BMC Public Health
© Bhuyan 200410.1186/1471-2458-4-11
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Health promotion through self-care and community participation: Elements of a proposed programme in the developing countries
London School of Hygiene and Tropical Medicine, Keppel Street, London, WC1E 7HT, UK
Khanindra Kumar Bhuyan
Received: 02 June 2003Accepted: 16 April 2004Published online: 16 April 2004
The concepts of health promotion, self-care and community participation emerged during 1970s, primarily out of concerns about the limitation of professional health system. Since then there have been rapid growth in these areas in the developed world, and there is evidence of effectiveness of such interventions. These areas are still in infancy in the developing countries. There is a window of opportunity for promoting self care and community participation for health promotion.
A broad outline is proposed for designing a health promotion programme in developing countries, following key strategies of the Ottawa Charter for health promotion and principles of self care and community participation. Supportive policies may be framed. Self care clearinghouses may be set up at provincial level to co-ordinate the programme activities in consultation with district and national teams. Self care may be promoted in the schools and workplaces. For developing personal skills of individuals, self care information, generated through a participatory process, may be disseminated using a wide range of print and audio-visual tools and information technology based tools. One such potential tool may be a personally held self care manual and health record, to be designed jointly by the community and professionals. Its first part may contain basic self care information and the second part may contain outlines of different personally-held health records to be used to record important health and disease related events of an individual. Periodic monitoring and evaluation of the programme may be done.
Studies from different parts of the world indicate the effectiveness and cost-effectiveness of self care interventions. The proposed outline has potential for health promotion and cost reduction of health services in the developing countries, and may be adapted in different situations.
Self care, community participation and health promotion are emerging but dominant areas in the developed countries. Elements of a programme for health promotion in the developing countries following key principles of self care and community participation are proposed. Demonstration programmes may be initiated to assess the feasibility and effectiveness of this programme before large scale implementation.
community health worker
community involvement in health development
primary health care
self-care manual and health record
Health promotion, self care and community participation
The international health promotion (HP) movement had its origin in the document "A new perspective on the health of the Canadians" published in 1974 under the leadership of Marc Lalonde, the then Minister of Health and Welfare Canada . The report was primarily an outcome of growing concerns in Canadian government circles about the rising cost of health care and lack of proportionate rise in the health status of Canadians. For the first time in this report, a major government had acknowledged the limitations of modern medicine and health care systems in improving the health status of the population. It emphasized the role of HP as a key strategy for improving health through a holistic approach consisting of not only a medical dimension but also psychological, social and economic dimensions. Major outcomes of this document in Canada included rapid growth of programmes aimed at lifestyle featuring social marketing and health education programmes, refinement of HP practices in communities and grassroots levels, and the creation of a federal Health Promotion Directorate in 1978 . Immediately following the Lalonde report, similar reports were published by the Governments of UK, US and Sweden .
The Ottawa charter, an important milestone in HP practice worldwide, defines HP as the process of enabling people to increase control over, and to improve, their health. Five key strategies for HP action in the charter are building healthy public policy, creating supportive environments, strengthening community action, developing personal skills and reorienting health services .
During the same period, the growing interest in self care (SC) and community participation (CP) was primarily an outcome of similar concerns about the limitations of professional health system in improving health. SC is defined as a process whereby a lay person functions on his/her behalf in HP and prevention and in disease detection and treatment at the level of primary health resource in the health care system . Community participation (CP) emphasizes the "bottom up" approach in planning and implementation of development programmes including health development, where people are seen as active participants, compared to the conventional "top down" approach, where people are considered as passive recipients of programmes designed for them by professionals and Government officials . The underlying themes of both these issues are the involvement and empowerment of people in promoting and caring for their own health.
In this article, origin and development in these areas are discussed based on the literature review from Pubmed search using key words like self care, community participation and health promotion. Policy level documents, publications of different international and national health agencies in these areas have been reviewed. Some papers and documents were also downloaded from the internet. These theoretical and conceptual resources, policy level documents guide scientific and social policy discussions about promoting the health of the individuals, families and communities in developing countries. There is a growing body of evidence from the developed world that these activities indeed lead to improvement in the health status of the population. This provides a strong rationale for initiating such activities in the developing countries as well. Programme elements for SC and CP are proposed as examples that might be included when designing a HP programme in developing countries. The potential and pitfall of the proposed programme is discussed.
