Abstract
Respiratory disease is a major cause of suffering and death. There is a broad range of disease from acute illnesses such as pneumonia and acute lung injury to chronic progressive diseases such as chronic obstructive lung disease, cystic fibrosis, and neuromuscular disease. The different trajectories of lung disease are outlined including sudden death from catastrophic illness, the cancer trajectory in patients with lung cancer, the chronic disease trajectory for patients with progressive lung diseases, and the transplant trajectory for patients with diseases such as cystic fibrosis or idiopathic pulmonary fibrosis. Palliative and supportive care run in parallel with disease-modifying therapies throughout the course of life-threatening respiratory disease. A multidisciplinary integrated approach is needed in treating these patients and good quality palliative care must be achieved in a variety of settings including the patient’s home, care homes, clinics, emergency departments, wards, and intensive care units.
This is a preview of subscription content, log in via an institution to check access.
Access this chapter
Tax calculation will be finalised at checkout
Purchases are for personal use only
Similar content being viewed by others
References
Saunders C. The evolution of palliative care. J R Soc Med. 2001;94:430–2.
Selecky PA, Eliasson H, Hall RI, Schneider F, Varkey B, McCaffree DR. Palliative and end-of-life care for patients with cardiopulmonary diseases. Chest. 2005;128:3599–610.
Clemens KE, Klaschnik E. The history of hospice. In: Walsh D, editor. Palliative medicine. Philadelphia: Saunders/Elsevier; 2009. p. 18–23.
Kübler-Ross E. On death and dying. London: Tavistock Publication Ltd.; 1970.
Murtagh FEM, Preston M, Higginson I. Patterns of dying: palliative care for non-malignant disease. Clin Med. 2004;4:39–44.
Halpin DM, Seamark DA, Seamark CJ. Palliative and end-of-life care for patients with respiratory disease. Eur Respir Mon. 2009;43:327–53.
Davies L. Integrated care of the patient dying of nonmalignant respiratory disease. Breathe. 2008;5:155–61.
Gore JM, Brophy CJ, Greenstone MA. How well do we care for patients with end stage chronic obstructive pulmonary disease? A comparison of palliative care and quality of life in COPD and lung cancer. Thorax. 2000;55:1000–6.
World Health Organization definition of palliative care. WHO.http://www.who.int/cancer/palliative/definition/en/. Accessed 1 Apr 2012.
Lanken PN, Terry PB, DeLisser HM, et al. An official American Thoracic Society clinical policy statement: palliative care for patients with respiratory diseases and critical illnesses. Am J Respir Crit Care Med. 2008;177:912–27.
Richards M. End of life care strategy. London: Department of Health; 2008.www.dh.gov.uk/en/Healthcare/IntegratedCare/Endoflifecare/index.htm. Accessed 1 Apr 2012.
National Institute for Health and Clinical Excellence. End of life care for adults quality standards. NICE; 2011.http://www.nice.org.uk/guidance/qualitystandards/endoflifecare/. Accessed 1 Apr 2012.
Decramer M, Sibille Y, Nicod LP, et al. European Respiratory Roadmap 2011. European Respiratory Society 2011.http://www.ersroadmap.org/index. Accessed 1 Apr 2012.
Jemal A, Ward E, Hao Y, Thun M. Trends in the leading causes of death in the United States, 1970-2002. JAMA. 2005;294:1255–9.
British Thoracic Society. The burden of lung disease. London: British Thoracic Society; 2006.www.brit-thoracic.org.uk/library-guidelines/bts-publications/burden-of-lung-disease-reports.aspx#Burden1. Accessed 1 Apr 2012.
Clegg A, Young J. The frailty syndrome. Clin Med. 2011;11:72–5.
Murray SA, Kendall M, Boyd K, Dheikh A. Illness trajectories and palliative care. BMJ. 2005;330:1007–11.
Currow DC, Snith J, Davidson PM, Newton PJ, Agar MR, Abernethy AP. Do the trajectories of dyspnea differ in prevalence and intensity by diagnosis at the end of life? A consecutive cohort study. J Pain Symptom Manage. 2010;39:680–90.
Lunney JR, Lynn J, Foley DJ, Lipson S, Guralnik JM. Patterns of functional decline at the end of life. JAMA. 2003;289:2387–92.
Partridge MR, Khatri A, Sutton L, Welham S, Ahmedzai SH. Palliative care services for those with chronic lung disease. Chron Respir Dis. 2009;6:13–7.
Bourke SJ, Doe SJ, Gascoigne AD, et al. An integrated model of provision of palliative care to patients with cystic fibrosis. Palliat Med. 2009;23:512–7.
Ellershaw J, Foster A, Murphy D, Shea T, Overill S. Developing an integrated care pathway for the dying patient. Eur J Palliat Care. 1997;4:203–7.
Gibbins J, McCoubrie R, Alexander N, Kinzel C, Forbes K. Diagnosing dying in the acute hospital setting – are we too late? Clin Med. 2009;9:116–9.
Weissman DE, Meier DE. Identifying patients in need of a palliative care assessment in the hospital setting. J Palliat Med. 2011;14:17–22.
General Medical Council. Treatment and care towards the end of life: good practice in decision making. London: GMC; 2010.http://www.gmc-uk.org/End_of_life.pdf_32486688.pdf. Accessed 1 Apr 2012.
General Medical Council. Good practice in prescribing medicine – guidance for doctors. 2008.http://www.gmc-uk.org/guidance/ethical_guidance/prescriptions. Accessed 1 Apr 2012.
Caraceni A, Hanks G, Kassa S, et al. Use of opioid analgesics in the treatment of cancer pain: evidence-based recommendations from EAPC. Lancet Oncol. 2012;13:58–68.
Opioid dose conversion ratios. 2012.http://www.palliativedrugs.com. Accessed 1 Apr 2012.
Author information
Authors and Affiliations
Corresponding author
Editor information
Editors and Affiliations
Rights and permissions
Copyright information
© 2013 Springer-Verlag London
About this chapter
Cite this chapter
Bourke, S.J., Peel, E.T. (2013). Palliative Care of Respiratory Disease. In: Bourke, S., Peel, E. (eds) Integrated Palliative Care of Respiratory Disease. Springer, London. https://doi.org/10.1007/978-1-4471-2230-2_1
Download citation
DOI: https://doi.org/10.1007/978-1-4471-2230-2_1
Published:
Publisher Name: Springer, London
Print ISBN: 978-1-4471-2229-6
Online ISBN: 978-1-4471-2230-2
eBook Packages: MedicineMedicine (R0)