Abstract
Through an exploration of (a) the origins and evolution of co-design and (b) the recent application of related practices in the context of improving the quality of healthcare services we argue for closer attention to be paid to such activities within broader co-production processes. We draw a distinction between additive and transformative forms of co-production and highlight how co-design itself can be a transformative process. We suggest that contemporary studies of Experience-based Co-design in the healthcare sector may offer insights for the nature and impact of co-production in other sectors. These could particularly inform appropriate and robust forms of both summative and formative evaluation as well as highlighting potential benefits and risks from ‘scaling up’ co-design as an intervention to enhance the delivery of public services.
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References
Archer, L.B. (1965). Systematic method for designers. London: Council of Industrial Design.
Arnold, J.E. (1959). Creative engineering. In W.J. Clancey (Ed.), Creative engineering: Promoting innovation by thinking differently. Stanford Digital Repository. http://purl.stanford.edu/jb100vs5745. Accessed 3 September 2019.
Batalden, P. (2018). Getting more health from healthcare: Quality improvement must acknowledge patient coproduction—An essay by Paul Batalden. BMJ, 362, k3617.
Bate, S.P., & Robert, G. (2006). Experience-based design: From redesigning the system around the patient to co-designing services with the patient. BMJ Quality & Safety, 15(5), 307–310.
Bate, S.P., & Robert, G. (2007). Bringing user experience to health care improvement: The concepts, methods and practices of experience-based design. Oxford: Radcliffe Publishing.
Björgvinsson, E., Ehn, P., & Hillgren, P.A. (2012) Agnostic participatory design: Working with marginalized social movements. Co-design Journal of Co-creation in Design and the Arts, 8(2–3), 127–144.
Bovaird, T., & Loeffler, E. (2013). We’re all in this together: Harnessing user and community co-production of public outcomes. In C. Staite (Ed.), Making sense of the future: Do we need a new model of public services? Birmingham: INLOGOV.
Bowen, S., McSeveny, K., Lockley, E., et al. (2013). How was it for you? Experiences of participatory design in the UK health service. CoDesign, 9(4), 230–246.
Brandsen, T., Steen, T., & Verschuere, B. (Eds.) (2018). Co-production and cocreation: Engaging citizens in public services. New York, NY: Routledge.
Buchanan, R. (1992). Wicked problems in design thinking. Design Issues, 8(2), 5–21.
Burns, C., Cottam, H., Vanstone C., et al. (2006). RED paper 02: Transformation design. London: Design Council.
Cahn, E.S. (2000). No more throw-away people: The co-production imperative. Washington, DC: Essential Books.
Chamberlain, P., Mawson, S., & Wolstenholme, D. (2017). Service design in chronic health. In E. Tsekleves & R. Cooper (Eds.), Design for health. London: Routledge.
Clarke, D., Jones, F., Harris, R., et al. (2017). What outcomes are associated with developing and implementing co-produced interventions in acute healthcare settings? A rapid evidence synthesis. BMJ Open, 7, e014650. https://doi.org/10.1136/bmjopen-2016-014650.
Cottam, H., & Leadbeater, C. (2004). RED paper 01 health: Co-creating services. London: Design Council.
Craig, P., Dieppe, S., Macintyre, S., et al. (2008). Developing and evaluating complex interventions: The new Medical Research Council guidance. British Medical Journal, 337, 1655.
Cross, N. (1982). Designerly ways of knowing. Design Studies, 3(4), 221–227.
Design Council. (2019). What is the framework for innovation? Design Council’s evolved Double Diamond. https://www.designcouncil.org.uk/news-opinion/what-framework-innovation-design-councils-evolved-double-diamond. Accessed 3 September 2019.
Design for Health & Wellbeing Lab. (2019). https://www.dhwlab.com/. Accessed 4 September 2019.
Di Russo, S. (2012). A brief history of design thinking: How design thinking came to ‘be’. Blog posted 8 June 2012. https://ithinkidesign.wordpress.com/page/1/. Accessed 3 September 2019.
Donetto, S., Pierri, P., Tsianakas, V., et al. (2015). Experience-based co-design and healthcare improvement: Realising participatory design in the public sector. The Design Journal, 18(2), 227–248.
Drew, C. (2019). The Double Diamond, 15 years on. Blog posted 2 September 2019. https://medium.com/design-council/the-double-diamond-15-years-on-8c7bc594610e. Accessed 3 September 2019.
