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Family Caregiving: Implications for Rural Practice, Policy, Education, and Research

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Part of the book series: Caregiving: Research, Practice, Policy ((CARE))

Abstract

Societal norms for family solidarity, and reciprocity and the shared belief that kin can, should, and will depend on each other provide strong social imperatives for families to care for kin in times of sickness and disability (George, 1986). Of the 44 million Americans who provide unpaid, informal care for someone with a chronic illness or disability, more than 80% are family kin: spouses, adult children, grandchildren, or others related by blood or marriage to the person for whom they provide care (National Alliance for Caregiving and AARP, 2005; Pinquart & Sorensen, 2006). However, family caregiving has been associated with burden, caregiver role strain, and distress (c.f. Berg-Weger et al., 2000; Schulz & Beach, 1999) and family care can be particularly stressful in rural communities where kin often do not live together.

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References

  • Administration on Aging. (2004). The Older Americans Act: National family caregiver support program (Title III-E & Title VI-C): Compassion in action: 2004. Washington, DC: U.S. Department of Health and Human Services. Retrieved January 15, 2007, from http://www.aoa.gov/prof/aoaprog/caregiver/careprof/progguidance/resources/FINAL%20NFCSP%20Report%20July22,%202004.pdf.

    Google Scholar 

  • Aneshensel, C. S., Pearlin, L. I., & Schuler, R. H. (1993). Stress, role captivity, and the cessation of caregiving. Journal of Health and Social Behavior, 34(1), 54–70.

    Article  PubMed  Google Scholar 

  • Archbold, P., Stewart, B., Greenlick, M., & Harvath, T. (1992). Clinical assessment of mutuality and preparedness in family caregivers to frail older people. In S. G. Funk (Ed.), Key aspects of elder care: Managing falls, incontinence, and cognitive impairment (pp. 328–339). New York: Springer.

    Google Scholar 

  • Barker, J. (2002). Neighbors, friends, and other non-kin caregivers of community-living dependent elders. Journal of Gerontology Series B: Psychological Sciences and Social Sciences, 57, S158–S167.

    Article  Google Scholar 

  • Berg-Weger, M., McGartland-Rubio, D., & Tabb, S. (2000). Depression as a mediator: Viewing caregiver well-being and strain in a different light. Families in Society, 81(2), 162–173.

    Google Scholar 

  • Bourgeois, M., Beach, S., Schulz, R., & Burgio, L. (1996). When primary and secondary caregivers disagree: Predictors and psychosocial consequences. Psychology and Aging, 11, 527–537.

    Article  PubMed  Google Scholar 

  • Caron, C. D., & Bowers, B. J. (2003). Deciding whether to continue, share, or relinquish caregiving: Caregiver views. Qualitative Health Research, 13(9), 1252–1271.

    Article  PubMed  Google Scholar 

  • Chappell, N. L., & Reid, R. C. (2002). Burden and well-being among caregivers: Examining the distinction. The Gerontologist, 42(6), 772–780.

    Article  PubMed  Google Scholar 

  • Davis, L. (1997). Family conflicts around dementia home care. Families, Systems, & Health, 15, 85–98.

    Article  Google Scholar 

  • Davis, L., Burgio, L., Buckwalter, K., & Weaver, M. (2004). A comparison of in-home and telephone-based skill training interventions with caregivers of persons with dementia. Journal of Mental Health and Aging, 10(1), 31–44.

    Google Scholar 

  • Davis, L., Weaver, M., & Habermann, B. (2006). Differential attrition in a caregiver skill training trial. Research in Nursing & Health, 29(5), 498–506.

    Article  Google Scholar 

  • Foster, L., Brown, R., Phillips, B., & Carlson, B. L. (2005). Easing the burden of caregiving: The impact of consumer direction on primary informal caregivers in Arkansas. The Gerontologist, 45(4), 474–485.

    Article  PubMed  Google Scholar 

  • George, L. K. (1986). Caregiving burden: Conflicts between norms of reciprocity and solidarity. In K. A. Pillemer & R. S. Wolf (Eds.), Elder abuse: Conflict in the family. Dover, MA: Auburn House Publishing Company.

    Google Scholar 

  • Gerdner, L. A., Buckwalter, K. C., & Reed, D. (2002). Impact of a psychoeducational intervention on caregiver response to behavioral problems. Nursing Research, 51(6), 363–374.

    Article  PubMed  Google Scholar 

  • Gold, D. P., Cohen, C., Shulman, K., Zucchero, C., Andres, D., & Etezadi, J. (1995). Caregiving and dementia: Predicting negative and positive outcomes for caregivers. International Journal of Aging & Human Development, 41(3), 183–201.

