Skip to main content
SpringerLink
Log in

Perspectives on Hospice and Palliative Care in the United States

  • Chapter
  • First Online:
Hospice Palliative Home Care and Bereavement Support

Abstract

The need for hospice and palliative care programs is increasing as the population ages and people are living with multiple chronic diseases for which there is no cure. In the United States, hospice and palliative care provide a similar array of services, although palliative care does not require a certain prognosis or that patients discontinue curative treatment. The number of professionals trained in hospice and palliative care will need to expand to keep up with increasing demand. Current models of payment and care delivery will also need to adapt. This chapter provides background on the development of hospice and palliative care in the United States and also discusses current issues and potential solutions to the increasing need for these services.

This is a preview of subscription content, log in via an institution to check access.

Access this chapter

Log in via an institution
Chapter
USD 29.95
Price excludes VAT (USA)
  • Available as PDF
  • Read on any device
  • Instant download
  • Own it forever
eBook
USD 54.99
Price excludes VAT (USA)
  • Available as EPUB and PDF
  • Read on any device
  • Instant download
  • Own it forever
Softcover Book
USD 69.99
Price excludes VAT (USA)
  • Compact, lightweight edition
  • Dispatched in 3 to 5 business days
  • Free shipping worldwide - see info

Tax calculation will be finalised at checkout

Purchases are for personal use only

Institutional subscriptions

References

  1. National Hospice and Palliative Care Organization. History of Hospice Care 2016. https://www.nhpco.org/history-hospice-care.

  2. Kubler-Ross E, Wessler S, Avioli LV. On death and dying. JAMA. 1972;221(2):174–9.

    Article  CAS  Google Scholar 

  3. National Hospice and Palliative Care Organization. Facts and figures: hospice care in America. Alexandria, Virginia: NHPCO; 2018.

    Google Scholar 

  4. National Hospice and Palliative Care Organization. Key Hospice Messages n.d. https://www.nhpco.org/press-room/key-hospice-messages.

  5. Shalev A, Phongtankuel V, Kozlov E, Shen MJ, Adelman RD, Reid MC. Awareness and misperceptions of hospice and palliative care: a population-based survey study. Am J Hosp Palliat Care. 2018;35(3):431–9.

    Article  Google Scholar 

  6. May P, Normand C, Cassel JB, Del Fabbro E, Fine RL, Menz R, et al. Economics of palliative care for hospitalized adults with serious illness: a meta-analysis. JAMA Intern Med. 2018;178(6):820–9.

    Article  Google Scholar 

  7. Institute of Medicine. Dying in America: improving quality and honoring individual preferences near the end of life, vol. 638. Washington, DC: The National Academies Press; 2015.

    Google Scholar 

  8. National Hospice and Palliative Care Organization. The hospice Medicare benefit. Alexandria, Virginia: NHPCO; 2015. https://www.nhpco.org/sites/default/files/public/communications/Outreach/The_Medicare_Hospice_Benefit.pdf

  9. Yadav K, Gabler N, Cooney E, Kent S, Kim J, Herbst N, et al. Approximately one in three US adults completes any type of advance directive for end-of-life care. Health Aff (Millwood). 2017;36(7):1244–51.

    Article  Google Scholar 

  10. Cagle JG, Van Dussen DJ, Culler KL, Carrion I, Hong S, Guralnik J, et al. Knowledge about hospice: exploring misconceptions, attitudes, and preferences for care. Am J Hosp Palliat Care. 2016;33(1):27–33.

    Article  Google Scholar 

  11. Bakitas MA, Tosteson TD, Li Z, Lyons KD, Hull JG, Li Z, et al. Early versus delayed initiation of concurrent palliative oncology care: patient outcomes in the ENABLE III randomized controlled trial. J Clin Oncol. 2015;33(13):1438–45.

    Article  Google Scholar 

  12. Center to Advance Palliative Care. Palliative Care Continues Its Annual Growth Trend, According to Latest Center to Advance Palliative Care Analysis. 2018. https://www.capc.org/about/press-media/press-releases/2018-2-28/palliative-care-continues-its-annual-growth-trend-according-latest-center-advance-palliative-care-analysis/.

  13. LoPresti MA, Dement F, Gold HT. End-of-life care for people with Cancer from ethnic minority groups: a systematic review. Am J Hosp Palliat Care. 2016;33(3):291–305.

    Article  Google Scholar 

  14. McCormick AJ. Self-determination, the right to die, and culture: a literature review. Soc Work. 2011;56(2):119–28.

    Article  Google Scholar 

  15. Fine RL. From Quinlan to Schiavo: medical, ethical, and legal issues in severe brain injury. Proc (Bayl Univ Med Cent). 2005;18(4):303–10.

    Article  Google Scholar 

  16. Baxter A (2018) Top payment scrutiny areas in hospice care. https://homehealthcarenews.com/2018/05/top-payment-scrutiny-areas-in-hospice-care/.

