Abstract
Within the last two decades, registries have become a substantial source of scientific evidence as well as a monitoring tool of the quality of healthcare providers and healthcare systems overall. Yet, due to national specifics, including healthcare systems, professional societies, and data protection legislation, the design and value vary significantly among the vast amount of registries existing today.
This chapter aims to provide an overview of the currently used registries in spinal care in the UK and Europe and investigates their specifics, strengths, and weaknesses as well as their scientific output in order to shed light on the medical, socioeconomic, and scientific value of spine registries in particular.
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References
Melloh M, Staub L, Aghayev E, Zweig T, Barz T, Theis JC, et al. The international spine registry SPINE TANGO: status quo and first results. Eur Spine J. 2008;17(9):1201–9.
Fritzell P, Stromqvist B, Hagg O. A practical approach to spine registers in Europe: the Swedish experience. Eur Spine J. 2006;15(Suppl 1):S57–63.
Stromqvist B, Fritzell P, Hagg O, Jonsson B, Sanden B, Swedish Society of Spinal Surgeons. Swespine: the Swedish spine register : the 2012 report. Eur Spine J. 2013;22(4):953–74.
van Hooff ML, Jacobs WC, Willems PC, Wouters MW, de Kleuver M, Peul WC, et al. Evidence and practice in spine registries. Acta Orthop. 2015;86(5):534–44.
Kessler JT, Melloh M, Zweig T, Aghayev E, Roder C. Development of a documentation instrument for the conservative treatment of spinal disorders in the international spine registry, Spine Tango. Eur Spine J. 2011;20(3):369–79.
McGirt MJ, Speroff T, Dittus RS, Harrell FE Jr, Asher AL. The National Neurosurgery Quality and Outcomes Database (N2QOD): general overview and pilot-year project description. Neurosurg Focus. 2013;34(1):E6.
Armstrong D, Kline-Rogers E, Jani SM, Goldman EB, Fang J, Mukherjee D, et al. Potential impact of the HIPAA privacy rule on data collection in a registry of patients with acute coronary syndrome. Arch Intern Med. 2005;165(10):1125–9.
Wood AM, White IR, Thompson SG. Are missing outcome data adequately handled? A review of published randomized controlled trials in major medical journals. Clin Trials. 2004;1(4):368–76.
Godil SS, Parker SL, Zuckerman SL, Mendenhall SK, Devin CJ, Asher AL, et al. Determining the quality and effectiveness of surgical spine care: patient satisfaction is not a valid proxy. Spine J. 2013;13(9):1006–12.
Hailer NP, Weiss RJ, Stark A, Karrholm J. The risk of revision due to dislocation after total hip arthroplasty depends on surgical approach, femoral head size, sex, and primary diagnosis. An analysis of 78,098 operations in the Swedish Hip Arthroplasty Register. Acta Orthop. 2012;83(5):442–8.
Karrholm J. The Swedish Hip Arthroplasty Register (http://www.shpr.se). Acta Orthop 2010;81(1):3–4.
Pronovost P, Needham D, Berenholtz S, Sinopoli D, Chu H, Cosgrove S, et al. An intervention to decrease catheter-related bloodstream infections in the ICU. N Engl J Med. 2006;355(26):2725–32.
Forsth P, Michaelsson K, Sanden B. Does fusion improve the outcome after decompressive surgery for lumbar spinal stenosis?: a two-year follow-up study involving 5390 patients. Bone Joint J. 2013;95-B(7):960–5.
Forsth P, Olafsson G, Carlsson T, Frost A, Borgstrom F, Fritzell P, et al. A randomized, controlled trial of fusion surgery for lumbar spinal stenosis. N Engl J Med. 2016;374(15):1413–23.
van Hooff ML, van Loon J, van Limbeek J, de Kleuver M. The Nijmegen decision tool for chronic low back pain. Development of a clinical decision tool for secondary or tertiary spine care specialists. PLoS One. 2014;9(8):e104226.
