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Barriers to Care

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Health Care for People with Intellectual and Developmental Disabilities across the Lifespan

Abstract

Access to health care has long been a source of inequities for people with intellectual and developmental disabilities (IDD). People with IDD in the United States are much more likely than the general public to depend on publicly funded health care (primarily through Medicaid and Medicare) rather than private insurance, which may limit access to care and health outcomes. However, individuals with IDD with comprehensive insurance also experience barriers to care and poorer health outcomes than the general population. Recommended solutions include better access to preventative health screenings, better monitoring and treatment for chronic conditions common in the general population such as diabetes and hypertension, improved efforts to promote health amongst adults with IDD who are aging, more attention to the needs of people with IDD not in the long-term supports and services system, and more effective inclusion of people with IDD in health and wellness programs.

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Acknowledgements

This project is funded through cooperative agreements from the Administration on Community Living, US Department of Health and Human Services # #90DN0297 with supplemental support from the National Institute on Disabilities and Rehabilitation Research, US Department of Education (Agreement No. 3002-11245-00005214). Grantees undertaking projects under government sponsorship are encouraged to express freely their findings and conclusions. Points of view or opinions do not therefore necessarily represent official AIDD or NIDRR policy.

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Authors and Affiliations

  1. Institute on Community Integration, University of Minnesota, 112 Pattee Hall, 150 Pillsbury Drive SE, Minneapolis, MN, 55455, USA

    Lynda Lahti Anderson MPH

  2. Institute on Community Integration, University of Minnesota, 214B Pattee Hall, 150 Pillsbury Dr SE, Minneapolis, MN, 55455, USA

    Sheryl A. Larson Ph.D.

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  1. Lynda Lahti Anderson MPH
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  2. Sheryl A. Larson Ph.D.
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Correspondence to Sheryl A. Larson Ph.D. .

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Editors and Affiliations

  1. Innovative Solutions for Disadvantage and Disability and Department of Pediatrics, Morehouse School of Medicine, Atlanta, GA, USA

    I. Leslie Rubin

  2. National Institute of Child Health and Human Development and Medical Services, Division for Developmental and Developmental Disabilities, Ministry of Social Affairs and Social Services, Jerusalem, Israel

    Joav Merrick

  3. Department of Pediatric and Adolescent Medicine, Western Michigan University Homer Stryker MD School of Medicine, Western Michigan University, Kalamazoo, MI, USA

    Donald E. Greydanus  & Dilip R. Patel  & 

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Anderson, L.L., Larson, S.A. (2016). Barriers to Care. In: Rubin, I.L., Merrick, J., Greydanus, D.E., Patel, D.R. (eds) Health Care for People with Intellectual and Developmental Disabilities across the Lifespan. Springer, Cham. https://doi.org/10.1007/978-3-319-18096-0_163

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  • DOI: https://doi.org/10.1007/978-3-319-18096-0_163

  • Publisher Name: Springer, Cham

  • Print ISBN: 978-3-319-18095-3

  • Online ISBN: 978-3-319-18096-0

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