Skip to main content
SpringerLink
Log in

Quality of Life for Persons with Intellectual Disabilities: A Review of the Literature

  • Chapter
  • First Online:
Enhancing the Quality of Life of People with Intellectual Disabilities

Part of the book series: Social Indicators Research Series ((SINS,volume 41))

Abstract

This chapter presents a synopsis of the literature about quality of life (QOL) for persons with intellectual disabilities (ID). The primary purposes of this review are to outline the “evolution” of informative conceptual and theoretical perspectives and terms, summarize pertinent research, and to provide a scaffold of knowledge and understanding to empower readers to engage with the following chapters.

This is a preview of subscription content, log in via an institution to check access.

Access this chapter

Log in via an institution
Chapter
USD 29.95
Price excludes VAT (USA)
  • Available as PDF
  • Read on any device
  • Instant download
  • Own it forever
eBook
USD 129.00
Price excludes VAT (USA)
  • Available as EPUB and PDF
  • Read on any device
  • Instant download
  • Own it forever
Softcover Book
USD 169.99
Price excludes VAT (USA)
  • Compact, lightweight edition
  • Dispatched in 3 to 5 business days
  • Free shipping worldwide - see info
Hardcover Book
USD 169.99
Price excludes VAT (USA)
  • Durable hardcover edition
  • Dispatched in 3 to 5 business days
  • Free shipping worldwide - see info

Tax calculation will be finalised at checkout

Purchases are for personal use only

Institutional subscriptions

References

  • Abberley, P. (1986). Modeling the psychological determinants of life quality. In F. M. Andrews (Ed.), Research on the quality of life. Ann Arbor, MI: Institute for Social Research, University of Michigan.

    Google Scholar 

  • Abberley, P. (1987). The concept of oppression and the development of a social theory of disability. Disability, Handicap and Society, 2(1), 5–19.

    Article  Google Scholar 

  • Abbey, A., & Andrews, F. M. (1986). Modeling the psychological determinants of life quality. In F. M. Andrews (Ed.), Research on the quality of life. Ann Arbor, MI: Institute for Social Research, University of Michigan.

    Google Scholar 

  • Abbott-Chapman, J., & Easthope, G. (1998). Participation and inclusion: A discourse of welfare or a discourse of rights? Australian Journal of Social Issues, 33(2), 99–118.

    Google Scholar 

  • Anderson, R. (1988). The quality of life of stroke patients and their carers. In R. Anderson & M. Bury (Eds.), Living with chronic illness: The experience of patients and their families. London: Unwin Hyman.

    Google Scholar 

  • Andrews, F. M. (1980). Comparative studies of life quality: Comments on the current state of the art and some issues for future research. In The quality of life: Comparative studies (pp. 273–285). Beverly Hills, CA: Sage Publications.

    Google Scholar 

  • Andrews, F. M. (1986). Introduction. In F. M. Andrews (Ed.), Research on the quality of life. Ann Arbor, MI: Institute for Social Research, University of Michigan.

    Google Scholar 

  • Andrews, F. M. (1991). Stability and change in levels and structure of subjective well-being. Journal of Health and Social Behaviour, 32, 238–253.

    Article  Google Scholar 

  • Andrews, F. M., & Withy, S. B. (1976). Social indicators of well-being: Americans’ perceptions of life quality. New York: Plenum Press.

    Book  Google Scholar 

  • Antaki, C., & Rapley, M. (1996). Questions and answers to psychological assessment schedules: Hidden troubles in ‘quality of life’ interviews. Journal of Intellectual Disability Research, 40(5), 421–437.

    Article  Google Scholar 

  • Arthur, M. (1998). Socio-communicative variables and behaviour states in students with the most severe and multiple disabilities: An observational study. Unpublished PhD dissertation, Macquarie University, Sydney.

    Google Scholar 

  • Arthur, M. (2001). Educational implications of socio-communicative variables and behavior states in students with profound and multiple disabilities. Unpublished manuscript, University of Newcastle.

    Google Scholar 

  • Arthur, M. (2004). Patterns amongst behaviour states, socio-communicative and activyt variables in education programs for students with profound and multiple disabilities. Journal of Developmental and Physical Disabilities, 16, 125–149.

    Article  Google Scholar 

  • Arthur, M., & Butterfield, N. (1996). Parental perspectives on communication processes involving students with high support needs: A pilot study. Special Education Perspectives, 5(2), 59–63.

    Google Scholar 

  • Arthur, M., Hook, J., & Butterfield, N. (1995). Behaviour state: Exploring issues in best practice for students with the most severe and multiple disabilities. Australasian Journal of Special Education, 19(1), 37–44.

    Article  Google Scholar 

  • Ashman, A. F. (1990). Sterilization and training for normal sexual development: Human rights and obligations. Australia and New Zealand Journal of Developmental Disabilities, 16(3), 359–368.

    Google Scholar 

  • Atkins, C. (1999). Just little things: Nurses’ perceptions of quality of life for people with severe multiple impairments. Unpublished PhD dissertation, University of Sydney, Sydney.

    Google Scholar 

  • Atkinson, T. (1977, August). Is satisfaction a good measure of the perceived quality of life? Paper presented at the 10th Meeting of the American Statistical Association, Toronto, ON.

    Google Scholar 

  • Bach, M. (1994). Quality of life: Questioning the vantage points for research. In M. H. Rioux & M. Bach (Eds.), Disability is not measles: New research paradigms in disability (pp. 127–152). North York, ON: Roeher Institute.

    Google Scholar 

  • Baily, C. F. (1986). Withholding or withdrawing treatment on handicapped newborns. Pediatric Nursing, 12(6), 413–416.

    Google Scholar 

  • Bannerman, D. J., Sheldon, J. B., Sherman, J. A., & Harchick, A. E. (1990). Balancing the right to habilitation with the right to personal liberties: The rights of people with developmental disabilities to eat too many donuts and take a nap. Journal of Applied Behavior Analysis, 23(1), 79–89.

    Article  Google Scholar 

  • Barber, P. (1990). Literature review: Medical decision-making for newborns with disabilities. Quality of life as a criterion. Lawrence, KS: The University of Kansas/Beach Center on Family and Disability.

    Google Scholar 

  • Barlow, J., & Kirby, N. (1992). Residential satisfaction of persons with an intellectual disability living in an institution or in the community. Australian and New Zealand Journal of Developmental Disabilities, 17(1), 7–24.

    Google Scholar 

  • Baroff, G. S. (1986, December). Maximal adaptive competency. Mental Retardation, 24, 367–368.

    Google Scholar 

  • Baum, F. (1995). Researching public health: Behind the qualitative-quantitative methodological debate. Social Science and Medicine, 40(4), 459–468.

    Article  Google Scholar 

  • Bergland, A., & Narum, I. (2007). Quality of life: Diversity in context and meaning. Critical Reviews in Physical and Rehabilitation Medicine, 19(2), 115–139.

    Article  Google Scholar 

  • Bertelli, M., & Brown, I. (2006). Quality of life for people with intellectual disabilities. Current Opinion in Psychiatry, 19(5), 508–513.

    Article  Google Scholar 

  • Bickenbach, J. E. (1993). Physical disability and social policy. Toronto, ON: University of Toronto Press.

    Google Scholar 

  • Bigby, C. (2004). Ageing with a lifelong disability: A guide to practice, program and policy issues for human services professionals. London: Jessica Kingsley.

    Google Scholar 

  • Bigby, C., & Ozanne, E. (2001). Shifts in the model of service delivery in intellectual disability in Australia. Journal of Intellectual and Developmental Disability, 26(2), 177–190.

    Article  Google Scholar 

  • Blackwell, M. W. (1979). Care of the mentally retarded. Boston: Little Brown.

    Google Scholar 

  • Blishen, B., & Atkinson, T. (1980). Anglophone and Francophone differences in perceptions of the quality of life in Canada. In A. Szalai & F. M. Andrews (Eds.), The quality of life: Comparative studies. Beverly Hills, CA: Sage Publications.

    Google Scholar 

  • Bogdan, R. C., & Taylor, S. J. (1989). Relationships with severely disabled people: The social construction of humanness. Social Problems, 36(2), 135–148.

    Article  Google Scholar 

  • Borthwick-Duffy, S. A. (1987). Quality of life of mentally retarded people: Development of a model. Unpublished PhD dissertation, University of California, Riverside, CA.

    Google Scholar 

  • Borthwick-Duffy, S. A. (1990). Quality of life of persons with severe or profound mental retardation. In R. L. Schalock & M. J. Begab (Eds.), Quality of life: International perspectives and issues (pp. 177–190). Washington, DC: American Association on Mental Retardation.

    Google Scholar 

  • Borthwick-Duffy, S. A. (1992). Quality of life and quality of care in mental retardation. In L. Rowitz (Ed.), Mental retardation in the year 2000 (pp. 52–56). New York: Springer.

    Chapter  Google Scholar 

  • Borthwick-Duffy, S. A. (1996). Evaluation and measurement of quality of life: Special considerations for persons with mental retardation. In R. L. Schalock (Ed.), Quality of life: Volume 1: Conceptualization and measurement (pp. 105–119). Washington, DC: American Association on Mental Retardation.

    Google Scholar 

  • Bowe, F. (1978). Handicapping America: Barriers to Disabled People. New York: Harper and Row.

    Google Scholar 

  • Bowles, W. (1995). Quality of life of adults with spina bifida: An issue of equality. Unpublished PhD dissertation, Macquarie University, Sydney, Australia.

    Google Scholar 

  • Bowling, A. (1992). Measuring health. Milton Keynes: Open University Press.

    Google Scholar 

  • Brandtstadter, J., & Baltes-Gotz, B. (1990). Personal control over development and quality of life perspectives in adulthood. In P. B. Baltes & M. M. Baltes (Eds.), Successful aging: Perspectives from the behavioral sciences. Cambridge: Cambridge University Press.

    Google Scholar 

  • Branson, J., & Miller, D. (1992). Normalisation, community care and the politics of difference. Australian Disability Review, 92(4), 17–28.

    Google Scholar 

  • Brief, A. P., Butcher, A. H., George, J. M., & Link, K. E. (1993). Integrating bottom-up and top-down theories of subjective well-being: The case of health. Journal of Personality and Social Psychology, 64(4), 646–653.

