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Psychosocial Interventions to Address the Emotional Needs of Caregivers of Individuals with Alzheimer’s Disease

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Caregiving for Alzheimer’s Disease and Related Disorders

Part of the book series: Caregiving: Research • Practice • Policy ((CARE))

Abstract

Alzheimer’s disease (AD) poses unique difficulties for many families. The time from the onset of symptoms of the illness to death is typically 5–15 years. The person with the illness experiences increasing cognitive and functional impairments, and ultimately becomes entirely dependent on others for survival. While it is possible to describe the symptoms that generally accompany the disease as it progresses, it is not possible to predict when or if a specific symptom will arise in any individual, or how long it will be before the symptom disappears as the severity of the illness increases.

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References

  • Alspaugh, M. E. L., Stephens, M. A. P., Townsend, A. L., Zarit, S. H., & Greene, R. (1999). Longitudinal patterns of risk for depression in dementia caregivers: Objective and subjective primary stress as predictors. Psychology and Aging, 14, 34–43.

    Article  PubMed  Google Scholar 

  • Baker, K. L., & Robertson, N. (2008). Coping with caring for someone with dementia: Reviewing the literature about men. Aging & Mental Health, 12(4), 413–422.

    Article  Google Scholar 

  • Baumgarten, M., Battista, R. N., Infante-Rivard, C., Hanley, J. A., Becker, R., & Gauthier, S. (1992). The psychological and physical health of family members caring for an elderly person with dementia. Journal of Clinical Epidemiology, 45, 61–70.

    Article  PubMed  Google Scholar 

  • Belle, S. H., Burgio, L., Burns, R., Coon, D., Czaja, S. C., Gallagher-Thompson, D., et al. (2006). Enhancing the quality of life of dementia caregivers from different ethnic or racial groups: A randomized, controlled trial. Annals of Internal Medicine, 145, 727–738.

    PubMed  Google Scholar 

  • Bodnar, J. C., & Kiecolt-Glaser, J. K. (1994). Caregiver depression after bereavement: Chronic stress isn’t over when it’s over. Psychology and Aging, 9(3), 372–380.

    Article  PubMed  Google Scholar 

  • Bookwala, J., & Schulz, R. (1998). The role of neuroticism and mastery in spouse-caregivers’ assessment of and response to a contextual stressor. Journal of Gerontology: Psychological Sciences, 53B, P155–P164.

    Article  Google Scholar 

  • Bourgeois, M. S., Schulz, R., & Burgio, L. (1996). Interventions for caregivers of patients with Alzheimer’s disease: A review and analysis of content, process, and outcomes. International Journal of Aging & Human Development, 43(1), 35–92.

    Article  Google Scholar 

  • Brink, T. L., Yesavage, J. A., Owen, L., Heersema, P. H., Adey, M., & Rose, T. L. (1982). Screening tests for geriatric depression. Clinical Gerontology, 1, 37–43.

    Article  Google Scholar 

  • Brodaty, H., & Donkin, M. (2009). Family caregivers of people with dementia. Dialogues in Clinical Neuroscience, 11(2), 217–228.

    PubMed  Google Scholar 

  • Brodaty, H., & Gresham, M. (1989). Effect of a training programme to reduce stress in carers of patients with dementia. British Medical Journal, 299, 1375–1379.

    Article  PubMed  Google Scholar 

  • Brodaty, H., McGilchrist, C., Harris, L., & Peters, K. (1993). Time until institutionalization and death in dementia patients: Role of caregiver training and risk factors. Archives of Neurology, 50, 643–650.

    Article  PubMed  Google Scholar 

  • Chappell, N. L., & Penning, M. (1996). Behavioural problems and distress among caregivers of people with dementia. Ageing and Society, 16, 57–73.

    Article  Google Scholar 

  • Clyburn, L. D., Stones, M. J., Hadjistavropoulos, T., & Tuokko, H. (2000). Predicting caregiver burden and depression in Alzheimer’s disease. Journals of Gerontology, 55B, S2–S13.

