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Home Palliative Care in Oncology

  • Chapter
International Manual of Oncology Practice

Abstract

Palliative care allow to develop social policies and innovative health, focused on the needs and preferences of patients, combining scientific knowledge, skills and attitudes to promote the excellence of care. Also promote a holistic care which improves the comfort and quality of life of the patient and family, through an approach of the problems associated with life-threatening diseases, preventing and relieving suffering by early identification and assessment of pain and other physical problems, psychological, social and spiritual. Care the patient at home with oncologic diseases is important to respect the preferences of patients and to provide humanized end-of-life care.

The literature review show that 51 % of patients prefer to die at home but sometimes that it is not possible. Palliative care enable early intervention in the oncologic illness trajectory as well as personalized care approaching effectively the needs of patients and families, providing an improved quality of life and reducing the need for hospitalizations, painful and disproportionate.

It is essential to develop home palliative care teams (HPCT) to deliver quality care and implement interventions, given the management of symptoms, assessment and care planning, monitoring, preparation and support in bereavement. Given the guidelines of the EAPC, is needed one HPCT per 100,000 inhabitants. To achieve this goal is vital to have health professionals with specializes education and training in palliative care to meet the needs of oncologic patients and their families wishing to stay and be cared at home.

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References

  1. National Quality Forum (2006) A national framework and preferred practices for palliative and hospice care quality. National Quality Forum, Washington, DC

    Google Scholar 

  2. Cherny NI (2009) Stigma associated with “palliative care”: getting around it or getting over it. Cancer 115(9):1808–1812, [cited 20 Nov 2012], Available from: http://www.ncbi.nlm.nih.gov/pubmed/19235252

    Article  PubMed  Google Scholar 

  3. National Consensus Project for Quality Palliative Care (2009) Clinical practice guidelines for quality palliative care, 2nd edn. National Consensus Project for Quality Palliative Care, Pittsburgh

    Google Scholar 

  4. Mularski RA, Curtis JR, Billings JA, Burt R, Byock I, Fuhrman C et al (2006) Proposed quality measures for palliative care in the critically ill: a consensus from the Robert Wood Johnson Foundation Critical Care Workgroup. Crit Care Med 34(11 Suppl):S404–S411, [cited 9 Nov 2012], Available from: http://www.ncbi.nlm.nih.gov/pubmed/17057606

    Article  PubMed  Google Scholar 

  5. Clarke EB, Curtis JR, Luce JM, Levy M, Danis M, Nelson J et al (2003) Quality indicators for end-of-life care in the intensive care unit. Crit Care Med 31(9):2255–2262, [cited 1 Nov 2012], Available from: http://www.ncbi.nlm.nih.gov/pubmed/14501954

    Article  PubMed  Google Scholar 

  6. Ferrell B, Connor SR, Cordes A, Dahlin CM, Fine PG, Hutton N et al (2007) The national agenda for quality palliative care: the National Consensus Project and the National Quality Forum. J Pain Symptom Manag 33(6):737–744, [cited 6 Feb 2013], Available from: http://www.ncbi.nlm.nih.gov/pubmed/17531914

    Article  Google Scholar 

  7. World Health Organization (2002) National cancer control programmes: policies and managerial guidelines, 2nd edn. World Health Organization, Geneve

    Google Scholar 

  8. World Health Organization (2009) WHO definition of palliative care [cited 19 Sep 2009 ]. Available from: http://www.who.int/cancer/palliative/definition/en/

  9. Radbruch L, Payne S, Bercovitch M, Caraceni A, De Vlieger T, Firth P et al (2009) White paper on standards and norms for hospice and palliative care in Europe : part 1. Eur J Palliat Care 16(6):278–289, Available from: http://eprints.lancs.ac.uk/32714/

    Google Scholar 

  10. Twaddle ML, Maxwell TL, Cassel JB, Liao S, Coyne PJ, Usher BM et al (2007) Palliative care benchmarks from academic medical centers. J Palliat Med 10(1):86–98, [cited 6 Feb 2013], Available from: http://www.ncbi.nlm.nih.gov/pubmed/17298257

