McPhee SJ, Rabow MW, Pantilat SZ, Markowitz AJ, Winker MA. Finding our way—perspectives on care at the close of life. JAMA. 2000;284:2512–3.PubMedCrossRef
Lo B, Snyder L, Sox HC. Care at the end of life: guiding practice where there are no easy answers. Ann Intern Med. 1999;130:772–4.PubMed
Office of Academic Affiliations, Veterans Health Administration. Available at: http://www.va.gov/oaa/fellowships/default.asp. Accessed August 14, 2003.
The Robert Wood Johnson Foundation. Promoting Excellence in End-of-life Care. Available at: http://www.promotingexcellence.org/content/rwjf.html. Accessed August 14, 2003.
Project on Death in America. Transforming the Culture of Dying. Available at: http://www.soros.org/death/index.htm. Accessed August 14, 2003.
Teno JM, Mor V, Desilva D, Kabumoto G, Roy J, Wetle T. Use of feeding tubes in nursing home residents with severe cognitive impairment. JAMA. 2002;287:3211–2.PubMedCrossRef
Ahronheim JC, Mulvihill M, Sieger C, Park P, Fries BE. State variations in the use of tube feeding for nursing home residents with severe cognitive impairment. J Am Geriatr Soc. 2001;49:148–52.PubMedCrossRef
Mitchell SL, Teno JM, Roy J, Kabumoto G, Mor V. Clinical and organizational factors associated with feeding tube use among nursing home residents with advanced cognitive impairment. JAMA. 2003;290:73–80.PubMedCrossRef
Gillick MR. Rethinking the role of tube feeding in patients with advanced dementia. N Engl J Med. 2000;342:206–10.PubMedCrossRef
Finucane TE, Christmas C, Travis K. Tube feeding in patients with advanced dementia. JAMA. 1999;282:1365–70.PubMedCrossRef
Teno JM. Persistent pain in nursing home residents. JAMA. 2001;285:2081.PubMedCrossRef
National Hospice and Palliative Care Organization. NHPCO’s Facts and Figures on Hospice and Palliative Care. Available at: http://www.nhpco.org. Accessed August 14, 2003.
Ewbank DC. Deaths attributable to Alzheimer’s disease in the United States. Am J Public Health. 1999;89:90–2.PubMed
Kawas CH, Brookmeyer R. Aging and the public health effects of dementia. N Engl J Med. 2001;344:1160–1.PubMedCrossRef
Davis MP, Walsh D, LeGrand SB, Lagman R. End-of-life care: the death of palliative medicine? J Palliat Med. 2002;5:813–4.PubMedCrossRef
National Center for Health Statistics. Highlights of a New Report from the National Center for Health Statistics (NCHS) Mortality Trends for Alzheimer’s Disease. Available at: http://www.cdc.gov/nchs/releases/96facts/fs_alzhe.htm. Accessed August 14, 2003.
Kammoun S, Gold G, Bouras C, et al. Immediate causes of death of demented and non-demented elderly. Acta Neurol Scand. 2000;(suppl);96–9.
Ganguli M, Rodriguez EG. Reporting of dementia on death certificates: a community study. J Am Geriatr Soc. 1999;47:842–9.PubMed
Burns A, Jacoby R, Luthert P, Levy R. Cause of death in Alzheimer’s disease. Age Ageing. 1990;19:341–4.PubMedCrossRef
Shega JW, Levin A, Hougham GW, et al. Palliative Excellence in Alzheimer Care Efforts (PEACE): a program description. J Palliat Med. 2003;6:315–20.PubMedCrossRef
Wolfson C, Wolfson DB, Asgharian M, et al. A reevaluation of the duration of survival after the onset of dementia. N Engl J Med. 2001;344:1111–6.PubMedCrossRef
Walsh JS, Welch HG, Larson EB. Survival of outpatients with Alzheimer-type dementia. Ann Intern Med. 1990;113:429–34.PubMed
Reisberg B, Doody R, Stoffler A, Schmitt F, Ferris S, Mobius HJ. Memantine in moderate-to-severe Alzheimer’s disease. N Engl J Med. 2003;348:1333–41.PubMedCrossRef
Michel J-P, Pautex S, Zekry D, Zulian G, Gold G. End-of-life care of persons with dementia. J Gerontol. 2002;57A:M640-M644.
