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Future Visions on Biomedicine and Bioinformatics 2

Volume 2 of the series Communications in Medical and Care Compunetics pp 1-8

Date:

Health Informatics: A Roadmap for Autism Knowledge Sharing

  • Ron OberleitnerAffiliated withe-Merge Medical Technologies Email author 
  • , Rebecca WurtzAffiliated withScientific Technologies Corporation
  • , Michael L. PopovichAffiliated withScientific Technologies Corporation
  • , Reno FiedlerAffiliated withScientific Technologies Corporation
  • , Tim MoncherAffiliated withScientific Technologies Corporation
  • , Swamy LaxminarayanAffiliated withInstitute of Rural Health and Biomedical Research Institute, Idaho State University
  • , Uwe ReischlAffiliated withCenter of Health Policy, Boise State University

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Abstract

With the prevalence of diagnosed autism on the rise, increased efforts are needed to support surveillance, research, and case management. Challenges to collect, analyze and share typical and unique patient information and observations are magnified by expanding provider caseloads, delays in treatment and patient office visits, and lack of sharable data. This paper outlines recommended principles and approaches for utilizing state-of-the-art information systems technology and population-based registries to facilitate collection, analysis, and reporting of autism patient data. Such a platform will increase treatment options and registry information to facilitate diagnosis, treatment and research of this disorder.

Keywords

Autism Patient information Patient observations Information systems technology Population-based registries