    Article  PubMed  Google Scholar 

  11. Ellershaw J (2003) Introduction. In: Ellershaw J, Wilkinson S (eds) Care of the dying – a pathway to excellence. Oxford University Press, Oxford, pp xi–xiii

    Google Scholar 

  12. Randall F, Downie RS (2006) The philosophy of palliative care – critique and reconstruction. Oxford University Press, Oxford

    Book  Google Scholar 

  13. Ministry of Health (2001) The New Zealand palliative care strategy. Ministry of Health, Wellington

    Google Scholar 

  14. Baumgarten J (2004) Making palliative care a priority topic on the European Health Agenda. The European Federation of Older People (EURAG). Eurage, Graz

    Google Scholar 

  15. United Nations (1948) The universal declaration of human rights [Internet]. [cited 22 Mar 2012]. Available from: http://www.un.org/Overview/rights.html

  16. Ceronsky L, Meier DE, Pantilat SZ, von Gunten C (2004) Promoting palliative care to improve quality of life: how healthcare organizations can start and maintain effective programs. Qual Lett Healthc Lead [Internet] 16(6):2–10, [cited 27 Feb 2013], 1. Available from: http://www.ncbi.nlm.nih.gov/pubmed/15317313

    Google Scholar 

  17. Earle CC (2003) Identifying potential indicators of the quality of end-of-life cancer care from administrative data. J Clin Oncol 21(6):1133–1138, [cited 4 Nov 2012], Available from: http://www.jco.org/cgi/doi/10.1200/JCO.2003.03.059

    Article  PubMed  Google Scholar 

  18. Thompson G, McClement S (2002) Defining and determining quality in end-of-life care. Int J Palliat Nurs 8(6):288–293

    Article  PubMed  Google Scholar 

  19. Singer PA, Bowman KW (2002) Quality end-of-life care: a global perspective. BMC Palliat Care 10:1–10

    Google Scholar 

  20. Ethunandan M, Rennie A, Hoffman G, Morey PJ, Brennan PA (2005) Quality of dying in head and neck cancer patients: a retrospective analysis of potential indicators of care. Oral Surg Oral Med Oral Pathol Oral Radiol Endod 100:147–152

    Article  PubMed  Google Scholar 

  21. Ray D, Fuhrman C, Stern G, Geracci J, Wasser T, Arnold D et al (2006) Integrating palliative medicine and critical care in a community hospital. Crit Care Med [Internet] 34(11 Suppl):S394–S398, [cited 20 Nov 2012], Available from: http://www.ncbi.nlm.nih.gov/pubmed/17057604

    Article  Google Scholar 

  22. Hanson LC, Schenck AP, Rokoske FS, Abernethy AP, Kutner JS, Spence C et al (2010) Hospices’ preparation and practices for quality measurement. J Pain Symptom Manag 39(1):1–8, Elsevier Inc

    Article  Google Scholar 

  23. Quinn GP, Jacobsen PB, Albrecht TL, Ellissonl BAB, Newman NW, Bell M et al (2004) Real-time patient satisfaction survey and improvement process. Hosp Top 82(3):26–32

    Article  PubMed  Google Scholar 

  24. Mularski RA, Dy SM, Shugarman LR, Wilkinson AM, Lynn J, Shekelle PG et al (2007) A systematic review of measures of end-of-life care and its outcomes. Health Serv Res 42(5):1848–1870, [cited 2 Nov 2012], Available from: http://www.pubmedcentral.nih.gov/articlerender.fcgi?artid=2254566&tool=pmcentrez&rendertype=abstract

    Article  PubMed Central  PubMed  Google Scholar 

  25. Lorenz KA, Lynn J, Dy S, Wilkinson A, Mularski RA, Shugarman LR et al (2006) Quality measures for symptoms and advance care planning in cancer: a systematic review. J Clin Oncol 24(30):4933–4938, [cited 27 Feb 2013], Available from: http://www.ncbi.nlm.nih.gov/pubmed/17050878

    Article  PubMed  Google Scholar 

  26. Wenger NS, Rosenfeld K (2001) Quality indicators for end-of-life care in vulnerable elders. Ann Intern Med 135(8):677–685

