Skip to main content
SpringerLink
Log in
Book cover

Enhancing the Quality of Life of People with Intellectual Disabilities pp 3–16Cite as

The Measurement and Use of Quality of Life-Related Personal Outcomes

  • Chapter
  • First Online:

Part of the book series: Social Indicators Research Series ((SINS,volume 41))

Abstract

The purpose of this chapter is to present a framework for the measurement and use of quality of life-related personal outcomes for persons with intellectual and closely related developmental disabilities. The chapter is composed of two major sections. In the first section (“the measurement of quality of life-related personal outcomes”) the author discusses quality of life (QOL) measurement guidelines, a QOL measurement model, and a framework for measuring QOL-related personal outcomes. In the second section (“the primary use of the QOL conceptual model”) the author discusses a framework for service delivery, evidence-based practices, and quality improvement strategies. The chapter should be read and understood within the context of two significant trends impacting current policies and practices regarding persons with ID/DD: (a) the desire among stakeholders for quality services and personal outcomes; and (b) the need for organizations to improve their performance and accountability through systematically collecting and analyzing QOL-related data and information, and implementing quality improvement strategies based on the analysis.

This is a preview of subscription content, log in via an institution.

Chapter
USD   29.95
Price excludes VAT (USA)
  • Available as PDF
  • Read on any device
  • Instant download
  • Own it forever
eBook
USD   129.00
Price excludes VAT (USA)
  • Available as EPUB and PDF
  • Read on any device
  • Instant download
  • Own it forever
Softcover Book
USD   169.99
Price excludes VAT (USA)
  • Compact, lightweight edition
  • Dispatched in 3 to 5 business days
  • Free shipping worldwide - see info
Hardcover Book
USD   169.99
Price excludes VAT (USA)
  • Durable hardcover edition
  • Dispatched in 3 to 5 business days
  • Free shipping worldwide - see info

Tax calculation will be finalised at checkout

Purchases are for personal use only

Learn about institutional subscriptions

References

  • Andrews, A. B. (2004). Start at the end: Empowerment evaluation product planning. Evaluation and Program Planning, 27(3), 275–285.

    Article  Google Scholar 

  • Bonham, G. S., Basehart, S., Schalock, R. L., Marchand, C. B., Kirchner, N., & Rumenap, J. M. (2004). Consumer-based quality of life assessment: The Maryland Ask Me! Project. Mental Retardation, 42(5), 338–355.

    Article  Google Scholar 

  • Brown, R. I., & Brown, I. (2005). The application of quality of life. Journal of Intellectual Disability Research, 49(10), 718–727.

    Article  Google Scholar 

  • Center for the Study of Social Policy. (1996, August). Beyond lists. In Moving to results-based accountability. Washington, DC: Author.

    Google Scholar 

  • Chorpita, B. F. (2003). The frontier of evidence-based practice. In A. E. Kazdin & J. R. Weisz (Eds.), Evidence-based psychotherapies for children and adolescents (pp.42–59). New York: Oxford.

    Google Scholar 

  • Cummins, R. A. (1997). Assessing quality of life. In R. I. Brown (Ed.), Assessing quality of life for people with disabilities: Models, research, and practice (pp. 16–150). London: Stanley Thornes.

    Google Scholar 

  • Cummins, R. A. (2004a). Instruments for assessing quality of life. In J. H. Hogg & A. Langa (Eds.), Approaches to the assessment of adults with intellectual disabilities: A service providers guide. London: Blackwell.

    Google Scholar 

  • Cummins, R. A. (2004b). Issues in the systematic assessment of quality of life. In J. H. Hogg & A. Langa (Eds), Approaches to the assessment of adults with intellectual disabilities: A service providers guide. London: Blackwell.

    Google Scholar 

  • Cummins, R. A. (2005). Moving from the quality of life concept to a theory. Journal of Intellectual Disability Research, 49(10), 699–706.

    Article  Google Scholar 

  • De Walle, I., Van Loon, J., Van Hove, G., & Schalock, R. L. (2005). Quality of life vs. quality of care: Implications for people and programs. Journal of Policy and Practice in Intellectual Disabilities, 2(3/4), 229–239.

    Article  Google Scholar 

  • Dumas, I. E., Lynch, A. M., Laughlin, J. E., Smith, E., & Prinz, R. J. (2001). Promoting intervention fidelity: Conceptual issues, methods, and preliminary results for the early alliance prevention trial. American Journal of Preventive Medicine, 20, 38–47.

    Article  Google Scholar 

  • Gambill, E. (1999). Evidence-based practice: An alternative to authority-based practice. Families in Society, 80, 341–350.

