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Videobooking: A Person-Centred Record of Living with Chronic Conditions and Associated Disabilities

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  • First Online:
Computers Helping People with Special Needs (ICCHP 2018)

Part of the book series: Lecture Notes in Computer Science ((LNISA,volume 10897))

Abstract

People with complex chronic conditions must learn to live with the disabilities and challenges that come with those conditions on a continuous basis. MyHealthMyRecord (MHMR) was designed to allow people to record video vignettes of enabling and/or disabling situations, opinions, musings, and other thoughts regarding their attempts to cope with, manage or work around those situations. One person living with a sudden onset chronic condition used MHMR to document their journey. Main findings were that vignettes were short duration, less than 1 min, and covered a range of topics regarding pain, accessibility and barriers, emotional reactions, systemic issues and recommendations, and MHMR improvements.

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References

  1. Richards, N.C., Gouda, H.N., Durham, J., Rampatige, R., Rodney, A., Whittaker, M.: Disability, noncommunicable diseases and health information. Bull. World Health Organ. 94, 230–232 (2016)

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Acknowledgements

Funding was generously provided by the Canadian Institute for Health Research. We thank PX for participating and persisting with this project.

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Authors and Affiliations

  1. Ryerson University, 350 Victoria St., Toronto, Canada

    Deborah I. Fels, S. Fatima Lakha, Carly B. Holtzman, Margot Whitfield & Peter Pennefather

  2. York University, Toronto, Canada

    Carly B. Holtzman & Alamgir Khandwala

  3. gDial Inc., Toronto, Canada

    West Suhanic & Peter Pennefather

Authors
  1. Deborah I. Fels
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  2. S. Fatima Lakha
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  3. Carly B. Holtzman
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  4. Alamgir Khandwala
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  5. Margot Whitfield
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  6. West Suhanic
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  7. Peter Pennefather
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Corresponding author

Correspondence to Deborah I. Fels .

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Editors and Affiliations

  1. Johannes Kepler University Linz, Linz, Austria

    Klaus Miesenberger

  2. National and Kapodistrian University of Athens, Athens, Greece

    Georgios Kouroupetroglou

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© 2018 Springer International Publishing AG, part of Springer Nature

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Fels, D.I. et al. (2018). Videobooking: A Person-Centred Record of Living with Chronic Conditions and Associated Disabilities. In: Miesenberger, K., Kouroupetroglou, G. (eds) Computers Helping People with Special Needs. ICCHP 2018. Lecture Notes in Computer Science(), vol 10897. Springer, Cham. https://doi.org/10.1007/978-3-319-94274-2_72

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  • DOI: https://doi.org/10.1007/978-3-319-94274-2_72

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  • Publisher Name: Springer, Cham

  • Print ISBN: 978-3-319-94273-5

  • Online ISBN: 978-3-319-94274-2

  • eBook Packages: Computer ScienceComputer Science (R0)

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