SC: The most dominant and universal form of primary care
SC is not a new phenomenon. Care to sick individuals has always been provided primarily by the self and the family in all societies throughout history . Current interest surrounding SC can be traced back to the 1960s and 1970s.
During the 1970s, the limitations of the professional health system were highlighted. The contribution of modern medicine in improving the health status of people was critically appraised and questioned. It was shown that mortality rates in England and Wales declined long before the advent of modern medical care during the twentieth century . The negative consequences of modern medical care were exposed . Professional health systems in most countries were paternalistic and people shared a state of powerlessness in it. Efforts to exercise more control over one's health and health care matters gained momentum in many countries of Western Europe and North America .
In the US, renewed interest in SC was rooted in the traditional American values of self-reliance, individualism, anti-elitism and popular democracy. Social movements like the Women's movement was one of the first examples of SC and the book "Our bodies, Ourselves" (The Boston Women Health Book Collective, 1971) was one of the first tools developed to promote SC among women . For several reasons including the shift of pattern from infectious to chronic diseases, the change from a cure to care philosophy, the escalating cost of medical care and the rise of individualism, SC continued to grow ever since .
A review of literature on SC in last three decades indicates that studies on SC were broadly focussed on two areas: SC for common and chronic illnesses. A large number of studies across different countries, using a variety of research methods, have consistently shown that SC is the most dominant form of primary care in both developed countries with better health infrastructure and higher literacy rates as well as in developing countries, where the majority of the people are poor and do not have access to professional health care.
In the health diary method to study health care behaviour, participants record perceived illness symptoms and how they respond to them over a period of time. Several health diary studies reveal that only a small proportion of illness is cared by professionals, much of the illness is cared by the individual and the family [13, 14]. Mothers take the most active part in caring for ill children within the family . Use of over-the-counter medicine is the most frequently reported illness management activity in some studies [16–19].
Population based cross sectional studies reveal similar findings. At any point of time, majority has physical symptoms and only a small proportion seeks profession medical care for help. Most of these symptoms are managed by SC or care from family members or friends .
Studies conducted at national level in different countries also reveal similar distribution between SC and professional care. For example, a study in early sixties showed that in England and Wales, a vast proportion of morbidity related to both common illness and chronic illness was not treated by medical practitioners. Indeed, the treatment provided by medical practitioners was only the "tip of iceberg" . Similar findings were reported from an international study on health care utilization in three different countries- US, UK and Yugoslavia .
A recent study in Mexico shows that SC represents the most common response to illness. Important determinants of SC are socioeconomic conditions (common among poor) and place of residence (common in the rural areas) .
It is estimated that 65 to 85% of all health care is provided by the individual or the family, without professional intervention, using folk, non-allopathic or allopathic technology. SC appears to encompass activities related to HP, disease prevention, illness and injury treatment, chronic disease management and rehabilitation. The family functions as a basic health care unit with an elaborate system of beliefs and procedures, many of which are rooted in the local culture. All levels of professional primary care are thus only supportive to SC and modest facilitation of it has the potential to improve the health and socioeconomic status of the whole population [10, 24].
Categorization of SC
Some researchers have classified SC into health SC, which includes activities aimed at maintaining and improving health and medical SC, which includes activities undertaken in response to medical problems . Others have proposed four different types of SC: i) Regulatory SC, which includes routine health maintenance activities such as eating, sleeping and personal hygiene, ii) Preventive SC, which refers to practices like exercising, dieting, self-examination, iii) Reactive SC, which refers to self-initiated responses to symptoms that have not yet been labelled by physician as illness, and iv) restorative SC, which is compliance to a professionally prescribed medication regimen .
Rapid growth of SC activities in North America and Western Europe
From 1970s onwards, there has been a massive growth of SC activities in North America and Western Europe. An explosion of health texts on SC has occurred.
