Skip to main content

The Integral Quality of Life Scale: Development, Validation, and Use

  • Chapter
  • First Online:
Enhancing the Quality of Life of People with Intellectual Disabilities

Part of the book series: Social Indicators Research Series ((SINS,volume 41))

Abstract

This study is aimed to achieve two general goals. The first is to present the quality of life (QOL) conceptual and measurement framework that is currently being used to implement QOL-related program practices, to assess and report personal outcomes, to guide quality improvement strategies, and to evaluate the effectiveness of those practices and strategies. The second is to report about a QOL questionnaire: the QOL Integral Scale (Verdugo, Gómez, Arias, & Schalock, 2009, Quality of life integral scale. Madrid: CEPE), using that theoretical framework. The instrument allows to assessing objective and subjective QOL. The sample was composed of 861 participants with intellectual disabilities. Factorial analysis was combined with innovative analysis such as self-organizing maps (SOM), generative topographic mapping (GTM), and non-metric multidimensional scaling. The psychometric properties of the QOL Integral Scale indicate that the instrument is reliable and valid and, therefore, it can serve as a basis for the development of both person-centered plans and quality improvement strategies in organizations.

This is a preview of subscription content, log in via an institution to check access.

Access this chapter

Chapter
USD 29.95
Price excludes VAT (USA)
  • Available as PDF
  • Read on any device
  • Instant download
  • Own it forever
eBook
USD 129.00
Price excludes VAT (USA)
  • Available as EPUB and PDF
  • Read on any device
  • Instant download
  • Own it forever
Softcover Book
USD 169.99
Price excludes VAT (USA)
  • Compact, lightweight edition
  • Dispatched in 3 to 5 business days
  • Free shipping worldwide - see info
Hardcover Book
USD 169.99
Price excludes VAT (USA)
  • Durable hardcover edition
  • Dispatched in 3 to 5 business days
  • Free shipping worldwide - see info

Tax calculation will be finalised at checkout

Purchases are for personal use only

Institutional subscriptions

References

  • Anderson, K., & Burckhardt, C. (1999). Conceptualization and measurement of quality of life as an outcome variable for health care intervention and research. Journal of Advanced Nursing, 29, 298–306.

    Article  Google Scholar 

  • Bentler, P. M. (1990). Comparative fit indexes in structural models. Psychological Bulletin, 107, 238–246.

    Article  Google Scholar 

  • Bishop, C. M., Svensén, M., & Williams, C. K. I. (1996). A fast EM algorithm for latent variable density models. In D. S. Touretzky, M. C. Mozer, & M. E. Hasselmo (Eds.), Advances in neural information processing systems (8, pp. 465–471). Cambridge, MA: MIT Press.

    Google Scholar 

  • Bonham, G. S., Basehart, S., Schalock, R. L., Marchand, C. G., Kirchner, N., & Rumenap, J. M. (2004). Consumer-based quality of life assessment: The Maryland Ask Me! Project. Mental Retardation, 42(5), 338–355.

    Article  Google Scholar 

  • Brown, R. I. (1997). Quality of life for people with disabilities: Models research and practice (2nd ed.). Cheltenham: Stanley Thornes.

    Google Scholar 

  • Carlisle, P. R., & Christensen, C. M. (2006). The cycles of theory building in management research. Boston: School of Management-Boston University and Harvard Business School.

    Google Scholar 

  • Cummins, R. A. (1996). Quality of life and disability. In P. O’Brien & R. Murray (Eds.), Human services: towards partnership and support (pp. 255–268). Auckland: Dunmore.

    Google Scholar 

  • Cummins, R. A. (1997). The comprehensive quality of life scale – Adult (ComQOl-A5) (5th Ed.). Melbourne: School of Psychology, Deakin University.

    Google Scholar 

  • Goodley, D., Armstrong, D., Sutherland, K., & Laurie, L. (2003). Self-advocacy, learning difficulties, and the social model of disability. Mental Retardation, 43(3), 149–160.

    Article  Google Scholar 

  • Gómez, L. E., Verdugo, M. A., & Arias, B. (2007). Validation of the eight-domain model of quality of life. Presentation at the ISQOL Conference: International Society for Quality-of-Life Studies. San Diego, CA, December 6–8.

    Google Scholar 

  • Hughes, C., Hwang, B., Kim, J. H., Eisenman, L. T., & Killian, D. J. (1995). Quality of life in applied research: A review and analysis of empirical measures. American Journal on Mental Retardation, 99, 623–641.

    Google Scholar 

  • Janssen, C., Schuengel, C., & Stolk, J. (2005). Perspectives on quality of life of people with intellectual disabilities: the interpretation of discrepancies between clients and caregivers. Quality of Life Research, 14(1), 57–69.

    Article  Google Scholar 

  • Jenaro, C., Verdugo, M. A., Caballo, C., Balboni, G., Lachapelle, Y., Otrebski, W., et al. (2005). Cross-cultural study of person-centred quality of life domains and indicators: a replication. Journal of Intellectual Disability Research, 49(10), 734–739.

