Abstract
A cancer diagnosis is a life-altering event and since cancer treatment can impair future fertility capacity, cancer can also change a patient’s parenting plans and family goals. There has been increased attention to the issue of cancer-related fertility impairment in recent years [1, 2], including the establishment of best practice guidelines from ASCO (American Society of Clinical Oncology) [3], ASRM (American Society for Reproductive Medicine) [4], and AAP (American Academy of Pediatrics) [5], as well as advocacy groups aimed at both patients and doctors to educate on the issue of fertility preservation (including Fertile Hope and the Oncofertility Consortium). There has even been increased coverage in entertainment and popular media on post-cancer parenthood, including notable high-profile cases such as Lance Armstrong. Despite these strides, there is continued concern that cancer patients are not always informed about potential impairment or available fertility preservation options that can help to safeguard their future fertility. Earlier studies in the growing field of oncofertility have indicated that many patients, particularly adolescent and pediatric patients [6], do not recall discussing fertility or fertility preservation options prior to beginning chemotherapy and/or radiation [1]. As a result, researchers are examining the barriers to the exchange of fertility-related discussions between patients and doctors (particularly oncologists) prior to potentially damaging cancer treatment (see [1] for review).
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References
Snyder KA, Pearse W. Discussing fertility preservation options with patients with cancer. JAMA. 2011;306(2):202–3.
Jeruss JS, Woodruff TK. Preservation of fertility in patients with cancer. N Engl J Med. 2009;360(9):902–11.
Lee SJ, Schover LR, Partridge AH, Patrizio P, Wallace WH, Hagerty K, Beck LN, Brennan LV, Oktay K. American Society of Clinical Oncology recommendations on fertility preservation in cancer patients. J Clin Oncol. 2006;24(18):2917–31.
Ethics Committee of the American Society for Reproductive Medicine. Fertility preservation and reproduction in cancer patients. Fertil Steril. 2005;83(6):1622–8.
Fallat ME, Hutter J. American academy of pediatrics committee on bioethics; American Academy of Pediatrics Section on Hematology/Oncology; American Academy of Pediatrics Section on Surgery. Preservation of fertility in pediatric and adolescent patients with cancer. Pediatrics. 2008;121(5):e1461–9.
Quinn GP, Vadaparampil ST. Fertility preservation and adolescent/young adult cancer patients: physician communication challenges. J Adolesc Health. 2009;44(4):394–400.
Gracia CR, Gracia JJE, Chen S. Ethical dilemmas in oncofertility: an exploration of three clinical scenarios. In: Woodruff TK, Zoloth L, Campo-Engelstein L, Rodriguez S, editors. Oncofertility: ethical, legal, social, and medical perspectives. New York: Springer; 2010. p. 195–208.
Galvin KM, Clayman ML. Whose future is it? Ethical family decision making about daughters’ treatment in the oncofertility context. In: Woodruff TK, Zoloth L, Campo-Engelstein L, Rodriguez S, editors. Oncofertility: ethical, legal, social, and medical perspectives. New York: Springer; 2010. p. 429–46.
Arnett J. Emerging adulthood: the winding road from the late teens through the twenties. New York: Oxford University Press; 2006.
Kyngäs H, Mikkonen R, Nousiainen EM, Rytilahti M, Seppänen P, Vaattovaara R, Jämsä T. Coping with the onset of cancer: coping strategies and resources of young people with cancer. Eur J Cancer Care (Engl). 2001;10(1):6–11.
Morgan S, Davies S, Palmer S, Plaster M. Sex, drugs, and rock ‘n’ roll: caring for adolescents and young adults with cancer. J Clin Oncol. 2010;28(32):4825–30.
Hedström M, Skolin I, von Essen L. Distressing and positive experiences and important aspects of care for adolescents treated for cancer. Adolescent and nurse perceptions. Eur J Oncol Nurs. 2004;8(1):6–17; discussion 18–9.
Gardino SL, Emanuel LL. Choosing life when facing death: understanding fertility preservation decision-making for cancer patients. In: Woodruff TK, Zoloth L, Campo-Engelstein L, Rodriguez S, editors. Oncofertility: ethical, legal, social, and medical perspectives. New York: Springer; 2010. p. 447–60.
Mendick N, Young B, Holcombe C, Salmon P. The ethics of responsibility and ownership in decision-making about treatment for breast cancer: triangulation of consultation with patient and surgeon perspectives. Soc Sci Med. 2010;70(12):1904–11.
Laurence V, Rousset-Jablonski C. Contraception and cancer treatment in young persons. Adv Exp Med Biol. 2012;732:41–60.
Katz A. The sounds of silence: sexuality information for cancer patients. J Clin Oncol. 2005;23(1):238–41.
National Cancer Institute. What are patient navigators? [Internet.] [updated 2009 Jul 23; cited 2013 Jan 2.] Available from http://crchd.cancer.gov/pnp/what-are.html.
Gattellari M, Butow PN, Tattersall MH. Sharing decisions in cancer care. Soc Sci Med. 2001;52(12):1865–78.
Snyder KA, Pearse W. Crisis, social support, and the family response: exploring the narratives of young breast cancer survivors. J Psychosoc Oncol. 2010;28(4):413–31.
Enskär K, von Essen L. Prevalence of aspects of distress, coping, support and care among adolescents and young adults undergoing and being off cancer treatment. Eur J Oncol Nurs. 2007;11(5):400–8.
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This work was supported by the Oncofertility Consortium NIH 5UL1DE019587.
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Snyder, K.A., Tate, A. (2014). Cancer-Related Infertility and Young Women: Strategies for Discussing Fertility Preservation. In: Woodruff, T., Clayman, M., Waimey, K. (eds) Oncofertility Communication. Springer, New York, NY. https://doi.org/10.1007/978-1-4614-8235-2_4
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