrell, D.F. (2015). Living with Epidermolysis Bullosa: Reviewing the Impact on Individuals’ Quality of Life. In: Murrell, D. (eds) Blistering Diseases. Springer, Berlin, Heidelberg. https://doi.org/10.1007/978-3-662-45698-9_74

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  • DOI: https://doi.org/10.1007/978-3-662-45698-9_74

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  • Publisher Name: Springer, Berlin, Heidelberg

  • Print ISBN: 978-3-662-45697-2

  • Online ISBN: 978-3-662-45698-9

  • eBook Packages: MedicineMedicine (R0)

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