    Article  Google Scholar 

  • Brislin, R. (2000). Understanding culture’s influence on behaviour (2nd ed.). Fort Worth, TX: Harcourt College Publishers.

    Google Scholar 

  • Bronfenbrenner, U. (1979). The ecology of human development. Cambridge, MA: Harvard University Press.

    Google Scholar 

  • Brown, C. (1989). My left foot. London: Mandarin.

    Google Scholar 

  • Brown, F., Davis, R., Richards, M., & Kelly, K. (1989). Residential services for adults with profound disabilities. In F. Brown & D. H. Lehr (Eds.), Persons with profound disabilities: Issues and practices (pp. 295–331). Baltimore, MD: Paul H. Brookes.

    Google Scholar 

  • Brown, I. (1999). Embracing quality of life in times of spending restraint. Journal of Intellectual and Developmental Disability, 24(4), 299–308.

    Article  Google Scholar 

  • Brown, N., McLinden, M., & Porter, J. (1998). Sensory needs. In P. Lacey & C. Ouvry (Eds.), People with profound and multiple learning disabilities: A collaborative approach to meeting complex needs (pp. 29–38). London: David Fulton.

    Google Scholar 

  • Brown, P. M., & Brown, R. I. (1996). Developmental handicaps and gender differences in quality of life. Ottawa, ON: Health and Welfare.

    Google Scholar 

  • Brown, R. I. (1990). Quality of life for people with learning difficulties: The challenge for behavioural and emotional disturbance. International Review of Psychiatry, 2, 23–32.

    Article  Google Scholar 

  • Brown, R. I. (1995). Measuring new dimensions through quality of life: The personal equation. Evaluation Journal of Australasia, 7(1), 14–23.

    Google Scholar 

  • Brown, R. I. (1997a). Quality of life: Challenges and dilemmas. Journal on Developmental Disabilities, 5(2), 22–33.

    Google Scholar 

  • Brown, R. I. (1997b). Quality of life: The development of an idea. In R. I. Brown (Ed.), Quality of life for people with disabilities: Models, research and practice (2nd ed, pp. 1–10). Cheltenham: Stanley Thornes.

    Google Scholar 

  • Brown, R. I. (Ed.). (1997c). Quality of life for people with disabilities: Models, research and practice. Cheltenham: Stanley Thornes.

    Google Scholar 

  • Brown, R. I. (1998a, October). Conceptualisation of quality of life: An overview. Paper presented at the 1998 Australian Society for the Study of Intellectual Disability (ASSID) Conference: Conceptualisation of quality of life workshop, Flinders University of South Australia, Adelaide, Australia.

    Google Scholar 

  • Brown, R. I. (2006). Professional development: Education and practice. In I. Brown, & M. Percy (Eds.), Intellectual and developmental disabilities. Baltimore, MD: Paul H. Brookes.

    Google Scholar 

  • Brown, R. I., & Bayer, M. B. (1992). Rehabilitation Programmes Study. In R. I. Brown (Ed.), Empowerment and developmental handicaps: Choices and quality of Life (pp. 7–20). London: Chapman and Hall.

    Google Scholar 

  • Brown, R. I., Bayer, M. B., & Brown, P. M. (1992). Empowerment and developmental disabilities. Toronto, ON: Captus Press.

    Google Scholar 

  • Brown, R. I., Bayer, M. B., & MacFarlane, C. (1988). Quality of life amongst handicapped adults. In R. I. Brown (Ed.), Quality of life for handicapped people (pp. 111–140). London: Croom Helm.

    Google Scholar 

  • Brown, R. I., Bayer, M. B., & MacFarlane, C. (1989). Rehabilitation programmes: The performance and quality of life of adults with developmental handicaps ( Vol. 1). Toronto, ON: Lugus Productions.

    Google Scholar 

  • Brown, R. I., & Brown, I. (2005). The application of quality of life. Journal of Intellectual Disability Research, 49(10), 718–733.

    Article  Google Scholar 

  • Brown, R. I., Brown, P. M., & Bayer, M. B. (1994). A quality of life model: New challenges resulting from a six year study. In D. Goode (Ed.), Quality of life for persons with disabilities: International perspectives and issues. Cambridge, MA: Brookline Books.

    Google Scholar 

  • Brown, R. I., & Schalock, R. I. (2005). The concept of quality of life and its application to persons with intellectual disabilities. Unpublished manuscript.

    Google Scholar 

  • Brown, R. I., & Shearer, J. (1999). Challenges for inclusion within a quality of life model for the 21st century. Australasian Journal of Special Education, 22(3), 180–194.

    Article  Google Scholar 

  • Brown, R. I., & Shearer, J. (2004). Challenges for inclusion within a quality of life model for the 21st century. In D. Mitchell (Ed.), Special educational needs and inclusive education: Major themes in education (Vol. 2, pp139–pp156). London: Routledge Falmer.

    Google Scholar 

  • Browne, G., & Bramston, P. (1996). Quality of life in the families of young people with intellectual disabilities. Australian and New Zealand Journal of Mental Health Nursing, 5, 120–130.

    Google Scholar 

  • Brudenell, P. (1986). The other side of profound handicap. Hampshire: Macmillan.

    Google Scholar 

  • Butow, H. (1993). Australian disability strategy. Australian Disability Review, 93(4), 5–11.

    Google Scholar 

  • Butterfield, N., Arthur, M., & Linfoot, K. (1992). Meeting communication needs in communication programming for students with severe intellectual disability: The creating communicative contexts manual. Special Education Perspectives, 1(1), 35–43.

    Google Scholar 

  • Byrne, H., & MacLean, D. (1997). Quality of life: Perceptions of residential care. International Journal of Nursing Practice, 3, 21–28.

    Google Scholar 

  • Campbell, A., Converse, P. E., & Rodgers, W. L. (1976). The quality of American life: Perceptions, evaluations and satisfactions. New York: Sage Publications.

    Google Scholar 

  • Campo, S. F., Sharpton, W. R., Thompson, B., & Sexton, D. (1996). Measurement characteristics of the Quality of Life Index when used with adults who have severe mental retardation. American Journal on Mental Retardation, 100(5), 546–550.

    Google Scholar 

  • Campo, S. F., Sharpton, W. R., Thompson, B., & Sexton, D. (1997). Correlates of the quality of life of adults with severe or profound mental disabilities. Mental Retardation, 35(5), 329–337.

    Article  Google Scholar 

  • Carter, M., Chalmers, S. E., Clayton, M., & Hook, J. (1998). Teachers’ perceptions of possible best practices, reported implementation and training needs for students with high support needs: Comparisons across qualification status and teacher location. Australasian Journal of Special Education, 22(1), 50–70.

    Article  Google Scholar 

  • Carter, M., & Hook, J. (1998). Communication programming for students with high support needs: A model for deciding what to teach. Special Education Perspectives, 7(1), 42–55.

    Google Scholar 

  • Cheng, S. (1988). Subjective quality of life in the programming and evaluation of programs. Evaluation and Program Planning, 11, 123–134.

    Article  Google Scholar 

  • Chibnall, J. T., & Tait, R. C. (1990). The quality-of-life scale: A preliminary study with chronic pain patients. Evaluation and Health Professions, 10, 186–200.

    Google Scholar 

  • Christiansen, C. (1993). Continuing challenges of functional assessment in rehabilitation: Recommended changes. American Journal of Occupational Therapy, 47(3), 258–259.

    Article  Google Scholar 

  • Cirrin, F. M., & Rowland, C. M. (1985). Communicative assessment of non-verbal youths with severe/profound mental retardation. Mental Retardation, 23(2), 52–62.

    Google Scholar 

  • Clements, D. B., Copeland, L. G., & Loftus, M. (1990). Critical times for families with a chronically ill child. Pediatric Nursing, 16(2), 157–161.

    Google Scholar 

  • Compton, D. A. (1997). (Ed.). Issues in therapeutic recreation: a profession in transition. Champaign: Sagamore Press.

    Google Scholar 

  • Conway, R. N. F. (1992). Disability and legislation: The relationship between changing policy and changing practices. Australia and New Zealand Journal of Developmental Disabilities, 18(2), 65–73.

    Google Scholar 

  • Cook, V. (2003). Subjective wellbeing: An integration of depression, stress, and Homeostasis Theory. Unpublished PhD Thesis, Deakin University, Melbourne, Australia.

    Google Scholar 

  • Costa, P. T., McCrea, R. R., & Zonderman, A. B. (1987). Environmental and dispositional influences on well-being: Longitudinal follow-up of an American national sample. British Journal of Psychology, 78, 299–306.

    Article  Google Scholar 

  • Cowan, E. L. (1991). In pursuit of wellness. American Psychologist, 46(4), 404–408.

    Article  Google Scholar 

  • Crossley, R., & McDonald, A. (1980). Annie’s coming out. Ringwood, NJ: Penguin.

    Google Scholar 

  • Crow, L. (1996). Including all of our lives: Renewing the social model of disability. In C. Barnes & G. Mercer (Eds.), Exploring the divide: Illness and disability (pp. 55–73). Leeds: The Disability Press.

    Google Scholar 

  • Crutcher, D. M. (1990). Quality of life verses quality of life judgements: A parent’s perspective. In R. L. Schalock & M. J. Begab (Eds.), Quality of life: Perspectives and issues (pp. 17–22). Washington, DC: American Association on Mental Retardation.

    Google Scholar 

  • Cummins, R. (2007). Subjective wellbeing and quality of life: a cross-cultural perspective. In K. Rao, I. J. Prakash, K. Srinivasan, & NIMHANS (Institute) (Eds.), Mindscapes: Global perspectives on psychology in mental health, pp. 21–31.

    Google Scholar 

  • Cummins, R. (2003). Normative life satisfaction: measurement issues and a homeostatic model, Social indicators research, 64(2), 225–256.

    Article  Google Scholar 

  • Cummins, R. A. (1993). On being returned to the community: Imposed ideology verses quality of life. Australian Disability Review, 93(2), 64–72.

    Google Scholar 

  • Cummins, R. A. (1995). On the trail of the golden standard for subjective well-being. Social Indicators Research, 35, 179–200.

