Abstract
Maintaining good oral health is crucial for all children; all require consistent age-appropriate daily care. Most children with special health care needs have the same dental routines and can see the same dentists as their typical peers. Untreated dental conditions in children with special health care needs and particularly those with disabilities and significant health conditions can result in very serious behavioral and medical results. Due to higher medication usage, the physical characteristics associated with many disabilities, and the comorbidities that contribute to compromised health status, these children have an increased need for consistent and high quality dental care. This population suffers from reduced capabilities for daily hygiene, reduced number of professionals accepting them or their insurance, and less didactic and clinical training for dental professionals to make them more comfortable and competent with treating individuals with disabilities. Many advocates are working diligently on multiple strategies to solve the access issue for those children with special health care needs who are most at risk.
Access this chapter
Tax calculation will be finalised at checkout
Purchases are for personal use only
Abbreviations
- AADMD:
-
American Academy of Developmental Medicine and Dentistry
- AAPD:
-
American Academy of Pediatric Dentistry
- ACA:
-
Affordable Care Act
- ADA:
-
American Dental Association
- ADA:
-
Americans with Disabilities Act
- AHRQ:
-
Agency for Healthcare Research and Quality
- CDC:
-
United States Centers for Disease Control and Prevention
- CHDIR:
-
CDC Child Health Disparities and Inequalities Report
- CHIP:
-
Children’s Health Insurance Program
- CMS:
-
United States Center for Medicaid Services
- CODA:
-
Commission on Dental Accreditation
- COPD:
-
Chronic Obstructive Pulmonary Disease/Disorder
- CSHCN:
-
Children with Special Health Care Needs
- DDS:
-
Doctor of Dental Sciences
- DHPSA:
-
Dental Health Professions Shortage Areas
- EPSDT:
-
Early and Periodic Screening, Diagnosis, and Treatment
- GAO:
-
United States Government Accountability Office
- HHS:
-
United States Department of Health and Human Services
- HRSA:
-
United States Health Resources Services Administration
- IV:
-
Intravenous
- MD:
-
Medical Doctor
- MPH:
-
Master of Public Health academic degree
- MUP:
-
Medically Underserved Population
- NADP:
-
National Association of Dental Plans
- NIDCR:
-
National Institute of Dental and Craniofacial Research
- NYSOPDD:
-
New York State Office on Persons with Developmental Disabilities
- SCDA:
-
Special Care Dentistry Association
References
Agency for Healthcare Research and Quality. (2009). National healthcare disparities report (AHRQ Publication No. 10–0004, pp. 277–292). Rockville: U.S. Department of Health and Human Services.
American Academy of Pediatric Dentistry. (2010). Policy on the medical home. AAPD Reference Manual, 32(6,10/11), 25–26.
American Academy of Pediatrics. (2008). Guidelines on behavior guidance for the pediatric dental patient. AAPD Reference Manual, 32(6, 10/11), 147–155.
American Dental Association. (2007). Survey of dental fees. http://www.pewcenteronthestates.org/uploadedFiles/Cost_of_Delay_web.pdf. Accessed 1 June 2010.
American Dental Association. (2008) State innovations to improve access to oral health: A compendium update. http://www.ada.org/prof/advocacy/medicaid/medicaid-surveys.asp. Accessed 29 May 2009.
American Dental Association. (2009). 2009 Survey of Dental Practice. Washington, DC: American Dental Association. (Reprinted with permission. All rights reserved. Any form of reproduction is strictly prohibited without prior written permission of American Dental Association).
American Dental Education Association. (2004). Dental education at a glance. www.adea.org.
Casamassimo, P., Seale, S., & Ruehs, K. (2004). General dentists’ perceptions of educational and treatment issues affecting access to care for children with special health care needs. Journal of Dental Education, 68(1), 23–28. (Reprinted by permission of Journal of Dental Education, (Vol. 68), No. 1, January 2004. Copyright 2004 by the American Dental Education Association. www.adea.org).
Centers for Disease Control and Prevention (CDC). 2011. CDC health disparities and inequalities report. 2011. Morbidity and Mortality Weekly Report, 60 (Suppl), 1–114.
Chapin, D., Worobey, R., New York State Developmental Disabilities Planning Council. (2008). Strategies for successful medical and dental office visits. Albany: New York State Developmental Disabilities Planning Council (used with permission).
Commission on Dental Accreditation. (2007). American dental association accreditation standards for dental education programs. Washington, DC: American Dental Association. http://www.ada.org/sections/educationAndCareers/pdfs/current_predoc.pdf.