Information technology has revolutionized the availability of information on health to the consumers. The area of consumer health informatics, which deals with issues related to information on health and medical care to consumers through the application of information technology, has expanded rapidly . In the US, exciting development in this area include designing a new generation of software programmes for home management of many chronic diseases like AIDS, substance abuse, diabetes, depression, formation of electronic self-help groups. In effect, the industrial age medicine is being replaced by information age health care in the US. In industrial age medicine, developed nearly a century ago, health care was primarily provided by professionals at primary, secondary and tertiary levels overlooking SC, which is the most pervasive form of health care. In information age health care, lay persons manage a vast proportion of illness by themselves using information from various sources and as a result, the role of professionals in health care diminishes. The information age health care is contrasted with industrial age medicine in Figure 1 .
Changing map of health care (Adapted from reference 28)
The numbers of self-help groups, which are voluntary groups formed by individuals affected by a particular disease or chronic condition for mutual caring, burgeoned. Early examples of such groups include Alcoholic Anonymous in the US and subsequently these were formed for many chronic illnesses including psychiatric disorders, diabetes, hypertension, different types of cancer and dementia . In Germany, the number of such groups has grown to about 60000 by the year 1995 .
SC clearinghouse supports the formation and continuation of self help groups, links community and professionals to these groups and provides information, education and consultative services. The first SC clearinghouse was established in the US in 1964. By 1987, the number had grown to fifty four in North America . In recent years, SC clearinghouses have been established in several countries .
Access to medical care technology and drugs for lay person has increased tremendously. In the US, it is estimated that the "do-it-yourself" medical equipment industry is worth 10 billion US dollars . Access to non-prescription medicine in the UK increased greatly following reclassification of some drugs by the Government from prescription only status to allow sale in pharmacies over the counter during late 1980s. By 1994, sale of over-the-counter drugs was equivalent to one-third of the total drugs bill of the National Health Service. Similar deregulation of drugs was implemented in some countries of Europe and North America as well as in Australia and New Zealand, primarily as a measure to pass on some of the costs of health care to consumers .
At the international level, the first symposium on SC was held in European headquarter of World Health Organization (WHO) in Copenhagen in 1975. It examined the lay contribution to health care, clarified roles and functions and identified priority research areas . In 1983, a publication by the European office of the WHO examined various aspects of SC in several countries of the region. .
SC is in its infancy in the developing countries
Barring a few studies on SC behaviour of individuals, literature on most other SC activities is scarce from developing countries. There has not been any explosion of SC technology and texts. Lay persons are yet to become conscious of the enormous potential among them for their HP. Professional health system is elitist and lay persons are yet to exert their right over their bodies in doctor-patient interaction. The philosophy and practice of SC are still in infancy in these countries.
Partnership between lay person and professionals
Partnership between lay persons and professionals is essential for promoting SC. In practice, roles of lay persons and professionals in such partnership vary widely. At one end in many SC activities, such as the Women's Health Movement in the US, the role of professionals is quite limited. In many other SC activities, input from the professionals is substantial. In some studies, it is observed that presence of receptive professionals is a precondition for development of SC . A survey of SC education programmes in the US revealed that, despite SC being branded by the American media as a popular social movement, more than half of such programmes were funded by health service delivery organizations and were run by professionals such as registered nurses, health educators, physicians as instructors rather than lay persons . In Canada, Health Canada initiated a number of activities for increasing the support of SC by health professionals. One such initiative, SC project, developed a framework for registered nurses and physicians for supporting SC in 1994. This study identified three categories of programmes (integrated education and support programmes, self-help groups and support groups) and four categories of tools (print and audiovisual tools, telephone help lines, computer based tools and self-monitoring tools) as useful adjuncts for professional support of SC .
Community participation or community involvement in health development (CIH)
Origin of the idea of CP or CIH
Growing disillusionment with prevailing development strategies for the failure to improve the lives of the majority of people in developing countries led to a re-thinking of the entire development process in the 1970s, which ultimately led to the emergence of the idea of CP . It was pointed out that most of the earlier strategies were planned for the people by outsiders, where people were considered as mere recipients and the transfer of technology was thought to be adequate for their development. Emphasis was laid on the active participation of people and there was a general concern to make development strategies more people-centred, based on their own aspirations and ideas. Since then the idea of CP emerged as a fundamental component of any development strategy, at least in theory, including health development.
