Paediatric Patient and Family-Centred Care: Ethical and Legal Issues


ISBN: 978-1-4939-0322-1 (Print) 978-1-4939-0323-8 (Online)

Table of contents (18 chapters)

  1. Front Matter

    Pages i-xxv

  2. Introduction to Patient and Family-Centred Care

    1. Front Matter

      Pages 1-1

    2. Chapter

      Pages 3-18

      Paediatric Patient-Centred Care: Evidence and Evolution

    3. Chapter

      Pages 19-34

      A Canadian Perspective on a Child’s Consent to Research Within a Context of Family-Centred Care: From Incompatibility to Synergy

    4. Chapter

      Pages 35-54

      Resource Allocation in Paediatric Patient and Family-Centred Care

  3. Legal, Ethical and Cultural Considerations

    1. Front Matter

      Pages 55-55

    2. Chapter

      Pages 57-77

      Culture, Religion, and Family-Centred Care

    3. Chapter

      Pages 79-95

      Ethical and Legal Issues in Patient and Family-Centred Care: Canadian First Nations, Métis and Inuit People

    4. Chapter

      Pages 97-114

      Accounting for the Family in Law: An Impartial but not Impersonal Point of View

    5. Chapter

      Pages 115-125

      Legal Considerations in Paediatric Patient and Family-Centred Healthcare

  4. Implementation and Lived Experience

    1. Front Matter

      Pages 127-127

    2. Chapter

      Pages 129-143

      Paediatric Patient-Centred Care at SickKids: Advancing Child & Family-Centred Care

    3. Chapter

      Pages 145-156

      The Effect of Patient and Family-Centred Care (PFCC) Delivery Model on Paediatrics at the Thunder Bay Regional Health Sciences Centre

    4. Chapter

      Pages 157-174

      Creating Partnerships for Life: One Family’s Story of Paediatric Patient and Family-Centred Paediatric Care

    5. Chapter

      Pages 175-184

      Supporting the Developing Autonomy of Youth Patients: Reflections on the Role of Healthcare Providers

  5. In Context

    1. Front Matter

      Pages 185-185

    2. Chapter

      Pages 187-207

      Participation in Paediatric Research Studies

    3. Chapter

      Pages 209-220

      Clinical Genetics Practice: Integrating Paediatric Patient and Family-Centred Care

    4. Chapter

      Pages 221-244

      End-of-Life Decision-Making in the Neonatal Intensive Care Unit: Serving the Best Interests of the Newborn within a Family-Centred Care Framework

    5. Chapter

      Pages 245-267

      Legal and Ethical Issues in Child-and Family-Centred Care: Transplantation

    6. Chapter

      Pages 269-287

      Patient and Family-Centred Care: Critical Partnerships when Treating Adolescent Anorexia Nervosa

    7. Chapter

      Pages 289-320

      Lost in Transition: Legal and Ethical Approaches When Applying Patient- and Family-Centred Care to Adolescents with Disabilities

    8. Chapter

      Pages 321-335

      Ethical Conflicts that may Arise When Caring for Dying Children

  6. Back Matter

    Pages 337-346