Abstract
Genomic science is, and has been, driven by technological advances that have increased our ability to examine and analyze genomic variation. In turn, bioethical issues have been shaped by these advances and the data they yield and by underlying aspirations, research strategies, translation, and application activities. This entry will focus on the ethical, legal, and social issues (ELSI) of the development of genomics-based technologies and their application to human health and disease.
These authors contributed equally to the chapter. The order of first two authors was decided by coin toss.
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Further Readings
Caulfield, T., Fullerton, S. M., Ali-Khan, S. E., Arbour, L., Burchard, E. G., Cooper, R. S., Hardy, B.-J., Harry, S. M., Hyde-Lay, R., Kahn, J., Kittles, R., Koenig, B. A., Lee, S. S. J., Malinowski, M., Ravitsky, V., Sankar, P., Scherer, S. W., Séguin, B., Shickle, D., Suarez-Kurtz, G., & Daar, A. S. (2009). Race and ancestry in biomedical research: Exploring the challenges. Genome Medicine, 1, 8. doi:10.1186/gm8.
Phillips, P. W. B., & Onwuekwe, C. B. (2007). Accessing and sharing the benefits of the genomics revolution. Netherlands: Springer.
Séguin, B., Hardy, B.-J., Singer, P. A., & Daar, A. S. (2008). Genomic medicine and developing countries: Creating a room of their own. Nature Reviews Genetics, 9(6), 487–493. doi:10.1038/nrg2379
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Hardy, BJ., Khan, S.E.A., Daar, A.S. (2015). Genomics. In: ten Have, H. (eds) Encyclopedia of Global Bioethics. Springer, Cham. https://doi.org/10.1007/978-3-319-05544-2_214-2
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DOI: https://doi.org/10.1007/978-3-319-05544-2_214-2
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