    Article  Google Scholar 

  • Cummins, R. A. (1996a). Bibliography on quality of life and cognate areas of study (5th ed.). Melbourne: School of Psychology, Deakin University.

    Google Scholar 

  • Cummins, R. A. (1996b). Assessing quality of life. In R. L. Schalock (Ed.), Quality of life. Volume I: Conceptualization and measurement. Washington, DC: American Association on Mental Retardation.

    Google Scholar 

  • Cummins, R. A. (1997). Assessing quality of life. In R. I. Brown (Ed.), Quality of life for people with disabilities: Models, research and practice (2nd ed, pp. 116–150). Cheltenham: Stanley Thornes.

    Google Scholar 

  • Cummins, R. A. (2000). Objective and subjective quality of life: An interactive model. Social Indicators Research, 52, 55–72.

    Article  Google Scholar 

  • Cummins, R. A. (2005a). Moving from the quality of life concept to a theory. Journal of Intellectual Disability Research, 49(10), 698–706.

    Article  Google Scholar 

  • Cummins, R. A. (Ed.). (2005d). Issues in the systemic assessment of quality of life. Malden, MA: Blackwell Publishing.

    Google Scholar 

  • Cummins, R. A., Eckersley, R., Lo, S. K., Okerstrom., E., Hunter, B., & Davern, M. (2004). Australian unity wellbeing index: Cumulative psychometric record. Melbourne: Australian Centre of Quality of Life, School of Psychology, Deakin University.

    Google Scholar 

  • Cummins, R. A., & Lau, A. L. D. (2005). Quality of life measurement. In R. Norman & D. Currow (Eds.), Supportive care of the urology patient. Oxford: Oxford University Press.

    Google Scholar 

  • Cummins, R. A., McCabe, M., Romeo, Y., Reid, S., & Waters, L. (1997). An initial evaluation of the Comprehensive quality of life scale: Intellectual disability. International Journal of Disability, Development and Education, 44(1), 7–19.

    Article  Google Scholar 

  • Dagnan, D. (1996). Levels of engagement in hospital and community-based homes for people with learning disabilities: Can individual characteristics account for differences? International Journal of Rehabilitation Research, 19, 313–319.

    Article  Google Scholar 

  • Dagnan, D., Look, R., Ruddick, L., & Jones, J. (1995). Changes in the quality of life of people with learning disabilities who moved from hospital to live in community-based homes. International Journal of Rehabilitation Research, 18(2), 115–122.

    Article  Google Scholar 

  • Dale, A. E. (1995). A research study exploring the patient’s view of quality of life using the case study method. Journal of Advanced Nursing, 22, 1128–1134.

    Article  Google Scholar 

  • Daly, J., Mitchell, G. J., & Jonas-Simpson, C. M. (1996). Quality of life and the human becoming theory: Exploring discipline-specific contributions. Nursing Science Quarterly, 9(4), 170–174.

    Article  Google Scholar 

  • Davis, E., & Fine-Davis, M. (1991). Social indicators of living conditions in Ireland with European comparison. Social Indicators Research, 25(2–4), 318–353.

    Google Scholar 

  • Davison, I. (1977). Values, ends and society. St. Lucia: University of Queensland Press.

    Google Scholar 

  • Dempsey, I., & Foreman, P. (1997). Towards a clarification of empowerment as an outcome of disability service provision. International Journal of Disability, 44(4), 287–303.

    Google Scholar 

  • Dennis, R. E., Williams, W., Giangreco, M. F., & Cloninger, C. J. (1993). Quality of life as a context for planning and evaluation of services for people with disabilities. Exceptional Children, 59(6), 499–512.

    Google Scholar 

  • Denzin, N. K., & Lincoln, Y. S. (Eds.). (2000). Handbook of qualitative research. Thousand Oaks, CA: Sage Publications.

    Google Scholar 

  • De Waele, I., & Van Hove, G. (2005). Modern times: An ethnographic study on the quality of life of peole with a high support need in a Flemish residence. Disability & Society, 20, 6.

    Google Scholar 

  • De Waele, I., van Loon, J., Van Hove, G., & Schalock, R. L. (2005). Quality of life versus quality of care: Implications for people and programs. Journal of Policy and Practice in Intellectual Disabilities, 2(3/4), 229–239.

    Article  Google Scholar 

  • Diener, E. (1984). Subjective well-being. Psychological Bulletin, 95(3), 542–575.

    Article  Google Scholar 

  • Diener, E. (1994). Assessing subjective well-being: Progress and opportunities. Social Indicators Research, 31, 103–157.

    Article  Google Scholar 

  • DisAbility Services Division. (2000). Quality of life assessment for people with a disability. Melbourne: Victorian Government Department of Human Services.

    Google Scholar 

  • Dossa, P. A. (1989). Quality of life: Individualism or holism? A critical review of the literature. International Journal of Rehabilitation Research, 12(2), 121–136.

    Article  Google Scholar 

  • Edgerton, R. B. (1990). Quality of life from a longitudinal research perspective. In R. L. Schalock & M. J. Begab (Eds.), Quality of life: Perspectives and issues (pp. 149–160). Washington, DC: American Association on Mental Retardation.

    Google Scholar 

  • Edgerton, R. B. (1996). A longitudinal-ethnographic research perspective on quality of life. In R. L. Schalock (Ed.), Quality of life: Volume 1: Conceptualization and measurement (pp. 53–90). Washington, DC: American Association on Mental Retardation.

    Google Scholar 

  • Einfeld, M. (1998, November/December). Rights, obligations, responsibilities: The human dimension: 1998 Kenneth Jenkins Oration. ACROD Newsletter [Australian Council for Rehabilitation of Disabled], 8–17.

    Google Scholar 

  • Emerson, E. (1985). Evaluating the impact of deinstitutionalisation on the lives of mentally retarded people. American Journal on Mental Deficiency, 90, 277–288.

    Google Scholar 

  • Emerson, E., Hatton, C., Thomson, T., & Parmenter, T. (2004). The international handbook of applied research in intellectual disability. Chichester: Wiley.

    Book  Google Scholar 

  • Emerson, E., Robertson, J., Hatton, C., Knapp, M., Walsh, P. N., & Hallam, A. (2005). Costs and outcomes of community residential supports in England. In R. Stancliffe & C. Lakin (Eds.), Cost and outcomes of community services for peole with intellectual disabilities. Baltimore: P. H. Brookes.

    Google Scholar 

  • Erikson, R., & Uusitalo, H. (1987). The Scandinavian approach to welfare research. International Journal of Sociology, 15(3–4), 176–193.

    Google Scholar 

  • Evans, D. R. (1994). Enhancing quality of life in the population at large. Social Indicators Research, 33, 47–88.

    Article  Google Scholar 

  • Everingham, C. (1998). The imagined community of access and equity. Australian Journal of Social Issues, 33(1), 1–16.

    Google Scholar 

  • Fabian, E. S. (1991). Using quality-of-life indicators in rehabilitation program evaluation. Rehabilitation Counselling Bulletin, 34(4), 344–356.

    Google Scholar 

  • Faden, R., & Laplege, A. (1992). Assessing quality of life: Moral implication for clinical practice. Medical Care, 30, 166–175.

    Article  Google Scholar 

  • Fallon, M., & Harris, M. (1991). Training parents to interact with their young children with handicaps: Professional -directed or parent-oriented approaches. Infant-Toddler Intervention, 1, 297–313.

    Google Scholar 

  • Fantova, F. (2005a). Manual para la gestion de la intervencion social (manual for social intervention management). Madrid: CCS.

    Google Scholar 

  • Fantova, F. (2005b). Tercer sector e intervencion social (Third sector and social intervention). Madrid: PPC.

    Google Scholar 

  • Feil, N. (1993). The validation breakthrough. Sydney: McLennan & Petty.

    Google Scholar 

  • Felce, D. (1997). Defining and applying the concept of quality of life. Journal of Intellectual Disability Research, 41(2), 126–135.

    Article  Google Scholar 

  • Felce, D., & Perry, J. (1995). Quality of life: Its definition and measurement. Research in Developmental Disabilities, 16(1), 51–74.

    Article  Google Scholar 

  • Felce, D., & Perry, J. (1996). Assessment of quality of life. In R. L. Schalock (Ed.), Quality of life: Volume 1: Conceptualization and measurement (pp. 63–72). Washington, DC: American Association on Mental Retardation.

    Google Scholar 

  • Felce, D., & Perry, J. (1997). Quality of life: The scope of the term and its breadth of measurement. In R. I. Brown (Ed.), Quality of life for people with disabilities: Models, research and practice (2nd ed, pp. 56–71). Cheltenham: Stanley Thornes.

    Google Scholar 

  • Ferguson, D. L. (1994). Is communication really the point? Some thoughts on intervention and membership. Mental Retardation, 32(1), 7–18.

    Google Scholar 

  • Ferguson, R. V. (1996). Environmental design and quality of life. In R. I. Brown (Ed.), Quality of life for people with disabilities: Models, research and practice. Cheltenham: Stanley Thornes.

    Google Scholar 

  • Ferrans, C., & Powers, M. (1985). Quality of Life Index: Development and psychometric properties. Advances in Nursing Science, 8, 15–24.

    Google Scholar 

  • Finkelstein, V. (1993a). Disability: A social challenge or an administrative responsibility? In J. Swain, V. Finkelstein, S. French & M. Oliver (Eds.), Disabling barriers – enabling environments (pp. 34–43). London: Sage.

    Google Scholar 

  • Finkelstein, V. (1993b). The commonality of disability. In J. Swain, V. Finkelstein, S. French & M. Oliver (Eds.), Disabling barriers – enabling environments (pp. 13–16). London: Sage.

    Google Scholar 

  • French, S. (1993a). Disability, impairment or something in between? In J. Swain, V. Finkelstein, S. French & M. Oliver (Eds.), Disabling barriers – enabling environments (pp. 17–25). London: Sage.

    Google Scholar 

  • French, S. (1993b). What’s so great about independence? In J. Swain, V. Finkelstein, S. French & M. Oliver (Eds.), Disabling barriers – enabling environments (pp. 44–48). London: Sage.