    Article  PubMed  CAS  Google Scholar 

  27. Song M-K (2002) Effects of end-of-life discussions on patients’ affective outcomes. Nurs Outlook 52(3):118–125, [cited 20 Nov 2012], Available from: http://www.ncbi.nlm.nih.gov/pubmed/15197360

    Article  Google Scholar 

  28. Smith D, Caragian N, Kazlo E, Bernstein J, Richardson D, Casarett D (2011) Can we make reports of end-of-life care quality more consumer-focused? Results of a nationwide quality measurement program. J Palliat Med 14(3):301–307, [cited 20 Nov 2012], Available from: http://www.ncbi.nlm.nih.gov/pubmed/21288125

    Article  PubMed  Google Scholar 

  29. Patrick DL, Engelberg RA, Curtis JR (2001) Evaluating the quality of dying and death. J Pain Symptom Manage 22(3):717–726

    Article  PubMed  CAS  Google Scholar 

  30. Mularski RA (2006) Defining and measuring quality palliative and end-of-life care in the intensive care unit. Crit Care Med 34(11 Suppl):S309–S316, [cited 4 Nov 2012], Available from: http://www.ncbi.nlm.nih.gov/pubmed/17057592

    Article  PubMed  Google Scholar 

  31. Morrison RS, Siu AL, Leipzig RM, Cassel CK, Meier DE (2000) The hard task of improving the quality of care at the end of life. Arch Intern Med 160(6):743–747, Available from: http://www.ncbi.nlm.nih.gov/pubmed/10737273

    Article  PubMed  CAS  Google Scholar 

  32. Rosenfeld K, Wenger NS (2000) Measuring quality in end-of-life care. Clin Geriatr Med 16(2):387–400

    Article  PubMed  CAS  Google Scholar 

  33. Emmett MK (2002) End-of-life care: population-based quality measures. W V Med J 98:108–109

    PubMed  Google Scholar 

  34. Walling A, Lorenz KA, Dy SM, Naeim A, Sanati H, Asch SM et al (2008) Evidence-based recommendations for information and care planning in cancer care. J Clin Oncol 26(23):3896–3902, [cited 4 Nov 2012], Available from: http://www.ncbi.nlm.nih.gov/pubmed/18688058

    Article  PubMed  Google Scholar 

  35. Aspinal F, Hughes R, Dunckley M, Addington-Hall J (2006) What is important to measure in the last months and weeks of life?: a modified nominal group study. Int J Nurs Stud 43(4):393–403, [cited 27 Feb 2013], Available from: http://www.ncbi.nlm.nih.gov/pubmed/16102767

    Article  PubMed  Google Scholar 

  36. Bainbridge D, Brazil K, Krueger P, Ploeg J, Taniguchi A (2010) A proposed systems approach to the evaluation of integrated palliative care. BMC Palliat Care 9:8, [cited 20 Nov 2012], Available from: http://www.pubmedcentral.nih.gov/articlerender.fcgi?artid=2876145&tool=pmcentrez&rendertype=abstract

    Article  PubMed Central  PubMed  Google Scholar 

  37. Rogers A, Karlsen S, Addington-Hall J (2000) “All the services were excellent. It is when the human element comes in that things go wrong”: dissatisfaction with hospital care in the last year of life. J Adv Nurs 31(4):768–774, Available from: http://www.ncbi.nlm.nih.gov/pubmed/10759972

    Article  PubMed  CAS  Google Scholar 

  38. Tsai L-Y, Li I-F, Liu C-P, Su W-H, Change T-Y (2008) Application of quality audit tools to evaluate care quality received by terminal cancer patients admitted to a palliative care unit. Support Care Cancer 16(9):1067–1074, [cited 20 Nov 2012], Available from: http://www.ncbi.nlm.nih.gov/pubmed/18196292

    Article  PubMed  Google Scholar 

  39. Peruselli C, Mauro M, Brivio B, Castagnini G, Cavana M, Centrone G et al (1997) Evaluating a home palliative care service-development of indicators for a continuous quality improvement program. J Palliat Care 13(3):34–42

