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Quality of life of persons with dementia

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The journal of nutrition, health & aging

Abstract

Current research on Alzheimer’s disease has been primarily focused on causes and treatment of the disease and on reduction of costs of the burden of care to society. However, considerable emphasis now is placed on person-centered care and the need to enhance the quality of life of people with chronic illnesses and conditions. Alzheimer’s disease and related dementias have not been a central part of this discussion despite the lengthy course of the illness which has been described as the disappearance of the person. The purpose of this article is to review the current state of knowledge about quality of life of persons with dementia and to recommend a set of interventions toward enhancing their QoL. Results of the review indicate a set of objective and subjective indicators of QoL with most interventions focused on compensating for losses related to the disease. Based on recent research on personhood and on social exclusion, we propose a framework for creating age-friendly dementia environments. It is based on hypotheses that quality of life can be enhanced through augmenting personal resources and contexts; and that the progression of the illness results in changes in the ‘best fit’ between resources and contexts.

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References

  1. Canadian Institutes for Health Research (2011) Turning the Tide. A Canadian Strategy for International Leadership in the Prevention and Early Treatment of Alzheimer’s Disease and Related Dementias. Executive Summary, International Collaborative Research Strategy for Alzheimer’s Disease (ICRSAD), p1. Retrieved July 10 from: http://www.cihr-irsc.gc.ca/e/documents/icrsad_report_full_2010-03-25_e.pdf

  2. Keating N, Lero, D., Fast J, Lucas S (2011). A framework and literature review on the economic costs of care. Final report to Human Resources and Skills Development Canada.

  3. Graham N (2003) Dementia and family care: The current international state of affairs. Dementia 2(2): 147–149.

    Article  Google Scholar 

  4. Davis R, Massman P, Doody R. (2001) Cognitive intervention in Alzheimer disease: A randomized placebo-controlled study. Alzheimer Disease and Associated Disorders 15(1): 1–9.

    Article  PubMed  CAS  Google Scholar 

  5. Steeman E, Godderis J, Grypdonck M, De Bal N, De Casterle B. (2007) Living with dementia from the perspective of older people: Is it a positive story? Aging & Mental Health 11(2): 119–130.

    Article  Google Scholar 

  6. Bartlett R, O’Connor D. (2007) From personhood to citizenship: Broadening the lens for dementia practice and research. Journal of Aging Studies 21(2): 107–118.

    Article  Google Scholar 

  7. Dröes, RM, Boelens-Van der Knoop ECC, Bos J, Meihuizen L, Ettema TP, Gerritsen DL, Hoogeveen F, de Lange J, Schölzel-Dorenbos CJM (2006) Quality of life in dementia in perspective: An explorative study of variations in opinions among people with dementia and their professional caregivers, and in literature. Dementia 5(4): 533–558.

    Article  Google Scholar 

  8. Gastmans C, De Lepeleire J (2010) Living to the bitter end? A personalist approach to euthanasia in persons with severe dementia. Bioethics 24(2): 78–86.

    Article  PubMed  Google Scholar 

  9. Mollenkopf H, Walker A (eds.) (2007) Quality of life in old age. International and Multidisciplinary Perspectives. Springer, Dordrecht.

    Google Scholar 

  10. Downs M (1997) The emergence of the person in dementia research. Ageing & Society 17: 597–607.

    Article  Google Scholar 

  11. Levitas R, Pantazis, C, Fahmy E, Gordon D, Lloyd E, Patsios D (2007) The Multidimensional Analysis of Social Exclusion. Social Exclusion Unit, Cabinet Office, UK. Retrieved August 12, 2009 from: http://www.cabinetoffice.gov.uk/media/cabinetoffice/social_exclusion_task_force/assets/research/multidimensional.pdf

  12. Scharf T, Keating N (eds) (Forthcoming, 2012) From exclusion to inclusion in old age: A global challenge The Policy Press, Bristol.

    Google Scholar 

  13. Davis S, Byers S, Nay R, Koch S (2009) Guiding design of dementia friendly environments in residential care settings: Considering the living experiences. Dementia 8(2): 185–203.

    Article  Google Scholar 

  14. Kennedy G (2009) Advanced Age, Dementia, and Driving Guidance for the Patient, Family and Physician. Primary Psychiatry 16(9): 19–23.

    Google Scholar 

  15. Dobbs B, Harper L, Wood A (2009) Transitioning from driving to driving cessation: The role of specialized driving cessation support groups for individuals with dementia. Topics in Geriatric Rehabilitation, 25(1): 73–86.

    Google Scholar 

  16. Moore S, Sandman CA, McGrady K, Kesslak JP (2001) Memory training improves cognitive ability in persons with dementia. Neuropsychological Rehabilitation 11(3/4): 245–261.

    Article  Google Scholar 

  17. Van Hoof J, Kort HSM (2009) Supportive Living Environments: A first concept of a dwelling designed for older adults with dementia. Dementia 8(2): 293–316.

    Article  Google Scholar 

  18. Bicket M, Samus QM, McNabney M, Chiadi UO, Mayer LS, Brandt J, Rabins P, Lyketsos C, Rosenblatt A (2010) The physical environment influences neuropsychiatric symptoms and other outcomes in assisted living residents. International Journal of Geriatric Psychiatry 25: 1044–1054.

    Article  PubMed  Google Scholar 

  19. Cummings S (2002) Predictors of psychological well-being among assisted living residents. Health and Social Work 27(4): 293–302.

    Article  PubMed  Google Scholar 

  20. Wenger GC, Keating N (2008) The evolution of networks of rural older adults. In Keating N (ed) Rural Ageing: A good place to grow old? Policy Press, Bristol pp 33–42.

    Google Scholar 

  21. Miranda-Castillo C, Woods B, Galboda K, Oomman S, Olojugba, C, Martin Orrell M (2010) Unmet needs, quality of life and support networks of people with dementia living at home. Health and Quality of Life Outcomes 8:132.

    Article  PubMed  Google Scholar 

  22. Burge S, Street D (2009) Advantage and choice: social relationships and staff assistance in assisted living. Journal of Gerontology: Social Sciences 65B(3): 358–369.

    Article  Google Scholar 

  23. Gurnik M, Hollis-Sawyer L (2003) Empowering assisted living front-line care staff to better care for Alzheimer’s and dementia residents. Ageing International 28(1) 82–97.

    Article  Google Scholar 

  24. Wiersma EC, Pedlar A (2008) The nature of relationships in alternative dementia care environments. Canadian Journal on Aging 27(1) 101–108.

    Article  PubMed  Google Scholar 

  25. Ploeg J, Denton M, Tindale J, Hutchison B, Brazil K, Akhtar-Danesh N, Lillie J, Millen Plenderleith J (2009) Older adults’ awareness of community health and support services for dementia care. Canadian Journal on Aging 28(4): 359–370.

    Article  PubMed  Google Scholar 

  26. Lui C, Everingham J, Warburton J, Cuthill M, Bartlett H (2009) What makes a community age-friendly: A review of international literature. Australasian Journal on Ageing 28(3): 116–121.

    Article  PubMed  Google Scholar 

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Authors and Affiliations

  1. Department of Human Ecology, University of Alberta, Edmonton, AB, Canada

    N. Keating & N. Gaudet

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  1. N. Keating
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  2. N. Gaudet
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Keating, N., Gaudet, N. Quality of life of persons with dementia. J Nutr Health Aging 16, 454–456 (2012). https://doi.org/10.1007/s12603-011-0346-4

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  • DOI: https://doi.org/10.1007/s12603-011-0346-4

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