    Google Scholar 

  • Fuhrer, M. J. (1994). Subjective well-being: Implications for medical rehabilitation outcomes and models of disablement. American Journal of Physical Medicine and Rehabilitation, 73(5), 358–364.

    Article  Google Scholar 

  • Fulcher, G. (1989). Disability: A social construction. In G. Lupton & J. Najman (Eds.), Sociology of health and illness: Australian readings. Melbourne: Macmillan.

    Google Scholar 

  • Fullagher, S., & Hardaker, K. (1993). Debating disability: A critical review of current issues in service provision for people with intellectual disability. Australian Disability Review, 93(4), 36–46.

    Google Scholar 

  • Gardner, H. (1985). The mind’s new science. New York: Basic Books.

    Google Scholar 

  • Gardner, J. E., & Carran, D. (2005). Attainment of personal outcomes by people with developmental disabilities. Mental Retardation, 43, 157–174.

    Article  Google Scholar 

  • Gioiella, E. C. (1994). Guest editorial – Quality of life: An international commitment. Nursing Science Quarterly, 7(1), 1.

    Article  Google Scholar 

  • Gleason, J. J. (1993). The creation of meaning: What persons with severe or profound multiple disabilities do in context. Australia and New Zealand Journal of Developmental Disabilities, 18(3), 157–167.

    Google Scholar 

  • Gleeson, B. (1995). Disability: A state of mind? Australian Journal of Social Issues, 30(1), 10–23.

    Google Scholar 

  • Golden, J., & Reese, M. (1996). Focus on communication: Improving interaction between staff and residents who have severe or profound mental retardation. Research in Developmental Disabilities, 17(5), 363–382.

    Article  Google Scholar 

  • Goode, D. A. (1984). Socially produced identities, intimacy and the problem of competence among the retarded. In L. Barton & S. Tomlinson (Eds.), Special education and social interests (pp. 228–248). London: Croom Helm.

    Google Scholar 

  • Goode, D. A. (1988). Quality of life for persons with disabilities: A review and synthesis of the literature. New York: Mental Retardation Institute.

    Google Scholar 

  • Goode, D. A. (1990a). On understanding without words: Communication between a deaf-blind child and her parents. Human Studies, 13, 1–37.

    Article  Google Scholar 

  • Goode, D. A. (1990b). Thinking about and discussing quality of life. In R. L. Schalock & M. J. Begab (Eds.), Quality of life: Perspectives and issues (pp. 41–57). Washington, DC: American Association on Mental Retardation.

    Google Scholar 

  • Goode, D. A. (1992, May). Quality of life policy: Some issues and implications of a generic social policy concept for people with developmental disabilities. Paper presented at the Annual Meeting of the American Association on Mental Retardation, New Orleans, LA.

    Google Scholar 

  • Goode, D. A. (1994). A world without words: The social construction of children born deaf and blind. Philadelphia, PA: Temple University Press.

    Google Scholar 

  • Goode, D. A. (1995). Self-determination and choice by people with severe intellectual disability. New York: College of Staten Island.

    Google Scholar 

  • Goode, D. A. (1997). Assessing the quality of life of adults with profound disabilities. In R. I. Brown (Ed.), Quality of life for people with disabilities: Models, research and practice (2nd ed., pp. 72–90). Cheltenam: Stanley Thornes.

    Google Scholar 

  • Goode, D. A., & Hogg, J. (1994). Towards an understanding of holistic quality of life in people with profound intellectual and multiple disabilities. In D. Goode (Ed.), Quality of life for persons with disabilities: International perspectives and issues (pp. 197–207). Cambridge, MA: Brookline Books.

    Google Scholar 

  • Goodinson, S. M., & Singleton, J. (1989). Quality of life: A critical review of current concepts, measures and their clinical implications. International Journal of Nursing Studies, 26, 327–341.

    Article  Google Scholar 

  • Gordon, A. K. (1984). Reaction to Gibson. Mental Retardation, 22(4), 164–166.

    Google Scholar 

  • Green, C. W., Gardner, S. M., & Reid, D. H. (1997). Increasing indices of happiness among people with profound multiple disabilities: A program replication and component analysis. Journal of Applied Behavior Analysis, 30(2), 217–228.

    Article  Google Scholar 

  • Green, C. W., & Reid, D. H. (1996). Defining, validating, and increasing indices of happiness among people with profound multiple disabilities. Journal of Applied Behavior Analysis, 29(1), 67–78.

    Article  Google Scholar 

  • Griffin, T. (1998, May). Quality in action or quality inaction: Reflections on quality. Keynote address. Paper presented at the Australian Society for the Study of Intellectual Disability (ASSID; NSW): 4th Annual State Conference, University of Sydney, Sydney, Australia.

    Google Scholar 

  • Guba, E. G., & Lincoln, Y. S. (1994). Competing paradigms in qualitative research. In N. K. Denzin & Y. S. Lincoln (Eds.), Handbook of qualitative research. Thousand Oaks, CA: Sage Publications.

    Google Scholar 

  • Guess, D., Benson, H. A., & Siegal-Causey, E. (1985). Concepts and issues related to choice-making and autonomy among persons with severe disabilities. The Journal of the Association for People with Severe Handicaps, 10, 79–86.

    Google Scholar 

  • Guess, D., Roberts, S., & Behrens, G. A. (1998). Response to Mudford, Hogg, and Roberts on continuous recording of behavior state. American Journal on Mental Retardation, 103(1), 75–79.

    Article  Google Scholar 

  • Guess, D., Roberts, S., Seigal-Causey, E., & Rues, J. (1995). Replication and extended analysis of behaviour state, environmental events, and related variables among individuals with profound disabilities. American Journal on Mental Retardation, 100(1), 36–51.

    Google Scholar 

  • Gustiatas, R., & Young, E. W. D. (1986). A time to be born, a time to die: Conflicts and ethics in an intensive care nursery. Reading, MA: Addison-Wesley.

    Google Scholar 

  • Halpern, A. S. (1993a). Quality of life as a conceptual framework for evaluating transition outcomes. Exceptional Children, 59(6), 486–498.

    Google Scholar 

  • Halpern, A. S. (1993b, July). Evaluation of the transition process from a qualitative process. Paper presented at the Second International Transition Conference, Sydney, Australia.

    Google Scholar 

  • Halpern, A. S., Nave, G., Close, D. W., & Nelson, D. (1986). An empirical analysis of the dimensions of community adjustments for adults with mental retardation in semi-independent living situations. Australian and New Zealand Journal of Developmental Disabilities, 12(3), 147–157.

    Google Scholar 

  • Hankiss, E. (1980). Structural variables in cross-cultural research on the quality of life. In A. Szalai & F. M. Andrews (Eds.), The quality of life: Comparative studies. Thousand Oaks, CA: Sage Publications.

    Google Scholar 

  • Haring, T. G. (1996). The role of research in the continuing development of the field of severe disabilities. Journal of the Association for Persons with Severe Handicaps, 21(1), 6–8.

    Google Scholar 

  • Harner, C. J., & Heal, L. W. (1993). The multifaceted lifestyle satisfaction scale (MLSS): Psychometric properties of an interview schedule for assessing personal satisfaction of adults with limited intelligence. Research in Developmental Disabilities, 14, 221–236.

    Article  Google Scholar 

  • Hatton, C. (1998). Whose quality of life is it anyway? Some emerging problems with the quality of life consensus. Mental Retardation, 36(2), 104–115.

    Article  Google Scholar 

  • Headey, B. (1988). The life satisfactions and priorities of Australians. In J. Kelly & C. Gean (Eds.), Australian attitudes: Social and political analyses from the national social science survey (pp. 163–175). Sydney: Allen and Unwin.

    Google Scholar 

  • Headey, B. (1993). An economic model of subjective well-being: Integrating subjective and sociological theories. Social Indicators Research, 28, 97–116.

    Article  Google Scholar 

  • Headey, B., & Wearing, A. (1992). Understanding happiness: A theory of subjective well-being. Melbourne: Longman Cheshire.

    Google Scholar 

  • Heal, L. W., Borthwick-Duffy, S. A., & Saunders, R. R. (1994). Assessment of quality of life. In D. A. Goode (Ed.), Quality of life for persons with disabilities: International perspectives and issues (pp. 199–209). Cambridge, MA: Brookline Books.

    Google Scholar 

  • Heal, L. W., & Chadsey-Rusch, J. (1985). The lifestyle satisfaction scale (LSS): Assessing individuals satisfaction with residence, community setting and associated services. Applied Research in Mental Retardation, 6, 475–490.

    Article  Google Scholar 

  • Heal, L. W., & Sigelman, C. K. (1990). Methodological issues in measuring the quality of life of individuals with mental retardation. In R. L. Schalock & M. J. Begab (Eds.), Quality of life: Perspectives and issues (pp. 161–176). Washington, DC: American Association on Mental Retardation.

    Google Scholar 

  • Heal, L. W., & Sigelman, C. K. I. (1992). Interviewing respondents who have limited mental ability. Paper presented at the International Symposium on the Assessment of Exceptional Children, Changhua, Taiwan.

    Google Scholar 

  • Heal, L. W., & Sigelman, C. K. (1996). Methodological issues in quality of life measurement. In R. L. Schalock (Ed.), Quality of life: Volume 1: Conceptualization and measurement (pp. 91–104). Washington, DC: American Association on Mental Retardation.

    Google Scholar 

  • Health Commission of New South Wales. (1981). Circular 81/8. Sydney: Health Commission of New South Wales.

    Google Scholar 

  • Hedley, R. A., Dubin, R., & Traveggia, T. C. (1980). The quality of working life, gender and occupational status: A cross-national comparison. In A. Szalai & F. M. Andrews (Eds.), The quality of life: Comparative studies. Beverly Hills, CA: Sage Publications.

    Google Scholar 

  • Hogg, J. (1992). Behavioural state and affective communication in people with profound intellectual and multiple disabilities as indicators of their response to service provision: Grant Application to the Scottish Home Office and Health Department. Dundee: White Tops Research Unit, Dundee University.

    Google Scholar 

  • Hogg, J. A., & Lambe, L. (1991). People with profound and multiple disabilities: Retrospect and prospects. In S. Segal & V. Varma (Eds.), Prospects for people with learning difficulties (pp. 61–71). London: David Fulton.