Different interpretations of CP and role of information and education in promoting CP
Since its inception, CP has been interpreted differently. According to one school, communities can be mobilised to participate in the development process merely by increasing their knowledge and awareness about development projects and programmes, lack of which is perceived as the main reason behind their non-participation. The other school advocates a radical change in the prevailing development process. Participation, in this sense, is viewed as "empowerment", where people exercise more control over the decision-making process and participate from the planning stage itself . Participation has also been viewed as a ladder with different levels. Information, consultation and placation are at the lower levels, which represent only tokenism for participation, whereas delegated power and citizen control at the upper levels represent citizen empowerment . Still another view is that it is a continuum with different inter-related, overlapping stages; with information and consultation with communities by professionals at one end, to the collaboration and assuming of full responsibility by communities at the other .
The WHO study group on CIH suggested two broad ways of promoting CIH: a) through awareness and understanding of health and health problems and b) through access to information and knowledge about health service programmes and projects .
Partnership between professionals and people in generating health information through participatory planning is crucial for CP. The involvement of people in generating information leads to the ownership and utilization of the knowledge that has been generated .
Rapid development of theory and practice of CP and universal acceptance of CP as a strategy for HP
Gradually the idea of CP gained wide acceptance as a strategy for HP. Activities implemented to promote CP range from projects in small geographic areas to national vertical programmes for addressing a particular health issue, to overall primary health care (PHC) at the national level. On the theoretical side, frameworks for the monitoring and evaluation of participation in disease control programmes were developed [43, 44]. A conceptual framework was also developed for measuring participation in PHC . Many disease control programmes, ranging from guinea worm eradication to malaria control, were implemented in participatory ways [46, 47]. In the US, a national HIV control programme was implemented with a major planning exercise involving thousands of community residents and professionals in all the states . Efforts were made to improve consumer participation in the national health services in Australia . There are numerous examples of successful CP in small-scale projects, often managed by non-governmental organizations (NGOs), but they are never replicated on a much larger scale . Success stories include community oriented primary care, which originated in rural pre-apartheid South Africa and influenced health programmes in several countries like Israel, UK and the US . In the census based impact oriented (CBIO) approach to PHC, implemented in selected areas of Bolivia, local health priorities were determined based on epidemiological information by the people themselves . In Mexico, a module programme of the Ministry of Health was implemented to promote CP in PHC .
At the international level, CP became an essential element of health development programmes sponsored by international donors. Multilateral agencies like the World Bank and the Organization of Economic Cooperation and Development have accepted the principle and initiated activities for promoting CP in the development programmes they supported [54, 55]. CP was one of the main principles of PHC in the global strategy of Health for All by WHO .
A window of opportunity: Elements of a proposed programme for HP in developing countries
In the foregoing discussion it is observed that the ideas of HP, SC and CP emerged almost all at the same time, out of the concerns about the limitations of the professional health systems. Self-reliance and empowerment are the underlying themes of SC and CP. These two concepts are rooted in the broad democratic principles of rights and duties of individuals to participate in the activities that affect their lives. In the literature too, there is considerable overlap between these areas and terms like CP, consumer participation, citizen participation, SC and self-help. For instance, concepts of citizen participation in health encompass activities related to SC and CP. Based on the experience of Western Europe and North America, two main approaches to citizen participation have been summarized. The first is the participation of the people in the decision making process, where people participate in policy formulation, planning and implementation. The second concerns participation in community level activities, which includes a broad spectrum of groups such as self-help groups, voluntary organizations and social movements, such as the women's movement . In the HP framework aimed at achieving health for all Canadians, SC was proposed as one of the three key mechanisms .
During the last three decades, growth of SC activities has been witnessed mostly in developed countries where health services are accessible to vast majority of the population. It is in its infancy in developing countries, even though uneven distribution of professional resources leaves a vast proportion of rural and poor masses without access to professional health care. For instance, in India it is estimated that about 75% of the professional health infrastructure, medical manpower and health resources are located in the urban areas, where only 23% of the population live . Lower socio-economic status increases the vulnerability of the poor to illness and reduces their ability to cope with it. Similarly large scale programmes to improve CP for HP are yet to be initiated in the developing countries. There is a great window of opportunity for HP among the disadvantaged and poor people of developing countries through SC and CP.