Helmes E, Merskey H, Fox H, Fry RN, Bowler JV, Hachinski VC. Patterns of deterioration in senile dementia of the Alzheimer type. Arch Neurol. 1995;52:306–10.PubMed
Volicer L, Hurley AC. Hospice Care for Patients with Advanced Progressive Dementia. New York, NY: Springer; 1998.
Field MJ, Cassel CK, eds. Approaching Death: Improving Care at the End of Life. Washington, DC: The National Academies Press; 2003.
Lynn J. Serving patients who may die soon and their families: the role of hospice and other services. JAMA. 2001;285:925–32.PubMedCrossRef
Stuart B. The NHO medical guidelines for non-cancer disease and local medical review policy: hospice access for patients with diseases other than cancer. Hosp J. 1999;14:139–54.PubMedCrossRef
Luchins DJ, Hanrahan P, Murphy K. Criteria for enrolling dementia patients in hospice. J Am Geriatr Soc. 1997;45:1054–9.PubMed
Hanrahan P, Raymond M, McGowan E, Luchins D. Criteria for enrolling patients in hospice: a replication. Am J Hosp Palliat Care. 1999;16:395–400.PubMedCrossRef
Schonwetter RS, Han B, Small BJ, Martin B, Tope K, Haley WE. Predictors of six-month survival among patients with dementia: an evaluation of hospice Medicare guidelines. Am J Hosp Palliat Care. 2003;20:105–13.PubMedCrossRef
Christakis NA, Escarce JJ. Survival of Medicare patients after enrollment in hospice programs. N Engl J Med. 1996;335:172–8.PubMedCrossRef
Albert SM, Costa R, Merchant C, Small S, Jenders RA, Stern Y. Hospitalization and Alzheimer’s disease: results from a community-based study. J Gerontol A Biol Sci Med Sci. 1999;54:M267-M271.PubMed
Sands LP, Yaffe K, Lui LY, Stewart A, Eng C, Covinsky K. The effects of acute illness on ADL decline over 1 year in frail older adults with and without cognitive impairment. J Gerontol A Biol Sci Med Sci. 2002;57:M449-M454.PubMed
Fabiszewski KJ, Volicer B, Volicer L. Effect of antibiotic treatment on outcome of fevers in institutionalized Alzheimer patients. JAMA. 1990;263:3168–72.PubMedCrossRef
von Gunten CF, Ferris FD, Emanuel LL. Ensuring competency in end-of-life care: communication and relational skills. JAMA. 2000;284:3051–7.CrossRef
AGS Panel on Persistent Pain in Older Persons. The management of persistent pain in older persons. J Am Geriatr Soc. 2002;50:1–20.
Cohen-Mansfield J, Billig N, Lipson S, Rosenthal AS, Pawlson LG. Medical correlates of agitation in nursing home residents. Gerontology. 1990;36:150–8.PubMedCrossRef
Weiner D, Kerr H, Rudy T, eds. Persistent Pain in Older Adults: An Interdisciplinary Guide for Treatment. New York, NY: Springer Publishing Company; 2002.
Tariot PN, Ryan JM, Porsteinsson AP, Loy R, Schneider LS. Pharmacologic therapy for behavioral symptoms of Alzheimer’s disease. Clin Geriatr Med. 2001;17:359–76.PubMedCrossRef
Cohen-Mansfield J. Nonpharmacologic interventions for inappropriate behaviors in dementia: a review, summary, and critique. Am J Geriatr Psychiatry. 2001;9:361–81.PubMedCrossRef
Schulz R, Beach SR. Caregiving as a risk factor for mortality: the caregiver health effects. JAMA. 1999;282:2215–9.PubMedCrossRef
Ory MG, Hoffman RR, Yee JL, Tennstedt S, Schulz R. Prevalence and impact of caregiving: a detailed comparison between dementia and nondementia caregivers. Gerontologist. 1999;39:177–85.PubMedCrossRef
Smith GE, Kokman E, O’Brien PC. Risk factors for nursing home placement in a population-based dementia cohort. J Am Geriatr Soc. 2000;48:519–25.PubMed
Knopman DS, Kitto J, Deinard S, Heiring J. Longitudinal study of death and institutionalization in patients with primary degenerative dementia. J Am Geriatr Soc. 1988;36:108–12.PubMed
Weitzen S, Teno JM, Fennell M, Mor V. Factors associated with site of death: a national study of where people die. Med Care. 2003;41:323–35.PubMedCrossRef
Murphy K, Hanrahan P, Luchins D. A survey of grief and bereavement in nursing homes: the importance of hospice grief and bereavement for the end-stage Alzheimer’s disease patient and family. J Am Geriatr Soc. 1997;45:1104–7.PubMed
Hanrahan P, Luchins DJ. Access to hospice programs in end-stage dementia: a national survey of hospice programs. J Am Geriatr Soc. 1995;43:56–9.PubMed
The Canadian Study of Health and Aging Working Group. Patterns and health effects of caring for people with dementia: the impact of changing cognitive and residential status. Gerontologist. 2002;42:643–52.