    Google Scholar 

  • Hogg, J., & Sebba, J. (1987). Profound retardation and multiple impairment: Volume 1: Development and learning. Rockville, MD: Aspen Publishers.

    Google Scholar 

  • Holm, P., Holst, J., & Perit, B. (1994). Co-write your own life: Quality of life as discussed in a Danish context. In D. A. Goode (Ed.), Quality of life for persons with disabilities: International perspectives and issues. Cambridge, MA: Brookline Books.

    Google Scholar 

  • Horn, R. V. (1993). Statistical indicators for the economic and social sciences. Port Melbourne: Cambridge University Press.

    Book  Google Scholar 

  • Hughes, C., & Hwang, B. (1996). Attempts to conceptualize and measure quality of life. In R. L. Schalock (Ed.), Quality of life: Volume 1: Conceptualization and measurement (pp. 51–61). Washington, DC: American Association of Mental Retardation.

    Google Scholar 

  • Hughes, C., Hwang, B., Kim, J. -H., Eisenman, L. T., & Killian, D. J. (1995). Quality of life in applied research: A review and analysis of empirical measures. American Journal on Mental Retardation, 99(6), 623–641.

    Google Scholar 

  • Hutchinson, S. A. (1984). Creating meaning: A grounded theory of NICU nurses. Nursing Outlook, 32, 86–90.

    Google Scholar 

  • Ingelhart, R., & Rabier, J. R. (1986). Aspirations adapt to situations – But why are the Bavarians so much happier than the French? In F. M. Andrews (Ed.), Research on the quality of life. Ann Arbor, MI: University of Michigan.

    Google Scholar 

  • International Organisation for Stanndardization (ISO). (2003). ISO 9000 quality management: ISO Standards compendium. New York: American Standards Institute.

    Google Scholar 

  • International Wellbeing Group. (2005). Normative data – International. Melbourne: Deakin University.

    Google Scholar 

  • Ivancic, M., & Barrett, G. T. (1997). A replication to increase happiness indices among some people with profound multiple disabilities. Research in Developmental Disabilities, 18(1), 77–92.

    Article  Google Scholar 

  • Johnson, K. (1998). Deinstitutionalising women. An ethnographic study of institutional closure. Cambridge: Cambridge University Press.

    Google Scholar 

  • Johnstone, M. J. (1988). Quality versus quality of life: Who should decide? Australian Journal of Advanced Nursing, 6(1), 30–37.

    Google Scholar 

  • Jones, J., Ouellette-Kuntz, H., Vilela, T., & Brown, H. (2008). Attitudes of community developmental services agency staff towards issues of inclusion for individuals with intellectual disabilities. Journal of Policy and Practice in Intellectual Disabilties, 5(4), 219–226.

    Article  Google Scholar 

  • Kahneman, D., Diener, E., & Schwartz, N. (Eds.) (1999). Well-being: The foundations of hedonic psychology. New York: Russell Sage Foundation.

    Google Scholar 

  • Karlsson, G. (1992). The health economist’s point of view concerning quality of life. Nordic Journal of Psychiatry, 46, 95–99.

    Article  Google Scholar 

  • Karon, S. L., & Bernard, S. (2002). Development of operational definitions of quality indicators for Medicaid Services for people with disabilities. Washington, DC: Centres for Medicare and Medical Services.

    Google Scholar 

  • Kearney, P. M. (1996). Between joy and sorrow: Being the parent of a child with a developmental disability. Unpublished Master’s thesis, University of Western Sydney, Penrith South, Australia.

    Google Scholar 

  • Kebbon, L. (1997). Nordic contributions to disability policies. Journal of Intellectual Disability Research, 41(2), 120–125.

    Article  Google Scholar 

  • Keenan, B. (1992). An evil cradling. London: Vintage Press.

    Google Scholar 

  • Keith, K. D. (1996a). Measuring quality of life across cultures: Issues and challenges. In R. L. Schalock (Ed.), Quality of life: Volume 1: Conceptualization and measurement (pp. 73–82). Washington, DC: American Association on Mental Retardation.

    Google Scholar 

  • Keith, K. D. (1996b). Cross-cultural measurement of critical quality of life concepts. Journal of Intellectual and Developmental Disability, 21(4), 273–293.

    Article  Google Scholar 

  • Kiuranov, C. (1980). An integral indicator of the quality of work and the quality of life. In A. Szali, & F. M. Andrews (Eds.), The quality of life: Comparative studies. Beverly Hills, CA: Sage Publications.

    Google Scholar 

  • Knoll, J. A. (1990). Defining quality in residential services. Baltimore, MD: Paul A. Brookes.

    Google Scholar 

  • Kolstad, A. (1994). Quality of life: The concept and how to measure it. Paper presented at the Social Research and the Quality of Life, Inaugural Conference of the Australian Association for Social Research, University of Tasmania, Launceston, Australia.

    Google Scholar 

  • Kozleski, E. B., & Sands, D. J. (1992). The yardstick of social validity: Evaluating quality of life as perceived by adults without disabilities. Education and Training in Mental Retardation, 27(2), 119–131.

    Google Scholar 

  • Kuehn, M. L., & McClainm, J. W. (1994). Quality of life in the United States: A multicultural context. In D. A. Goode (Ed.), Quality of life for persons with disabilities. International perspectives and issues. Cambridge, MA: Brookline Books.

    Google Scholar 

  • Kuhse, H., & Singer, P. (1985). Should the baby live? The problem of handicapped infants. Oxford: Oxford University Press.

    Google Scholar 

  • Lakin, K. C. (1992, Fall). Improving the quality of community living to empower people with mental retardation. OSERS News, 30–35.

    Google Scholar 

  • Lance, C. E., Lautenschlager, G. J., Sloan, C. E., & Varca, P. E. (1989). A comparison between bottom-up, top-down, and bi-directional models of relationships between global and life facet satisfaction. Journal of Personality, 57(3), 601–623.

    Article  Google Scholar 

  • Land, K. C. (1983). Social indicators. Annual Review Sociology, 9, 1–26.

    Article  Google Scholar 

  • Landesman, S. (1986). Quality of life and personal satisfaction: Definition and measurement issues. Mental Retardation, 24(3), 141–143.

    Google Scholar 

  • Landesman, S., & Butterfield, E. C. (1987). Normalization and deinstitutionalisation of mentally retarded individuals: Controversy and facts. American Psychologist, 42, 809–816.

    Article  Google Scholar 

  • Lazarus, R. S. (1993). Coping theory and research: Past, present and future. Psychosomatic Medicine, 55, 234–247.

    Google Scholar 

  • Legal, S., & Constitutional References Committee (1996). National well-being: A system of national citizenship indicators and benchmarks. Canberra: Senate Legal & Constitutional References Committee, Parliament of the Commonwealth of Australia.

    Google Scholar 

  • Leininger, M. (1994). Quality of life from a trans-cultural perspective. Nursing Science Quarterly, 7(1), 22.

    Article  Google Scholar 

  • Loew, F., & Rapin, C. H. (1994). The paradoxes of quality of life and its phenomenological approach. Journal of Palliative Care, 10(1), 37–41.

    Google Scholar 

  • Low, C. (2001). Have disability rights gone too far? City Insights Lecture, 3rd April 2001. Retrieved 15 June, 2001, from http://www.city.ac.uk/whatson/low.htm.

  • Luckasson, R., Coulter, D. L., Polloway, E. A., Reiss, S., Schalock, R. L., Snell, M. E., et al. (1992). Mental retardation: Definition, classification and systems of support. Washington, DC: American Association of Mental Retardation.

    Google Scholar 

  • Lyons, G. S. (1999a, October). Quality of life and substitute decision-making: Rhetoric or reality? Paper presented at the 7th National Guardianship and Administration Conference, Sydney, Australia.

    Google Scholar 

  • Lyons, G. S. (1999b, September). Quality of life for students with profound intellectual and multiple disabilities. Paper presented at the 1999 Australian Association of Special Educators National Conference, Sydney, Australia.

    Google Scholar 

  • Lyons, G. S. (1999c, September). Assessing/measuring quality of life for individuals with the most severe intellectual disabilities: Unearthing eudaemonia. Paper presented at the 35th Annual Australian Society for the Study of Intellectual Disability (ASSID) National Conference, Sydney, Australia.

    Google Scholar 

  • Lyons, G. S. (2000a, December). Individuals with the most severe intellectual disabilities, quality of life and decision-making: Unearthing eudaemonia. Paper presented at the 2000 Annual Conference of Psychologists in Developmental Disability Services, University of Western Sydney, Australia.

    Google Scholar 

  • Lyons, G. S. (2000b). Embracing eudaemonia: Quality of life for individuals with intellectual disabilities. Unpublished MEd thesis, University of Newcastle, Australia.

    Google Scholar 

  • Lyons, G. S. (2003a, 20–22). Life satisfaction for children with profound and multiple disabilities. Paper presented at the Australian Group on Severe Communication Impairment 2003 National Conference, Sydney, Australia.

    Google Scholar 

  • Lyons, G. S. (2003b, July 10–11). Life satisfaction for children with profound and multiple disabilities: What is it? A research report. Paper presented at the Australian Society for the Study of Intellectual Disability (ASSID; NSW) Annual Conference, Charles Sturt University, Albury, NSW, Australia.

    Google Scholar 

  • Lyons, G. S. (2003c, July 10–11). The Life Satisfaction Matrix: A (preliminary) instrument/procedure for assessing and improving the life satisfaction of individuals with profound and multiple disabilities. Paper presented at the Australian Society for the Study of Intellectual Disability (ASSID; NSW) Annual Conference, Charles Sturt University, Albury, NSW, Australia.

    Google Scholar 

  • Lyons, G. S. (2003d, September 17–20). Life satisfaction for children with profound and multiple disabilities. Paper presented at the 4th European Conference: SIRM 3rd National Conference ‘Mental Health and Mental Retardation: A Lifespan Multidisciplinary Approach’, Rome.

    Google Scholar 

  • Lyons, G. S. (2005). The life satisfaction matrix: An instrument and procedure for assessing the subjective quality of life of individuals with profound multiple disabilities. Journal of Intellectual Disability Research, 49(10), 766–769.