  17. Burhenn P, Olausson J, Villegas G, Kravits K. Guided imagery for pain control. Clin J Oncol Nurs. 2014;18(5):501–3.

    Article  Google Scholar 

  18. Running A, Turnbeaugh E. Oncology pain and complementary therapy. Clin J Oncol Nurs. 2011;15(4):374–9.

    Article  Google Scholar 

  19. Hopkins Hollis AS. Acupuncture as a treatment modality for the management of cancer pain: the state of the science. Oncol Nurs Forum. 2010;37(5):E344–8.

    Article  Google Scholar 

  20. Castro F (2017) Telemedicine and hospice care, what is telehospice? https://athenetelehealth.com/telemedicine-hospice-care-telehospice/.

  21. The Watershed Group (2018) 5 trends to watch in hospice in 2018. http://www.thewatershedgroup.com/5-trends-to-watch-in-hospice-in-2018/.

  22. National Hospice and Palliative Care Organization. Scrutiny about hospice general inpatient care: information for providers. Alexandria, Virginia: NHPCO; 2017.

    Google Scholar 

  23. American Academy of Hospice and Palliative Medicine. Medicare program; FY 2019 hospice wage index and payment rate update and hospice quality reporting requirements. Final rule. Fed Regist. 2018;83(151):38622–55.

    Google Scholar 

  24. Etkind SN, Bone AE, Gomes B, Lovell N, Evans CJ, Higginson IJ, et al. How many people will need palliative care in 2040? Past trends, future projections, and implications for services. BMC Med. 2017;15(1):102.

    Article  CAS  Google Scholar 

  25. Murray SA, Kendall M, Mitchell G, Moine S, Amblas-Novellas J, Boyd K. Palliative care from diagnosis to death. BMJ. 2017;356:j878.

    Article  Google Scholar 

  26. Ferrell BR, Twaddle ML, Melnick A, Meier DE. National Consensus Project Clinical Practice Guidelines for quality palliative care guidelines, 4th edition. J Palliat Med. 2018;

    Google Scholar 

  27. Kaplan B. Comfort care for cancer patients: exploring distinctions between hospice care and palliative care. Oncol Nur Adv. 2010:42–3.

    Google Scholar 

  28. Santa-Emma P, Thomas N, Barclay J, Blackhall L. Current trends in palliative care: a briefing from the palliative care leadership centers. Charlottesville: PCLC at University of Virginia Health System; 2017.

    Google Scholar 

  29. Tuckson RV, Edmunds M, Hodgkins ML. Telehealth. N Engl J Med. 2017;377(16):1585–92.

    Article  Google Scholar 

  30. Gomes B. Palliative care: if it makes a difference, why wait. J Clin Oncol. 2015;33(13):1420–1.

    Article  Google Scholar 

  31. Sudore RL, Lum HD, You JJ, Hanson LC, Meier DE, Pantilat SZ, et al. Defining advance care planning for adults: a consensus definition from a multidisciplinary Delphi panel. J Pain Symptom Manag. 2017;53(5):821–32.

    Article  Google Scholar 

Download references

Author information

Authors and Affiliations

  1. Mayo Clinic, Jacksonville, FL, USA

    Cindy Tofthagen

  2. H. Lee Moffitt Cancer and Research Center, Tampa, FL, USA

    Ann Guastella & Jessica Latchman

Authors
  1. Cindy Tofthagen
    View author publications

    You can also search for this author in PubMed Google Scholar

  2. Ann Guastella
    View author publications

    You can also search for this author in PubMed Google Scholar

  3. Jessica Latchman
    View author publications

    You can also search for this author in PubMed Google Scholar

Corresponding author

Correspondence to Cindy Tofthagen .

Editor information

Editors and Affiliations

  1. College of Nursing, University of Saskatchewan, Saskatoon, SK, Canada

    Lorraine Holtslander

  2. College of Nursing, University of Saskatchewan, Saskatoon, SK, Canada

    Shelley Peacock

  3. College of Nursing, University of Saskatchewan, Saskatoon, SK, Canada

    Jill Bally

Rights and permissions

Reprints and permissions

Copyright information

© 2019 Springer Nature Switzerland AG

About this chapter

Check for updates. Verify currency and authenticity via CrossMark

Cite this chapter

Tofthagen, C., Guastella, A., Latchman, J. (2019). Perspectives on Hospice and Palliative Care in the United States. In: Holtslander, L., Peacock, S., Bally, J. (eds) Hospice Palliative Home Care and Bereavement Support. Springer, Cham. https://doi.org/10.1007/978-3-030-19535-9_7

Download citation

  • DOI: https://doi.org/10.1007/978-3-030-19535-9_7

  • Published:

  • Publisher Name: Springer, Cham

  • Print ISBN: 978-3-030-19534-2

  • Online ISBN: 978-3-030-19535-9

  • eBook Packages: MedicineMedicine (R0)

Publish with us

Policies and ethics

Search

Navigation