    Google Scholar 

  • Coehlo, D. P., Hooker, K., & Bowman, S. (2007). Institutional placement of persons with dementia: What predicts occurrence and timing? Journal of Family Nursing, 13(2), 253–277.

    Article  PubMed  Google Scholar 

  • Cohen, C. A., Gold, D. P., Shulman, K. I., Wortley, J. T., McDonald, G., & Wargon, M. (1993). Factors determining the decision to institutionalize dementing individuals: A prospective study. The Gerontologist, 33, 714–720.

    Article  PubMed  Google Scholar 

  • Connell, C. M., & Gibson, G. D. (1997). Racial, ethnic, and cultural differences in dementia caregiving: Review and analysis. The Gerontologist, 37, 355–364.

    Article  PubMed  Google Scholar 

  • Cooke, D. D., McNally, L., Mulligan, K. T., Harrison, M. J. G., & Newman, S. P. (2001). Psychosocial interventions for caregivers of people with dementia: A systematic review. Aging & Mental Health, 5, 120–135.

    Article  Google Scholar 

  • Costa, P. T., & McCrae, R. R. (1985). Hypochondriasis, neuroticism, and aging. The American Psychologist, 40, 19–28.

    Article  PubMed  Google Scholar 

  • Costa, P. T., & McCrae, R. R. (1992). Revised NEO Personality Inventory and NEO Five Factor Inventory professional manual. Odessa, FL: Psychological Assessment Resources.

    Google Scholar 

  • Croog, S. H., Sudilovsky, A., Burleson, J. A., & Baume, R. M. (2001). Vulnerability of husband and wife caregivers of Alzheimer disease patients to caregiving stressors. Alzheimer Disease and Associated Disorders, 15, 201–210.

    Article  PubMed  Google Scholar 

  • Cuijpers, P. (2005). Depressive disorders in caregivers of dementia patients: A systematic review. Aging & Mental Health, 9, 325–330.

    Article  Google Scholar 

  • Danhauer, S. C., McCann, J. J., Gilley, D. W., Beckett, L. A., Bienias, J. L., & Evans, D. A. (2004). Do behavioral disturbances in persons with Alzheimer’s disease predict caregiver depression over time? Psychology and Aging, 19(1), 198–202.

    Article  PubMed  Google Scholar 

  • Donaldson, C., Tarrier, N., & Burns, A. (1998). Determinants of carer stress in Alzheimer’s disease. International Journal of Geriatric Psychiatry, 13(4), 248–256.

    Article  PubMed  Google Scholar 

  • Drentea, P., Clay, O. J., Roth, D. L., & Mittelman, M. S. (2006). Predictors of improvement in social support: Five-year effects of a structured intervention for caregivers of spouses with Alzheimer’s disease. Social Science & Medicine, 63, 957–967.

    Article  Google Scholar 

  • Dura, J. R., Stukenberg, K. W., & Kiecolt-Glaser, J. K. (1990). Chronic stress and depressive disorders in older adults. Journal of Abnormal Psychology, 3, 284–290.

    Article  Google Scholar 

  • Fisher, L., & Lieberman, M. A. (1999). A longitudinal study of predictors of nursing home placement for patients with dementia: The contribution of family characteristics. The Gerontologist, 39(6), 677–686.

    Article  PubMed  Google Scholar 

  • Gallagher, D., Ni Mhaolain, A., Crosby, L., Ryan, D., Lacey, L., Coen, R. F., et al. (2011). Self-efficacy for managing dementia may protect against burden and depression in Alzheimer’s caregivers. Aging & Mental Health, 15(6), 663–670.

    Article  Google Scholar 

  • Gallagher-Thompson, D., & Steffen, A. M. (1994). Comparative effects of cognitive-behavioral and brief psychodynamic psychotherapies for depressed family caregivers. Journal of Consulting and Clinical Psychology, 62, 543–549.

    Article  PubMed  Google Scholar 

  • Gallicchio, L., Siddiqi, N., Langenberg, P., & Baumgarten, M. (2002). Gender differences in burden and depression among informal caregivers of demented elders in the community. International Journal of Geriatric Psychiatry, 17(2), 154–163.