A broad outline is suggested for the implementation of such a programme primarily in developing countries, following five key strategies of the Ottawa charter for HP and following principles of SC and CP. Figure 2 shows the health care pyramid and proposed model for HP programme. Health and HP lie at the base of the pyramid. At this level, health SC of the individual is the determinant of one's lifestyle and behaviour. Here lay person plays the most predominant role for his/her HP. The second level is PHC, which is defined as the essential health care based on practical, scientifically sound and socially acceptable methods and technology made universally accessible to individuals and families in the community through their full participation and at a low cost that the community and the country can afford to maintain at every stage of their development in the spirit of their self determination . It is the first level of contact for individuals, the family and the community with the national health system. At this level too, lay persons play a major role in their health care, supplemented by professionals. The next levels are secondary and tertiary care respectively, having highly skilled health workers and sophisticated diagnostic and therapeutic technology, where progressively complex health problems are dealt with . Here professionals play the predominant role.
Health care pyramid and model for HP programme
The strategies of the proposed HP programme may be primarily directed to the first two levels, that is, health and PHC, where SC is the most dominant form of health care. These strategies are not mutually exclusive but synergistic. Similarly, the same strategy may be relevant for both the levels of health care. Structural and policy level actions may be directed for promoting SC and CP. A national body, with members from the community, professionals and officials, may be created for policy formulation and for providing overall supervision for designing and implementing the programme in co-ordination with the provincial level organisations. Budgetary allocation for promoting these activities should be made.
SC clearinghouses may be established to spearhead the programme at the provincial level, in consultation with lay persons, professionals and national and district level Officials. SC clearinghouse may co-ordinate the design and dissemination of SC information, provide training to the health workers and lay persons, provide consultative services for reorientation of the health services, and monitor and evaluate the programme.
Activities may be directed to create a supportive environment and strengthen community action at the grass roots level. SC may be promoted at work places and schools. NGOs and other community based organisations may promote SC in the community, based on the SC information generated through a participatory process as mentioned later.
One of main strategies of this programme may be to increase personal skills of lay person for SC. This component of the programme may be designed and implemented at the district level in co-ordination with the SC clearinghouse. A district health system is the basic unit of national health systems in many countries. It is at this level that national programmes can be adapted to local situations . Basic SC information may be generated by lay persons in partnership with professionals and government officials through a participatory planning process.
This strategy may be implemented through the different stages of community organisation model as follows: 1) Community analysis, 2) Design and initiation, 3) Implementation, 4) Maintenance-consolidation and 5) Dissemination and reassessment .
Community analysis: participatory planning
A core group (CG) or executive committee (EC) is usually responsible for long term planning and coordination as well as implementation of community-wide health programmes . A district level CG or EC, comprising of representative members of the community, professionals and officials from health and other development sectors may be constituted for planning and providing overall supervision. Participatory planning exercises (participatory needs assessment) may be conducted jointly by the communities and professionals for analysing the health situation in the district and developing strategies to address them. Existing routine data from different sources may be analysed to understand the health profile of district population. For understanding the health and disease-related perceptions and practices of individuals, especially SC practices in their social and cultural context, qualitative and quantitative methods may be employed.
Special attention may be given for the HP of the hard to reach groups. Information alone is not sufficient for their HP, structural and social barriers need to be addressed simultaneously.
Design and initiation
Based on this exercise, appropriate action plan may be devised. The roles and responsibilities of individuals and the community and that of the sectoral administrations may be defined. The roles of the individual and the community can be formulated as SC information.
For communicating SC information, a wide range of tools including print and audio-visual tools, computer based tools, tele-communication based tools may be used. Web sites on SC may be designed to communicate this information. Electronic discussion forums may be formed to discuss various issues on SC and HP. A telephone help line may be set up for SC of common illnesses.