    Article  Google Scholar 

  • Jöreskog, K. G. (1993). LISREL 8: User’s reference guide. Chicago: Scientific Software International.

    Google Scholar 

  • Jöreskog, K. G. (2002). Structural equation modeling with ordinal variables using LISREL. Available at http://www.ssicentral.com/lisrel/ordinal.htm

  • Jöreskog, K. G., & Sörbom, D. (1996). LISREL 8: User’s reference guide. Chicago: Scientific Software International.

    Google Scholar 

  • Kalafat, J., Illback, R. J., & Sanders, D., Jr. (2007). The relationship between implementation fidelity and educational outcomes in school-based family support program: Development of a model for evaluating multidimensional full-service programs. Evaluation and Program Planning, 30(2), 136–148.

    Article  Google Scholar 

  • Keith, K. D., & Bonham, G. S. (2005). The use of quality of life data at the organization and systems level. Journal of Intellectual Disability Research, 49(10), 799–805.

    Article  Google Scholar 

  • Kohonen, T. (1990). The self-organizing map. Proceedings of the IEEE, 78, 1464–1480.

    Google Scholar 

  • Kohonen, T. (2001). Self-organizing maps. (3rd ed.). Berlin: Springer.

    Book  Google Scholar 

  • Kohonen, T. (2005). Self-organizing maps. Berlin: Heidelberg.

    Google Scholar 

  • Kruskal, J. B., & Wish, M. (1978). Multidimensional scaling. Beverly Hills, CA: Sage.

    Google Scholar 

  • Langberg, J. M., & Smith, B. H. (2006). Developing evidence-based intervention for deployment into school settings: A case example highlighting key issues of efficacy and effectiveness. Evaluation and Program Planning, 29(4), 323–334.

    Article  Google Scholar 

  • Moreno, M., Verdugo, M. A., Gómez, L. E., Arias, B., Mendonça, K., & Holanda, M. (2005). Adaptation of the quality of life scale for adults with intellectual disabilities for being applied in Brazil. Presentation at the II Congresso Brasileiro de Educaçao Especial e II Encontro da Associaçao Brasileira de Pesquisadores em Educaçao Especial, Sao Carlos, Brasil, November 5.

    Google Scholar 

  • Nabney, I. T. (2004). NETLAB: Algorithms for pattern recognition (3rd ed.). Berlin: Springer.

    Google Scholar 

  • Olson, G. I., & Schober, B. I. (1993). The satisfied poor. Development of an intervention-oriented theoretical framework to explain satisfaction with a life in poverty. Social Indicators Research, 28, 173–193.

    Article  Google Scholar 

  • Perry, J., & Felce, D. (1995). Objective assessments of quality of life: How much do they agree with each other? Journal of Community and Applied Social Psychology, 5(1), 1–19.

    Article  Google Scholar 

  • Perry, J., & Felce, D. (2005). Correlation between subjective and objective measures of outcome in staffed community housing. Journal of Intellectual Disability Research, 49, 278–287.

    Article  Google Scholar 

  • Poole, D. L., Duvall, D., & Wofford, B. (2006). Concept mapping key elements and performance measures in a state nursing home-to-community transition project. Evaluation and Program Planning, 29(1), 10–22.

    Article  Google Scholar 

  • Satorra, A., & Bentler, P. M. (1988). Scaling corrections for chi-square statistics in covariance structure analysis. Proceedings of the American Statistical Association, 308–313.

    Google Scholar 

  • Schalock, R. L., & Bonham, G. S. (2003). Measuring outcomes and managing for results. Evaluation and Program Planning, 26(3), 229–235.

    Article  Google Scholar 

  • Schalock., R. L., Bonham, G. S., & Verdugo, M. A. (2008). The conceptualization and measurement of quality of life: Implications for program planning and evaluation in the field of intellectual disabilities. Evaluation and Program Planning, 31, 181–190.

    Article  Google Scholar 

  • Schalock, R. L., & Felce, D. (2004). Quality of life and subjective well-being: conceptual and measurement issues. In E. Emerson, C. Hatton, T. Thompson, & T. R. Parmenter (Eds.)., The international handbook of applied research in intellectual disabilities (pp. 261–279). London: Wiley.

    Google Scholar 

  • Schalock, R. L., Keith, K. D., Verdugo, M. A., & Gómez, L. E. (2010). Quality of life theory construction and model development in the field of intellectual disabilities. In R. Kober (Ed.), Enhancing quality of life for people with intellectual disability: From theory to practice (pp. 17–32). New York: Springer.

    Google Scholar 

  • Schalock, R. L., & Verdugo, M. A. (2002). Handbook on quality of life for human service practitioners. Washington, DC: American Association on Mental Retardation.

