Abstract
Human development for children with special health care needs (CSHCN) can be approached from purely psychological/psychosocial or physiological perspectives. Nevertheless, both of these developmental perspectives are rooted in the combined genetic, epigenetic, and environmental factors that uniquely shape each individual. With advances in genomics, we are finding that every person experiences disability and special needs, whether major or minor in extent, and that childhood and adolescent physiology and behaviors derive from events in utero and even earlier in the individual’s ancestry. Therefore, we start with theories of psychosocial development, mostly nonbiological in scope, then trace back to physical development from conception to birth, and conclude with a summary of “birth defects,” that is, conditions monitored by public health systems and that arise from genetic, cell division, or environmental exposures in utero that impact later physical and psychosocial development. The ultimate goals are to illustrate Wilson’s consilience concept as applied to human development as well as contextual, biopsychosocial approaches (e.g., theInternational Classification of Functioning, Disability and Health) towards improving CSHCN life outcomes from social and community perspectives.
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Abbreviations
- CDC:
-
Centers for Disease Control and Prevention
- CSHCN:
-
Children with Special Health Care Needs
- DNA:
-
Deoxyribonucleic Acid
- DSM-IV:
-
Diagnostic and Statistical Manual of Mental Disorders, Fourth Edition
- ICF:
-
International Classification of Functioning, Disability and Health
- NBDPN:
-
National Birth Defects Prevention Network
- NCBDDD:
-
National Center for Birth Defects and Developmental Disabilities
- NORD:
-
National Organization for Rare Disorders
- OMIM:
-
Online Mendelian Inheritance in Man
- RNA:
-
Ribonucleic Acid
- WHO:
-
World Health Organization
References
American Psychiatric Association (2000). Diagnostic and statistical manual of mental disorders (4th ed.). Washington: American Psychiatric Association.
Atkinson, R. C., & Shiffrin, R. M. (1969). Storage and retrieval processes in long-term memory. Psychological Review, 76, 179–193.
Bailey, L. B., & Berry, R. J. (2005). Folic acid supplementation and the occurrence of congenital heart defects, orofacial clefts, multiple births, and miscarriage. The American Journal of Clinical Nutrition, 8(suppl.), 1213S–1217S.
Bandura, A. (1977). Social learning theory. Englewood Cliffs: Prentice-Hall.
Bonnin, A., Goeden, N., Chen, K., Wilson, M. L., King, J., Shih, J. C., Blakely, R. D., Deneris, E. S., & Levitt, P. (2011). A transient placental source of serotonin for the fetal forebrain. Nature, 472, 347–352.
Botto, L. D., Mulinare, J., & Erickson, J. D. (2002). Occurrence of omphalocele in relation to maternal multivitamin use: A population-based study. Pediatrics, 109(5), 904–908.
Bryne, B. M. (1996). Measuring self-concept across the lifespan: Issues and instrumentation. Washington: American Psychological Association.
Chase, H. C., & Byrnes, M. E. (1972). Trends in “prematurity”. Rockville: U.S. Department of Health, Education, and Welfare, Public Health Service, Health Services and Mental Health Administration, National Center for Health Statistics (DHEW Publication Number (HSM)72–1030, Vital and health statistics series 3, no. 15).
Chickering, A. W. (1993). Education and identity. San Francisco: Jossey-Bass.
Covington, M. V. (1992). Making the grade: A self-worth perspective on motivation and school reform. New York: Cambridge University Press.
Dalla Vecchia, L. K., Grosfeld, J. L., West, K. W., Rescorla, F. J., Scherer, L. R., & Engum, S. A. (1998). Intestinal atresia and stenosis. Archives of Surgery, 133, 490–497.
Davies, B. W., & Stringer, M. D. (1997). The survivors of gastroschisis. Archives of Disease in Childhood, 77, 158–160.
Depoy, E., & Gilson, S.F. (2004). Rethinking disability: Principles for professional and social change. Belmont: Thomson.