    Article  PubMed  Google Scholar 

  • Gaugler, J. G., Roth, D. L., Haley, W. E., & Mittelman, M. S. (2008). Can counseling and support reduce Alzheimer’s caregivers’ burden and depressive symptoms during the transition to institutionalization? Results from the NYU Intervention Study. Journal of the American Geriatrics Society, 56, 421–442.

    Article  PubMed  Google Scholar 

  • George, L. K., & Gwyther, L. P. (1986). Caregiver well-being: A multidimensional examination of family caregivers of demented adults. The Gerontologist, 26, 253–259.

    Article  PubMed  Google Scholar 

  • Goldberg, D. G. (1978). Manual of the General Health Questionnaire. Windsor: NFER Publishing.

    Google Scholar 

  • Haley, W. E., Bergman, E. J., Roth, D. L., McVie, T., Gaugler, J. E., & Mittelman, M. S. (2008). Long-term effects of bereavement and caregiver intervention on dementia caregiver depressive symptoms. The Gerontologist, 48, 732–740.

    Article  PubMed  Google Scholar 

  • Haley, W. E., Levine, E. G., Brown, S. L., & Bartolucci, A. A. (1987). Stress, appraisal, coping, and social support as predictors of adaptational outcome among dementia caregivers. Psychology and Aging, 2, 323–330.

    Article  PubMed  Google Scholar 

  • Haley, W. E., Roth, D. L., Howard, G., & Stafford, M. M. (2010). Caregiving strain estimated risk for stroke and coronary heart disease among spouse caregivers: Differential effects by race and sex. Stroke, 41, 331–336.

    Article  PubMed  Google Scholar 

  • Harmell, A. L., Chattillion, E. A., Roepke, S. K., & Mausbach, B. T. (2011). A review of the psychobiology of dementia caregiving: A focus on resilience factors. Current Psychiatry Reports, 13(3), 219–224.

    Article  PubMed  Google Scholar 

  • Hepburn, K. W., Tornatore, J., Center, B., & Ostwald, S. W. (2001). Dementia family caregiver training: Affecting beliefs about caregiving and caregiver outcomes. Journal of the American Geriatrics Society, 49, 450–457.

    Article  PubMed  Google Scholar 

  • Hilgeman, M. M., Durkin, D. W., Sun, F., DeCoster, J., Allen, R. S., Gallagher-Thompson, D., et al. (2009). Testing a theoretical model of the stress process in Alzheimer’s caregivers with race as a moderator. The Gerontologist, 49, P248–P261.

    Article  Google Scholar 

  • Hooker, K., Manoogian-O’Dell, M., Monahan, D. J., Frazier, L. D., & Shifren, K. (2000). Does type of disease matter? Gender differences among Alzheimer’s and Parkinson’s disease spouse caregivers. The Gerontologist, 40, 568–573.

    Article  PubMed  Google Scholar 

  • Hooker, K., Monahan, D. J., Bowman, S. R., Fraizer, L. D., & Shifren, K. (1998). Personality counts for a lot: Predictors of mental and physical health of spouse caregivers in two disease groups. Journal of Gerontology: Psychological Sciences, 53B, P73–P85.

    Article  Google Scholar 

  • Jang, Y., Clay, O. J., Roth, D. L., Haley, W. E., & Mittelman, M. S. (2004). Neuroticism and longitudinal change in caregiver depression: Impact of a spouse-caregiver intervention program. The Gerontologist, 44(3), 311–317.

    Article  PubMed  Google Scholar 

  • Kennet, J., Burgio, L., & Schulz, R. (2000). Interventions for in-home caregivers: A review of research 1990 to present. In R. Schulz (Ed.), Handbook of dementia caregiving: Evidence-based interventions for family caregivers (pp. 61–125). New York: Springer.

