Abstract
Cancer patient dissatisfaction, due to a long waiting time for chemotherapy treatment, is a common complaint. To improve patient satisfaction, our pharmaceutical team was prompted to design a series of information tools for injectable chemotherapy drug treatment (ICDT) patients. This study was based on French Health Authorities recommendations. All three stages were monitored: the preparation stage using a 204 patient survey, the design stage, and the assessment stage with a 12 point questionnaire patient evaluation. An information brochure and a 10-min film were designed which chronologically described key stages in the life cycle of ICDT. Both tools were assessed by 29 and 84 patients respectively. The questionnaire confirmed that this approach met the needs of more than 90 % of patients. The brochure and the film also accurately met the objectives and improved the understanding of the chemotherapy long waiting time which resulted in higher patient satisfaction. The designed tools will continue to evolve with changes in oncology practices based on various indicators defined in the study. Our study proposes an original method to assist health professionals to better inform cancer patients regarding the preparation of ICDT. It is also a part of a continuous quality program to assure quality outpatient healthcare.
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References
République française. 2002. Loi n°2002–303 du 4 mars 2002 relative aux droits des malades et à la qualité du système de santé. https://www.legifrance.gouv.fr/affichTexte.do?cidTexte=JORFTEXT000000227015
Kallen MA, Terrell JA, Lewis-Patterson P, et al. (2012) Improving wait time for chemotherapy in an outpatient clinic at a comprehensive cancer center. J Oncol Pract 8:e1–e7.
Hendershot E, Murphy C, Doyle S, et al. (2005) Outpatient chemotherapy administration: decreasing wait times for patients and families. J Pediatr Oncol Nurs 22:31–37.
Scotté F, Oudard S, Aboudagga H, et al. (2013) A practical approach to improve safety and management in chemotherapy units based on the PROCHE - Programme for optimisation of the chemotherapy network monitoring program. Eur J Cancer 49:541–544.
Welch SJ (2010) Twenty years of patient satisfaction research applied to the emergency department: a qualitative review. Am J Med Qual 25:64–72.
Billing K, Newland H, Selva D (2007) Improving patient satisfaction through information provision. Clin Exp Ophthalmol 35:439–447.
Messina G, Vencia F, Mecheroni S, et al. (2015) Factors affecting patient satisfaction with emergency department care: an Italian rural hospital. Glob J Health Sci 7:30–39.
Fontova-Almató A, Juvinyà-Canal R, Suñer-Soler D (2015) Influence of waiting time on patient and companion satisfaction. Rev Calid Asist 30:10–16.
Zissiadis Y, Provis A, Harper E, et al. (2006) Patient satisfaction in radiation oncology. Australas Radiol 50:455–462.
Lis CG, Rodeghier M, Gupta D (2009) Distribution and determinants of patient satisfaction in oncology: a review of the literature. Patient Prefer Adherence 3:287–304.
Bergenmar M, Nylén U, Lidbrink E, et al. (2006) Improvements in patient satisfaction at an outpatient clinic for patients with breast cancer. Acta Oncol 45:550–558.
Kleeber UR, Tews J-T, Ruprecht T, et al. (2005) Patient satisfaction and quality of life in cancer outpatients: results of the PASQOC study. Support Care Cancer 13:303–310
Berglund CB, Gustafsson E, Johansson H, et al. (2015) Nurse-led outpatient clinics in oncology care-patient satisfaction, information and continuity of care. Eur J Oncol Nurs 13:283
Haute Autorité de santé. 2008. How to produce an information brochure for patients and users of the healthcare system. http://www.has-sante.fr/portail/upload/docs/application/pdf/2009-10/how_to_produce_an_information_brochure_-_methodology_guide.pdf.
S Norlin. Le scénario. http://www.acrif.org/data/site/pdf/Sofia-Ecriture.pdf. Accessed 15 Jan 2012
A Camut, S Menetre, Maurer, et al. 2008. Information des patients en oncologie pédiatrique: création et évaluation d’un livret explicatif «Ma cure de chimiothérapie en hôpital de jour». J Pharm Clin 27:245–253.
INCa. 2008. Guide comprendre la chimiothérapie http://www.ecancer.fr/component/docman/doc_download/7436-guide-comprendre-la-chimiotherapie. Accessed 27 Apr 2014
A-L Lepetit, A Cournede, A-C Danton, et al. 2009. Circuit des chimiothérapies : mise en place d’une information des patients au CHU de Limoges. http://www.gerpac.eu/IMG/pdf/A-LLepetit-Diapos.pdf. Accessed 21 Dec 2011
Clinique Clément Devron. 2011. Zoom sur les préparations de chimiothérapies. http://www.cliniquedrevon.fr/uploads/2011-10%20zoom%20sur%20les%20preparations%20de%20chimiotherapie.pdf. Accessed 29 May 2012
Institut Gustave Roussy. 2012. Les coulisses de la chimiothérapie. http://www.igrvideo.fr/parcours-de-soins/la-chimiotherapie.html. Accessed 6 Jun 2012
Wrexham Maelor Hospital. 2009. Pharmacy department - aseptic unit. http://www.youtube.com/watch?v=SWuL8LhZol0. Accessed 6 Jun 2012
Institut Gustave Roussy. 2010. Ma journée en Hôpital de Jour. http://www.igrvideo.fr/parcours-de-soins/ma-journee-en-hopital-de-jour.html. Accessed 14 Feb 2012
Hôpital Saint Louis - Assistance Publique Hôpitaux de Paris. 2011. UPAC Unité de préparation des anti-cancéreux. http://www.youtube.com/watch?v=b8ex5QGpdz8. Accessed 17 Jun 2012
Institut Curie Paris. 2011. La chimiothérapie en pratique - mutuellemaroc.net.flv. http://www.youtube.com/watch?v=kbbZcRKcpSA. Accessed 6 Jun 2012
Centre François Baclesse. 2015. OPTIMA : OPTImiser la Médecine Ambulatoire en Hôpital de jour - Centre François Baclesse, Caen. http://www.unicancer.fr/actualites/videos-groupe/optima-optimisermedecine-ambulatoire-hopital-jour-centre-francois-baclesse-caen. Accessed 28 Aug 2015
Acknowledgments
The authors are grateful to Jean Luc Plavis and Jean Louis Radet, members of the Commissions in charge of Users and Quality of Healthcare, Corinne Dayot, pharmacy technician manager, and Carina Ribeiro, pharmacy technician for their involvement in this project.
The authors also thank the Oncology and Pneumology departments for their assistance with data collection; the Communication Unit and the Legal Department for their technical support.
We also thank Kaouther Zribi for her help in editing the manuscript.
The authors are also grateful to Richard Medeiros–Medical Editor, Medical Editing International for editing various versions of the manuscript.
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Jobard, M., Sejean, K., Lepage-Seydoux, C. et al. How well Informed are Cancer Patients Prior to a Life Cycle of Injectable Chemotherapy Drug Treatment?. J Canc Educ 33, 74–82 (2018). https://doi.org/10.1007/s13187-016-1079-1
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DOI: https://doi.org/10.1007/s13187-016-1079-1