Diamond, A., & Amso, D. (2008). Contributions of neuroscience to our understanding of cognitive development. Current Directions in Psychological Science, 17(2), 136–141.
Erikson, E. H. (1997). The life cycle completed. New York: Norton.
Evans, N. J., Forney, D. S., Guido, F. M., Patton, L. D., & Renn, K. A. (2009). Student development in college: Theory, research, and practice (2nd ed.). New York: Wiley.
Fraga, M. F., Ballestar, E., Paz, M. F., Ropero, S., Setien, F., Ballestar, M. L., Heine-Suner, D., Cigudosa, J. C., Urioste, M., Benitez, J., Boix-Chornet, M., Sanchez-Aguilera, A., Ling, C., Carlsson, E., Poulsen, P., Vaag, A., Stephan, Z., Spector, T. D., Wu, Y.-Z., Plass, C., & Esteller, M. (2005). Epigenetic differences arise during the lifetime of monozygotic twins. Proceedings of the National Academy of Sciences USA, 102(30), 10604–10609.
Gardiner, H. M., Belmar, C., Tulzer, G., Barlow, A., Pasquini, L., Carvalho, J. S., Daubeney, P. E. F., Rigby, M. L., Gordon, F., Kulinskaya, E., & Franklin, R. C. (2008). Morphologic and functional predictors of eventual circulation in the fetus with pulmonary atresia or critical pulmonary stenosis with intact septum. Journal of the American College of Cardiology, 51, 1299–1308.
Gardner, E. J., & Snustad, D. P. (1984). Principles of genetics (7th ed.). New York: Wiley.
Gibson, E. J. (1991). An odyssey in learning and perception. Cambridge: The MIT Press.
Gilligan, C. (1982). In a different voice: Psychological theory and women’s development. Cambridge: Harvard University Press.
Gluckmann, P. D., Hanson, M. A., Buklijas, T., Low, F. M., & Beedle, A. S. (2009). Epigenetic mechanisms that underpin metabolic and cardiovascular diseases. Nature Reviews Endocrinology, 5, 401–408.
Goldman, B. A., & Mitchell, D. F. (2007). Directory of unpublished mental measures (Vol. 9). Washington: American Psychological Association.
Gorler, H., Ono, M., Thies, A., Lunkewitz, E. Westhoff-Bleck, M., Haverich, A., Breymann, T., & Boethig, D. (2011). Long-term morbidity and quality of life after surgical repair of transposition of the great arteries: Atrial versus arterial switch operation. Interactive Cardiovascular and Thoracic Surgery, 12, 569–574.
Haber, J. (1997). Understanding people across the life cycle. In J., Haber, B., Krainovitch-Miller, A. L., McMahon, & P., Price-Hoskins (Eds.), Comprehensive psychiatric nursing (5th ed., Chap. 7, pp. 91–120). St. Louis: Mosby.
Harville, E. W., Wilcox, A. J., Terje Lie, R., Vindenes, H., & Abyholm, F. (2005). Cleft lip and palate versus cleft lip only: Are they distinct defects? American Journal of Epidemiology, 162(5), 448–453.
Hattie, J. (1992). Self-concept. Hillsdale: Lawrence Erlbaum Associates.
Hawkins, J. A., Kaza, A. K., Burch, P. T., Lambert, L. M., Holubkov, R., & Witte, M. K. (2010). Simple versus complex truncus arteriosus: Neutralization of risk but with increased resource utilization. World Journal for Pediatric and Congenital Heart, 1, 285–291.
Heath, D. (1968). Growing up in college. San Francisco: Jossey-Bass.
Hinton, R. B., Martin, L. J., Tabangin, M. E., Mazwi, M. L., Cripe, L. H., & Benson, D. W. (2007). Hypoplastic left heart syndrome is heritable. Journal of the American College of Cardiology, 50, 1590–1595.
