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Swift and Systematic? Identifying and Recording Disability in Forced Migration

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Part of the book series: Social Indicators Research Series ((SINS,volume 61))

Abstract

In this chapter we reflect on the use of the Washington Group’s functionality approach to identifying disabilities in fieldwork conducted across 3 years and six countries. Funded by the Australian government, researchers from the University of Sydney explored the adequacy of systems used by UNHCR and other agencies to identify disabilities in populations of displaced persons. They found that humanitarian agencies have relied heavily on either self-reporting by persons with disabilities or on the visual identification of impairments. The inadequacies in this approach are apparent in agency records showing disability rates in refugee populations that fall way below the averages suggested by the World Health Organisation in its Global Disabilities Report. We found that the High Commissioner for Refugees was accurate in describing persons with disabilities as the invisible and forgotten refugees. Our research examined the dramatically different results achieved by UNHCR when versions of the Washington Group questions were used in a verification exercise in Pakistan. If a similar approach were adopted in registration procedures across the world, we argue that UNHCR would generate data that aligns more closely with global standards. Data on disabilities is critical to developing accessible programs. Of course, asking the right questions is only one part of a complex equation. The nature of displacement throws up many challenges to identification. Awareness raising and training are crucial, as is the dissemination of information in suitable languages and formats. Empowering refugee communities and groups of refugees with disabilities creates valuable conduits for referrals.

This chapter draws on an article prepared during an early stage of the “Protection of Refugees with Disabilities” Project. See: Smith-Khan et al. 2015a.

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Notes

  1. 1.

    Turkey is a party to the Refugee Convention, but limits its application to refugees from Europe. Malaysia ratified the CRPD on 19 July 2010; Indonesia on 30 November 2011; Pakistan on 5 July 2011; Turkey on 28 September 2009; Jordan on 31 March 2008. Uganda acceded to the Refugee Convention and its Protocol on 27 September 1976. Turkey ratified the Refugee Convention on 30 March 1962 and acceded to its Protocol on 31 July 1968.

  2. 2.

    See further below. The behaviours exhibited may also reflect the aspiration of the participants that involvement in the survey could deliver a benefit, for example in terms of resettlement to a third country. This was despite every effort on our part to explain the nature of the research and what participation in the survey would (and would not) mean for them.

  3. 3.

    We have not obtained ProGres data from UNHCR Pakistan, so it was not possible to compare the data collected during the PPVR with standard ProGres data on disabilities in Pakistan. However, even if this were available to us, the majority of refugees in Pakistan are not registered with UNHCR, but rather in the Government of Pakistan’s database (interview with UNHCR Islamabad, 9 April 2013) meaning that comparative value would be limited.

  4. 4.

    It should be noted that earlier guidance in UNHCR’s Registration Handbook mentions only a “Disabled” category for persons of concern who are “physically or mentally disabled” (UNHCR 2003: 169).

  5. 5.

    Cognitive functioning of persons with cerebral palsy is a complex area, with varied ability reported: see Fennell and Dikel (2001) for a description.

References

International Law

  • Convention on the Rights of Persons with Disabilities (opened for signature 30 March 2007, entered into force 3 May 2008) 2515 UNTS 3.

    Google Scholar 

  • Convention relating to the Status of Refugees (opened for signature 28 July 1951, entered into force 4 October 1967) 189 UNTS 137.

    Google Scholar 

  • Protocol relating to the Status of Refugees (opened for signature 31 January 1967, entered into force 4 October 1967) 606 UNTS 267.

    Google Scholar 

Other Sources

  • Abdel-Messih, I. A., El-Setouhy, M., Crouch, M. M., & Earhart, K. C. (2008). Developing cultural competence and overcoming ethical challenges in the informed consent process: An experience from Egypt. Journal of Research Administration, 39(2), 33–40.

    Google Scholar 

  • Bloch, A. (2007). Methodological challenges for national and multi-sited comparative survey research. Journal of Refugee Studies, 20(2), 230–247.

    Article  Google Scholar 

  • Crock, M., Ernst, C., & McCallum, R. (2013). Where disability and displacement intersect: Asylum seekers and refugees with disabilities. International Journal of Refugee Law, 24(4), 735–764.

    Article  Google Scholar 

  • Davis, N. A. (2005). Invisible disability. Ethics, 116(1), 153–213.

    Article  Google Scholar 

  • Fennell, E. B., & Dikel, T. N. (2001). Cognitive and neuropsychological functioning in children with cerebral palsy. Child Neurology, 16(1), 58–63.

    Google Scholar 

  • Garand, L., Lingler, J. H., Conner, K. O., & Dew, M. A. (2009). Diagnostic labels, stigma and participation in research related to dementia and mild cognitive impairment. Research in Gerontological Nursing, 2(2), 112–121.