    Article  Google Scholar 

  • Grant, J. S., Elliott, T. R., Weaver, M., Bartolucci, A. A., & Giger, J. N. (2002). Telephone intervention with family caregivers of stroke survivors after rehabilitation. Stroke, 33(8), 2060–2065.

    Article  PubMed  Google Scholar 

  • Horowitz, A. (1985). Family caregiving to the frail elderly. In C. Eisdorfer (Ed.), Annual review of gerontology and geriatrics (Vol. 5, pp. 194–246). New York: Springer.

    Google Scholar 

  • Jordan-Marsh, M., & Harden, J. T. (2005). Fictive kin: Friends as family supporting older adults as they age. Journal of Gerontological Nursing, 31(2), 25–31.

    Google Scholar 

  • King, A. C., Atienza, A., Castro, C., & Collins, R. (2002). Physiological and affective responses to family caregiving in the natural setting in wives versus daughters. International Journal of Behavioral Medicine, 9(3), 176–194.

    Article  PubMed  Google Scholar 

  • Knafl, K., & Deatrick, J. (1986). How families manage chronic conditions: An analysis of normalization. Research in Nursing & Health, 9, 215–222.

    Article  Google Scholar 

  • Knickman, J., & Stone, R. (2007). The public/private partnership behind the cash and counseling demonstration and evaluation: Its origins a, challenges and unresolved issues. Health Services Research, 42(1), 362–377.

    Article  PubMed  Google Scholar 

  • Levin, C., & Murray, T. (2005). The cultures of caregiving: Conflict and common ground among families, health professionals, and policy makers. Baltimore: Johns Hopkins Press.

    Google Scholar 

  • Lyons, K. S., Zarit, S. H., Sayer, A. G., & Whitlatch, C. J. (2002). Caregiving as a dyadic process: Perspectives from caregiver and receiver. Journal of Gerontology, Series B: Psychological Sciences and Social Sciences, 57(3), P195–P204.

    Article  Google Scholar 

  • Mittelman, M. S., Ferris, S. H., Shulman, E., Steinberg, G., Ambinder, A., Mackell, J. A., et al. (1995). A comprehensive support program: Effect on depression in spouse-caregivers of AD patients. The Gerontologist, 35(6), 792–802.

    Article  PubMed  Google Scholar 

  • Mittelman, M., Ferris, S., Steinberg, M., Shulman, E., Mackell, J., Ambinder, A., et al. (1993). An intervention that delays institutionalization of Alzheimer’s disease patients: Treatment of spouse-caregivers. The Gerontologist, 33(6), 730–740.

    Article  PubMed  Google Scholar 

  • Mittelman, M., Roth, D., Haley, W., & Zarit, S. (2004). Effects of a caregiver intervention on ­negative caregiver appraisals of behavior problems in patient with Alzheimer’s disease: Results of a randomized trial. Journal of Gerontology: Psychological Sciences & Social Sciences, 59B(1), P27–P34.

    Article  Google Scholar 

  • Montgomery, R. J. V., Gonyea, J. G., & Hooyman, N. R. (1985). Caregiving and the experience of subjective and objective burden. Family Relations, 34(1), 19–26.

    Article  Google Scholar 

  • National Alliance for Caregiving & AARP. (2005). Caregiving in the U.S. Bethesda, MD: Authors.

    Google Scholar 

  • Neufeld, A., Harrison, M., Stewert, M., & Hughes, K. (2008). Advocacy of women caregivers: Response to nonsupportive interactions with professionals. Qualitative Health Research, 18(3), 301–310.

    Article  PubMed  Google Scholar 

  • Noonan, A. E., & Tennstedt, S. L. (1997). Meaning in caregiving and its contribution to caregiver well-being. The Gerontologist, 37(6), 785–794.

    Article  PubMed  Google Scholar 

  • Ostwald, S. K., Hepburn, K. W., Caron, W., Burns, T., & Mantell, R. (1999). Reducing caregiver burden: A randomized psychoeducational intervention for caregivers of persons with dementia. The Gerontologist, 39(3), 299–309.

    Article  PubMed  Google Scholar 

  • Pinquart, M., & Sorensen, S. (2006). Gender differences in caregiver stressors, social resources and health: An updated meta-analysis. Journal of Gerontology: Psychological and Social Sciences, 61B(1), 33–45.

