Abstract
Knowledge of the long-term effects of FASD has increased in recent years, and special attention has been focused on adolescents and young adults with neurobehavioural and psychosocial problems or problems with the law without a prior FASD diagnosis. However, there has been little discussion about the ethical issues concerning the implementation of a screening programme for diagnosing FASD in adolescents and young adults.
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References
Ahlvik, A., T. Haldorsen, B. Groholt, and R. Lindemann. 2006. Alcohol consumption before and during pregnancy comparing concurrent and retrospective reports. Alcoholism, Clinical and Experimental Research 30: 510–515.
Astley, S.J. 2006. Comparison of the 4-digit diagnostic code and the Hoyme diagnostic guidelines for Fetal alcohol spectrum disorders. Pediatrics 118: 1532–1544.
Autti-Rämö, I., M. Mäkelä, H. Sintonen, H. Koskinen, L. Laajalahti, R. Halila, H. Kääriäinen, R. Lapatto, K. Näntö-Salonen, P. Pulkki, M. Renlund, M. Salo, and T. Tyni. 2005. Expanding screening for rare metabolic disease in the newborn: An analysis of costs, effect and ethical consequences for decision making in Finland. Acta Paediatrica 94: 1126–1136.
Chudley, A.E., J. Conry, J.L. Cook, C. Loock, T. Rosales, and N. LeBlanc. 2005. Fetal alcohol spectrum disorders: Canadian guidelines for diagnosis. CMAJ 172(5 Suppl): S1–S21.
Fagerlund, Å., I. Autti-Rämö, M. Kalland, P. Santtila, H.E. Hoyme, S.N. Mattson, and M. Korkman. 2012. Adaptive Behaviour in Children and Adolescents with Foetal Alcohol Spectrum Disorders: A Comparison with Specific Learning Disability and Typical Development. Eur Child Adol Psychiatr. 12: 221–231.
Hoyme, H.E., P.A. May, W.O. Kalberg, P. Kodituwakku, J.P. Gossage, P.M. Trujillo, D.C. Buckely, J.H. Miller, A.S. Aragon, N. Khaole, D. Viljoen, K.L. Jones, and L.K. Robinson. 2005. A Practical clinical approach to diagnosis of fetal alcohol spectrum disorders; clarification of the 1996 institute of medicine criteria. Pediatrics 115: 39–47.
Koponen, A., M. Kalland, I. Autti Rämö, and S. Suominen. 2013. Socio-emotional development of children with foetal alcohol spectrum disorders in long-term foster family care: a qualitative study. Nordic Social Work Research 3: 38–58.
Kahila, H., M. Gissler, T. Sarkola, I. Autti-Rämö, and E. Halmesmäki. 2010. Maternal welfare, morbidity and mortality 6–15 years after a pregnancy complicated by alcohol and substance abuse: a register-based case-control follow-up study of 524 women. Alcohol and Drug Dependency 111: 215–221.
May, P, J.P. Cossage, W.O. Kalberg, L.K. Robinson, D. Buckley, M. Manning, and E.G. Hoyme. 2009. Prevalence and epidemiologi characteristics of FASD from various research methods with an emphasis on recent in-school studies. Dev Disabil Res Rev 2009;15: 176–192.
Mäkelä, P., H. Mustonen, and C. Tigerstedt (toim.). 2010. Suomi juo. Suomalaisten alkoholinkäyttö ja sen muutokset 1968–2008. (Finland drinks. Changes is alcohol consumption 1968–2008). Terveyden ja hyvinvoinnin laitos. Yliopistopaino. Helsinki.
Saarni, S., B. Hofmann, K. Lampe, D. Luehman, M. Mäkelä, M. Velasco-Garrido, and I. Autti-Rämö. 2008. Ethical analysis to improve decision-making on health technologies. Bulletin of the World Health Organization 86: 617–623.
The Danish Council of Ethics. 2001. Screening—a report. 1–118. Kööpenhamina. http://www.etiskraad.dk.
Wilson, J.M.G., and G. Jungner. 1968. Principles and Practice of Screening for Disease. Geneve: WHO.
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Autti-Rämö, I. (2016). Ethical Challenges When Screening for and Diagnosing FASD in Adults. In: Nelson, M., Trussler, M. (eds) Fetal Alcohol Spectrum Disorders in Adults: Ethical and Legal Perspectives. International Library of Ethics, Law, and the New Medicine, vol 63. Springer, Cham. https://doi.org/10.1007/978-3-319-20866-4_6
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