Elwyn, Inc. (2006). People with developmental disabilities and oral health in the commonwealth of Pennsylvania: A report to the Pennsylvania developmental disabilities council (pp. 71, 78). Pittsburgh: ACHIEVA (www.achieva.info).
GAO. (2009a). Statement of Katherine M. Iritani; Testimony before the Subcommittee on Domestic Policy, Committee on Oversight and Government Reform, House of Representatives: MEDICAID—State and federal actions have been taken to improve children’s access to dental services, but more can be done (GAO-10–112 T, pp. 1–12). http://www.gao.gov/new.items/d10112tpdf. Accessed 5 May 2010.
GAO. (2009b). Report to Congressional requesters: MEDICAID—State and federal actions have been taken to improve children’s access to dental services, but gaps remain (GAO-09–723, pp. 1–48). http://www.gao.gov/new.items/d09723.pdf. Accessed 27 July 2011.
Goldstein DDS, M. S. (2010). Dentist’s perspectives on working with individuals with special needs. Personal correspondence.
Haden, N. K., Weaver, R. G., Valachovic, R. W. (2002). Meeting the demand for future dental school faculty: Trends, challenges, and responses. Journal of Dental Education, 66(9), 1102–1113.
Health Resources and Services Administration Health Professions. (2009). Health professional shortage areas as of September 30, 2009. http://bhpr.hrsa.gov/shortagedesignation/index.html. Accessed 30 Sept 2009.
Isman, B., Newton, R., Bujold, C., Baer, M. T. (2000). Planning guide for dental professionals serving children with special health care needs. University of Southern California University Affiliated Program, Children’s Hospital Los Angeles, CA. http://www.mchoralhealth.org/pdfs/ohguide.pdf. Accessed 1 Nov 2010.
Joint Letter on Cross-Disability Representation in Designating Medically Underserved Populations. (2010). http://www.autisticadvocacy.org/modules/smartsection/item.php?itemid = 116.
King, K. (2009). Northern Michigan woman’s death raises calls to restore adult Medicaid dental benefits. The Grand Rapids Press. http://www.mlive.com/news/grand-rapids/index.ssf/2009/10/northern_michigan_womans_death.html. Accessed 2 July 2010.
Lewis, C. W. (2009). Dental care and children with special health care needs: A population-based perspective. Academic Pediatrics, 9(6), 420–426.
Lewis, C., Robertson, A., Phelps, S. (2005). Unmet dental care needs among children with special health care needs: Implications for the medical home. Pediatrics, 116, e426--e431.
McDaniel, J. (2010). Mother’s perspective, personal communication/interview. Accessed 10 Aug 2010.
McKinnon, M., Luke, G., Bresch, J., Moss, M., & Valachovic, R. (2007). Emerging allied dental workforce models: Considerations for academic dental institutions. Journal of Dental Education, 71(11), 1476–1491.
McPherson, M., Arango, P., Fox, H., Lauver, C., McManus, M., Newacheck, P. W., Perrin, J. M., Shonkoff, J. P., & Strickland, B. (1998). A new definition of children with special health care needs. Pediatrics, 102, 137–140.
National Association of Dental Plans. (2010). Memorandum: Answers to Institute of Medicine questions—IOM & essential benefits. http://www.nadp.org/Libraries/HCR_Documents/NADP_Memo-NADP_Answers_IOM_re_EHBP12_6.sflb.ashx. Accessed 15 Dec 2010.
National Center for Health Statistics. (2007), Health United States, 2008, Disability Data page iii. http://www.ncbi.nlm.nih.gov/bookshelf/br.fcgi?book = healthus07&part = A1. Accessed 5 Aug 2010.
National Council on Disability. (2009). The current state of health care for people with disabilities (p. 87). In W. M. Nehring (Ed.), Health promotion for persons with intellectual and developmental disabilities: The state of scientific evidence (pp. 159, 167). Washington, DC: American Association on Mental Retardation.
Nehring, W. M. (Ed.). (2005). Health promotion for persons with intellectual and developmental disabilities: The state of scientific evidence. Washington: American Association on Mental Retardation, p. 101.
NYOPDD. (2009). New York state office for people with developmental disabilities. www.opwdd.ny.gov.
Otto, M. (2007). For want of a dentist: Pr. George’s Boy dies after bacteria from tooth spread to brain. Washington Post. http://www.washingtonpost.com/wp-dyn/content/article/2007/02/27/AR2007022702116.html. Accessed 3 Aug 2010.
