Journal of Genetic Counseling

, Volume 10, Issue 2, pp 133–150

Qualitative Cancer Genetic Counseling Research, Part I: Ethnography in a Cancer Clinic

  • June A. Peters
  • Carol L. McAllister
  • Wendy S. Rubinstein
Article

DOI: 10.1023/A:1009491714527

Cite this article as:
Peters, J.A., McAllister, C.L. & Rubinstein, W.S. Journal of Genetic Counseling (2001) 10: 133. doi:10.1023/A:1009491714527

Abstract

This is a report of the experience of several months' ethnographic research by a genetic counselor researcher in a cancer treatment clinic. One goal of the exercise was to directly experience a method of qualitative research known as ethnography, which relies heavily on participant-observation, in an applied clinical setting. Another goal was to explore a previously undescribed research area in the genetic counseling literature, namely, the meaning of cancer and cancer treatment for affected individuals and their support companions. Here we report on a personal account of the experiences of conducting and publishing the research. The preliminary analysis and results of this field experience are published elsewhere (Peters et al. (2001) J Genet Counsel 10(2):151–168.). These initial findings support the feasibility of genetic counselors, who are trained in specific social science methodologies, to conduct qualitative research pertinent to genetic counseling practice.

hereditary cancergenetic counselingqualitativebehavioralpsychosocialresearchethnographyanthropologyparticipant-observationfamily

Copyright information

© National Society of Genetic Counselors, Inc. 2001

Authors and Affiliations

  • June A. Peters
    • 1
    • 2
  • Carol L. McAllister
    • 4
  • Wendy S. Rubinstein
    • 5
    • 6
    • 7
  1. 1.Department of Human Genetics, Graduate School of Public Health, University of Pittsburgh; and the Cancer Genetics Program which is jointly sponsored byMagee-Womens Hospital (MWH)/The University of Pittsburgh Cancer Institute (UPCI)/The University of Pittsburgh Medical Center (UPMC) Health SystemPittsburgh
  2. 2.Clinical Genetics Branch, Division of Cancer Epidemiology and GeneticsNational Cancer InstitutePittsburgh
  3. 3.Department of Human Services Administration, Graduate School of Public Health (GSPH), and Anthropology DepartmentUniversity of PittsburghPittsburgh
  4. 4.Departments of Medicine, and Obstetrics-Gynecology & Reproductive Sciences at the School of MedicineUniversity of PittsburghPittsburgh
  5. 5.Department of Human Genetics at the Graduate School of Public HealthUniversity of PittsburghPittsburgh
  6. 6.Magee-Womems HospitalUniversity of PittsburghPittsburgh
  7. 7.Cancer Genetics Program, which is jointly sponsored byMWH/UPCI/UPMC (see above under author 1)Pittsburgh