    Google Scholar 

  • Lawton, M. P., Moss, M., Kleban, M. H., Glicksman, A., & Rovine, M. (1991). A two-factor model of caregiving appraisal and psychological well-being. Journals of Gerontology: Series B, Psychological Sciences & Social Sciences, 46, 181–189.

    Google Scholar 

  • Lazarus, R. S., & Folkman, J. (1984). Stress, appraisal, and coping. New York: Springer.

    Google Scholar 

  • Livingston, G., Manela, M., & Katona, C. (1996). Depression and other psychiatric morbidity in carers of elderly people living at home. British Medical Journal, 312, 153–156.

    Article  PubMed  Google Scholar 

  • Lyons, K. S., Zarit, S. H., Sayer, A. G., & Whitlach, C. J. (2002). Caregiving as a dyadic process: Perspectives from caregiver and care receiver. Journals of Gerontology: Series B, Psychological Sciences & Social Sciences, 57B, 195–204.

    Article  Google Scholar 

  • Marriott, A., Donaldson, C., Tarrier, N., & Burns, A. (2000). Effectiveness of cognitive-behavioural family intervention in reducing the burden of care in carers of patients with Alzheimer’s disease. The British Journal of Psychiatry, 176, 557–562.

    Article  PubMed  Google Scholar 

  • Mittelman, M. S., Epstein, C., & Pierzchala, A. (2003). Counseling the Alzheimer’s caregiver: A resource for health care professionals. Chicago, IL: AMA Press.

    Google Scholar 

  • Mittelman, M. S., Ferris, S. H., Shulman, E., Steinberg, G., Ambinder, A., & Mackell, J. A. (1995). A comprehensive support program: Effect on depression in spouse-caregivers of AD patients. The Gerontologist, 35, 792–802.

    Article  PubMed  Google Scholar 

  • Mittelman, M. S., Ferris, S. H., Shulman, E., Steinberg, G., & Levin, B. (1996). A family intervention to delay nursing home placement of patients with Alzheimer disease: A randomized controlled trial. Journal of the American Medical Association, 276, 1725–1731.

    Article  PubMed  Google Scholar 

  • Mittelman, M. S., Ferris, S. H., Steinberg, G., Shulman, E., Mackell, J. A., & Ambinder, A. (1993). An intervention that delays institutionalization of Alzheimer’s disease patients: Treatment of spouse-caregivers. The Gerontologist, 33, 730–740.

    Article  PubMed  Google Scholar 

  • Mittelman, M. S., Haley, W. E., Clay, O., & Roth, D. L. (2006). Improving caregiver well-being delays nursing home placement of patients with Alzheimer disease. Neurology, 67, 1592–1599.

    Article  PubMed  Google Scholar 

  • Mittelman, M. S., Roth, D. L., Clay, O. J., & Haley, W. E. (2007). Preserving health of Alzheimer’s caregivers: Impact of a spouse caregiver intervention. The American Journal of Geriatric Psychiatry, 15, 780–789.

    Article  PubMed  Google Scholar 

  • Mittelman, M. S., Roth, D. L., Coon, D. W., & Haley, W. E. (2004). Sustained benefit of supportive intervention for depressive symptoms in caregivers of patients with Alzheimer’s disease. The American Journal of Psychiatry, 161, 850–856.

    Article  PubMed  Google Scholar 

  • Mittelman, M. S., Roth, D. L., Haley, W. E., & Zarit, S. (2004). Effects of a caregiver intervention on negative caregiver appraisals of behavior problems in patients with Alzheimer’s disease: Results of a randomized trial. Journals of Gerontology: Series B, Psychological Sciences & Social Sciences, 59B, 27–34.

    Article  Google Scholar 

  • Ory, M. G., Hoffman, R. R., III, Yee, J. L., Tennstedt, S., & Schulz, R. (1999). Prevalence and impact of caregiving: A detailed comparison between dementia and nondementia caregivers. The Gerontologist, 39, 177–185.

    Article  PubMed  Google Scholar 

  • Pearlin, L. I., Mullin, J. T., Semple, S. J., & Skaff, M. M. (1990). Caregiving and the stress process: An overview of concepts and their measures. The Gerontologist, 30(5), 583–594.