    Article  Google Scholar 

  • Mackay, H. (1994, July). Values, relationships and community: Where do our values spring from? Paper presented at the Office on Social Policy, Social Policy Directorate: Seminar, Sydney.

    Google Scholar 

  • Madden, R., Black, K., & Wingyan, W. (1995). The Definition and categorisation of disability in Australia. Canberra: Australian Government Publishing Service.

    Google Scholar 

  • Marinoble, R., & Hegenauer, J. (1988). Quality of life for individuals with disabilities: A conceptual framework. Eric Document 302–015.

    Google Scholar 

  • Markus, H., & Kitayama, S. (1991). Culture and the self: Implications for cognition, emotion, and motivation. Psychological Review, 98, 224–253.

    Article  Google Scholar 

  • Matikka, L. M., & Vesala, H. T. (1997). Acquiescence in quality-of-life interviews with adults who have mental retardation. American Journal on Mental Retardation, 35, 75–82.

    Article  Google Scholar 

  • Mayers, C. A. (1995). Defining and assessing quality of life. British Journal of Occupational Therapy, 58(4), 146–150.

    Google Scholar 

  • McClaren, P. (1995). Critical pedagogy in the age of global capitalism: Some challenges for the educational left. Australian Journal of Education, 39(1), 5–21.

    Google Scholar 

  • McKennell, A., Atkinson, T., & Andrews, F. M. (1980). Structural constancy’s in surveys of perceived well-being. In A. Szalai & F. M. Andrews (Eds.), The quality of life: Comparative studies. Beverly Hills, CA: Sage.

    Google Scholar 

  • McVilly, K. R. (2004). ‘ I get by with a little help from my friends’: Adults with intellectual disability discuss friendship. Unpublished PhD Thesis. Sydney, Australia: The University of Sydney.

    Google Scholar 

  • McVilly, K. R., & Rawlinson, R. B. (1998). Quality of life issues in the development and evaluation of services for people with intellectual disability. Journal of Intellectual and Developmental Disability, 23(3), 199–218.

    Article  Google Scholar 

  • Meeberg, G. A. (1993). Quality of life: A conceptual analysis. Journal of Advanced Nursing, 18, 32–38.

    Article  Google Scholar 

  • Mercier, C. (1994). Improving the quality of life of people with chronic mental disorders. Social Indicators Research, 33, 165–192.

    Article  Google Scholar 

  • Michalos, A. C. (1985). Multiple discrepancies theory (MDT). Social Indicators Research, 16, 347–443.

    Article  Google Scholar 

  • Michalos, A. C. (1986). Job satisfaction, marital satisfaction and the quality of life: A review and a preview. In F. M. Andrews (Ed.), Research on the quality of life. Ann Arbor, MI: Institute for Social Research, University of Michigan.

    Google Scholar 

  • Miller, L., & Davey, R. (1993, November). “ There are fairies at the bottom of the garden…” A description and evaluation of Barkuma’s Linkwater Service. Paper presented at the 29th Australian Society for the Study of Intellectual Disability (ASSID) National Conference, Newcastle University, Australia.

    Google Scholar 

  • Mitchell, D., & Winslade, J. (1997). Developmental systems and narrative approaches to working with families of persons with disabilities. In R. I. Brown (Ed.), Quality of life for people with disabilities: Models, research and practice (2nd ed, pp. 151–182). Cheltenham: Stanley Thornes.

    Google Scholar 

  • MTAS (Ministerio de Trabajo Asuntos Sociales). (2005). Preliminary plan of the law of promotion of personal autonomy and attention to people in dependency situations. Madrid: Author.

    Google Scholar 

  • Nabaskues, I. (2003). Globalization and new politics. Victoria-Gasteiz: IVAP.

    Google Scholar 

  • Nankervis, K. (1997). Keynote Address. Paper presented at the Annual Conference, Australian Society for the Study of Intellectual Disability [ASSID], Hobart, Australia.

    Google Scholar 

  • Neufeldt, A. H., & McGinley, P. (1996). Human spirituality in relation to quality of life. In R. I. Brown (Ed.), Quality of life for people with disabilities: Models, research and practice (2nd ed., pp. 292–309). Cheltenham: Stanley Thornes.

    Google Scholar 

  • New South Wales Department of Education. (1988). Curriculum statement for the education of students with severe intellectual disability. Sydney: Author.

    Google Scholar 

  • Newton, J. S., Ard, W. R., Horner, R. H., & Toews, J. D. (1996). Focusing on values and lifestyle outcomes in an effort to improve the quality of residential services in Oregon. American Journal on Mental Retardation, 34, 1–12.

    Google Scholar 

  • O’Brien, J., & Mount, B. (1998, June). Telling new stories: The search for capacity among people with severe handicaps. Newsletter of the Citizen Advocacy NSW Association, 3–6.

    Google Scholar 

  • O’Brien, J., & O’Brien, C. L. (1992). Members of each other: Perspectives on social support for people with severe disabilities. In J. Nisbet (Ed.), Natural supports in school, at work, and in the community for people with severe disabilities (pp. 17–63). Baltimore, MD: Paul H. Brookes.

    Google Scholar 

  • Oliver, J., Huxley, P., Bridges, K., & Mohamad, H. (1996). Quality of life and mental health services. London: Routledge.

    Google Scholar 

  • Oliver, M. (1990). The politics of disablement. London: Macmillan.

    Google Scholar 

  • Oliver, M. (1993). Redefining disability: A challenge to research. In J. Swain, V. Finkelstein, S. French & M. Oliver (Eds.), Disabling barriers – enabling environments (pp. 61–67). London: Sage.

    Google Scholar 

  • Oliver, M. (1996). Understanding disability: From theory to practice. London: Macmillan Press.

    Google Scholar 

  • Oliver, M., & Barnes, C. (1993). Discrimination, disability and welfare: From needs to rights. In J. Swain, V. Finkelstein, S. French & M. Oliver (Eds.), Disabling barriers – enabling environments (pp. 267–277). London: Sage.

    Google Scholar 

  • Olson, G. I., & Schober, B. I. (1993). The satisfied poor: Development of an intervention-oriented theoretical framework to explain satisfaction with a life in poverty. Social Indicators Research, 28, 173–193.

    Article  Google Scholar 

  • Orthner, D. K., Cook, P., Sabah, Y., & Rosenfeld, J. (2006). Organization learning: A cross-sectional pilot test of effectiveness in children’s services. Evaluation and Programming, 29, 71–78.

    Google Scholar 

  • Ouellette-Kuntz, H., & McCreary, B. (1996). Applying quality of life to assessment and intervention. In R. Renwick, I. Brown & M. Nagler (Eds.), Quality of life in health promotion and rehabilitation: Conceptual approaches, issues, and applications (pp. 268–278). Thousand Oaks, CA: Sage.

    Google Scholar 

  • Pare, D. (1995). Of families and other cultures: the shifting paradigm of family therapy. Family Process, 34, 1–19.

    Article  Google Scholar 

  • Park, J., Hoffman, L., Marquis, J., Turnbull, A. P., Poston, D., Mannan, H., et al. (2003). Towards assessing family outcomes of service delivery: Validation of a family quality of life survey. Journal of Intellectual Disability Research, 47, 367–384.

    Article  Google Scholar 

  • Parmenter, T. R. (1989). An International Perspective: The Australian Experience. In R. I. Brown, M. B. Bayer & C. MacFarlane (Eds.), Rehabilitation Programmes: Performance and the quality of life of adults with developmental handicaps (pp. 209–225). Toronto, ON: Lugus Productions.

    Google Scholar 

  • Parmenter, T. R. (1990). Evaluation and service delivery research in the area of severe intellectual disability in Australia. Australian & New Zealand Journal of Developmental Disability, 16(3), 187–193.

    Google Scholar 

  • Parmenter, T. R. (1992). Quality of life of persons with developmental disabilities. International Review of Research in Mental Retardation, 18, 246–287.

    Article  Google Scholar 

  • Parmenter, T. R. (1994). Quality of life as a concept and measurable entity. Social Indicators Research, 33, 9–46.

    Article  Google Scholar 

  • Parmenter, T. R. (1995). The utility of quality of life as a construct for social and health policy development. In R. Renwick, I. Brown & M. Nagler (Eds.), Quality of life in health promotion and rehabilitation: Conceptual approaches, issues and applications. Thousand Oaks, CA: Sage.

    Google Scholar 

  • Parmenter, T. R. (1999). Implications of social policy for service delivery: The promise and the reality, “Are we getting real?”. Journal of Intellectual and Developmental Disabilities, 24(4), 321–331.

    Article  Google Scholar 

  • Parmenter, T. R. (2001, September). Disability into the 21st century: Where are we heading? Paper presented at the 3rd International Respite Care Conference, Sydney, Australia.

    Google Scholar 

  • Parmenter, T. R., Briggs, L., & Sullivan, R. (1991). Quality of life: Intellectual disabilities and community living. Evaluation Journal of Australia, 3(1), 12–25.

    Google Scholar 

  • Parmenter, T. R., Cummins, R., Shaddock, A. J., & Stancliffe, R. (1994). In D. A. Goode (Ed.), Quality of life for persons with disabilities: International perspectives and issues (pp. 75–102). Cambridge, MA: Brookline Books.

    Google Scholar 

  • Parmenter, T. R., & Donelly, M. (1997). An analysis of the dimensions of quality of life. In R. I. Brown (Ed.), Quality of life for people with disabilities: Models, research and practice (2nd ed, pp. 91–115). Cheltenham: Stanley Thornes.

    Google Scholar 

  • Parse, R. R. (1994). Quality of life: Sciencing and living the art of human becoming. Nursing Science Quarterly, 7(1), 16–21.

    Article  Google Scholar 

  • Parse, R. R. (1996). Quality of life for persons living with Alzheimer’s Disease: The human becoming perspective. Nursing Science Quarterly, 9(3), 126–133.

    Article  Google Scholar 

  • Pavot, W., & Diener, E. (1993). The affective and cognitive context of self-reported measures of subjective well-being. Social Indicators Research, 28, 1–20.

