Differences in cancer information-seeking behavior, preferences, and awareness between cancer survivors and healthy controls: A national, population-based survey
Background. No research has examined how cancer diagnosis and treatment might alter information source preferences or opinions. Methods. We examined data from 719 cancer survivors (CS group) and 2012 matched healthy controls (NCC group) regarding cancer-related information-seeking behavior, preferences, and awareness from the population-based 2003 Health Information National Trends Survey. Results. The CS group reported greater consumption of cancer-related information, but the CS and NCC groups did not differ in information source use or preferences. The CS group was more confident of their ability to get cancer information, reported more trust in health care professionals and television as cancer information sources, but evaluated their recent cancer information-seeking experiences more negatively than the NCC group. Awareness of cancer information resources was surprisingly low in both the CS and NCC groups. Conclusions. Cancer diagnosis and treatment subtly alters cancer information-seeking preferences and experience. However, awareness and use of cancer information resources was relatively low regardless of personal history of cancer.
- Chen X, Sui L. Impact of media and the Internet on oncology: survey of cancer patients and oncologists in Canada. J Clin Oncol. 2001; 19:4291–4297.
- Foltz A, Sullivan J. Reading level, learning presentation preference, and desire for information among cancer patients. J Cancer Educ. 1996;11:32–38.
- Van Der Molen B. Relating information needs to the cancer experience: 1 information as a key coping strategy. Eur J Cancer Care. 1999;8:238–244. CrossRef
- Deridan A. Informational needs of recently diagnosed cancer patients part 2: method and description. Cancer Nurs. 1987;10:156–163.
- Rees C, Bath P. Information-seeking behaviors of women with breast cancer. Oncol Nurs Forum. 2001;28:691–698.
- Czaja R, Manfredi C, Price J. The determinants and consequences of information seeking among cancer patients. J Health Commun. 2003;8:529–562. CrossRef
- Carlsson M. Cancer patients seeking information from sources ourside the health care system. Support Care Cancer. 2000;8:453–457.
- Luker KA, Beaver K, Leinster SJ, et al. The information needs of women newly diagnosed with breast cancer. J Adv Nurs. 1995;22:134–141. CrossRef
- Talosig-Garcia M, Davis SW. Information-seeking behavior of minority breast cancer patients: an exploratory study. J Health Commun. 2005;10:53–64. CrossRef
- US Department of Health and Human Services Centers for Disease Control and Prevention National Center for Health Statistics. Summary Health Statistics for US adults: National Health Interview Survey, 2004. Vital Health Statistics. 2004;10:2006.
- Nelson DE, Kreps GL, Hesse BW, et al. The Health Information National Trends Survey (HINTS): Development, design, and dissemination. J Health Commun. 2004;9:443–460. CrossRef
- Cohen J, Cohen P, West SG, et al. Applied multiple regression/ correlation analysis for the behavioral sciences. 3rd ed. Mahwah, NJ: Lawrence Erlbaum Associates; 2003.
- Wiggers JH, Donovan KO, Redman S, et al. Cancer patients satisfaction with care. Cancer. 1990; 66:610–688. CrossRef
- Wilkinson S. Factors which influence how nurses communicate with cancer patients. J Adv Nurs. 1991;16:677–688. CrossRef
- Suominen T, Leino-Kilipi H, Laippala P. Who provides support and how? Breast cancer patients and nurse evaluate patient support. Cancer Nurs. 1995.18:278–285.
- Mallinger JB, Griggs JJ, & Shields CG. Patient-centered care and breast cancer survivors’ satisfaction with information. Patient Educ Couns. 2005;57:342–349. CrossRef
- Differences in cancer information-seeking behavior, preferences, and awareness between cancer survivors and healthy controls: A national, population-based survey
Journal of Cancer Education
Volume 24, Issue 1 , pp 73-79
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