Dubberly, H. (2004). How do you design? A compendium of models. San Francisco, CA: Dubberly Design Office. Available at: http://www.dubberly.com/wp-content/uploads/2008/06/ddo_designprocess.pdf. Accessed 3 September 2019.
Dudau, A., Glennon, R., & Verschuere, B. (2019). Following the yellow brick road? (Dis)enchantment with co-design, co-production and value co-creation in public services. Public Management Review, 21(11), 1577–1594.
Freire, P. (1968). Pedagogy of the oppressed. New York: Seabury Press.
Glynos, J., & Speed, E. (2012). Varieties of co-production in public services: Time banks in a UK health policy context. Critical Policy Studies, 6(4), 402–433.
Gregory, J. (2003). Scandinavian approaches to participatory design. International Journal of Engineering Education, 19(1), 62–74.
Grocott, P., Blackwell, R., Currie, C., et al. (2012). Co-producing novel wound care products for epidermolysis bullosa; An empirical case study of the use of surrogates in the design and prototype development process. International Wound Journal, 10, 265–273.
Grocott, P., Graham, T., Blackwell, R., et al. (2013). Individualising wound care research: The Woundcare for Epidermolysis Bullosa Project. Wounds UK, 9(3), 23–32.
Health Foundation. (2011). Evidence scan: Improvement Science. London: Health Foundation.
HELIX Centre. (2019). https://helixcentre.com/our-work. Accessed 4 September 2019.
Holmlid, S. (2009). Participative, co-operative, emancipatory: From participatory design to service design. First Nordic conference on Service Design and Service Innovation. Oslo, 24–26 November 2009. Available at: http://servdes.org/pdf/2009/holmlid.pdf. Accessed 3 September 2019.
Johansson-Sköldberg, U., Woodilla, J., & Çetinkaya, M. (2013). Design thinking: Past, present and possible futures. Creativity & Innovation Management, 22(2), 121–145.
Jones, F., Gombert, K., Honey, S., et al. (in press). CREATE: Collaborative Rehabilitation Environments in Acute STrokE: An Experience-Based Co-Design Approach (EBCD) to improving activity experiences of stroke patients in four hospitals in England. Health Services and Delivery Research Journal.
Lab4Living. (2019). https://lab4living.org.uk/about/. Accessed 4 September 2019.
Langley, J., Wolstenholme, D., & Cooke, J. (2018). ‘Collective making’ as knowledge mobilisation: The contribution of participatory design in the co-creation of knowledge in healthcare. BMC Health Services Research, 18.https://doi.org/10.1186/s12913-018-3397-y.
Locock, L., Robert, G., Boaz, A., et al. (2014). Testing accelerated experience-based co-design: A qualitative study of using a national archive of patient experience narrative interviews to promote rapid patient-centred service improvement. Health Services and Delivery Research Journal, 2(4), 1–150.
Loeffler, E., & Bovaird, T. (2016). User and community co-production of public services: What does the evidence tell us? International Journal of Public Administration, 48, 1–14.
Macdonald, A. (2017). Products: Negotiating design within sceptical territory: Lessons for healthcare. In E. Tsekleves & R. Cooper (Eds.), Design for health. London: Routledge.
Mendel, P., Davis, L.M., Turner, S., et al. (2019). Co-Design of Services for Health and Reentry (CO-SHARE): An Experience-Based Co-Design (EBCD) Pilot Study with Individuals Returning to Community from Jail and Service Providers in Los Angeles County. Santa Monica, CA: RAND Corporation. https://www.rand.org/pubs/research_reports/RR2844.html. Accessed 3 September 2019.
Meroni, A., & Sangiorgi, D. (2011). Design for services. Farnham: Gower.
Murray, R., Burns, C., Vanstone, C., et al. (2005). RED report 01: Open health. London: The Design Council.
Norman, D. (2004). Emotional design: Why love (or hate) everyday things. New York: Barnes & Noble.
Norman, D., & Draper, S. (Eds.) (1986). User centred system design: New perspectives on human-computer interaction. Boca Raton, FL: CRC Press.
Osborne, S.P., Radnor, Z., & Strokosch, K. (2016). Co-production and the co-creation of value in public services: A suitable case for treatment? Public Management Review, 18, 639–653.
Ostrom, E. (1996). Crossing the great divide: Coproduction, synergy, and development. World Development, 24(6), 1073–1087.