    Google Scholar 

  • Schalock, R. L., & Verdugo, M. A. (2007). The concept of quality of life in services and supports for people with intellectual disabilities. Siglo Cero, 38(4), 21–36.

    Google Scholar 

  • Schalock, R. L., Verdugo, M. A., Jenaro, C., Wang, M., Wehmeyer, M., Jiancheng, X., et al. (2005). A cross-cultural study of QOL indicators. American Journal on Mental Retardation, 110(4), 298–311.

    Article  Google Scholar 

  • Shoemaker, P. J., Tankard, J. W., Jr., & Lasorsa, D. L. (2004). How to build social service theories. Thousand Oaks, CA: Sage Publications.

    Google Scholar 

  • Steiger, J. H. (1990). Structural model evaluation and modification: An interval estimation approach. Multivariate Behavioral Research, 25(2), 173–180.

    Article  Google Scholar 

  • Sutherland, S., & Katz, S. (2005). Concept mapping methodology: a catalyst for organizational learning. Evaluation and Program Planning, 28, 257–269.

    Article  Google Scholar 

  • Svensén, M. (1998). GTM: The generative topographic mapping. Ph.D. thesis. Aston University, Birmingham.

    Google Scholar 

  • Tanaka, J. S., & Huba, G. J. (1985). A fit Index for covariance structure models under arbitrary GLS estimation. British Journal of Mathematical and Statistical Psychology, 38, 197–201.

    Article  Google Scholar 

  • Teti, D. M. (Ed.). (2005). Handbook of research methods in developmental science. Cambridge, MA: Blackwell.

    Google Scholar 

  • Van Loon, J., Van Hove, J., Schalock, R. L., & Claes, C. (2008). Personal outcomes scale. Gent: Stichting Arduin, Universiteit Gent.

    Google Scholar 

  • Veerman, J. W., & van Yperen, T. A. (2007). Degrees of freedom and degrees of certainty: A developmental model for the establishment of evidence-based youth care. Evaluation and Program Planning, 30(2), 136–148.

    Article  Google Scholar 

  • Verdugo, M. A., Arias, B., & Gómez, L. E. (2006). Escala integral de medición subjetiva y objetiva de la calidad de vida en personas con discapacidad intelectual. In M. A. Verdugo (Dir.), Como mejorar la calidad de vida de las personas con discapacidad. Instrumentos y estrategias de evaluación (pp. 417–448). Salamanca: Amarú.

    Google Scholar 

  • Verdugo, M. A., Arias, B., Gómez, L. E., & van Loon, J. (2007). Schaal Voor Kwaliteit Van Bestaan Voor Mensen Met Een Verstandelijke Beperking [QOL Integral Scale]. Holland: Stichting Arduin.

    Google Scholar 

  • Verdugo, M. A., Arias, B., Gómez, L. E., & Schalock, R. L. (2008). Formulari de l’Escala Gencat de Qualitat de vida. Manual d’aplicació de l’Escala Gencat de Qualitat de vida. Departamento de Acción Social y Ciudadanía. Generalitat de Cataluña.

    Google Scholar 

  • Verdugo, M. A., Gómez, L. E., Arias, B., & Martin, J. C. (2006). Validation of the eight domain model of quality of life. Presentation at the symposium on quality of life outcomes: Their empirical development, verification, and use. International symposium on social inclusion, Montreal, CA, May 2–6.

    Google Scholar 

  • Verdugo, M. A., Gómez, L. E., Arias, B., & Schalock, R. L. (2009). Quality of life integral scale. Madrid: CEPE.

    Google Scholar 

  • Verdugo, M. A., & Schalock, R. L. (2001). Cross-cultural survey of quality of life indicators. Salamanca: Institute on Community Integration, Faculty of Psychology, University of Salamanca.

    Google Scholar 

  • Verdugo, M. A., Schalock, R. L., Gómez, L. E., & Arias, B. (2007). Developing multi-dimensional quality of life scales focusing on the context: The GENCAT scale. Siglo Cero, 38(4), 57–72.

    Google Scholar 

  • Wilkinson, L., Hill, M., & Vang, E. (1992). SYSTAT: Statistics. Evanston, IL: SYSTAT.

    Google Scholar 

Download references

Author information

Authors and Affiliations

Authors

Corresponding author

Correspondence to Miguel Á. Verdugo .

Editor information

Editors and Affiliations

Rights and permissions

Reprints and permissions

Copyright information

© 2010 Springer Science+Business Media B.V.

About this chapter

Cite this chapter

Verdugo, M.Á., Gómez, L.E., Arias, B., Schalock, R.L. (2010). The Integral Quality of Life Scale: Development, Validation, and Use. In: Kober, R. (eds) Enhancing the Quality of Life of People with Intellectual Disabilities. Social Indicators Research Series, vol 41. Springer, Dordrecht. https://doi.org/10.1007/978-90-481-9650-0_4

Download citation

Publish with us

Policies and ethics