Clement RC, Welander A, Stowell C, Cha TD, Chen JL, Davies M, et al. A proposed set of metrics for standardized outcome reporting in the management of low back pain. Acta Orthop. 2015;86(5):523–33.
Weinstein JN, Lurie JD, Tosteson TD, Zhao W, Blood EA, Tosteson AN, et al. Surgical compared with nonoperative treatment for lumbar degenerative spondylolisthesis. Four-year results in the Spine Patient Outcomes Research Trial (SPORT) randomized and observational cohorts. J Bone Joint Surg Am. 2009;91(6):1295–304.
Mannion AF, Brox JI, Fairbank JC. Comparison of spinal fusion and nonoperative treatment in patients with chronic low back pain: long-term follow-up of three randomized controlled trials. Spine J. 2013;13(11):1438–48.
Parker SL, Asher AL, Godil SS, Devin CJ, McGirt MJ. Patient-reported outcomes 3 months after spine surgery: is it an accurate predictor of 12-month outcome in real-world registry platforms? Neurosurg Focus. 2015;39(6):E17.
Chotai S, Parker SL, Sivaganesan A, Sielatycki JA, Asher AL, McGirt MJ, et al. Effect of complications within 90 days on patient-reported outcomes 3 months and 12 months following elective surgery for lumbar degenerative disease. Neurosurg Focus. 2015;39(6):E8.
Guerin P, El Fegoun AB, Obeid I, Gille O, Lelong L, Luc S, et al. Incidental durotomy during spine surgery: incidence, management and complications. A retrospective review. Injury. 2012;43(4):397–401.
Desai A, Ball PA, Bekelis K, Lurie J, Mirza SK, Tosteson TD, et al. SPORT: Does incidental durotomy affect longterm outcomes in cases of spinal stenosis? Neurosurgery. 2015;76(Suppl 1):S57–63. discussion S
Desai A, Ball PA, Bekelis K, Lurie JD, Mirza SK, Tosteson TD, et al. Outcomes after incidental durotomy during first-time lumbar discectomy. J Neurosurg Spine. 2011;14(5):647–53.
Schulz KF, Grimes DA. Sample size slippages in randomised trials: exclusions and the lost and wayward. Lancet. 2002;359(9308):781–5.
McGirt MJ, Parker SL, Asher AL, Norvell D, Sherry N, Devin CJ. Role of prospective registries in defining the value and effectiveness of spine care. Spine (Phila Pa 1976). 2014;39(22 Suppl 1):S117–28.
Biering K, Hjollund NH, Frydenberg M. Using multiple imputation to deal with missing data and attrition in longitudinal studies with repeated measures of patient-reported outcomes. Clin Epidemiol. 2015;7:91–106.
Schmidt CO, Raspe H, Pfingsten M, Hasenbring M, Basler HD, Eich W, et al. Does attrition bias longitudinal population-based studies on back pain? Eur J Pain. 2011;15(1):84–91.
Twisk J, de Vente W. Attrition in longitudinal studies. How to deal with missing data. J Clin Epidemiol. 2002;55(4):329–37.
Conflict of Interest
SK is consultant for Brainlab AG (Munich, Germany) and Nexstim Plc (Helsinki, Finland). BM is consultant for Ulrich Medical (Ulm, Germany), Medtronic (Dublin, Ireland), Relievant Medsystems Inc. (Redwood City, USA), DePuy Synthes (West Chester, USA), and Brainlab AG (Munich, Germany). ES is consultant for Nevro Corp. (Redwood City, USA) and receiving research grants from Icotec (Altstaetten, Switzerland) and Inomed (Emmendingen, Germany).
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Meyer, B., Shiban, E., Krieg, S.M. (2019). Registries in Spine Care: UK and Europe. In: Ratliff, J., Albert, T., Cheng, J., Knightly, J. (eds) Quality Spine Care. Springer, Cham. https://doi.org/10.1007/978-3-319-97990-8_7
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DOI: https://doi.org/10.1007/978-3-319-97990-8_7
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