Abstract
The main ethical issues in conducting psychiatric morbidity surveys are more concerned with respecting the voluntary nature of the exercise and the dignity of survey respondents, and ensuring that information given is confidential and held securely rather than the risk of physical injury. In this chapter, the ethical dimensions of all areas of the survey process (developing the proposal, sampling individuals, interviewing procedures, data collection, analysis and dissemination) are considered with particular reference to psychiatric morbidity research. Key issues are encouraging rather than coercing people to participate in the research, not causing distress, and ensuring that pledges of confidentiality are upheld. The further ethical constraints of surveying the mental health of different subpopulations – children, elderly people, prisoners and homeless people are also described.
Access this chapter
Tax calculation will be finalised at checkout
Purchases are for personal use only
Abbreviations
- CIOMS:
-
Council of International Organizations for Medical Science
- DSM-IV:
-
Diagnostic and Statistical Manual of Mental Disorders, 4th edition
- EPA:
-
Environmental Protection Agency
- GHQ12:
-
12-item General Health Questionnaire
- GP:
-
General Practitioner
- ICD 10:
-
International Classification of Diseases – 10th revision
- NSIs:
-
National Statistical Institutes
- NSOs:
-
National Statistical Offices
- OCD:
-
Obsessive-Compulsive Disorder
- PTSD:
-
Post-Traumatic Stress Disorder
- SDQ:
-
Strengths and Difficulties Questionnaire
References
American Psychiatric Association (1994) Diagnostic and statistical manual of mental disorders. DSM-IV-TR 4th
Cassell J (1982) Harms, benefits, wrongs and rights in fieldwork. In: Sieber JE (ed) The ethics of social research: surveys and experiments. Springer, New York, NY
Council for International Organizations of Medical Sciences (CIOMS) in collaboration with the World Health Organization (2008) International ethical guidelines for epidemiological studies. CIOMS, Geneva
Dillman D (2000) Mail and internet surveys: the tailored design method. Wiley, New York, NY
European Epidemiology Federation (2004) Good epidemiological practice (GEP): proper conduct in epidemiological research
Gill B, Meltzer H, Hinds K, Petticrew M (1996) OPCS surveys of psychiatric morbidity in Great Britain, report 7: psychiatric morbidity among homeless people. London, HMSO
Goldberg D, Williams P (1988) A user’s guide to the general health questionnaire. NFER-Nelson, Windsor, UK
Goodman R (1999) The extended version of the strengths and difficulties questionnaire as a guide to child psychiatric caseness and consequent burden. J Child Psychol Psychiatry 40:791–801
Green H, Maginnity A, Meltzer H, Goodman R, Ford T (2005) Mental health of young people in Great Britain. TSO, London
Groves RM, Couper MP (1998) Non-response in household interview surveys. Wiley, New York, NY
Groves R, Cialdini RB, Couper MP (1992) Understanding the decision to participate in a survey. Pub Opin Q 65(4):475–495
Henderson AS, Jorm AF (1990) Do mental health surveys disturb? Psychol Med 20:721–724
Kessler RC, Barker PR, Colpe LJ, Epstein JF, Gfroerer JC, Hiripi EC, Howes MJ, Normand ST, Manderscheid RW, Walters EE, Zaslavsky AM (2003) Screening for serious mental illness in the general population. Arch Gen Psychiatry 60:184–189
Kish L (1949) A procedure for objective respondent selection within the household. J Am Stat Assoc 44:380–387
Lépine S, Smolla N (2000) Ethical issues concerning participants in community surveys of child and adolescent mental disorders. Can J Psychiatry 45(1):48–54
Lewis SA, Gorsky A, Cohen P, Hartmark C (1985) The reactions of youth to diagnostic interviews. J Am Acad Child Psychiatry 24:750–755
Lewis G, Pelosi AJ, Araya RC, Dunn G (1992) Measuring psychiatric disorder in the community: a standardised instrument for use by lay interviewers. Psychol Med 22:465–486
McManus S, Meltzer H, Brugha T, Bebbington P, Jenkins R (2009) Adult psychiatric morbidity in England 2007: results of a household survey. National Centre for Social Research. http://www.ic.nhs.uk/pubs/psychiatricmorbidity07
McWilliam C, Copeland JR, Dewey ME, Wood N (1988) The geriatric mental state examination as a case-finding instrument in the community. Br J Psychiatry 152:205–208
Meltzer H, Corbin T, Gatward R, Goodman R, Ford T (2003) The mental health of young people looked after by local authorities in England: summary report. The Office for National Statistics, HMSO, London
Meltzer H, Gatward R, Goodman R, Ford T (2000) Mental health of children and adolescents in Great Britain. Stationery Office, London
Meltzer H, Gill B, Hinds K, Petticrew M (1996) OPCS surveys of psychiatric morbidity in Great Britain, report 4: the prevalence of psychiatric morbidity among adults living in institutions. London, HMSO
Meltzer H, Gill B, Petticrew M, Hinds K (1995) OPCS surveys of psychiatric morbidity in Great Britain, report 1: the prevalence of psychiatric morbidity among adults living in private households. HMSO, London
Sieber J (1992) Planning ethically responsible research. Sage Publications, Newbury Park, CA
Singleton N, Bumpstead R, O’Brien M, Lee A, Meltzer H (2001) Psychiatric morbidity among adults living in private households, 2000. TSO, London
Singleton N, Meltzer H, Gatward R, Coid J, Deasy D (1998) Psychiatric morbidity among prisoners in England and Wales. Stationery Office, London
Social Research Association (2003) Ethical guidelines. http://www.the-sra.org.uk/documents/pdfs/ethics03.pdf
Thompson RA (1992) Developmental changes in research risk and benefit. In: Stanley B, Sieber JE (eds) Social research on children and adolescents: ethical issues. Sage Publications, Newbury Park, CA, pp 31–64
Ware JE, Kosinski M, Keller SD (1996) A 12-item short-form health survey: construction of scales and preliminary tests of reliability and validity. Med Care 34(3):220–233
White A, Martin J, Bennett N, Freeth S (1998) Improving advance letters for major government surveys: final results. Survey Methodol Bull 43:July 1998
World Health Organisation (1992) The ICD-10 classification of mental and behavioural disorders: clinical descriptions and diagnostic guidelines. WHO, Geneva
Author information
Authors and Affiliations
Corresponding author
Editor information
Editors and Affiliations
Rights and permissions
Copyright information
© 2010 Springer Science+Business Media B.V.
About this chapter
Cite this chapter
Meltzer, H., Brugha, T.S. (2010). Ethical Concerns in Carrying Out Surveys of Psychiatric Morbidity. In: Helmchen, H., Sartorius, N. (eds) Ethics in Psychiatry. International Library of Ethics, Law, and the New Medicine, vol 45. Springer, Dordrecht. https://doi.org/10.1007/978-90-481-8721-8_26
Download citation
DOI: https://doi.org/10.1007/978-90-481-8721-8_26
Published:
Publisher Name: Springer, Dordrecht
Print ISBN: 978-90-481-8720-1
Online ISBN: 978-90-481-8721-8
eBook Packages: MedicineMedicine (R0)