    PubMed  CAS  Google Scholar 

  40. Hospice Friendly Hospitals Programme (2009) Draft quality standards for end of life care in hospitals. The Irish Hospice Foundation, Dublin

    Google Scholar 

  41. Radbruch L, Payne S, Bercovitch M, Caraceni A, De Vlieger T, Firth P et al (2010) White paper on standards and norms for hospice and palliative care in Europe: part 2. Eur J Palliat Care 17(1):22–33

    Google Scholar 

  42. National Consensus Project (2004) National Consensus Project for Quality Palliative Care: clinical practice guidelines for quality palliative care, executive summary. J Palliat Med 7(5):611–627

    Article  Google Scholar 

  43. Zimmermann C, Riechelmann R, Krzyzanowska M, Rodin G, Tannock I (2008) Effectiveness of specialized palliative care: a systematic review. JAMA [Internet] 299(14):1698–1709, [cited 20 Nov 2012], Available from: http://www.ncbi.nlm.nih.gov/pubmed/18398082

    Article  CAS  Google Scholar 

  44. Casarett D, Pickard A, Bailey FA, Ritchie C, Furman C, Rosenfeld K et al (2008) Do palliative consultations improve patient outcomes? J Am Geriatr Soc [Internet] 56(4):593–599, [cited 20 Nov 2012], Available from: http://www.ncbi.nlm.nih.gov/pubmed/18205757

    Article  Google Scholar 

  45. Gómez-Batiste X, Porta-Sales J, Tuca A (2003) Palliative care at the Institut Català d’Oncologia. Barcelona Eur J Palliat Care 10(5):202–205

    Google Scholar 

  46. Doyle D (2009) Getting started: guidelines and suggestions for those starting a hospice/palliative care service, 2nd edn. IAHPC Press, Houston

    Google Scholar 

  47. Peruselli C, Paci E, Franceschi P, Legori T, Mannucci F (1997) Outcome evaluation in a home palliative care service. J Pain Symptom Manage 13(3):158–165

    Article  PubMed  CAS  Google Scholar 

  48. Campbell SM, Braspenning J, Hutchinson A, Marshall M (2002) Research methods used in developing and applying quality indicators in primary care. Qual Saf Health Care 11(4):358–364, Available from: http://www.pubmedcentral.nih.gov/articlerender.fcgi?artid=1758017&tool=pmcentrez&rendertype=abstract

    Article  PubMed Central  PubMed  CAS  Google Scholar 

  49. Campbell SM, Braspenning J, Hutchinson A, Marshall MN (2003) Research methods used in developing and applying quality indicators in primary care. Br Med J 326(7393):816–819, Available from: http://www.pubmedcentral.nih.gov/articlerender.fcgi?artid=1125721&tool=pmcentrez&rendertype=abstract

    Article  CAS  Google Scholar 

  50. Neuberg GW (2009) The cost of end-of-life care a new efficiency measure falls short of AHA/ACC standards. Heart 2:127–133

    Google Scholar 

  51. Gomes B, Higginson IJ, Calanzani N, Cohen J, Deliens L, Daveson BA et al (2012) Preferences for place of death if faced with advanced cancer: a population survey in England, Flanders, Germany, Italy, the Netherlands, Portugal and Spain. Ann Oncol 16:1–11

    Google Scholar 

  52. Ritchie CS, Ceronsky L, Coté TR, Herr S, Pantilat SZ, Smith TJ et al (2010) Palliative care programs: the challenges of growth. J Palliat Med 13(9):1065–1070, [cited 20 Nov 2012], Available from: http://www.ncbi.nlm.nih.gov/pubmed/20836632

    Article  PubMed  Google Scholar 

  53. Pessini L, Bertachini L (2005) Novas perspectivas em cuidados paliativos: ética, geriatria, gerontologia, comunicação e espiritualidade. O Mundo da Saúde 29(4):491–509

    Google Scholar 

  54. The Worldwide Palliative Care Alliance (2009) Kit de Ferramentas em Cuidados Paliativos. Melhoria dos cuidados desde o diagnóstico da doença crônica, em contextos de recursos limitados. Help the Hospices, London