Hollar, D. W. (2000). Bone changes and disorders. In P., Roberts (Ed.), Aging (pp. 105–109). Pasadena: Salem Press.
Hollar, D., & Moore, D. (2004). Relationship of substance use by students with disabilities to long-term educational and social outcomes. Substance Use & Misuse, 39(6), 929–960.
Isaacs, E. (2011). Children’s problems in society do not begin in children’s brains. www.parentsinaction.net. Accessed 15 June 2011.
Johnson, K. B. (2001). Barriers that impede the adoption of pediatric information technology. Archives of Pediatrics & Adolescent Medicine, 155, 1374–1379.
Kanagawa, S. L., Begleiter, M. L., Ostlie, D. J., Holcomb, G., Drake, W., & Butler, M. G. (2002). Omphalocele in three generations with autosomal dominant transmission. Journal of Medical Genetics, 39, 184–185.
Kegan, R. (1982). The evolving self. Cambridge: Harvard University Press.
Knapp, L. (1998). Perspectives in human biology. Belmont: Wadsworth.
Kogan, M. D., Alexander, G. R., Kotelchuck, M., & Nagey, D. A. (1994). Relation of the content of prenatal care to the risk of low birth weight: Maternal reports of health behavior advice and initial prenatal care procedures. The Journal of The American Medical Association, 271(17), 1340–1345.
Kohlberg, L. (1973). The claim to moral adequacy of a highest stage of moral judgment. Journal of Philosophy, 70(18), 630–646.
Kovesi, T., & Rubin, M. B. (2004). Long-term complications of congenital esophageal atresia and/or tracheoesophageal fistula. Chest, 126, 915–925.
Kvigne, V. L., Leonardson, G. R., Borzelleca, J., Neff-Smith, M., & Welty, T. K. (2009). Characteristics of children whose siblings have fetal alcohol syndrome or incomplete fetal alcohol syndrome. Pediatrics, 123, e526–e533.
Lollar, D. J., & Simeonsson, R. J. (2005). Diagnosis to function: Classification of children and youth. Journal of Developmental and Behavioral Pediatrics, 26(4), 323–330.
Marsh, H. W., & Craven, R. G. (2006). Reciprocal effects of self-concept and performance from a multidimensional perspective: Beyond seductive pleasure and unidimensional perspectives. Perspectives on Psychological Science, 1, 133–163.
Marsh, H. W., & O’Mara, A. (2008). Reciprocal effects between academic self-concept, self-esteem, achievement, and attainment over seven adolescent years: Unidimensional and multidimensional perspectives of self-concept. Personality & Social Psychology Bulletin, 34(4), 542–552.
Marsh, H. W., Craven, R. G., & Martin, A. (2006). What is the nature of self-esteem? Unidimensional and multidimensional perspectives. In M. Kernis (Ed.), Self-esteem: Issues and answers (pp. 16–25). New York: Psychology Press.
McKay, R. (2011). Remarkable role for the placenta. Nature, 472, 298–299.
McKusick, V. A. (1966). Mendelian inheritance in man: Catalogs of autsomal dominant, autosomal recessive, and X-linked phenotypes (1st ed.). Baltimore: Johns Hopkins University Press.
McKusick, V. A. (1990). Mendelian inheritance in man: Catalogs of autsomal dominant, autosomal recessive, and X-linked phenotypes (9th ed.). Baltimore: Johns Hopkins University Press.
McKusick, V. A. (1998). Mendelian inheritance in man: Catalogs of autsomal dominant, autosomal recessive, and X-linked phenotypes (12th ed.). Baltimore: Johns Hopkins University Press.
Messick, S. (1988). Validity. In S. Linn (Ed.), Educational measurement (pp. 13–101). Baltimore: Johns Hopkins University Press.
Miller, P. H. (1993). Theories of developmental psychology (3rd ed.). New York: Freeman.
MMWR (1989). Current trends economic burden of spina bifida—United States, 1980–1990. Morbidity and Mortality Weekly Report, 38(15), 264–267.