Meuser TM, Marwit SJ. A comprehensive, stage-sensitive model of grief in dementia caregiving. Gerontologist. 2001;41:658–70.PubMed
Department of Health and Human Services Administration on Aging. National Family Caregiver Support Program Resource Room. Available at: http://www.aoa.gov/prof/aoaprog/caregiver/caregiver.asp. Accessed August 14, 2003.
Skolnick AA. Medicaring project to demonstrate, evaluate innovative end-of-life program for chronically ill. JAMA. 1998;279:1511–2.PubMedCrossRef
Moon M. Medicare. N Engl J Med. 2001;344:928–31.PubMedCrossRef
Sands L, Yaffe K, Covinsky K, et al. Cognitive screening predicts magnitude of functional recovery from admission to 3 months after discharge in hospitalized elders. J Gerontol A Biol Sci Med Sci. 2003;58A:37–45.
Lunney J, Lynn J, Foley D, Lipson S, Guralnik J. Patterns of functional decline at the end of life. JAMA. 2003;289:2387–92.PubMedCrossRef
Huskamp HA, Beeuwkes Buntin M, Wang V, Newhouse J. Providing care at the end of life: do Medicare rules impede good care? Health Aff. 2001;20:204–11.CrossRef
Mace N, Rabins P. The 36-Hour Day: A Family Guide to Caring for Persons with Alzheimer’s Disease, Related Dementing Illnesses, and Memory Loss in Later Life. Baltimore, Md: The Johns Hopkins University Press; 1991.
Inouye SK, Viscoli CM, Horwitz RI, Hurst LD, Tinetti ME. A predictive model for delirium in hospitalized elderly medical patients based on admission characteristics. Ann Intern Med. 1993;119:474–81.PubMed
Zerzan J, Stearns S, Hanson L. Access to palliative care and hospice in nursing homes. JAMA. 2000;284:2489–94.PubMedCrossRef
AGS Ethics Committee. American Geriatrics Society (AGS) Position Statement. Measuring Quality of Care for Nursing Home Residents—Considering Unintended Consequences. Available at: http://www.americangeriatrics.org/products/positionpapers/unintended_conseq.shgtml. Accessed August 14, 2003.
Mezey M, Dubler NN, Mitty E, Brody AA. What impact do settings and transitions have on the quality of life at the end of life and the quality of the dying process? Gerontologist. 2002;42:54–67.PubMedCrossRef
Levinski NG, Yu W, Ash A, et al. Influence of age on Medicare expenditures and medical care in the last year of life. JAMA. 2001;286:1349–55.CrossRef
Reisberg B. Functional Assessment Staging (FAST). Psychopharm Bull. 1988;24:653–9.
Morrison RS, Siu AL. Survival in end-stage dementia following acute illness. JAMA. 2000;284:47–52.PubMedCrossRef
Grant MD, Rudberg MA, Brody JA. Gastrostomy placement and mortality among hospitalized Medicare beneficiaries. JAMA. 1998;279:1973–6.PubMedCrossRef
Volicer L, Rheaume Y, Brown J, Fabiszewski KJ, Brady RJ. Hospice approach to the treatment of patients with advanced dementia of the Alzheimer type. JAMA. 1986;256:2210–3.PubMedCrossRef
Head B. Palliative care for persons with dementia. Home Healthc Nurse. 2003;21:53–60.PubMedCrossRef
TIME: Toolkit of Instruments to Measure End-of-life Care. Available at: http://www.chcr.brown.edu/pcoc/toolkit.htm. Accessed August 14, 2003.
Innovative models and approaches for palliative and end-of-life care. Available at: http://www.promotingexcellence.org/tools/index.html. Accessed August 14, 2003.
Lynn J, Wilkinson A, Cohn F, Jones SB. Capitated risk-bearing managed care systems could improve end-of-life care. J Am Geriatr Soc. 1998;46:322–30.PubMed