    Article  PubMed  Google Scholar 

  • Pinquart, M., & Sörensen, S. (2003a). Associations of stressors and uplifts of caregiving with caregiver burden and depressive mood: A meta-analysis. The Journals of Gerontology. Series B, Psychological Sciences and Social Sciences, 58, 112–128.

    Article  Google Scholar 

  • Pinquart, M., & Sörensen, S. (2003b). Differences between caregivers and noncaregivers in psychological health and physical health: A metaanalysis. Psychology and Aging, 18(2), 250–267.

    Article  PubMed  Google Scholar 

  • Pinquart, M., & Sörensen, S. (2006). Helping caregivers of persons with dementia: Which interventions work and how large are their effects? International Psychogeriatrics, 18(4), 577–595.

    Article  PubMed  Google Scholar 

  • Pruchno, R. A., & Resch, N. L. (1989). Husbands and wives as caregivers: Antecedents of depression and burden. The Gerontologist, 29, 159–164.

    Article  PubMed  Google Scholar 

  • Redinbaugh, E. M., MacCallum, R. C., & Kiecolt-Glaser, J. K. (1995). Recurrent syndromal depression in caregivers. Psychology and Aging, 10, 358–368.

    Article  PubMed  Google Scholar 

  • Roth, D. R., Mittelman, M. S., Clay, O. J., Madan, A., & Haley, W. E. (2005). Changes in social support as mediators of the impact of a psychosocial intervention for spouse caregivers of persons with Alzheimer’s disease. Psychology and Aging, 20(4), 634–644.

    Article  PubMed  Google Scholar 

  • Rudd, M. G., Viney, L. L., & Preston, C. A. (1999). The grief experienced by spousal caregivers of dementia patients: The role of place of care of patient and gender of caregiver. International Journal of Aging & Human Development, 48, 217–240.

    Article  Google Scholar 

  • Sayegh, P., & Knight, B. G. (2011). The effects of familism and cultural justification on the mental and physical health of family caregivers. The Journals of Gerontology. Series B, Psychological Sciences and Social Sciences, 66(1), 3–14.

    Article  PubMed  Google Scholar 

  • Schulz, R., & Beach, S. R. (1999). Caregiving as a risk factor for mortality: The caregiver health effects study. Journal of the American Medical Association, 282, 2215–2219.

    Article  PubMed  Google Scholar 

  • Schulz, R., Gallagher-Thompson, D., Haley, W., & Czaja, S. (2000). Understanding the interventions process: A theoretical/conceptual framework for intervention approaches to caregiving. In R. Schulz (Ed.), Handbook of dementia caregiving: Evidence-based interventions for family caregivers (pp. 33–60). New York: Springer.

    Google Scholar 

  • Schulz, R., O’Brien, A., Czaja, S., Ory, M., Norris, R., Martire, L. M., et al. (2002). Dementia caregiver intervention research: In search of clinical significance. The Gerontologist, 42, 589–602.

    Article  PubMed  Google Scholar 

  • Schulz, R., O’Brien, A. T., Bookwala, J., & Fleissner, K. (1995). Psychiatric and physical morbidity effects of dementia caregiving: Prevalence, correlates, and causes. The Gerontologist, 35, 771–791.

    Article  PubMed  Google Scholar 

  • Schulz, R., Visintainer, P., & Williamson, G. M. (1990). Psychiatric and physical morbidity effects of caregiving. Journals of Gerontology: Series B, Psychological Sciences & Social Sciences, 45(5), 181–191.

    Google Scholar 

  • Schulz, R., & Williamson, G. M. (1991). A two-year longitudinal study of depression among Alzheimer’s caregivers. Psychology and Aging, 6, 569–578.

    Article  PubMed  Google Scholar 

  • Skaff, M. M., Pearlin, L. I., & Mullan, J. T. (1996). Transitions in the caregiving career: Effects on sense of mastery. Psychology and Aging, 11, 247–257.

