Abstract
Before exploring the relationship between disability and maternal and child health, it is useful to note that there are both a capital “MCH” world and a lower case “mch” world. In the former, the Maternal and Child Health Bureau, part of the federal Department of Health and Human Services, has responsibility for setting a national agenda to improve health of mothers and children and distributing federal funds to support that agenda. In the lower case “mch” world, the term “maternal and child health” is used more loosely to include almost anything to do with the health of mothers, babies, children or teens.
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An erratum to this chapter can be found at http://dx.doi.org/10.1007/978-1-4419-7341-2_12
An erratum to this chapter can be found at http://dx.doi.org/10.1007/978-1-4419-7341-2_12
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- 1.
Actually, there was a forerunner to MCH legislation incorporated into the Social Security Act. The 1921 Sheppard-Towner Maternity and Infancy Care Act providing funding for states to promote maternal and child health. That act was repealed in 1929, however, so it is in the SSA that the current national MCH program finds its home. For historical details on Sheppard Towner and other legislative and social developments discussed in this chapter, see http://images.main.uab.edu/isoph/MCH/Tech_Reports/MCHLegislation.pdf.
- 2.
The original national funding level for Title V of the Act was $3,800,000 as reported in http://www.ssa.gov/history/35actv.html accessed April 12, 2010.
- 3.
The phrase “children with special health care needs” is an example of what the disability community has termed “people first” language. For a discussion of the impact of language used to characterize disability, see http://www.disabilityisnatural.com.
- 4.
Table 1 lists laws which are broadly applicable to children with special health care needs. There are also laws, like the Autism Treatment Acceleration Act of 2009, which fund research or services related to particular conditions. Even children with those conditions, however, rely on Medicaid and IDEA for access to health and education services.
- 5.
“Specialized services” here refers to specialized therapies (speech, physical, occupational and behavioral, among others), medications and supports as well as pediatric subspecialty care.
- 6.
Certified schools of public health are listed on the Association of Schools of Public Health website at http://www.asph.org/document.cfm?page=200. Because schools use a variety of terms for their programs and departments, the website of each certified school was visited to determine whether or not the school has a program that covers MCH content. Absent a named maternal and child health program, any program with at least one general maternal and child health course was reviewed for disability content.
- 7.
http://leadership.mchtraining.net/ accessed April 19, 2010. This principle is reflected as well in the federal Maternal and Child Health Block Grant, which requires that states report on family involvement in Title V activities as part of the Block Grant application. (See ftp://ftp.hrsa.gov/mchb/blockgrant/bgguideforms.pdf accessed April 19, 2010).
- 8.
Of six principles articulated by Family Voices, a national organization of parents of children with special health care needs, for example, four relate directly to the nature and quality of services sought by families (http://www.familyvoices.org/info/about.php#PRINCIPLES). The mission statement of the American Association of People with Disabilities, by contrast, focuses on community organizing for social change (http://www.aapd.com/site/c.pvI1IkNWJqE/b.5555493/k.C88C/About_Us.html).
- 9.
For a bibliography on this topic, see http://cchealth.org/groups/lifecourse/bibliography.php.
- 10.
Note that this is not the case for public health generally: some schools of public health have played leadership roles in addressing needs of women with disabilities in relation to clinical reproductive care and related topics (see, for example, http://www.albany.edu/sph/coned/disability.html).
- 11.
For a bibliography on this topic, see http://www.uwyo.edu/wind/breasthealth/bibliography.htm.
- 12.
The Bureau of Labor Statistics, for example, describes the tasks of a personal care assistant entirely in terms of direct personal aid to the person with a disability. http://www.bls.gov/oco/ocos326.htm.
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Allen, D. (2011). Disability and Maternal and Child Health. In: Lollar, D., Andresen, E. (eds) Public Health Perspectives on Disability. Springer, New York, NY. https://doi.org/10.1007/978-1-4419-7341-2_7
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