One such print-based tool could be a personally held SC manual and health record (SCMHR). The first part of the SCMHR may contain basic SC information. This information may be arranged in many creative ways. One way is to put it in three sections: SC and the individual, SC and the family, SC and the community; each describing what an individual can do for HP of herself/himself, family and the community respectively. Alternatively, SC information may be put in four different sections based on the type of SC . For instance, information on regulatory SC may contain locally appropriate scientific information on diet, nutrition, personal hygiene and sleep. Preventive SC may include information on exercise, dieting and self-examination. Reactive SC may include information on self management of illnesses and when to approach a professional and so on. SC information should be simple, rooted in the local social and economic situation, and be appropriate and actionable. The second part of the SCMHR, which may also be designed jointly by lay person and professionals, may contain outlines of various health records like birth certificate, immunization card, growth chart, child health card, drugs prescriptions and discharge slips (for hospital admission), to record important health and disease related events of the individual. The SCMHR of a baby may be provided to his/her parents at the time of birth to be retained for life. Basic SC information is likely to empower the parents to promote the health of their baby during childhood, and the individual as he/she grows up. SC information may be formulated for pregnancy in the case of woman. SC information may be designed for various chronic diseases like diabetes mellitus, hypertension and psychosis. Such material can be annexed to the SCMHR through the health system, if the need arises. In place of SCMHR, electronic tools like CD ROM may also be used for communicating SC information to each individual and record his/her important health related events, if majority of the population have access to computers.
Implementation and maintenance-consolidation
SC information generated through the participatory process mentioned above, may be disseminated using a range of tools and employing a variety of channels as discussed below:
The individual and the family
The greatest asset for mobilizing people for HP may be the people themselves. For instance, if a student is informed and educated on SC and CP, he/she can be further motivated to spread the message to his/her family members and neighbours. This creates the potential of involving illiterate poor people in rural areas of developing world. Moreover an informed and empowered individual within a family can be carer for all the members.
Community health workers (CHWs) or village level development workers
CHWs are the bridge between the formal health sector and communities in many countries of the world. They are from communities where they work, and should be selected by communities and should be supported and trained by the health system. Their functioning has been reviewed recently and issues like their capacity building has been discussed . CHWs may play a role in mobilizing individuals and families. Similarly, field level workers of other development sectors may also be involved in the programme. Strong professionalism of formal health sector towards curative medicine rather than public health and preventive medicine in most countries, combined with the need for inter-sectoral coordination for HP, may warrant maximum utilization of the workers from other development sectors.
Social mobilisation through community based organisations, NGOs and private sector
As mentioned already, NGOs and the private sector may be actively involved in the programme.
Monitoring and evaluation
Monitoring and evaluation of the programme may be done in a participatory way, based on which the programme may be redesigned periodically. For monitoring, process level indicators may track the progress of the activities accomplished under each strategy against the targets that are set at the beginning of the intervention. Evaluation can be done at regular interval to assess the secular trend in knowledge and practice related to SC. One of the methods of evaluation may be to compare baseline data for a variety of indicators with the post intervention figures to assess the trend.
Evidence base for HP and SC interventions
Before considering implementation of any public health programme, several issues such as appropriateness, feasibility, effectiveness, cost effectiveness and potential need to be carefully considered. Generating an evidence base for evaluating HP programmes, consisting of interventions directed at different levels like developing personal skill at individual level, social mobilization at the community level and advocacy to influence public policy, is complex and multidimensional. Experimental studies like randomised control trials, considered as the gold standard in evidence based medicine, have only a limited role in generating evidence for HP programmes. The evidence base on such programmes needs to be generated from several different sources including experimental studies and observational studies using qualitative and quantitative methods .
There is evidence from a large number of studies that SC and HP interventions work. Moving a step further from these studies, which are conducted in the 'controlled' situations, there are also examples of successful large-scale HP programmes in the 'real world'. In a trial, 391 college students were randomly assigned to intervention or control groups. The intervention, which consisted of providing SC information, resulted in positive changes in the attitude and belief in the intervention group . A medical SC programme consisting of 11 sessions of educational intervention produced substantial improvement in health-related knowledge, health skill performance and health action in the intervention group compared to the control group. However there was no evidence that the intervention had any effect on health status or medical care utilization .
SC education has been found to be effective in improving the patient condition for a variety of chronic diseases. These diseases include osteoarthritis of knee , chronic pain [69, 70], headache  and back pain [72, 73]. Systematic review of large number of studies has showed the clinical and cost effectiveness of self-help treatments for anxiety and depressive disorders  and different common disorders  and chronic disorders [76, 77]. Meta-analysis of studies has showed that SC interventions are effective in improving the outcome and reducing the use of health services in adults with asthma . Conveying appropriate SC information to the patient reduces the use of the health services by 7–17% . The effectiveness of self help groups has been studied and there is indication that self help groups are associated with higher improvements compared to the controls .
