Qualitative Cancer Genetic Counseling Research, Part I: Ethnography in a Cancer Clinic
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This is a report of the experience of several months' ethnographic research by a genetic counselor researcher in a cancer treatment clinic. One goal of the exercise was to directly experience a method of qualitative research known as ethnography, which relies heavily on participant-observation, in an applied clinical setting. Another goal was to explore a previously undescribed research area in the genetic counseling literature, namely, the meaning of cancer and cancer treatment for affected individuals and their support companions. Here we report on a personal account of the experiences of conducting and publishing the research. The preliminary analysis and results of this field experience are published elsewhere (Peters et al. (2001) J Genet Counsel 10(2):151–168.). These initial findings support the feasibility of genetic counselors, who are trained in specific social science methodologies, to conduct qualitative research pertinent to genetic counseling practice.
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- Qualitative Cancer Genetic Counseling Research, Part I: Ethnography in a Cancer Clinic
Journal of Genetic Counseling
Volume 10, Issue 2 , pp 133-150
- Cover Date
- Print ISSN
- Online ISSN
- Kluwer Academic Publishers-Plenum Publishers
- Additional Links
- hereditary cancer
- genetic counseling
- Industry Sectors
- Author Affiliations
- 1. Department of Human Genetics, Graduate School of Public Health, University of Pittsburgh; and the Cancer Genetics Program which is jointly sponsored by, Magee-Womens Hospital (MWH)/The University of Pittsburgh Cancer Institute (UPCI)/The University of Pittsburgh Medical Center (UPMC) Health System, Pittsburgh, Pennsylvania
- 2. Clinical Genetics Branch, Division of Cancer Epidemiology and Genetics, National Cancer Institute, Pittsburgh, Pennsylvania
- 4. Departments of Medicine, and Obstetrics-Gynecology & Reproductive Sciences at the School of Medicine, University of Pittsburgh, Pittsburgh, Pennsylvania
- 5. Department of Human Genetics at the Graduate School of Public Health, University of Pittsburgh, Pittsburgh, Pennsylvania
- 6. Magee-Womems Hospital, University of Pittsburgh, Pittsburgh, Pennsylvania
- 7. Cancer Genetics Program, which is jointly sponsored by, MWH/UPCI/UPMC (see above under author 1), Pittsburgh, Pennsylvania