    Google Scholar 

  • Hartley, S. L., & MacLean, W. E., Jr. (2006). A review of the reliability and validity of Likert-type scales for people with intellectual disability. Journal of Intellectual Disability Research, 50(part II), 813–827.

    Article  Google Scholar 

  • Heal, L. W., & Sigelman, C. K. (1995). Response biases in interviews of individuals with limited mental ability. Journal of Intellectual Disability Research, 39, 331–340.

    Article  Google Scholar 

  • Hensel, E., Rose, J., Stenfert-Kroese, B., & Banks-Smith, J. (2002). Subjective judgments of quality of life: A comparison study between people with intellectual disability and those without disability. Journal of Intellectual Disability Research, 46(2), 95–107.

    Article  Google Scholar 

  • Isaacs, W. (1999). Dialogue and the art of thinking together. New York: Currency.

    Google Scholar 

  • Jenaro, C., Verdugo, M. A., Caballo, C., Balboni, G., Lachapele, Y., Otbrebski, W., et al. (2005). Cross-cultural study of person-centered quality of life domains and indicators: A replication. Journal of Intellectual Disability Research, 49(part 10), 734–739.

    Article  Google Scholar 

  • Kalafat, J., Illback, R. J., & Sanders, D., Jr. (2007). The relationship between implementation fidelity and educational outcomes in a school-based family support program: Development of a model for evaluating multidimensional full-service programs. Evaluation and Program Planning, 30(2), 136–148.

    Article  Google Scholar 

  • Keith, K. D., & Bonham, G. S. (2005). The use of quality of life data at the organization and systems level. Journal of Intellectual Disability Research, 49(part 10), 799–805.

    Article  Google Scholar 

  • Keith, K. D., & Schalock, R. L. (2000). Quality of life from a cross-cultural perspective. Washington, DC: American Association on Mental Retardation.

    Google Scholar 

  • Langberg, J. M., & Smith, B. H. (2006). Developing evidence-based intervention for deployment into school settings: A case example highlighting key issues of efficacy and effectiveness. Evaluation and Program Planning, 29(4), 323–334.

    Article  Google Scholar 

  • Lick, D. W. (2006). A new perspective on organizational learning: Creating learning teams. Evaluation and Program Planning, 29(1), 88–96.

    Article  Google Scholar 

  • Orthner, D. K., Cook, P., Sabah, Y., & Rosenfeld, J. (2006). Organization learning: A cross-national pilot test of effectiveness in children’s services. Evaluation and Program Planning, 29(1), 67–78.

    Article  Google Scholar 

  • Perry, J., & Felce, D. (2005). Factors associated with outcomes in community group homes. American Journal on Mental Retardation, 110, 121–135.

    Article  Google Scholar 

  • Poston, D., Turnbull, A., Park, J., Mannan, H., Marquis, J., & Wang, M. (2002). Family quality of life: A qualitative inquiry. Mental Retardation, 41, 313–328.

    Article  Google Scholar 

  • Renger, R., & Hurley, C. (2006). From theory to practice: Lessons learned in the application of ATM approach to developing logic models. Evaluation and Program Planning, 29(2), 106–119.

    Article  Google Scholar 

  • Schalock, R. L. (1997). Quality of life: Vol. I: Conceptual and measurement issues. Washington, DC: American Association on Mental Retardation.

    Google Scholar 

  • Schalock, R. L., & Bonham, G. S. (2003). Measuring outcomes and managing for results. Evaluation and Program Planning, 26(3), 229–235.

    Article  Google Scholar 

  • Schalock, R. L., Bonham, G. S., & Verdugo, M. A. (2008a). The conceptualization and measurement of quality of life: Implications for program planning and evaluation in the field of intellectual disabilities. Evaluation and Program Planning, 31, 181–190.

    Google Scholar 

  • Schalock, R. L., & Felce, D. (2004). Quality of life and subjective well-being: Conceptual and measurement issues. In E. Emerson, C. Hatton, T. Thompson, & T. R. Parmenter (Eds.), International handbook of applied research in intellectual disabilities (pp. 261–279). London: Wiley.

    Google Scholar 

  • Schalock, R. L., Gardner, J. F., & Bradley, V. J. (2007). Quality of life for persons with intellectual and other developmental disabilities: Applications across individuals, organizations, communities, and systems. Washington, DC: American Association on Intellectual and Developmental Disabilities.

    Google Scholar 

  • Schalock, R. L., & Verdugo, M. A. (2002). Handbook on quality of life for human service practitioners. Washington, DC: American Association on Mental Retardation.