A review of several international surveys on SC practices has concluded that SC practices are often beneficial and SC appears to be a universal behaviour .
At the work place, providing SC information to employees is an effective way of reducing employer's health cost. In a company, a programme was implemented using a guide, which contained information on SC of illness and when to refer to professionals. Claim data analysis at baseline and 1 year after the programme indicated a saving of $39.65 per employee (24% reduction in cost) .
In large community wide projects, SC information was found to be effective in empowering people to manage their illness resulting in reduction of the use of professional services. Healthwise, a non-profit organization based in US, implemented in a large community wide SC information project, Healthwise Communities Project, in Southwest Idaho, US during 1996–1999. In the project, a SC handbook (Healthwise Handbook) was distributed to each household in the area and a telephone advice line was provided and a web site on SC was set up. The handbook contained SC information on over 180 common medical problems and when to consult a professional. Workshops were organised in the schools, businesses and churches to inform consumers on SC. Workshops were also organised for doctors, nurses and other providers to inform them on working better with informed consumers. The study to assess the effectiveness of the project indicated that the intervention increased the use of SC resources resulting in some reduction of the use of health services .
Following the success of this project, similar projects were initiated in the US and in Canada. In the Partners Health Initiative project, implemented in parts of South Carolina and Georgia of US, 154000 families received the Healthwise Handbook. Evaluation of the project indicated that use of the handbook resulted in reduced hospital visits with an estimated cost saving of $34.5 million during 30 months of the initiative. For every dollar invested, there was a saving of 11 dollars of health care costs . Encouraged by the success of these projects, each family in the British Columbia province of Canada has been given a Healthwise Handbook.
There is also evidence that large HP programmes are effective in reducing morbidity, mortality and improving quality of life. In Canada, HP programmes began in the 1970s. There has been an increase in life expectancy at birth and reduction of infant mortality rates in Canada between the 1970s and 1990s. Nearly 10 million Canadians have reported improvement in their personal health practices such as reduced alcohol consumption, improved eating habits, increased physical activity and 67% of them attributed this to increased awareness of health risks. The validity of this self-reported behaviour is further supported by the fact that there has been a corresponding decline in cardiovascular mortality attributed to these healthier lifestyle and improved medical care .
Successful implementation of the proposed programme may lead to the empowerment of individuals and communities. The potential public health benefits of the proposed programme are mentioned below.
HP through SC and CP
A participatory way of generating and disseminating SC information is likely to empower lay persons and result in healthy behaviour, which may lead to their HP. Conventional health education is often didactic. A vast majority of the people from the developing world still do not have access to the basic information for HP. The proposed programme may address these two drawbacks as communities and professionals design SC information jointly and this information is put at the disposal of each individual from a very young age.
Reduction of health care cost
Cost of health care is constantly on the rise. Successful implementation of this programme has the potential to reduce cost of health care in a variety of ways as shown in different studies already mentioned.
Facilitation of health planning, management and research
If SCMHR were used as a tool in the programme, in combination with traditional sources, it may improve the health information system, which may facilitate health planning and management. Those epidemiological studies which depend on health records like case control studies and retrospective cohort studies may be greatly facilitated in the long run.
Confidentiality about the health and disease related information of an individual
If SCMHR were used as a tool for recording important events of one's life, confidentiality of this information would have to be protected. This can be addressed at the time of designing the SCMHR, by deciding what information to include in the manual, to whom all these information be made accessible.
HP, SC and CP are emerging and dominant themes in health mostly in developed countries. There is a great window of opportunity for initiating a HP programme following principles of SC and CP in the developing countries. Elements of such a HP programme and broad outline for implementation are discussed. Demonstration programmes need to be initiated at the district level to assess appropriateness, feasibility, effectiveness of such a programme before any attempt of large-scale implementation.
The author is deeply indebted to Prof. SB Rifkin, who reviewed the paper and inspired me with many suggestions, based on which much of the paper was rewritten. I am grateful to the reviewers, whose critical comments have greatly improved the paper. I am also grateful to my friends and colleagues, who reviewed the draft and gave many useful suggestions.
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