Mohan, U. R., Danon, S., Levi, D., Connolly, D., & Moore, J. W. (2009). Stent implantation for coarctation of the aorta in children < 30 kg. JACC. Cardiovascular Interventions, 2, 877–883.
Muzzarelli, S., Ordovas, K. G., Cannavale, G., Meadows, A. K., & Higgins, C. B. (2011). Tetralogy of Fallot: Impact of the excursion of the interventricular septum on left ventricular systolic function and fibrosis after surgical repair. Radiology, 259, 375–383.
National Birth Defects Prevention Network (2003). Birth defects surveillance data from selected states, 1996–2000. Birth Defects Research, Part A: Clinical and Molecular Teratology, 67(9), 729–822.
NCPAD (2007). Exercise for individuals with spina bifida. Chicago: National Center for Physical Activity and Disability, University of Illinois at Chicago. www.ncpad.org/exercise. Accessed 7 Aug 2011.
Newman, B. M., & Newman, P. R. (1991). Development through life: A psychosocial approach (5th ed.). Pacific Grove: Brooks/Cole.
O’Rahilly, R., & Muller, F. (1996). Human embryology & teratology (2nd ed.). New York: Wiley-Liss.
Pearson, H. (2002). Immunity’s pregnant pause. Nature, 420, 265–266.
Pembrey, M. E., Bygren, L. O., Kaati, G., Edvinsson, S., Northstone, K., Sjostrom, M., Golding, J., & the ALSPAC Study Team (2006). Sex-specific, male-line transgenerational responses in humans. European Journal of Human Genetics, 14, 159–166.
Perry, W. G. (1970). Forms of intellectual and ethical development in the college years: A scheme. New York: Holt, Rinehart, and Winston.
Petrie, R. J., Doyle, A. D., &Yamada, K. M. (2009). Random versus directionally persistent cell migration. Nature Reviews. Molecular Cell Biology, 10(8), 538–549.
Piaget, J. (1954). The construction of reality in the child. New York: Basic Books.
Porter, M. P., Faizan, M. K., Grady, R. W., & Mueller, B. A. (2005). Hypospadias in Washington state: Maternal risk factors and prevalence trends. Pediatrics, 115(4), e495–e499.
Richardson, S. M. (1994). Amniotic band syndrome. Journal of Diagnostic Medical Sonography, 10(3), 137–143.
Sandberg, D. I. (2008). Endoscopic management of hydrocephalus in pediatric patients: A review of indications, techniques, and outcomes. Journal of Child Neurology, 23, 550–560.
Seeman, T. E., Singer, B. H., Ryff, C. D., Love, G. D., & Levy-Storms, L. (2002). Social relationships, gender, and allostatic load across two age cohorts. Psychosomatic Medicine, 64, 395–406.
Seeman, T., Glei, D., Goldman, N., Weinstein, M., Singer, B., & Lin, Y. (2004). Social relationships and allostatic load in Taiwanese elderly and near elderly. Social Science & Medicine (1982), 59, 2245–2257.
Shavelson, R. J., Hubner, J. J., & Stanton, G. C. (1976). Self-concept: Validation of construct interpretations. Review of Educational Research, 46, 407–441.
Simeonsson, R. J., & Boyles, E. K. (2001). An ecobehavioral approach in clinical assessment. In R. J. Simeonsson & S. L. Rosenthal (Eds.), Psychological and developmental assessment: Children with disabilities and chronic conditions (pp. 120–140). New York: Guilford Press.
Simeonsson, R. J., Leonardi, M., Bjorck-Akesson, E., Hollenwger, J., & Lollar, D. (2003). Applying the International Classification of Functioning Disability and Health to measure childhood disability. Disability and Rehabilitation, 25(11–12), 602–610.