    Google Scholar 

  • Schalock, R. L., Verdugo, M. A., Bonham, G. S., Fantova, F., & Van Loon, J. S. (2008b). Enhancing personal outcomes: Organizational strategies, guidelines, and examples. Journal of Policy and Practice in Intellectual Disabilities, 5, 276–285.

    Google Scholar 

  • Schalock, R. L., Verdugo, M. A., Jenaro, W., Wang, M., Wehmeyer, M., Xu, J., et al. (2005). A cross-cultural study of quality of life indicators. American Journal on Mental Retardation, 110, 298–311.

    Article  Google Scholar 

  • Senge, P. M. (2006). The fifth discipline: The art and practice of the learning organization (Rev. ed.). New York: Doubleday.

    Google Scholar 

  • Spectot, J. M., & Davidsen, P. I. (2006). How can organizational learning be modeled and measured? Evaluation and Program Planning, 29(1), 63–69.

    Article  Google Scholar 

  • Stancliffe, R. (2000). Proxy respondents and quality of life. Evaluation and Program Planning, 23(1), 89–93.

    Article  Google Scholar 

  • State of Nebraska Health and Human Services. (2006). 2006 Nebraska developmental disabilities provider profiles. Lincoln, USA: State of Nebraska Health and Human Services, Division of Developmental Disabilities.

    Google Scholar 

  • Summers, J. A., Poston, D., Turnbull, A. P., Marquis, J., Hoffman, L., Manan, H., et al. (2005). Conceptualization and measuring family quality of life. Journal of Intellectual Disability Research, 49(10), 777–783.

    Article  Google Scholar 

  • Veerman, J. W., & Van Yperen, T. A. (2007). Degrees of freedom and degrees of uncertainty: A developmental model for the establishment of evidence-based youth care. Evaluation and Program Planning, 30(2), 212–221.

    Article  Google Scholar 

  • Verdugo, M. A., Gomez, L., Arias, B., & Martin, J. C. (2006). Validation of the eight domain model of quality of life. Presentation at the symposium on quality of life outcomes: Their empirical development, verification, and use. International Summit on Social Inclusion, Montreal, May 2–6.

    Google Scholar 

  • Verdugo, M. A., & Schalock, R. L. (2003). Cross-cultural Survey of QOL Indicators. Salamanca: Institute on Community Integration-Faculty of Psychology-University of Salamanca.

    Google Scholar 

  • Verdugo, M. A., & Schalock, R. L. (2007). The development of quality of life indicator items. Unpublished manuscript. Institute on Community Integration-Faculty of Psychology, University of Salamanca: Salamanca, Spain.

    Google Scholar 

  • Verdugo, M. A., Schalock, R. L., Keith, K. D., & Stancliffe, R. (2005). Quality of life and its measurement: Important principles and guidelines. Journal of Intellectual Disability Research, 49(10), 707–717.

    Article  Google Scholar 

  • Walsh, P. N., Emerson, E., Lobb, C., Hatton, C., Bradley, V., Schalock, R. L., & Mosley, C. (2010). Supported accommodation for people with intellectual disabilities and quality of life: An overview. Journal of Policy and Practice in Intellectual Disabilities, 7, 137–142.

    Article  Google Scholar 

  • Wang, M., Schalock, R. L., Verdugo, M. A., & Jenaro, C. (2010). Examining the factor structure and hierarchical nature of the quality of life construct. American Journal on Intellectual and Developmental Disabilities, 115, 218–233.

    Article  Google Scholar 

Download references

Author information

Authors and Affiliations

  1. Hastings College, Hastings, NE, USA

    Robert L. Schalock

Authors
  1. Robert L. Schalock
    View author publications

    You can also search for this author in PubMed Google Scholar

Corresponding author

Correspondence to Robert L. Schalock .

Editor information

Editors and Affiliations

  1. , Department of Accounting and Finance, Monash University, PO Box 197, Caulfield East, 3145, Victoria, Australia

    Ralph Kober

Rights and permissions

Reprints and permissions

Copyright information

© 2010 Springer Science+Business Media B.V.

About this chapter

Cite this chapter

Schalock, R.L. (2010). The Measurement and Use of Quality of Life-Related Personal Outcomes. In: Kober, R. (eds) Enhancing the Quality of Life of People with Intellectual Disabilities. Social Indicators Research Series, vol 41. Springer, Dordrecht. https://doi.org/10.1007/978-90-481-9650-0_1

Download citation

Publish with us

Policies and ethics

Search

Navigation