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Palliative Care During a Pandemic

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Palliative Care in Lung Disease

Part of the book series: Respiratory Medicine ((RM))

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Abstract

In this chapter, we address the timely and critical issue of palliative care delivery during pandemics, highlighting the relevance of palliative care in lung disease. We begin with an overview of previous pandemics from the recent past, identifying challenges to palliative care delivery and reviewing potential solutions. Using Downar and Etkind’s modified palliative care Surge Framework, we describe challenges to palliative care delivery related to the “system”, “stuff”, “staff”, and “space” domains using examples from the Severe Acute Respiratory Syndrome (SARS)-CoV-2 virus pandemic, a respiratory pathogen with particular relevance to patients with chronic lung diseases. We next examine how pandemics may upend patient autonomy and then highlight symptomatic management approaches and ethical considerations to ensure palliative-related principles are accessible to a wide group of providers during a pandemic. We also address the increased burdens faced by family caregivers and suggest strategies for healthcare providers to continue to assess their coping and resilience during such particularly trying times. We conclude with a discussion about palliative communication and the need to advance shared decision-making as a means of mitigating the complexities that arise in lung disease care under pandemic conditions.

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Authors and Affiliations

  1. Yale School of Nursing, New Haven, CT, USA; Palliative Care Service, VA Connecticut Healthcare System, West Haven, CT, USA

    Shelli Feder

  2. New York University Rory Meyers College of Nursing, New York, NY, USA

    Dena Schulman-Green

  3. Department of Medicine, Section of Pulmonary, Critical Care and Sleep Medicine (PCCSM), VA Connecticut Healthcare System, West Haven, CT, USA

    Kathleen M. Akgün

  4. Department of Internal Medicine, Section of PCCSM, Yale University School of Medicine, New Haven, CT, USA

    Kathleen M. Akgün

Authors
  1. Shelli Feder
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  2. Dena Schulman-Green
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  3. Kathleen M. Akgün
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Correspondence to Kathleen M. Akgün .

Editor information

Editors and Affiliations

  1. College of Nursing, Medical University of South Carolina, Charleston, SC, USA

    Kathleen O. Lindell

  2. Department of Medicine, Johns Hopkins University, Baltimore, MD, USA

    Sonye K. Danoff

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Feder, S., Schulman-Green, D., Akgün, K.M. (2021). Palliative Care During a Pandemic. In: Lindell, K.O., Danoff, S.K. (eds) Palliative Care in Lung Disease. Respiratory Medicine. Humana, Cham. https://doi.org/10.1007/978-3-030-81788-6_18

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