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Health-Related Quality of Life of Children and Adolescents on Dialysis

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Abstract

Health-related quality of life (HRQOL) is an important health outcome for youth on dialysis and is often significantly impaired compared to healthy children. In this chapter we review the literature on HRQOL in pediatric dialysis patients and discuss comprehensive assessment of this construct, which may include both generic and disease-specific measures, as well as both parent-proxy and youth self-report. In addition, we will discuss how comorbidities are associated with HRQOL and associations between alternative dialysis modalities and improved HRQOL. The literature on HRQOL in children and adolescents on dialysis would benefit from additional clarity regarding correlates of HRQOL and testing of interventions to improve this important health outcome.

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Author information

Authors and Affiliations

  1. Division of Developmental and Behavioral Health, University of Missouri Kansas City School of Medicine, Children’s Mercy Kansas City, Kansas City, MO, USA

    Rebecca J. Johnson

  2. Department of Pediatrics, Children’s Hospital of Philadelphia, Philadelphia, PA, USA

    Susan L. Furth

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  1. Rebecca J. Johnson
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  2. Susan L. Furth
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Correspondence to Rebecca J. Johnson .

Editor information

Editors and Affiliations

  1. Department of Pediatrics, University of Missouri-Kansas City, School of Medicine, Division of Pediatric Nephrology, Children’s Mercy Kansas City, Kansas City, MO, USA

    Bradley A. Warady

  2. Stanford University School of Medicine, Division of Pediatric Nephrology, Department of Pediatrics, Palo Alto, CA, USA

    Steven R. Alexander

  3. Division of Pediatric Nephrology, Center for Pediatrics and Adolescent Medicine, University of Heidelberg, Heidelberg, Germany

    Franz Schaefer

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Johnson, R.J., Furth, S.L. (2021). Health-Related Quality of Life of Children and Adolescents on Dialysis. In: Warady, B.A., Alexander, S.R., Schaefer, F. (eds) Pediatric Dialysis. Springer, Cham. https://doi.org/10.1007/978-3-030-66861-7_40

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  • DOI: https://doi.org/10.1007/978-3-030-66861-7_40

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  • Publisher Name: Springer, Cham

  • Print ISBN: 978-3-030-66860-0

  • Online ISBN: 978-3-030-66861-7

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