Abstract
-
Acquired brain injury (ABI) is introduced: Prevalence of ABI worldwide, costs to community of ABI and the similarities and difference between traumatic brain injury (TBI) and acquired brain injury (ABI); problems associated with ABI; the lack of self-awareness
-
The concept of ‘Headwork’ and relevance to the study is outlined
-
The difference between ‘blank spots’ areas known about but needing to be filled in and ‘blind spots’ issues that cannot be seen because of an obstruction, or not known about, is described
-
An examination of where people with ABI and their families might obtain information about ABI is undertaken as well as an examination of Websites prior to the study and information contained
-
Books written by ‘insiders’ the ‘emic’ perspective are reviewed
-
Issues that had to be addressed prior to data collection are outlined and the development of ‘talk-about’ cards for the study described
-
The aims of the study and the importance of ‘doing no harm’ are stated and explained.
If I have lost confidence in myself, I have the Universe against me.
Ralph Waldo Emerson.
Access this chapter
Tax calculation will be finalised at checkout
Purchases are for personal use only
References
Australian Broadcasting Commission. (2006). http://www.abc.net.au/rural/qld/content/2006/s1816663.htm
ABS. (2004). Disability, ageing and carers; summary of findings, Australia 2003. ABS cat no. 4430.0, Canberra: ABS.
Access Economics Pty. Ltd. (2009). The economic cost of spinal cord injury and traumatic brain injury in Australia. Retrieved from http://www.vni.com.au/sitebuilder/about/knowledge/asset/files/99/final_vni_report_22julsml.pdf
Australian Institute of Health and Welfare. (2007). Disability in Australia: Acquired brain injury: Bulletin No. 55 (Cat. no. AUS 96). Canberra, Australia: AIHW.
Barnes, C. G. (1990). Cabbage syndrome: The social construction of dependence. London: The Falmer Press.
Barnes, C., & Mercer, G. (2004). Implementing the social model of disability: Theory and research. Leeds, England: The Disability Press.
Barnes, C., Oliver, M., & Barton, L. (2002). Disability studies today. Cambridge, MA: Polity.
Becker, S. (2004). I had brain surgery, what’s your excuse?. New York, NY: Workman Publishing Co.
Biagioni, B. J. (2004). A change of mind: One family’s journey through brain injury. Wake Forest, NC: Lash & Associates Publishing/Training.
Bogod, N. M. M., & Mateer, C. A. (2003). Self-awareness after traumatic brain injury: A comparison of measures and their relationship to executive functions. Journal of the International Neuropsychological Society, 9(3), 450–458.
Brennan, K. (2002). Being with Rachel: A story of memory and survival. New York, NY: WW Norton.
Bruner, J. (1990). Acts of meaning. Cambridge, MA: Harvard University Press.
Calderwood, L. (2003). Cracked: Recovering after traumatic brain injury. London, England: Jessica Kingsley.
Camp, D. (2005). Brainstorming: Life after acquired brain injury. Fort Bragg, CA: Cypress House.
Carey, K. D. (2006). Transcending: An artist’s journey back from traumatic brain injury. Enyon, PA: Avventura Press.
Kimberly Carnevale’s blog. (Retrieved from http://www.canineandabledgorving.blogspot.com.au)
Cicerone, K. D. (1991). Psychotherapy after mild TBI: Relation to the nature and severity of subjective complaints. Journal of Head Trauma Rehabilitation, 6(4), 30–43.
Cohen, L. (2007). Crooked smile: One family’s journey towards healing. Toronto, Ontario: ECW Press.
Crimmins, C. E. (2000). Where is the mango princess?. New York, NY: Knopf-Random House Inc.
Cromer, J. (2010). Professor Cromer learns to read. Bloomington, Ill: AuthorHouse.
Durham, C. (1997). Doing up buttons. Ringwood, Australia: Penguin.
Fairclough, P. L. (2002). Living with brain injury. Philadelphia, PA: Jessica Kingsley.
Faul, M., Xu, L., Wald, M., & Coronado, V. (2010). Traumatic brain injury in the United States: Emergency department visits, hospitalizations and deaths 2002–2006. Atlanta, GA: Centers for Disease Control and Prevention, National Center for Injury Prevention and Control.
Finkelstein, V. (1980). Attitudes and disabled people: Issues for discussion. New York, NY: World Rehabilitation Fund.
Finkelstein, V. (1993). The commonality of disability. In J. Swain (Ed.), Disabling barriers: Enabling environments (pp. 9–16). London, England: Sage.