    Article  Google Scholar 

  • Peplau, H. E. (1994). Quality of life: An interpersonal perspective. Nursing Science Quarterly, 7(1), 10–15.

    Article  Google Scholar 

  • Perrin, B., & Nirje, B. (1985). Setting the record straight: A critique of some frequent misconceptions of the normalization principle. Australia and New Zealand Journal of Developmental Disabilities, 11(2), 69–74.

    Google Scholar 

  • Peter, D. (1997). A focus on the individual, theory and reality: Making the connection through the lives of individuals. In R. I. Brown (Ed.), Quality of life for people with disabilities: Models, research and practice (2nd ed, pp. 27–55). Cheltenham: Stanley Thornes.

    Google Scholar 

  • Poston, D., Turnbull, A. P., Park, J., Mannan, H., Marquis, J., & Wang, M. (2003). Family quality of life: A qualitative inquiry. Mental Retardation, 41, 313–328.

    Article  Google Scholar 

  • Raphael, D., Brown, I., Renwick, R., & Rootman, I. (1996). Assessing the quality of life of persons with developmental disabilities: Description of a new model, measuring instruments, and initial findings. International Journal of Disability, Development, and Education, 43(1), 25–42.

    Article  Google Scholar 

  • Rapley, M. (2003). Quality of life research: A critical introduction. London: Sage Publications.

    Google Scholar 

  • Reinders, J. S. (2002). The good life for citizens with intellectual disability. Journal of Intellectual Disabilities Research, 46(1), 1–5.

    Article  Google Scholar 

  • Renwick, R. (1998). Quality of life: A guiding framework for practice with adults who have developmental disabilities. In S. Bachner & M. Ross (Eds.), Adults with developmental disabilities: Current approaches in occupational therapy. Bethesda, MD: American Occupational Therapy Association.

    Google Scholar 

  • Renwick, R., Brown, I., & Nagler, M. (Eds.). (1996). Quality of life in health promotion and rehabilitation. Thousand Oaks, CA: Sage Publications.

    Google Scholar 

  • Renwick, R., Brown, I., & Raphael, D. (2000). Person-centered quality of life. Contribution from Canada to an international understanding. In K. D. Keith & R. L. Schalock (Eds.), Cross-cultural perspectives on quality of life (pp. 5–22). Washington, DC: AAMR.

    Google Scholar 

  • Richmond, D. (1983). Inquiry into health services for the psychiatrically ill and developmentally disabled. Sydney: New South Wales State Health Department.

    Google Scholar 

  • Roarty, J. (1981). Captives of care. Sydney: Hodder and Stoughton.

    Google Scholar 

  • Romney, D. M., Brown, R. I., & Fry, P. S. (1994). Improving the quality of life: Recommendations for people with and without disabilities. Dordrecht: Kluwer Academic.

    Google Scholar 

  • Rosen, M., Simon, E. W., & McKinsey, L. (1995). Subjective measures of quality of life. American Journal on Mental Retardation, 33, 31–34.

    Google Scholar 

  • Roth, S. P., & Morse, J. S. (1996). A life-span approach to nursing care for individuals with developmental disabilities. Sydney: Paul A. Brookes.

    Google Scholar 

  • Russell, J. A. (2003). Core affect and the psychological construction of emotion. Psychological Review, 110, 145–172.

    Article  Google Scholar 

  • Sacks, O. (1995). An anthropologist on Mars. Sydney: Pan Macmillan Australia.

    Google Scholar 

  • Schalock, R. L. (1990a). Attempts to conceptualize and measure quality of life. In R. L. Schalock & M. J. Begab (Eds.), Quality of life: Perspectives and issues (pp. 141–148). Washington, DC: American Association on Mental Retardation.

    Google Scholar 

  • Schalock, R. L. (1990b). Where do we go from here? In R. L. Schalock & M. J. Begab (Eds.), Quality of life perspectives and issues (pp. 235–240). Washington, DC: American Association on Mental Retardation.

    Google Scholar 

  • Schalock, R. L. (1990c). Preface. In R. L. Schalock (Ed.), Quality of life: Perspectives and issues. Washington, DC: American Association on Mental Retardation.

    Google Scholar 

  • Schalock, R. L. (1993). Viewing quality of life in the larger context. Australia and New Zealand Journal of Developmental Disabilities, 18(4), 201–208.

    Google Scholar 

  • Schalock, R. L. (1994a). The concept of quality of life and its current application in the field of mental retardation/developmental disabilities. In D. Goode (Ed.), Quality of life for persons with disabilities: International perspectives and issues. Cambridge, MA: Brookline Books.

    Google Scholar 

  • Schalock, R. L. (1994b). Quality of life, quality enhancement and quality assurance: Implications for program planning and evaluation in the field of mental retardation and developmental disabilities. Evaluation and Program Planning, 17(2), 121–131.

    Article  Google Scholar 

  • Schalock, R. L. (1996a). Preface. In R. L. Schalock (Ed.), Quality of life: Volume 1: Conceptualization and measurement (pp. vii–xi). Washington, DC: American Association on Mental Retardation.

    Google Scholar 

  • Schalock, R. L. (1996b). Reconsidering the conceptualization and measurement of quality of life. In R. L. Schalock (Ed.), Quality of life: Volume 1: Conceptualization and measurement (pp. 123–139). Washington, DC: American Association on Mental Retardation.

    Google Scholar 

  • Schalock, R. L. (1997). The concept of quality of life in 21st century disability programmes. In R. I. Brown (Ed.), Quality of life for people with disabilities: Models, research and practice (2nd ed, pp. 327–340). Cheltenham: Stanley Thornes.

    Google Scholar 

  • Schalock, R. L. (1999, September). The application of the concept of quality of life: IASSID Quality of Life Consensus Document: Discussion draft. Paper presented at the 35th National Conference of the Australian Society for the Study of Intellectual Disabilities [ASSID], Sydney.

    Google Scholar 

  • Schalock, R. L. (2002, June). The concept of quality of life: What we know and do not know. Paper presented at the Inaugural IASSID [International Association for the Scientific Study of Intellectual Disabilities] Europe Quadrennial Conference, University College, Dublin, Ireland.

    Google Scholar 

  • Schalock, R. L. (2004a). Quality of life: What we know and what we don’t know. Journal of Intellectual Disability Research, 48, 203–216.

    Article  Google Scholar 

  • Schalock, R. L. (2004b). The emerging disability paradigm and its implications for policy and practice. Journal of Disability Policy Studies, 14(4), 204–215.

    Article  Google Scholar 

  • Schalock, R. L. (2005a). Introduction and overview. Journal of Intellectual Disability Research, 49(10), 695–698.

    Article  Google Scholar 

  • Schalock, R. L. (2005b). Moving from a quality of care to a quality of life program emphasis. Paper presented at the international congress about quality of life of persons with disability, Quito, Ecuador, 17–21 October.

    Google Scholar 

  • Schalock, R. L., Bontham, G. S., & Marchand, C. B. (2000). Consumer based quality of life assessment: A path model of perceived satisfaction. Evaluation and Program Planning, 23(1), 77–87.

    Article  Google Scholar 

  • Schalock, R. L., Brown, I., Brown, R., Cummins, R. A., Felce, D., Matikka, L., et al. (2002). Quality of life: Its conceptualization, measurement, and application: Results of an international consensus process. Mental Retardation, 40, 457–470.

    Article  Google Scholar 

  • Schalock, R. L., & Felce, D. (2004). Quality of life and subjective well-being: Conceptual and measurement issues. In E. Emerson, C. Hatton, T. Thompson & T. Parmenter (Eds.), Handbook of applied research in intellectual disabilities (pp. 261–279). Chichester: Wiley.

    Google Scholar 

  • Schalock, R. L., Gardner, J. F., & Bradley, V. J. (2007). Quality of life of persons with intellectual and other disabilities: Applications across individuals, organizations, systems, and communities. Washington, DC: American Association on Intellectual and Developmental Disabilities.

    Google Scholar 

  • Schalock, R. L., & Keith, K. D. (1993). Quality of life questionnaire. In R. L. Schalock (Ed.), Quality of life. Volume I: Conceptualization and measurement. Washington, DC: American Association of Mental Retardation.

    Google Scholar 

  • Schalock, R. L., & Luckasson, R. (2005). Clinical judgement. Washington, DC: AAMR.

    Google Scholar 

  • Schalock, R. L., & Verdugo, M. A. (2002). Handbook on quality of life for human services practitioners. Washington, DC: American Association on Mental Retardation.

    Google Scholar 

  • Schalock, R. L., Verdugo, M. A., Bontham, G. S., Fantova, F., & Van Loon, J. (2008). Enhancing personal outcomes: Organizational strategies, guidelines, and example. Journal of Policy and Practice in Intellectual Disabilities, 5(4), 276–285.

    Article  Google Scholar 

  • Schalock, R. L., Verdugo, M. A., Jenaro, C., Wang, M., Wehmeyer, M., Xu, J., et al. (2005). A cross cultural study of quality of life indicators. American Journal on Mental retardation, 110, 298–311.

    Article  Google Scholar 

  • Schipper, H., Clinch, J., & Powell, V. (1990). Definitions and conceptual issues. In B. Spilker (Ed.), Quality of life assessments in clinical trials (pp. 11–24). New York: Raven.

    Google Scholar 

  • Schuessler, K. F., & Fisher, G. A. (1985). Quality of life research and sociology. Annual Review of Sociology, 11, 129–149.

    Article  Google Scholar 

  • Seed, P., & Lloyd, G. (1997). Quality of life. London: Jessica Langley.

    Google Scholar 

  • Sen, A. (1993). Capability and well-being. In M. Mussbaum & A. Sen (Eds.), The quality of life. Oxford: Clarendon Press.

    Google Scholar 

  • Sen, A. (1996). Inequality re-examined. Boston: Harvard University Press.

    Google Scholar 

  • Senge, P. M. (2006). The fifth discipline: The art and practice of the learning organization (Rev. Ed.). New York: Doubleday.

    Google Scholar 

  • Shaddock, A. J., Dowse, L., Richards, H., & Spinks, A. T. (1998). Communicating with people with an intellectual disability in Guardianship Board hearings: An exploratory study. Journal of Intellectual and Developmental Disability, 23(4), 278–293.

