Skip to main content

Educating Patients and Caregivers About Pain Management: What Clinicians Need to Know

  • Chapter
  • First Online:

Abstract

To date, pain has not been broadly recognized as a public health priority. The burden remains on healthcare professionals, patients, and caregivers to educate and advocate for better pain management. The role of patient education has been well established in a variety of chronic conditions, including asthma, diabetes, arthritis, and hypertension. Patient education is also central to improving pain management, though research in this area is minimal. Successful education has been shown to improve outcomes and adherence to treatment protocols, and also improve and enhance patient satisfaction. For this reason, it is important to take the time to help people with pain and their caregivers become educated consumers of pain management and know how to self-advocate. Sadly, too many patients are unprepared. While certain policies, including the Joint Commission’s standards for pain assessment and management, have helped drive pain education and awareness, there is still considerable room for improvement. Because healthcare providers are a leading source of health information for the public – even in this digital age – they should be equipped to serve as health educators and make it a priority. This role should be seen as an integral part of clinical practice, especially as patients increasingly navigate their options for pain care and self-advocate. In this chapter, we explore common myths about pain and the need not only to educate but also to reeducate healthcare professionals, their patients, and the public, highlight common barriers to effective pain management education, and focus on the health information seeking behavior of the public at large and how this can guide educational efforts (e.g., what patients want to know, sources they consult), tools and in-practice and community-based strategies for education, health literacy, and other pitfalls.

This is a preview of subscription content, log in via an institution.

Buying options

Chapter
USD   29.95
Price excludes VAT (USA)
  • Available as PDF
  • Read on any device
  • Instant download
  • Own it forever
eBook
USD   349.00
Price excludes VAT (USA)
  • Available as EPUB and PDF
  • Read on any device
  • Instant download
  • Own it forever
Softcover Book
USD   449.99
Price excludes VAT (USA)
  • Compact, lightweight edition
  • Dispatched in 3 to 5 business days
  • Free shipping worldwide - see info
Hardcover Book
USD   599.99
Price excludes VAT (USA)
  • Durable hardcover edition
  • Dispatched in 3 to 5 business days
  • Free shipping worldwide - see info

Tax calculation will be finalised at checkout

Purchases are for personal use only

Learn about institutional subscriptions

References

  • Aldridge, M. D. (2004). Writing and designing readable patient education materials. Nephrology Nursing Journal, 31(4), 373–377.

    PubMed  Google Scholar 

  • American Cancer Society. (2001). Try: National Comprehensive Cancer Network and American Cancer Society. Cancer pain treatment guidelines for patients. Atlanta, GA.

    Google Scholar 

  • American Pain Foundation. (2006). Provider prescribing patterns and perceptions: Identifying solutions to build consensus on opioid use in pain management – A roundtable discussion. Retrieved December 2010 from http://www.painfoundation.org/learn/publications/apf-report-provider.html.

  • American Pain Foundation. (2008). A reporter’s guide: Covering pain and its management. Retrieved December 2010 from http://www.painfoundation.org/learn/publications/files/reporters-guide.pdf.

  • American Pain Foundation. (2009). Online health decision making guide. Retrieved November 8, 2010 from http://www.painfoundation.org/learn/programs/health-decision-making/.

  • Anderson, J. L., Dodman, S., Kopelman, M., & Fleming, A. (1979). Patient information recall in a rheumatology clinic. Rheumatology, 18(1), 18–22.

    Article  CAS  Google Scholar 

  • Anderson, K. O., Richman, S. P., Hurley, J., et al. (2002). Cancer pain management among underserved minority outpatients: Perceived needs and barriers to optimal control. Cancer, 94(8), 2295–2304.

    Article  PubMed  Google Scholar 

  • Bender, J. L., Hohenadel, J., Wong, J., Katz, J., Ferris, L. E., Shobbrook, C., Warr, D., & Jadad, A. R. (2008). What patients with cancer want to know about pain: A qualitative study. Journal of Pain and Symptom Management, 35(2), 177–187.

    Article  PubMed  Google Scholar 

  • Childress, J. F., Faden, R. R., Gaare, R. D., Gostin, L. O., Kahn, J., Bonnie, R. J., Kass, N. E., Mastroianni, A. C., Moreno, J. D., & Nieburg, P. (2002). Public health ethics: Mapping the terrain. The Journal of Law, Medicine & Ethics, 30, 170–178.

    Article  Google Scholar 

  • Doak, C., Doak, L., & Root, J. (1996). Teaching patients with low literacy skills. Philadelphia, PA: JB Lippincott.

    Google Scholar 

  • Fine, P. (2011). Recognition and resolution of ethical barriers to palliative care research. In R. J. Moore (Ed.), Handbook of pain and palliative care. New York, NY: Springer.

