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The Lombardia Stroke Unit Registry: 1-year experience of a web-based hospital stroke registry

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Abstract

This paper presents methodological aspects of the Lombardia Stroke Registry. At the registry start-up, 36 recruiting centres were identified according to a regional survey. The registry recruits consecutive patients with acute stroke or transient ischaemic attacks (TIAs). A 3-month follow-up was planned to correlate acute care with outcomes. On 31st December 2007, data concerning 6,181 patients discharged alive were available. The registry aims at measuring performance parameters, identifying guidelines non-compliance and analysing care processes. In this first phase, 30% of the Lombardia acute stroke and 10% of TIA patients have been enrolled, thus the sample can be considered informative for the disease care in the region. The proportion of completed data items is very high with very small differences among items. The following critical points were highlighted: (1) lack of data input staff for 30% of centres, and (2) difficulty of obtaining the informed consent for post-discharge follow-up.

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Author information

Authors and Affiliations

  1. UC Neurologia d’Urgenza e Pronto Soccorso, IRCCS Foundation “C. Mondino”, Pavia, Italy

    Giuseppe Micieli

  2. UC Malattie Cerebrovascolari/Stroke Unit, IRCCS Foundation “C. Mondino”, Pavia, Italy

    Anna Cavallini & Michela Duè

  3. Department of Computer Engineering and Systems Science, University of Pavia, Pavia, Italy

    Silvana Quaglini

  4. Assessorato alla Sanità, Regione Lombardia, Milano, Italy

    Giancarlo Fontana

Authors
  1. Giuseppe Micieli
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  2. Anna Cavallini
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  3. Silvana Quaglini
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  4. Giancarlo Fontana
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  5. Michela Duè
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Corresponding author

Correspondence to Giuseppe Micieli.

Additional information

On behalf of SUN Lombardia Collaborators.

A list of participants of SUN Lombardia Collaborators is given in “Appendix”.

Appendix: Lombardia SUN centres and collaborators

Appendix: Lombardia SUN centres and collaborators

Azienda Ospedaliera “Ospedali Riuniti” di Bergamo (B. Censori, R. Riva), Casa di Cura San Pietro, Ponte San Pietro (Bergamo) (F. Frediani), Azienda Istituti Ospedalieri di Cremona (G. Baietti, L. Zinno), Azienda Ospedaliera “Ospedale S. Anna” di Como (M. Arnaboldi, S. Vidale), Azienda Ospedaliera “Ospedale Civile” di Vimercate, Presidio Ospedaliero Complesso di Desio (A. Colombo), Azienda Ospedaliera “S:Antonio Abate” di Gallarate (D. Zarcone, M. Merello), Azienda Ospedaliera “G. Salvini” di Garbagnate Milanese (D. Cittani), Azienda Ospedaliera di Lecco, Presidio di Lecco (E. Agostoni, C. Scaccabarozzi), Azienda Ospedaliera “Ospedale Civile” di Legnano, Presidio di Legnano (M.V. Calloni, A. Giorgetti), Azienda Ospedaliera della Provincia di Lodi, Presidio Ospedaliero di Lodi (M. Riva, A. Zilioli), Azienda Ospedaliera “Ospedale Civile” di Legnano, Presidio di Magenta (A. Romorini, S. Ruggerone), Azienda Ospedaliera “Carlo Poma” di Mantova (P. Previdi, G. Silvestrelli), Azienda Ospedaliera “Ospedale Predabissi” di Melegnano (G.E. Molini, C. Marsile), Azienda Ospedaliera di Lecco, Presidio di Merate (E. Agostoni, C. Scaccabarozzi), Azienda Ospedaliera S. Carlo di Milano (P. Bassi, P. Lattuada), Azienda Ospedaliera Niguarda Ca’ Granda di Milano (R. Sterzi, M. Pozzi), Azienda Ospedaliera “Luigi Sacco” di Milano (P. Gambaro, S. Rosa), Azienda Ospedaliera S. Gerardo di Monza (C. Ferrarese, M. Brioschi), Azienda Ospedaliera “Ospedale di Circolo di Busto Arsizio”, Presidio Ospedaliero di Saronno (G. Grampa, A. Gomitoni), Azienda Ospedaliera Ospedale di Circolo e Fondazione Macchi di Varese (M.L. De Lodovici, M. Mauri), Azienda Ospedaliera “Ospedale Civile” di Vimercate, Presidio Ospedaliero Complesso di Vimercate (P. Bazzi, S. Fermi), Azienda Ospedaliera della Provincia di Pavia, Stabilimento di Voghera (E. Magrotti, G. Borutti), Azienda Sanitaria Locale di Sondrio, Presidio Ospedaliero di Sondrio (S. Creta, G. Montecalvo), Casa di Cura Santa Rita di Milano (C.S. Tadeo), Casa di Cura Policlinico S. Marco di Zingonia (M. Camerlingo), Fondazione Poliambulanza di Brescia (E. Donati, E. Magni), Istituto Clinico Beato Matteo di Vigevano (S. Ravaglia, M.T. Zaccone), IRCCS. Fondazione San Raffaele del Tabor di Milano (G. Comi, M. Sessa), IRCCS Istituto Auxologico Italiano San Luca di Milano (M. Stramba Badiale, V. Manzoni), IRCCS Ospedale Maggiore Policlinico, Università degli Studi di Milano (S. Lanfranconi, G. Torgano), IRCCS Istituto Neurologico C. Besta di Milano (E. Parati, G. Boncoraglio), IRCCS Istituto Neurologico Fondazione C. Mondino di Pavia (A. Cavallini, A. Persico), IRCCS Istituto Clinico Humanitas di Rozzano (S. Marcheselli, E. Coloberti), Ospedale Generale di Zona S. Orsola di Brescia (M.P. Piras, L. Giusti), Ospedale Valduce di Como (M. Guidotti, S. Leva), Spedali Civili di Brescia (V. Vergani, A. Costa), Policlinico San Donato di San Donato Milanese (G. Meola, A. Costa).

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Micieli, G., Cavallini, A., Quaglini, S. et al. The Lombardia Stroke Unit Registry: 1-year experience of a web-based hospital stroke registry. Neurol Sci 31, 555–564 (2010). https://doi.org/10.1007/s10072-010-0249-x

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