    Article  Google Scholar 

  • Harrell-Bond, B., & Voutira, E. (2007). In search of “invisible” actors: Barriers to access in refugee research. Refugee Studies, 20(2), 281–298.

    Article  Google Scholar 

  • Hart, N., Crock, M., McCallum, R., & Saul, B. (2014). Making every life count: Ensuring equality for persons with disabilities in emergency situations. Monash University Law Review, 40(1), 148–154.

    Google Scholar 

  • HelpAge International and Handicap International. (2014). Hidden victims of the Syrian crisis: Disabled, injured and older refugees. London: HelpAge International; Lyon: Handicap International. http://www.helpage.org/download/537207495fe87

  • Microsoft. (2015). ProGres refugee registration platform. http://www.microsoft.com/publicsector/ww/international-organizations/projects/Pages/proGres-refugee-registration-platform.aspx

  • Pakistan Office of the Chief Commissioner for Afghan Refugees (CCAR) and UNHCR. (2011). Population profiling, verification and response survey of Afghans in Pakistan. Islamabad: UNHCR Pakistan.

    Google Scholar 

  • Sario, U. K. (2012). Study into persons with disabilities: Analysis of availability of and access to basic services and rights of disabled refugees in Malaysia. Kuala Lumpur: UNHCR Malaysia.

    Google Scholar 

  • Smith-Khan, L., Crock, M., Saul, B., & McCallum, R. (2015a). To “promote, protect and ensure”: Overcoming obstacles to identifying disability in forced migration. Journal of Refugee Studies, 28(1), 38–68.

    Article  Google Scholar 

  • Smith-Khan, L., Crock, M., McCallum, R., & Saul, B. (2015b). “Up to now I am suffering”: Justice, sexual violence and disability amongst refugees in Uganda. International Journal of Migration and Border Studies, 1(4), 348–371.

    Article  Google Scholar 

  • UNHCR. (2003). Handbook for registration: Procedures and standards for registration, population data management and documentation. Geneva: UNHCR. http://www.refworld.org/pdfid/3f967dc14.pdf

  • UNHCR. (2004 September 1). UNHCR seeks ProGres in refugee registration. 1 September 2004. Geneva: UNHCR. http://www.unhcr.org/print/4135e9aa4.html

  • UNHCR. (2009 June 10). Guidance on the use of standardized specific needs codes, DIPS/DOS, 10 June 2009. Geneva: UNHCR. http://data.unhcr.org/imtoolkit/chapters/view/registration-in-emergencies/lang:eng

  • UNHCR. (2010). Heightened risk identification tool (2nd ed.). Geneva: UNHCR. http://www.refworld.org/docid/4c46c6860.html

  • UNHCR. (2011a). Age, gender and diversity policy. Geneva: UNHCR. http://www.unhcr.org/543b922a6.html

  • UNHCR. (2011b). Need to know guidance: Working with persons with disabilities in forced displacement. Geneva: UNHCR. http://www.unhcr.org/4ec3c81c9.pdf

  • UNHCR. (2012). Who we help. http://www.unhcr.or.id/en/who-we-help. Accessed 3 Feb 2012.

  • UNHCR. (2013a). Resettlement assessment tool: Refugees with disabilities. http://www.unhcr.org/51de6e7a9.html

  • UNHCR. (2013b). UNHCR Uganda, Sub-Office Mbarara Fact Sheet. Mbarara: UNHCR.

    Google Scholar 

  • UNHCR Executive Committee. (2010 October 12). Conclusion on refugees with disabilities and other persons with disabilities protected and assisted by UNHCR, Conclusion No 110 (LXI), 12 October 2010. http://www.unhcr.org/4cbeb1a99.html

  • Washington Group on Disability Statistics. (2011 November). Washington Group: Extended question set on functioning (WG ES-F), Version 9, November 2011. http://www.cdc.gov/nchs/data/washington_group/WG_Extended_Question_Set_on_Functioning.pdf

  • Women’s Refugee Commission (WRC). (2008). Disabilities among Refugees and Conflict-affected Populations. New York: Women's Refugee Commission.

    Google Scholar 

  • World Health Organization (WHO). (2011). World report on disability. Geneva: World Health Organization and World Bank.

    Google Scholar 

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Acknowledgement

Special thanks to Ron McCallum AO for comments on the chapter in draft. In writing this chapter we acknowledge with gratitude financial assistance received from Mrs Judy Harris and AusAID for the “Protection of Refugees with Disabilities” Project. The views expressed are those of the authors alone.

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Correspondence to Mary Crock .

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Crock, M., Smith-Khan, L. (2016). Swift and Systematic? Identifying and Recording Disability in Forced Migration. In: Altman, B. (eds) International Measurement of Disability. Social Indicators Research Series, vol 61. Springer, Cham. https://doi.org/10.1007/978-3-319-28498-9_16

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  • DOI: https://doi.org/10.1007/978-3-319-28498-9_16

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