    Google Scholar 

  • Gold, D. T., & McClung, B. (2006). Approaches to patient education: Emphasizing the long-term value of compliance and persistence. The American Journal of Medicine, 119(4 Suppl 1), 32S–37S.

    Article  Google Scholar 

  • Gordon, J. S., & Warde, D. E. (1995). Correcting patients’ misconceptions about pain. The American Journal of Nursing, 95, 43–45.

    PubMed  CAS  Google Scholar 

  • Healthy States. (2009). Retrieved November 4, 2010 from http://www.healthystates.csg.org/Public+Health+Issues/.

  • Institute of Medicine. Washington, DC: National Academies Press; 2004. Health Literacy: A Prescription to End Confusion.

    Google Scholar 

  • Joint Commission Patient-Centered Communication Standards. (2011). Retrieved December 2010 from http://www.jointcommission.org/assets/1/6/Post%20PatientCenteredCareStandardsEPs%20201006091.PDF.

  • Keogh, E. (2011). Sex differences in pain across the life course. In R. J. Moore (Ed.), Handbook of pain and palliative care. New York, NY: Springer.

    Google Scholar 

  • Kessels, R. P. (2003). Patients’ memory for medical information. Journal of the Royal Society of Medicine, 96(5), 219–222.

    Article  PubMed  Google Scholar 

  • Let’s Talk Pain. (2010). Getting started: A dialogue with your patient about pain. Retrieved April 2011 from http://www.letstalkpain.org/health_care/dialogue.html.

  • McCarberg, B., & Cole, B. (2011). Pain in the older person. In R. J. Moore (Ed.), Handbook of pain and palliative care. New York, NY: Springer.

    Google Scholar 

  • Miaskowski, C., Dodd, M. J., West, C., et al. (2001). Lack of adherence with the analgesic regimen: A significant barrier to effective cancer pain management. Journal of Clinical Oncology, 19(23), 4275–4279.

    PubMed  CAS  Google Scholar 

  • National Cancer Institute. (2011). Highlights of pain management. Retrieved April 8, 2011 from http://www.cancer.gov/cancertopics/pdq/supportivecare/pain/HealthProfessional.

  • Pew Internet & Family Life Project. (2011). Health topics. Retrieved April 7, 2011 from http://www.pewinternet.org/~/media//Files/Reports/2011/PIP_HealthTopics.pdf.

  • Rich, B. A. (2011). The delineation and explication of palliative options of last resort. In R. J. Moore (Ed.), Handbook of pain and palliative care. New York, NY: Springer.

    Google Scholar 

  • Teach Back Method. (2009). Retrieved December 2010 from http://www.nchealthliteracy.org/toolkit/tool5.pdf.

  • U.S. Department of Health and Human Services. (2000). Healthy people 2010. Washington, DC: U.S. Government Printing Office. (Originally developed for Ratzan, S. C., & Parker, R. M. (2000). Introduction. In C. R. Selden, M. Zorn, S. C. Ratzan, & R. M. Parker (Eds.), National Library of medicine current bibliographies in medicine: Health literacy. NLM Pub. No. CBM 2000-1. Bethesda, MD: National Institutes of Health, U.S. Department of Health and Human Services)

    Google Scholar 

  • Vetter, T. R. (2011). Pediatric chronic pain. In R. J. Moore (Ed.), Handbook of pain and palliative care. New York, NY: Springer.

    Google Scholar 

  • Winslow, E. H. (2001). Patient education materials: Can patients read them, or are they ending up in the trash? The American Journal of Nursing, 101(10), 33–38.

    Article  PubMed  CAS  Google Scholar 

  • Zirwas, M. J., & Holder, J. L. (2009). Patient education strategies in dermatology part 2. The Journal of Clinical Aesthetic Dermatology, 2(12), 28–34.

    PubMed  Google Scholar 

Download references

Author information

Authors and Affiliations

Authors

Corresponding author

Correspondence to Micke Brown BSN, RN .

Editor information

Editors and Affiliations

Rights and permissions

Reprints and permissions

Copyright information

© 2013 Springer Science+Business Media, LLC

About this chapter

Cite this chapter

Brown, M., Crowe, A., Cousins, S. (2013). Educating Patients and Caregivers About Pain Management: What Clinicians Need to Know. In: Moore, R.J. (eds) Handbook of Pain and Palliative Care. Springer, New York, NY. https://doi.org/10.1007/978-1-4419-1651-8_5

Download citation

  • DOI: https://doi.org/10.1007/978-1-4419-1651-8_5

  • Published:

  • Publisher Name: Springer, New York, NY

  • Print ISBN: 978-1-4419-1650-1

  • Online ISBN: 978-1-4419-1651-8

  • eBook Packages: MedicineMedicine (R0)

Publish with us

Policies and ethics