Perlman, S., Friedman, C., & Fenton, S. (2008). http://www.nidcr.nih.gov/OralHealthtopics.DevelopmentalDisabilities/DentalCareEveryDay.htm. Special Olympics Inc., Healthy athletes, special smiles, a caregivers guide to good oral health for persons with special needs. http://media.specialolympics.org/soi/files/healthy-athletes/Special%20_Smiles_Good_Oral_Health_Guide.pdf. Accessed 10 Oct 2010.
Pew. (2010). The cost of delay: State dental policies fail one in five children. http://www.pewcenteronthestates.org/uploadedFiles/Cost_of_Delay_web.pdf.
Ranalli, D. N. (DDS, MDS, Senior Associate Dean, University of Pittsburgh School of Dental Medicine). (2010). Personal correspondence.
Romer, M., & New York State Office for People with Developmental Disabilities. (2009). Special care dentistry for the general practice resident: Practical training modules. Special care dentistry: Legal and ethical issues. http://www.omr.state.ny.us/hp_dentistry_training.jsp. Accessed 29 Oct 2010.
Satcher, D. (2000). US department of health and human services, oral health in America: A report of the surgeon general. Rockville: US Department of HHS, National Institute of Dental and Craniofacial Research, National Institutes of Health.
The Matheny Institute of Research in Developmental Disabilities. (2008). Dental care for persons with disabilities in New Jersey. http://www.disabilityhealth.org/dental/. Accessed 26 Oct 2010.
Title, A. (2010). Mother’s perspectives. Personal communication/interview.
U.S. Department of Health and Human Services. (2010). Press Release, “HHS Awards ARRA Funds to Establish a Center of Excellence in Research on Disability Services, Care Coordination and Integration.” http://www.hhs.gov/news/press/2010pres/05/20100506a.html. Accessed 5 Aug 2010.
U.S. Department of Health and Human Services Centers for Medicare and Medicaid Services. (2010). CHIP dental coverage. https://www.cms.gov/CHIPDentalCoverage/. Accessed 29 Sep 2010.
U.S. Department of Health and Human Services Centers for Medicare and Medicaid Services Website. (2010). Medicaid dental services. http://www.cms.gov/MedicaidDentalCoverage/. Accessed 28 Oct 2010.
U.S. Department of Justice Civil Rights Division. (2010). Access to medical care for individuals with mobility disabilities. http://www.ada.gov/medcare_mobility_ta/medcare_ta.htm. Accessed 9 Sep 2010.
U.S. Government Accountability Office. (2009a). Figure 1: Barriers to children seeking Medicaid dental services and barriers to dental providers serving Medicaid beneficiaries, as Reported by State Medicaid Programs (pp. 1–4). http://www.gao.gov/new.items/d10112t.pdf. Accessed 5 May 2010.
U.S. Government Accountability Office. (2009b). Extent of dental disease in children has not decreased and millions are estimated to have untreated tooth decay, report to congressional requesters. http://www.gao.gov/new.items/d081121.pdf. Accessed 5 May 2010.
United States Congress. (2009). One Hundred and Eleventh Congress H.R. 2: CHIP Reauthorization. To amend Title XXI of the Social Security Act to extend and improve the Children’s Health Insurance Program, and for other purposes. Washington, DC: United States Government Printing Office. http://frwebgate.access.gpo.gov/cgi-bin/getdoc.cgi?dbname = 111_cong_bills&docid = f:h2enr.txt.pdf. Accessed 21 July 2010.
Wolff, A., Waldman, B., Milano, M., Perlman, S. (2004). Dental students’ experiences with and attitudes toward people with mental retardation. Journal of American Dental Association, 135, 353–357.
Author information
Authors and Affiliations
Corresponding author
Editor information
Editors and Affiliations
Rights and permissions
Copyright information
© 2012 Springer Science+Business Media New York
About this chapter
Cite this chapter
Murray, N., Hartley, M.A. (2012). Oral Health Access Issues for Children with Special Health Care Needs. In: Hollar, D. (eds) Handbook of Children with Special Health Care Needs. Springer, New York, NY. https://doi.org/10.1007/978-1-4614-2335-5_9
Download citation
DOI: https://doi.org/10.1007/978-1-4614-2335-5_9
Published:
Publisher Name: Springer, New York, NY
Print ISBN: 978-1-4614-2334-8
Online ISBN: 978-1-4614-2335-5
eBook Packages: MedicineMedicine (R0)