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Home Palliative Care in the United Kingdom and Europe

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Hospice Palliative Home Care and Bereavement Support
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Abstract

Palliative home care is an essential component of palliative care provision across the continent of Europe. However, the precise ways in which that care is structured and delivered are highly variable, due to differences in history, development, resources, national health priorities and culture. The United Kingdom is a case in point with each of the four component countries having its own national palliative care strategy. Nevertheless, there are common themes evident, both across the United Kingdom and across Europe, not least a drive towards greater integration and co-ordination of palliative home care services. Palliative home care in Europe is provided by a combination of specialist and non-specialist providers. Non-specialist services are most commonly provided by General Practitioners (family doctors), community nurses and other statutory or government-funded teams and individuals. Specialist services may also be centrally funded or may be provided by independent or third sector organisations. Some of the challenges facing palliative home care in Europe include increasing services to meet demand, continuously improving quality of provision and breaking down barriers that prevent some groups from receiving the care they need.

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References

  1. Office of National Statistics. Overview of the UK population. London: ONS; 2018. https://www.ons.gov.uk/peoplepopulationandcommunity/populationandmigration/populationestimates/articles/overviewoftheukpopulation/november2018.

    Google Scholar 

  2. National Palliative and End of Life Care Partnership. Ambitions for palliative and end of life care. 2015. http://endoflifecareambitions.org.uk/.

  3. Scottish Government. Strategic framework for palliative and end of life care. 2015. https://www.gov.scot/publications/strategic-framework-action-palliative-end-life-care/.

  4. Department of Health. Living matters, dying matters strategy. 2010. https://www.health-ni.gov.uk/publications/living-matters-dying-matters-strategy-2010.

  5. Welsh Government. Palliative and end of life care delivery plan. 2017. https://gov.wales/docs/dhss/publications/170327end-of-lifeen.pdf.

  6. Thomas K, Wilson JA And the GSF team. The gold standards framework proactive identification guidance. 6th ed. 2016. https://www.goldstandardsframework.org.uk/cd-content/uploads/files/PIG/NEW%20PIG%20-%20%20%2020.1.17%20KT%20vs17.pdf.

  7. The University of Edinburgh. Supportive and palliative care indicators tool (SPICT). 2018. https://www.spict.org.uk/.

  8. The Regulation and Quality Improvement Authority. Review of the implementation of the palliative and end of life care strategy. 2016. https://www.rqia.org.uk/RQIA/files/1c/1c349f45-1c38-49bb-aeeb-e6a363f4c5ad.pdf.

  9. Scottish Government. Strategic commissioning of palliative and end of life care by integration authorities. 2018. https://www.gov.scot/binaries/content/documents/govscot/publications/guidance/2018/05/strategic-commissioning-palliative-end-life-care-integration-authorities/documents/00535146-pdf/00535146-pdf/govscot%3Adocument.

  10. National Council for Palliative Care. Advance decisions to refuse treatment: a guide for health and social care professionals. 2013. http://www.ncpc.org.uk/publication/advance-decisions-refuse-treatment-guide-health-and-social-care-professionals.

  11. Mason B, Boyd K, Steyn J, Kendall M, Macpherson S, Murray SA. Computer screening for palliative care needs. Br J Gen Pract. 2018; https://doi.org/10.3399/bjgp18X695729.

    Article  Google Scholar 

  12. Gomes B, Calanzani N, Curiale V, McCrone P, Higginson IJ. Effectiveness and cost-effectiveness of home palliative care services for adults with advanced illness and their caregivers. Cochrane Database Syst Rev. 2013;(6):Art. No.: CD007760. https://doi.org/10.1002/14651858.CD007760.pub2.

  13. Joint Specialist Committee for Palliative Medicine for the Royal College of Physicians, the Specialty Advisory Committee for Palliative Medicine from the JRCPTB and the Association of Palliative Medicine. Night, weekend and bank holiday specialist palliative care services. 2017. https://apmonline.org/wp-content/uploads/2018/02/Specialist-Palliative-Care-night-weekend-and-bank-holiday-working.pdf.

  14. Stevens E, Martin CR, White CA. The outcomes of palliative day services: a systematic review. Palliat Med. 2011;25:153–69. https://doi.org/10.1177/0269216310381796.

    Article  PubMed  Google Scholar 

  15. Stevens, E. A critical investigation of the outcomes of the traditional model of specialist palliative day services on specific components of attendee quality of life, wellbeing and mood: a mixed methods study. 2018. University of the West of Scotland, PhD thesis.

    Google Scholar 

  16. Butler C, Brigden C, Gage H, Williams P, Holdsworth L, Greene K, Wee B, Barclay S, Wilson P. Optimum hospice at home services for end-of-life care: protocol of a mixed methods study employing realist evaluation. BMJ Open. 2018;8:e021192. https://doi.org/10.1136/bmjopen-2017-021192.

    Article  PubMed  PubMed Central  Google Scholar 

  17. Wilkinson S, Perry R, Blanchard K, Linsell L. Effectiveness of a three-day communication skills course in changing nurses’ communication with cancer/palliative care patients: a randomised controlled trial. Palliat Med. 2008;22:365–75. https://doi.org/10.1177/0269216308090770.

    Article  CAS  PubMed  Google Scholar 

  18. Yorkshire and Humber Palliative and End of Life Care Groups. A guide to symptom management in palliative care. 2016. https://www.yorkhospitals.nhs.uk/seecmsfile/?id=819.

  19. NHS Education Scotland. Palliative and end of life care: a framework to support the learning and development needs of the health and social service workforce in Scotland: enriching and improving experience. 2017. https://learn.nes.nhs.scot/2452/palliative-and-end-of-life-care-enriching-and-improving-experience/palliative-and-end-of-life-care-enriching-and-improving-experience.