Simon, T. D., Lamb, S., Murphy, N. A., Horn, B., Walker, M. L., & Clark, E. B. (2009). Who will care for me next? Transitioning to adulthood with hydrocephalus. Pediatrics, 124(5), 1431–1437.
Singh, S. M., Douglas, P. S., Reddy, V. Y. (2011). The incidence and long-term clinical outcome of iatrogenic atrial septal defects secondary to transseptal catheterization with a 12F transseptal sheath. Circulation. Arrhythmia and Electrophysiology, 4, 166–171.
Slickers, J. E., Olshan, A. F., Siega-Riz, A. M., Honein, M. A., Aylsworth, A. S. for the National Birth Defects Prevention Study (2008). Maternal body mass index and lifestyle exposures and the risk of bilateral renal agenesis or hypoplasia. American Journal of Epidemiology, 168(11), 1259–1267.
Smith, E. S., Dafoe, C. S., Miller, J. R., & Banister, P. (1977). An epidemiological study of congenital reduction deformities of the limbs. British Journal of Preventive & Social Medicine, 31, 39–41.
Stedman, T. L. (2000). Stedman’s medical dictionary (27th ed.). Philadelphia: Lippincott Williams & Wilkins.
Stevens, M. V., Broka, D. M., Parket, P., Rogowitz, E., Vaillancourt, R. R., & Camenisch, T. D. (2008). MEKK3 initiates Transforming Growth Factor β2-dependent epithelial-to-mesenchymal transition during endocardial cushion morphogenesis. Circulation Research, 103(12), 1430–1440.
Symonds, M. E. (2010). Epigenomics—Grand challenge: Much more than the developmental origins of adult health and disease. Frontiers Genetics, 1, 1–2.
Thiele, H., Kaulfersch, C., Daehnert, I., Schoenauer, M., Eitel, I., Borger, M., & Schuler, G. (2009). Immediate primary transcatheter closure of postinfarction ventricular septal defects. European Heart Journal, 30, 81–88.
Tsai, J. Y., Berkery, L., Wesson, D. E., Redo, S. F., & Spigland, N. A. (1997). Esophageal atresia and tracheoesophageal fistula: Surgical experience over two decades. The Annals of Thoracic Surgery, 64, 778–783.
Van Son, J. A. M., Konstantinov, I. E., & Zimmermann, V. (2001). Wilhelm Ebstein and Ebstein’s malformation. European Journal of Cardio-Thoracic Surgery, 20, 1082–1085.
Virtanen, H. E., & Toppari, J. (2008). Epidemiology and pathogenesis of cryptorchidism. Human Reproduction Update, 14(1), 49–58.
Vygotsky, L. S. (1978). Mind and society: The development of higher mental processes. Cambridge: Harvard University Press.
Wilcox, A. J. (2001). On the importance—and the unimportance—of birth weight. International Journal of Epidemiology, 30(6), 1233–1241.
Wilson, E. O. (1975). Sociobiology: The new synthesis. Cambridge: Harvard/Belknap.
Wilson, E. O. (1998). Consilience: The unity of knowledge. New York: Knopf.
Wolpert, L., Tickle, C., Lawrence, P., Meyerowitz, E., Robertson, E., Smith, J., & Jessell, T. (2011). Principles of development (4th ed.). New York: Oxford University Press.
World Health Organization (WHO). (2001). International classification of functioning, disability and health (ICF). Geneva: World Health Organization.
Yang, C. J., Stone, P., & Stewart, A. W. (2006). The epidemiology of recurrent miscarriage: A descriptive study of 1214 prepregnant women with recurrent miscarriage. The Australian & New Zealand Journal of Obstetrics & Gynaecology, 46, 316–322.
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Hollar, D. (2012). Development from Conception through Adolescence: Physiological and Psychosocial Factors Impacting Children with Special Health Care Needs. In: Hollar, D. (eds) Handbook of Children with Special Health Care Needs. Springer, New York, NY. https://doi.org/10.1007/978-1-4614-2335-5_15
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