    Google Scholar 

  • Schulz, R., & Beach, S. R. (1999). Caregiving as a risk factor for mortality: The caregiver health effects study. Journal of the American Medical Association, 282(23), 2215–2219.

    Article  PubMed  Google Scholar 

  • Schulz, R., Boerner, K., Shear, K., Zhang, S., & Gitlin, L. N. (2006). Predictors of complicated grief among dementia caregivers: A prospective study of bereavement. The American Journal of Psychiatry, 14(8), 650–658.

    Article  Google Scholar 

  • Schulz, R., Burgio, L., Burns, R., Eisdorfer, C., Gallagher-Thompson, D., Gitlin, L. N., et al. (2003). Resources for enhancing Alzheimer’s caregiver health (REACH): Overview, site-specific outcomes, and future directions. The Gerontologist, 43(4), 514–520.

    Article  PubMed  Google Scholar 

  • Schumacher, K. L., Stewart, B. J., Archbold, P. G., Dodd, M. J., & Dibble, S. L. (2000). Family caregiving skill: Development of the concept. Research in Nursing & Health, 23, 191–203.

    Article  Google Scholar 

  • Seltzer, M. M., & Li, L. W. (2000). The dynamics of caregiving: Transitions during a three-year prospective study. The Gerontologist, 40(2), 165–178.

    Article  PubMed  Google Scholar 

  • Semple, S. (1992). Conflict in Alzheimer’s caregiving families: Its dimensions and consequences. The Gerontologist, 32(5), 648–655.

    Article  PubMed  Google Scholar 

  • Sherwood, P. R., Given, C. W., Given, B. A., & von Eye, A. (2005). Caregiver burden and depressive symptoms: Analysis of common outcomes in caregivers of elderly patients. Journal of Aging and Health, 17(2), 125–147.

    Article  PubMed  Google Scholar 

  • Sorensen, S., Pinquart, M., & Duberstein, P. (2002). How effective are interventions with caregivers? An updated meta-analysis. The Gerontologist, 42(3), 356–372.

    Article  PubMed  Google Scholar 

  • Sparks, M. B., Farran, C. J., Donner, E., & Keane-Hagerty, E. (1998). Wives, husbands, and daughters of dementia patients: Predictors of caregivers’ mental and physical health. Scholarly Inquiry for Nursing Practice, 12(3), 221–234.

    PubMed  Google Scholar 

  • U.S. Census Bureau. (2002). U.S. census data: 2002. Retrieved March 19, 2007, from www.census.gov/econ/census02.

  • U.S. Department of Health and Human Services. (2003). Ensuring the health and wellness of our nation’s family caregivers. Washington, DC: U.S. Department of Health and Human Services. Retrieved April 14, 2007, from http://aspe.hhs.gov/daltcp/CaregiverEvent/overview.htm.

    Google Scholar 

  • U.S. Department of Health and Human Services Rural Task Force. (2002). One department serving rural America (report to the secretary). Washington, DC: U.S. Department of Health and Human Services. Retrieved April 14, 2007, from http://ruralhealth.hrsa.gov/PublicReport.htm.

    Google Scholar 

  • Usita, P., Hall, S., & Davis, J. (2004). Role ambiguity in family caregiving. Journal of Applied Gerontology, 23(1), 20–39.

    Article  Google Scholar 

  • Ward-Griffin, C., & McKeever, P. (2000). Relationships between nurses and family caregivers: Partners in care? Advances in Nursing Science, 22(3), 89–103.

    PubMed  Google Scholar 

  • Yates, M. E., Tennstedt, S., & Chang, B. H. (1999). Contributors to and mediators of psychological well-being for informal caregivers. Journal of Gerontology: Social Sciences, 54(1), P12–P22.

    Article  Google Scholar 

  • Yee, J., & Schulz, R. (2000). Gender differences in psychiatric morbidity among family caregivers: A review and analysis. The Gerontologist, 40(2), 147–164.

    Article  PubMed  Google Scholar 

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Acknowledgment

This chapter was developed under the auspices of a research grant to the first author from the National Institute of Nursing Research (RO1 NR 0008285).

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Correspondence to Catherine Lynch Gilliss DNSc, RN, FAAN .

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Davis, L.L., Gilliss, C.L., Harper, M.S. (2011). Family Caregiving: Implications for Rural Practice, Policy, Education, and Research. In: Talley, R., Chwalisz, K., Buckwalter, K. (eds) Rural Caregiving in the United States. Caregiving: Research, Practice, Policy. Springer, New York, NY. https://doi.org/10.1007/978-1-4614-0302-9_2

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