    Google Scholar 

  • Smyer, M. A., McHale, S. M., Birkel, R., & Madle, R. A. (1988). Impairments, handicapping environments, and disability: A life-span perspective. In P. S. Van Hasselt, P. S. Dtrain & M. Herson (Eds.), Handbook of developmental and physical disabilities (pp. 9–20). New York: Permagon.

    Google Scholar 

  • Social Policy Directorate. (1994a). Quality of life: A social policy approach. Sydney: New South Wales Office on Social Policy, Office on Social Policy.

    Google Scholar 

  • Social Policy Directorate. (1994b, July). Quality of life: Our values our future. Paper presented at the New South Wales Office on Social Policy Seminar, Sydney, Australia.

    Google Scholar 

  • Solomon, E. S., Bouchouchi, N., Denisov, V., Hankiss, E., Mallman, C. A., & Milbrath, L. W. (1980). UNESCO’s policy-relevant quality of life research program. In A. Szalai & F. M. Andrews (Eds.), The quality of life: Comparative studies. Beverly Hills, CA: Sage.

    Google Scholar 

  • Speight, S., Myers, L., Cox, C., & Highlen, P. (1991). A redefinition of multicultural counseling. Journal of Counseling and Development, 70, 29–36.

    Article  Google Scholar 

  • Stancliffe, R. J. (1995). Assessing opportunities for choice making: A comparison of self and staff reports. American Journal on Mental Retardation, 99(4), 418–429.

    Google Scholar 

  • Stark, J., & Faulkner, E. (1996). Quality of life across the life span. In R. L. Schalock (Ed.), Quality of life: Volume 1: Conceptualization and measurement (pp. 23–32). Washington, DC: American Association on Mental Retardation.

    Google Scholar 

  • Stensman, R. (1985). Severely mobility-disabled people assess the quality of their lives. Scandinavian Journal of Rehabilitation, 17(2), 87–89.

    Google Scholar 

  • Stokols, D. (1992). Establishing and maintaining health environments: Towards a social ecology of health promotion. American Psychologist, 47, 6–22.

    Article  Google Scholar 

  • Storey, K. (1997). Quality of life issues in social skills assessment of persons with disabilities. Education and Training in Mental Retardation and Developmental Disabilities, 32, 197–200.

    Google Scholar 

  • Strauss, A., & Corbin, J. (1994). Grounded theory methodology: An overview. In N. K. Denzin & Y. S. Lincoln (Eds.), Handbook of qualitative research (pp. 273–285). Thousand Oaks, CA: Sage.

    Google Scholar 

  • Sullivan, M. (1992). Quality of life assessment in medicine: Concepts, definitions, purposes and basic tools. Nordic Journal of Psychiatry, 46, 79–83.

    Article  Google Scholar 

  • Swain, J., Finkelstein, V., French, S., & Oliver, M. (Eds.). (1993). Disabling barriers – Enabling environments. London: Sage.

    Google Scholar 

  • Szalai, A. (1980). Prologue. In A. Szalai & F. M. Andrews (Eds.), The quality of life: Comparative studies (pp. 7–24). Beverly Hills, CA: Sage Publications.

    Google Scholar 

  • Taylor, S. J. (1994). In support of research on quality of life, but against QOL. In D. A. Goode (Ed.), Quality of life for persons with disabilities: International perspectives and issues. Cambridge, MA: Brookline Books.

    Google Scholar 

  • Taylor, S. J., & Bogdan, R. C. (1990). Quality of life and the individual’s perspective. In R. L. Schalock & M. J. Begab (Eds.), Quality of life: Perspectives and issues (pp. 27–40). Washington, DC: American Association on Mental Retardation.

    Google Scholar 

  • Thompson, J. T., Bryant, B. R., Campbell, E. M., Craig, E. M., Hughes, C. M., Rotholz, D. A., et al. (2004). Support intensity scale manual. Washington, DC: AAMR.

    Google Scholar 

  • Thompson, B., & Guess, D. (1989). Students who experience the most profound disabilities: Teacher perspectives. In F. Brown & D. H. Lehr (Eds.), Persons with profound disabilities: Issues and practices (pp. 3–41). Baltimore, MD: Paul H. Brookes.

    Google Scholar 

  • Thompson, R. J., & O’Quinn, A. N. (1979). Developmental disabilities: Etiologies, manifestations, diagnoses, and treatments. New York: Oxford.

    Google Scholar 

  • Thorley, B. (1993). Servicing students with special needs: More categories plus more specialist equals more problems. Special Education Perspectives, 2(1), 17–21.

    Google Scholar 

  • Timmons, V., & Brown, R. I. (1997). Quality of life: Issues for children with handicaps. In R. Brown (Ed.), Quality of life for people with disabilities: Models, research and practice (2nd ed.). Cheltenham: Stanley Thornes.

    Google Scholar 

  • Tones, B. K. (1986). Health education and the ideology of health promotion: A review of alternative approaches. Health Education Research, 1, 3–12.

    Article  Google Scholar 

  • Travers, P., & Richardson, S. (1993). Living decently: Material well-being in Australia. Melbourne: Oxford University Press.

    Google Scholar 

  • Triandis, H. C. (1994). Culture and social behaviour. In W. J. Lonner & R. Malpass (Eds.), Psychology and culture. Boston: Allyn & Bacon.

    Google Scholar 

  • Turnbull, A., Brown, I., & Turnbull, H. R. (2004). Families and people with mental retardation and quality of life: international perspectives. Washington, DC: American Association on Mental Retardation.

    Google Scholar 

  • Turnbull, R., & Brunk, G. L. (1990). Quality of life and public policy: Quality of Life: Perspectives and Issues. In R. L. Schalock (Ed.), Mental retardation monograph series. Washington, DC: American Association on Mental Retardation.

    Google Scholar 

  • Van Dam, F. S. A. M., Somers, R., & Van Beck-Couzijn, A. L. (1981). Quality of life: Some theoretical issues. Journal of Clinical Pharmacology, 21, 1665–1685.

    Google Scholar 

  • Verdugo, M. A., Schalock, R. L., Keith, K. D., & Stancliffe, R. J. (2005). Quality of life and its measurement: Important principles and guidelines. Journal of Intellectual Disability Research, 49(10), 707–717.

    Article  Google Scholar 

  • Verwayen, H. (1980). The specification and measurement of the quality of life in OECD countries. In A. Szalai & F. M. Andrews (Eds.), The quality of life: Comparative studies. Beverly Hills, CA: Sage.

    Google Scholar 

  • Vogel, J., Andersson, L., Davidsson, U., & Hall, L. (1988). Living conditions report No. 58: Inequality in Sweden, trends and current situation, statistics. Stockholm: SCB Statistics Sweden.

    Google Scholar 

  • von Tetzchner, S., & Jensen, K. (1999). Interacting with people who have severe communication problems: Ethical considerations. International Journal of Disability, Development and Education, 46(4), 453–462.

    Article  Google Scholar 

  • Walsh, P. N., Emerson, E., Bradley, V. J., Schalock, R. L., Hatton, C., & Moseley, C. (2006). The outcomes and costs of supported accommodation for people with intellectual disabilities. Dublin: National Disability Authority.

    Google Scholar 

  • Wolf, N. (1990). The beauty myth. London: Vintage.

    Google Scholar 

  • Wolfe, P. S. (1992). Challenges for service providers. In P. J. McLaughlin & P. Wejman (Eds.), Developmental disabilities: A handbook for best practice (pp. 124–141). Boston: Andover Medical.

    Google Scholar 

  • Wolfensberger, W. (1994). Let’s hang up “quality of life” as a hopeless term. In D. Goode (Ed.), Quality of life for persons with disabilities: International perspectives and issues. Cambridge, MA: Brookline Books.

    Google Scholar 

  • Wolfensberger, W. (1995). Social role valorization is too conservative. No, it’s too radical. Disability and Society, 10(3), 365–367.

    Article  Google Scholar 

  • Wolfensberger, W., & Nirje, B. (1972). Normalization: The principle of normalization in human services. Toronto, ON: National Institute on Mental Retardation.

    Google Scholar 

  • Woodill, G., Renwick, R., Brown, I., & Raphael, D. (1994). Being, belonging and becoming: An approach to the quality of life of persons with developmental disabilities. In D. A. Goode (Ed.), Quality of life for persons with disabilities: International perspectives and issues. Cambridge, MA: Brookline Books.

    Google Scholar 

  • World Health Organisation. (1986). A discussion document on the concept and principles of health promotion. Health Promotion, 1, 73–76.

    Google Scholar 

  • Zapf, W. (1986). Development, structure and prospects of the German social state. In R. Rose & R. Shiratori (Eds.), The welfare state: East and west. Oxford: Oxford University Press.

    Google Scholar 

  • Zapf, W., Glatzer, W., Noll, H. H., Habich, R., Berger-Schmitt, R., Breuer, S., et al. (1987). German social report: Living conditions and subjective well-being, 1978–1984. Social Indicators Research, 19, 1.

    Google Scholar 

  • Zhan, L. (1992). Quality of life: Conceptual and measurement issues. Journal of Advanced Nursing, 17(1), 795–800.

    Article  Google Scholar 

Download references

Author information

Authors and Affiliations

  1. The University of Newcastle, Newcastle, UK

    Gordon Lyons

Authors
  1. Gordon Lyons
    View author publications

    You can also search for this author in PubMed Google Scholar

Corresponding author

Correspondence to Gordon Lyons .

Editor information

Editors and Affiliations

  1. , Department of Accounting and Finance, Monash University, PO Box 197, Caulfield East, 3145, Victoria, Australia

    Ralph Kober

Rights and permissions

Reprints and permissions

Copyright information

© 2010 Springer Science+Business Media B.V.

About this chapter

Cite this chapter

Lyons, G. (2010). Quality of Life for Persons with Intellectual Disabilities: A Review of the Literature. In: Kober, R. (eds) Enhancing the Quality of Life of People with Intellectual Disabilities. Social Indicators Research Series, vol 41. Springer, Dordrecht. https://doi.org/10.1007/978-90-481-9650-0_6

Download citation

Publish with us

Policies and ethics

Search

Navigation