    Google Scholar 

  55. Wong RKS, Franssen E, Szumacher E, Connolly R, Evans M, Page B et al (2002) What do patients living with advanced cancer and their carers want to know? – a needs assessment. Support Care Cancer 10(5):408–415, [cited 25 Oct 2014], Available from: http://www.ncbi.nlm.nih.gov/pubmed/12136224

    Article  PubMed  Google Scholar 

  56. Franks PJ, Salisbury C, Bosanquet N, Wilkinson EK, Kite S, Naysmith A et al (2000) The level of need for palliative care: a systematic review of the literature. Palliat Med 14(2):93–104

    Article  PubMed  CAS  Google Scholar 

  57. Higginson IJ Bs BM, Bs BM, Finlay IG, Goodwin M, Hood K, Edwards AGK et al (2003) Is there evidence that palliative care teams alter end-of-life experiences of patients and their caregivers? J Pain 25(2):150–168

    Google Scholar 

  58. Vega T, Arrieta E, Lozano JE, Miralles M, Anes Y, Gomez C et al (2011) Atención sanitária paliativa y de soporte de los equipos de atención primaria en el domicilio. Gac Sanit 25(3):205–2010

    Article  PubMed  Google Scholar 

  59. Stjernswärd J, Foley KM, Ferris FD (2007) The public health strategy for palliative care. J Pain Symptom Manage 33(5):486–493

    Article  PubMed  Google Scholar 

  60. Payne S, Hudson P, Grande G, Oliviere D, Tishelman C, Plescheberger S et al (2010) White paper on improving support for family carers in palliative care: part 1. Eur J Cancer 17(5):238–245

    Google Scholar 

  61. Canadian Hospice Palliative Care Association (CHPCA) (2012) Fact sheet: hospice palliative care in Canada. Available from: http://www.chpca.net/media/7622/fact_sheet_hpc_in_canada_may_2012_final.pdf

  62. Machado M do C, Couceiro L, Alves I, Almendra R, Cortes M (2011) A Morte e o Morrer em Portugal. Edições Almedina: Coimbra, Portugal

    Google Scholar 

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Authors and Affiliations

  1. Institute of Health Sciences, Catholic University of Portugal, Porto, Portugal

    Silvia Patrícia Fernandes Coelho R.N., Msc., Luis Otávio Sá M.Sc., Ph.D & Marta Vaz Pedro Sequeira R.N.

  2. Institute of Health Sciences, Catholic University of Portugal, Lisbon, Portugal

    Manuel Luis Capelas M.Sc., Ph.D

  3. Psycodrama Institute of Bauru, São Paulo, Brazil

    Iracilde Alves de Andrade B.Sc.

  4. Department Biomedical Sciences and Medicine, University of Algarve, Faro, Portugal

    Ramon Andrade de Mello M.D., Ph.D

  5. Department of Medicine, Faculty of Medicine, University of Porto, Porto, Portugal

    Ramon Andrade de Mello M.D., Ph.D

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  1. Silvia Patrícia Fernandes Coelho R.N., Msc.
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  2. Luis Otávio Sá M.Sc., Ph.D
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  3. Manuel Luis Capelas M.Sc., Ph.D
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  4. Iracilde Alves de Andrade B.Sc.
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  5. Marta Vaz Pedro Sequeira R.N.
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Correspondence to Ramon Andrade de Mello M.D., Ph.D .

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Editors and Affiliations

  1. Medical Oncology, University of Algarve, Faro, Portugal

    Ramon Andrade de Mello

  2. edificio 7, ala nascente, 3º andar, University of Algarve, Dept Cie Biomed edificio 7, ala nascente, 3º andar, Faro, Portugal

    Álvaro Tavares

  3. Medical Oncology, University of Athens, Athens, Greece

    Giannis Mountzios

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Coelho, S.P.F., Sá, L.O., Capelas, M.L., de Andrade, I.A., Sequeira, M.V.P., de Mello, R.A. (2015). Home Palliative Care in Oncology. In: de Mello, R., Tavares, Á., Mountzios, G. (eds) International Manual of Oncology Practice. Springer, Cham. https://doi.org/10.1007/978-3-319-21683-6_42

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