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PROMs and Patient Education

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Patient Reported Outcome Measures in Rheumatic Diseases

Abstract

Patient education is a core activity in the management of inflammatory arthritic conditions. However, it may be challenging to decide which educational approach is most appropriate to fit with the individual patient’s needs. This is in parallel with the new trend of empowering patients, providing them with the environment to develop the skills, confidence, and knowledge to move from being a passive recipient of care to an active partner in their own healthcare. The scope of patient-reported outcome measures (PROMs) has gone beyond disease activity assessment and moved toward a dynamic role in the evaluation of the impact of the disease on the patients’ lives and their educational needs to enable them to cope with their illness. This chapter discusses how PROMs can help to deliver an educational program tailored to the patient’s needs, assessing its outcomes as well as identifying new targets to facilitate patients’ empowerment.

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Author information

Authors and Affiliations

  1. Department of Rheumatology, North Middlesex University Hospital, Wilbury Way, London, N18 1BX, UK

    Deborah Palmer Diploma Rheumatology Nursing

  2. School of Healthcare, University of Leeds, Baines Wing, Leeds, West Yorkshire, LS2 9JT, UK

    Mwidimi Ndosi PhD, MSc, BSc (Hons), RN

Authors
  1. Deborah Palmer Diploma Rheumatology Nursing
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  2. Mwidimi Ndosi PhD, MSc, BSc (Hons), RN
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Corresponding author

Correspondence to Deborah Palmer Diploma Rheumatology Nursing .

Editor information

Editors and Affiliations

  1. Honorary Senior Clinical Lecturer, King’s College London, London, United Kingdom

    Yasser El Miedany

Appendices

Appendix 1: Multidimensional Questionnaire for Patient-Reported Outcome Measures: Arthritis

figure afigure a

Reprinted with permission from El Miedany Y, El Gaafary M, Youssef SS, Palmer D. Incorporating patient-reported outcome measures in clinical practice: development and validation of a questionnaire for inflammatory arthritis. Clin Exp Rheumatol 2010; 28(5): 734–744.

Appendix 2: Patient-Reported Outcome Measures for Spondyloarthritis (AS, Psoriasis, IBD)

figure bfigure b

Reprinted with permission from El Miedany Y, El Gaafary M, Youssef S, Palmer D. Towards a multidimensional patient-reported outcome measures assessment: development and validation of a questionnaire for patients with ankylosing spondylitis/spondyloarthritis. Joint Bone Spine 2010; 77(6): 575–581.

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Palmer, D., Ndosi, M. (2016). PROMs and Patient Education. In: El Miedany, Y. (eds) Patient Reported Outcome Measures in Rheumatic Diseases. Springer, Cham. https://doi.org/10.1007/978-3-319-32851-5_16

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  • DOI: https://doi.org/10.1007/978-3-319-32851-5_16

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