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“Please Look Beyond My Disability”

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Bioethics, Public Health, and the Social Sciences for the Medical Professions

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Abstract

In this chapter, we will explore a case involving patients with multiple sclerosis (MS). The case focuses on topics related to disability including defining disability, characterizing some aspects of the Americans with Disabilities Act (ADA), and noting how environment and disability interact. There is also consideration of issues related to treating physician-patients and of physicians with disability practicing medicine. At the conclusion of the case, learners will be able to describe the healthcare system as it relates to disability and appreciate that people with disability should not be identified by their limitations. Learners will also be able to recognize skills needed to provide high-quality care for people with disability and how those skills apply to all patients. Finally, they will be able to analyze the role of the ADA and the issues of access to care for people with disability.

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Acknowledgments

The authors and editors wish to thank Burk Jubelt, who provided expert knowledge on multiple sclerosis; Martha Wojtowycz, who provided expert knowledge on Medicare, Medicaid, and the health system; and Michael Ioerger, who provided expert knowledge related to self-other overlap and disability; as well as Rebecca Garden, for her contributions to earlier cases which inspired this chapter.

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Authors and Affiliations

  1. Department of Physical Medicine and Rehabilitation, SUNY Upstate Medical University, Syracuse, NY, USA

    Jeremy French-Lawyer

  2. Departments of Physical Medicine and Rehabilitation, Pediatrics, and Public Health and Preventive Medicine, SUNY Upstate Medical University, Syracuse, NY, USA

    Margaret A. Turk

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  1. Jeremy French-Lawyer
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  2. Margaret A. Turk
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Correspondence to Margaret A. Turk .

Editor information

Editors and Affiliations

  1. Center for Bioethics and Humanities and Department of Pediatrics, Division of Pediatric Hematology/Oncology, SUNY Upstate Medical University, Syracuse, NY, USA

    Amy E. Caruso Brown

  2. Departments of Pediatrics and Public Health and Preventive Medicine, SUNY Upstate Medical University, Syracuse, NY, USA

    Travis R. Hobart

  3. Department of Interprofessionalism, Virginia Tech Carilion School of Medicine, Roanoke, VA, USA

    Cynthia B. Morrow

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French-Lawyer, J., Turk, M.A. (2019). “Please Look Beyond My Disability”. In: Caruso Brown, A., Hobart, T., Morrow, C. (eds) Bioethics, Public Health, and the Social Sciences for the Medical Professions. Springer, Cham. https://doi.org/10.1007/978-3-030-03544-0_15

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  • DOI: https://doi.org/10.1007/978-3-030-03544-0_15

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  • Publisher Name: Springer, Cham

  • Print ISBN: 978-3-030-03543-3

  • Online ISBN: 978-3-030-03544-0

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