Fleming, J. M., Lucas, S. E., & Lightbody, S. (2006a). Using occupation to facilitate self-awareness in people who have acquired brain injury: A pilot study. Canadian Journal of Occupational Therapy, 73(1), 44–55.
Fleming, J., & Strong, J. (1999). A longitudinal study of self-awareness: Functional deficits underestimated by persons with brain injury. Occupational Therapy Journal of Research, 19(1), 3–17.
Fleming, J. M., Strong, J., & Ashton, R. (1998). Cluster analysis of self-awareness levels in adults with traumatic brain injury and relationship to outcome. The Journal of Head Trauma Rehabilitation, 13(5), 39–51.
Fleming, J. M., Winnington, H. T., McGillivray, A. J., Tatarevic, B. A., & Ownsworth, T. L. (2006). The development of self-awareness and relationship to emotional functioning during early community reintegration after traumatic brain injury. Brain Impairment, 7(2), 83–94, 252
Freeman, E. A. (1998). Brain injury & stroke: A handbook to recovery. Sydney, Australia: Hale & Iremonger.
Garrison, J. F. (2007). Don’t leave me this way: Or when I get back on my feet you’ll be sorry. London, England: Harper Paperbacks.
Hoge, C. W., McGurk, D., Thomas, J. L., Cox, A. L., Engel, C. C. & Castro, C. A. (2008). Mild Traumatic brain Injury in U.S. Soldiers returning from Iraq. New England Journal of Medicine, 358, pp 453–463.
Honderich, T. (Ed.). (1995). The Oxford companion to philosophy (2nd edn). Oxford, Oxford University Press.
Husserl, E. (1952). Ideas pertaining to a pure phenomenology and to a phenomenological philosophy (R. Rojcewicz & A. Schuwer, Trans.). Dordrecht, The Netherlands: Kluwer Academic.
Husserl, E. (1962). Ideas: General introduction to pure phenomenology. New York, NY: Collier-Macmillan. (Original work published 1936).
Hyder, A. A., Wunderlich, C. A., Puvanachandra, P., Gururaj, G., & Kobusingye, O. C. (2007). The impact of traumatic brain injuries: A global perspective. Neuro Rehabilitation, 22(5), 341–353.
Jameson, L., & Jameson, B. (2008). Brain injury survivors guide: Welcome to our world. Denver, CO: Outskirts Press.
Johansen, R. K. (2002). Listening in the silence, seeing in the dark: Reconstructing life after brain injury. Berkeley, CA: University of California Press.
Johns, A. J. (2005). Our journey with Joshua. Bloomington, IN: AuthorHouse.
Johnson, G. (2010). Traumatic Brain Injury Survival Guide. Retrieved from http://tbiguide.com/index.html
Kelley, G. G. (2010). My brain gets full. Charleston, SC: BookSurge Publishing.
Koenig, C. (2010). Paper cranes: A mother’s story of hope, courage and determination. Auckland, NZ: Exisle.
Lash, M. (1993). When a parent has a brain injury: Sons and daughters speak out. Worcester, MA.: Massachusetts Head Injury Association.
Lazarus, R. S., & Folkman, S. (1984). Stress, appraisal, and coping. New York, NY: Springer.
Linde, C. (1993). Life Stories: The creation of coherence. New York, NY: Oxford University Press.
Long, P. J. (2005). Gifts from the broken jar: Rediscovering hope, beauty and joy. Culver City, CA: EquiLibrium Press.
Mason, J. (2009). Couldn’t happen to me: A life changed by paralysis and traumatic brain injury. USA: Booksurge publishing.
Medley, A. R., & Powell, T. (2010). Motivational Interviewing to promote self-awareness and engagement in rehabilitation following acquired brain injury: A conceptual review. Neuropsychological Rehabilitation, 20(4), 481–508.
Medley, A. R., Powell, T., Worthington, A., Chohan, G., & Jones, C. (2010). Brain injury beliefs, self-awareness, and coping: A preliminary cluster analytic study based within the self-regulatory model. Neuropsychological Rehabilitation, 20(6), 899–921.
Medved, M. I., & Brockmeier, J. (2010). Weird stories. In M. Hyvärinen, L. C. Hydén, M. Saarenheimo, & M. Tamboukou (Eds.), Beyond narrative coherence (pp. 17–21). Amsterdam, The Netherlands: John Benjamins.
Meili, T. (2003). I am the central park jogger: A story of hope and possibility. New York, NY: Scribner.