  20. Richard M-S. Jeanne Garnier - a pioneer of palliative care. In: Salamagne M-H, Thominet P, editors. Accompaniment: thirty years of palliative care in France. Paris: Demopolis Quaero; 2016. p. 47–56.

    Google Scholar 

  21. Palliative GJ-M. Home care - from first experiences to conceptualization. In: Salamagne M-H, Thominet P, editors. Accompaniment: thirty years of palliative care in France. Paris: Demopolis Quaero; 2016. p. 47–56.

    Google Scholar 

  22. O’Brien T, Clark D. A national plan for palliative care – the Irish experience. In: Ling J, O'Síoráin L, editors. Palliative care in Ireland. Maidenhead: Open University Press; 2005. p. 3–18.

    Google Scholar 

  23. Deutsche Gesellschaft für Palliativmedizin (German Association for Palliative Medicine) Focussing on patients and families. Berlin. Deutsche Gesellschaft für Palliativmedizin. 2018. https://www.dgpalliativmedizin.de/images/170530_FlyerMadrid_engl_online.pdf. Accessed 1 Mar 2019.

  24. The Economist Intelligence Unit. The 2015 quality of death index - ranking palliative care across the world. A report by The economist intelligence unit, commissioned by the Lien foundation. London: The Economist Intelligence Unit Ltd; 2015.

    Google Scholar 

  25. Radbruch L, Ling J, Hegedus K, Larkin P. European association for palliative care: forging a vision of excellence in palliative care in central and eastern European and former Soviet Union countries. J Pain Symptom Mgmt. 2018:55(2S) S117–S120. https://www.jpsmjournal.com/article/S0885-3924(17)30363-9/pdf. Accessed 1 Mar 2019.

    Article  Google Scholar 

  26. Mosoiu D, Mitrea N, Dumitrescu M. Palliative care in Romania. J Pain Symptom Mgmt. 2018:55(2S) S67-S75. https://www.jpsmjournal.com/article/S0885-3924%2817%2930384-6/pdf. Accessed 1 Mar 2019.

    Article  Google Scholar 

  27. Emuk Y, Naz I. The current situation of palliative care in turkey. J Can. Policy. 2017;13(9):33–7.

    Article  Google Scholar 

  28. Centeno C, Lynch T, Garralda E, Carrasco JM, Guillen-Grima F, Clark D. Coverage and development of specialist palliative care services across the World Health Organisation European region (2005-2012): results from a European Association for Palliative Care Task Force survey of 53 countries. Palliat Med. 2016;30(4):351–62.

    Article  Google Scholar 

  29. Centeno C, Lynch T, Donea O, Rocafort J, Clark D. EAPC atlas of palliative care in Europe 2013. Full edition. Milan: EAPC Press; 2013.

    Google Scholar 

  30. Council of Europe. The provision of palliative care in Europe. Council of Europe parliamentary assembly. Committee on social affairs, health and sustainable development. 2018. Document number 14657. https://barnepalliasjon.no/wp-content/uploads/2018/12/Rapport-fra-Europar%C3%A5det.pdf. Accessed 1 Mar 2019.

  31. Poulalhon C, Rotelli-Bihet L, Moine S, Fagot-Campagna A, Aubry R, Tuppin P. Use of hospital palliative care according to the place of death and disease one year before death in 2013: a French national observational study. BMC Pal Care. 2018;17(75). https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5954461/pdf/12904_2018_Article_327.pdf. Accessed 1 Mar 2019.

  32. Maetens A, Beernaert K, Deliens L, Aubry R, Radbruch L, Cohen J. Policy measures to support palliative care at home: a cross-country case comparison in three European countries. J Pain Symptom Mgmt. 2017;54(4):523–9.

    Article  Google Scholar 

  33. Özsezgin S. A journey into palliative care in Turkey: everyone has the right to live without pain. EAPC Blog - the blog of the European Association for Palliative Care. 2017. https://eapcnet.wordpress.com/2017/08/28/a-journey-into-palliative-care-in-turkey-everyone-has-the-right-to-live-without-pain/. Accessed 1 Mar 2019.

  34. Open Society Foundations. Palliative care as a human right: a fact sheet. 2016. https://www.opensocietyfoundations.org/sites/default/files/palliative-care-human-right-fact-sheet-20160218.pdf. Accessed 1 Mar 2019.

  35. Tolson D, Fleming A, Hanson E, Abreu W, Crespo ML, MacRae R, Jackson G, Hvalič Touzery S, Routasalo P, Holmerová I. Achieving prudent dementia care (palliare): an international policy and practice imperative. Intl J Int Care. 2016;16(4). https://www.ijic.org/articles/10.5334/ijic.2497/. Accessed 1 Mar 2019.

  36. Janksy M., Owusu-Boakye S, Nauck F. ‘An odyssey without receiving proper care’ – experts’ views on palliative care for patients with migration background in Germany. BMC Pal Care. 2019:18(8). https://pdfs.semanticscholar.org/056c/a20ef89a83cf066dca0b9a984df0048cc628.pdf. Accessed 1 Mar 2019.

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Stevens, E., Milligan, S. (2019). Home Palliative Care in the United Kingdom and Europe. In: Holtslander, L., Peacock, S., Bally, J. (eds) Hospice Palliative Home Care and Bereavement Support. Springer, Cham. https://doi.org/10.1007/978-3-030-19535-9_4

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  • DOI: https://doi.org/10.1007/978-3-030-19535-9_4

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