    Article  PubMed  Google Scholar 

  • Smith, G. R., Williamson, G. M., Miller, L. S., & Schulz, R. (2011). Depression and quality of informal care: A longitudinal investigation of caregiving stressors. Psychology and Aging, 26(3), 584–591.

    Article  PubMed  Google Scholar 

  • Sorensen, S., Duberstein, P., Gill, D., & Pinquart, M. (2006). Dementia care: Mental health effects, intervention strategies, and clinical implications. Lancet Neurology, 5(11), 961–973.

    Article  PubMed  Google Scholar 

  • Sorensen, S., Pinquart, M., & Duberstein, P. (2002). How effective are interventions with caregivers? An updated meta-analysis. The Gerontologist, 42, 356–372.

    Article  PubMed  Google Scholar 

  • Teri, L., Truax, P., Logsdon, R., Uomoto, J., Zarit, S. H., & Vitaliano, P. (1992). Assessment of behavior problems in dementia: The revised Memory and Behavior Problems Checklist. Psychology and Aging, 7, 622–631.

    Article  PubMed  Google Scholar 

  • Vitaliano, P. P., Scanlon, Z., & Zhang, H. M. (2003). Is caregiving hazardous to one’s physical health? A meta-analysis. Psychological Bulletin, 6, 946–972.

    Article  Google Scholar 

  • Weimer, D. L., & Sager, M. A. (2009). Early identification and treatment of Alzheimer’s disease: Social and fiscal outcomes. Alzheimer’s & Dementia, 5, 215–226.

    Article  Google Scholar 

  • Whitlatch, C. J., Feinberg, L. F., & Stevens, E. J. (1999). Predictors of institutionalization for persons with Alzheimer’s disease and the impact on family caregivers. Journal of Mental Health and Aging, 5(3), 275–288.

    Google Scholar 

  • Whitlatch, C. J., Schur, D., Noelker, L. S., Ejaz, F. K., & Looman, W. J. (2001). The stress process of family caregiving in institutional settings. The Gerontologist, 41, 462–473.

    Article  PubMed  Google Scholar 

  • Yaffe, K., Fox, P., Newcomer, R., Sands, L., Lindquist, K., Dane, K., et al. (2002). Patient and caregiver characteristics and nursing home placement in patients with dementia. Journal of the American Medical Association, 287(16), 2090–2097.

    Article  PubMed  Google Scholar 

  • Zarit, S. H., Orr, N. K., & Zarit, J. M. (1985). Families under stress: Caring for the patient with Alzheimer’s disease and related disorders. New York: New York University Press.

    Google Scholar 

  • Zarit, S. H., Todd, P. A., & Zarit, J. M. (1986). Subjective burden of husbands and wives as caregivers: A longitudinal study. The Gerontologist, 17, 361–367.

    Google Scholar 

  • Zarit, S. H., & Whitlatch, C. J. (1993). The effects of placement in nursing homes on family caregivers: Short and long term consequences. Irish Journal of Psychology, 14(1), 25–37.

    Article  Google Scholar 

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Authors and Affiliations

  1. Comprehensive Center on Brain Aging, NYU Langone Medical Center, 145 East 32 Street, Room 509, New York, NY, 10016, USA

    Mary Mittelman DrPH

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  1. Mary Mittelman DrPH
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Correspondence to Mary Mittelman DrPH .

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Editors and Affiliations

  1. , Dept. Human Development, Pennsylvania State University, University Park, 16802, Pennsylvania, USA

    Steven H. Zarit

  2. Western Kentucky University, College Heights Boulevard 1906, Bowling Green, 42101, Kentucky, USA

    Ronda C. Talley

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Mittelman, M. (2013). Psychosocial Interventions to Address the Emotional Needs of Caregivers of Individuals with Alzheimer’s Disease. In: Zarit, S., Talley, R. (eds) Caregiving for Alzheimer’s Disease and Related Disorders. Caregiving: Research • Practice • Policy. Springer, New York, NY. https://doi.org/10.1007/978-1-4614-5335-2_2

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