Overview
- The first book to cover experiences of bone marrow transplantations between siblings as children
- Brings together top scholars from different disciplines who are confronted with surprising interview material
- Is based on an extended qualitative study with 17 families about their short-, medium- and long-term experiences
- This book is open access, which means that you have free and unlimited access
Part of the book series: Philosophy and Medicine (PHME, volume 144)
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Table of contents (16 chapters)
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Front Matter
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Introductory and Conceptual Considerations
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Front Matter
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Constructing Familial Bodies
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Front Matter
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Keywords
About this book
This open access book offers insights in short- and long-term experiences from families with bone marrow transplantations between minor siblings. It is based on the first extended qualitative study with 17 families about experiences with recent transplants and experiences with transplants up to 20 years in the past. It covers reflections of donors, recipients and other family members, as well as family interactions. Transplantation of bone marrow from one sibling to another who is ill with a blood cancer (such as Leukemia) is a life-saving therapy. Young children however are not in a position to give consent themselves. How should they be adequately included, depending to their age? Which ethical questions are raised for the parents both at the time of treatment and afterwards, and for the medical professionals in clinical and regulatory contexts? For an in-depth discussion of the findings the books brings together a group of leading scholars from the fields of bioethics,family sociology and philosophy of medicine.
Editors and Affiliations
About the editors
Christina Schües is Professor of Philosophy in the Institute for History of Medicine and Science Studies at the University of Lübeck, and also adjunct Professor of Philosophy in the Institute of Philosophy and Sciences of Art at Leuphana University of Lüneburg. Coming from classical and post-classical phenomenology she is especially interested at the interface between epistemology, anthropology, and political ethics. Her research interests concern the relationality of the human condition in light of biomedical practices and anthropo-technologies; thereby, her focus includes the politics of the body, the power of time, and peace studies.
Christoph Rehmann-Sutter is Professor of Theory and Ethics in the Biosciences at the University of Lübeck in Germany and honorary professor of philosophy at the University of Basel, Switzerland. He has widely published in philosophy and ethics of biomedicine. Research interests include philosophical foundations of bioethics and phenomenological philosophy of biology. With a hermeneutic approach to ethics and often with qualitative empirical methods, he has been working about ethical issues of genetic engineering, of prenatal genetics, transplantation, stem cell medicine and palliative care, currently also on the ethics of climate change.
Martina Jürgensen (PhD) is a sociologist at the University of Lübeck. She has broad expertise from a series of projects in the field of medical sociology, health services research, childhood- and family studies, and qualitative methodology. Her current research focuses on children with diversity of sexual development (DSD). She was lead researcher in the project "Stem cell transplantation between siblings”.
Madeleine Herzog is a medical anthropologist and practicing relationship and sex therapist. Her research interests include anthropology of family and kinship, medical anthropology, sociology and anthropology of the body and of emotions, and praxeology. She was researcher in the project "Stem cell transplantation between siblings”.
Bibliographic Information
Book Title: Stem Cell Transplantations Between Siblings as Social Phenomena
Book Subtitle: The Child’s Body and Family Decision-making
Editors: Christina Schües, Christoph Rehmann-Sutter, Martina Jürgensen, Madeleine Herzog
Series Title: Philosophy and Medicine
DOI: https://doi.org/10.1007/978-3-031-04166-2
Publisher: Springer Cham
eBook Packages: Religion and Philosophy, Philosophy and Religion (R0)
Copyright Information: The Editor(s) (if applicable) and The Author(s) 2022
Hardcover ISBN: 978-3-031-04165-5Published: 02 July 2022
Softcover ISBN: 978-3-031-04168-6Published: 02 July 2022
eBook ISBN: 978-3-031-04166-2Published: 01 July 2022
Series ISSN: 0376-7418
Series E-ISSN: 2215-0080
Edition Number: 1
Number of Pages: VII, 279
Number of Illustrations: 1 b/w illustrations
Topics: Philosophy of Medicine, Theory of Medicine/Bioethics, Medical Sociology