Ostrom, E., & Whitaker, G. (1973). Does local community control of police make a difference? Some preliminary findings. American Journal of Political Science, 17(1), 48–76.
Ostrom, E., Parks, R.B., Whitaker, G.P., et al. (1978). The public service production process: A framework for analyzing police services. Policy Studies Journal, 7, 381–389.
Palmer, V., Weavell, W., Callander, R., et al. (2018). The participatory Zeitgeist—Identification of mechanisms of change and the development of an explanatory theoretical model for a new era of healthcare quality improvement. Medical Humanities, 45, 247–257.
Pfannstiel, M.A., & Rasche, C. (Eds.) (2019). Service design and service thinking in healthcare and hospital management: Theory, concepts, practice. Cham, Switzerland: Springer.
Point of Care Foundation. (2019). EBCD: Experience-based co-design toolkit. https://www.pointofcarefoundation.org.uk/resource/experience-based-co-design-ebcd-toolkit/. Accessed 3 September 2019.
Prahalad, C.K., & Ramaswamy, V. (2000). Co-creation experiences: The next practice in value creation. Journal of Interactive Marketing, 18(3), 5–14.
Prendiville, A. (2019). Service design methods: Knowledge co-production in health and social care. In M.A. Pfannstiel & C. Rasche. (Eds.), Service design and service thinking in healthcare and hospital management: Theory, concepts, practice. Cham, Switzerland: Springer.
Reason, P., & Bradbury, H. (Ed.) (2001). The SAGE handbook of action research: Participative inquiry and practice. 1st Edition. London: Sage.
Robert, G., Cornwell, J., Locock, L., et al. (2015). Patients and staff as co-designers of health care services. British Medical Journal, 350, g7714.
Sangiorgi, D., & Prendiville, A. (Eds.) (2017). Designing for service: Key issues and new directions. London: Bloomsbury.
Sangiorgi, D., Prendiville, A., & Ricketts, A. (2014). Mapping and developing service design research in the United Kingdom. London: University of the Arts London.
Schuler, D., & Namioka, A. (Eds.) (1993). Participatory design: Principles and practice. Boca Raton, FL: CRC Press.
Simon, H.A. (1969). The sciences of the artificial. Cambridge, MA: MIT Press.
Siodmok, A. (2014). Designer policies. RSA Journal, 4, 28–29.
Springham, N., & Robert, G. (2015). Experience based co-design reduces formal complaints on an acute mental health ward. BMJ Open Quality, 4.https://doi.org/10.1136/bmjquality.u209153.w3970.
Thomson, A., Rivas, C., & Giovanni, G. (2015). Multiple sclerosis outpatient future groups: Improving the quality of participant interaction and ideation tools within service improvement activities. BMC Health Services Research, 15, 105.
Tsekleves, E., & Cooper, R. (2017). Design for health. London: Routledge.
Tsianakas, V., Robert, G., Richardson, A., et al. (2015). Enhancing the experience of carers in the chemotherapy outpatient setting: An exploratory randomised controlled trial to test the impact, acceptability and feasibility of a complex intervention co-designed by carers and staff. Supportive Care in Cancer, 23(10), 3069–3080.
Van Deventer, C., Robert, G., & Wright, A. (2016). Improving childhood nutrition and wellness in South Africa: Involving mothers/caregivers of malnourished or HIV positive children and health care workers as co-designers to enhance a local quality improvement intervention. BMC Health Services Research, 16, 358.
Voorberg, W.H., Bekkers, V.J.J.M., & Tummers, L.G. (2015). A systematic review of co-creation and co-production: Embarking on the social innovation journey. Public Management Review, 17, 1333–1357.
Williams, O., Robert, G., Martin, G., et al. (2020). Is co-production just really good PPI? Making sense of patient and public involvement and co-production networks. In M. Bevir, & J. Waring (Eds.), Decentering Healthcare Networks. London: Palgrave.
Williams, O., Sarre, S., Papoulias, C., et al. (2020). Lost in the shadows: Reflections on the dark side of co-production. Health Research Policy & Systems, 18, 1–20.
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Robert, G., Donetto, S., Williams, O. (2021). Co-designing Healthcare Services with Patients. In: Loeffler, E., Bovaird, T. (eds) The Palgrave Handbook of Co-Production of Public Services and Outcomes. Palgrave Macmillan, Cham. https://doi.org/10.1007/978-3-030-53705-0_16
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