Merleau-Ponty, M. (1962). The phenomenology of perception. London, England: Routledge & Kegan Paul.
Morningstar, L. (1998). Journey through brain trauma. Boulder, CO: Taylor Trade Publishing.
Morris, J. (1991). ‘Us’ and ‘Them’? Feminist research, community care and disability, Critical Social Policy, 33, 223–229.
Nietzsche, F. (1995). The birth of tragedy. (C.P.Fadiman, Trans.). New York: Dover. (Original work published 1872).
Oliver, M. (1983). Social work with disabled people. Basingstoke, England: Macmillan.
Oliver, M. (1990). The politics of disablement. Basingstoke, England: Macmillan.
Oliver, M. (1996). Understanding disability: From theory to practice. Basingstoke, England: Macmillan.
Osborne, C. L. (1997). Over my head: A doctor’s own story of head injury from the inside looking out. Riverside, NJ: Andrews McMeel.
Ownsworth, T., Desbois, J., Grant, E., Fleming, J., & Strong, J. (2006). The associations among self-awareness, emotional well-being, and employment outcome following acquired brain injury: A 12-month longitudinal study. Rehabilitation Psychology, 51, 50–59.
Oxford Dictionaries. (2010). Oxford Dictionaries. Oxford University Press. Retrieved from http://oxforddictionaries.com/definition/recovery
Parker, R. S., & Rosenblum, A. (1996). IQ loss and emotional dysfunctions after mild head injury incurred in a motor vehicle accident. Journal of Clinical Psychology, 52(1), 32–43.
Peterson, C., & McCabe, A. (1992). Parental styles of narrative elicitation: Effect on children’s narrative structure and content. First Language, 12, 299–321. doi:10.1177/014272379201203606.
Rees, R. J. (2005). Interrupted lives: Rehabilitation and learning following brain injury. East Hawthorn, Australia: IP Communications.
Rocchio, C. (2004). Ketchup on the baseboard: Rebuilding life after brain injury. Youngsville, NC: Lash & Associates Publishing/Training Incorporated.
Sherry, M. (2006). If I only had a brain: Deconstructing brain injury. New York, NY: Routledge.
Silver, J. M., McAllister, T. W., & Yudofsky, S. C. (2011). Textbook of traumatic brain injury. Arlington, VA.: American Psychiatric Publishing Inc.
Skloot, F. (2004). In the shadow of memory. Lincoln NE: University of Nebraska Press.
Strand, M. (2004). Meditations on brain injury. Zotolla Publishing.
Thomas, A. (2006). A three dog life: A memoir. San Diego, CA: Harcourt.
van Maanen, J. (2011). Ethnography as work: Some rules of engagement. Journal of Management Studies, 48(1), 218–234.
Wagner, J. (1993). Ignorance in educational research or, how can you not know that? Educational Researcher, 22(5), 15–23.
Wallace, C. A., & Bogner, J. A. (2000). Awareness of deficits: Emotional implications for persons with brain injury and their significant others. Brain Injury, 14(6), 549–562.
Widdershoven, G. (1993). The story of life: hermeneutic perspectives on the relationship between narrative and life history. In R. Josselson & A. Lieblich (Eds.), The narrative study of lives (Vol. 1, pp. 1–20). Newbury Park, CA: Sage.
Winslade, W. J. (1998). Confronting traumatic brain injury: Devastation, hope and healing. New Haven, CT: Yale University Press.
Woodruff, L., & Woodruff, B. (2008). In an instant: A family’s journey of love and healing. New York, NY: Random House Trade Paperbacks.
Yudofsky, S. C., & Hales, R. E. (Eds.). (2008). The American Psychiatric Publishing textbook of neuropsychiatry and clinical neurosciences (5th ed.). Washington, DC: American Psychiatric Publishing.
Author information
Authors and Affiliations
Corresponding author
Rights and permissions
Copyright information
© 2018 Springer Nature Singapore Pte Ltd.
About this chapter
Cite this chapter
Durham, C., Ramcharan, P. (2018). Acquired Brain Injury. In: Insight into Acquired Brain Injury. Springer, Singapore. https://doi.org/10.1007/978-981-10-5666-6_1
Download citation
DOI: https://doi.org/10.1007/978-981-10-5666-6_1
Published:
Publisher Name: Springer, Singapore
Print ISBN: 978-981-10-5665-9
Online ISBN: 978-981-10-5666-6
eBook Packages: MedicineMedicine (R0)