Journal of Developmental and Physical Disabilities

, Volume 15, Issue 3, pp 207–230

Family Quality of Life: Canadian Results from an International Study

  • Ivan Brown
  • Sabrina Anand
  • W. L. Alan Fung
  • Barry Isaacs
  • Nehama Baum
Article

DOI: 10.1023/A:1024931022773

Cite this article as:
Brown, I., Anand, S., Fung, W.L.A. et al. Journal of Developmental and Physical Disabilities (2003) 15: 207. doi:10.1023/A:1024931022773

Abstract

The quality of life of families that have a son or daughter with a disability has been an area overlooked by quality of life researchers until recently. The purpose of this study was to gather preliminary data on family quality of life and to report the findings of one part of an international study. The parents of 34 children and adults with intellectual disabilities were interviewed using the Family Quality of Life Survey, a measurement and assessment tool developed by a team of international researchers. Quantitative and qualitative data were collected for four concepts—opportunities available, initiative to access opportunities, attainment, and satisfaction—for each of the 9 key areas of family quality of life. In general, careers, spiritual and cultural beliefs, and family relationships were rated highly, while support from others and support from disability related services were rated quite low. Results provide a baseline for further research into the needs of these families, which is imperative for developing public policies and approaches to family-centered supports.

intellectual disabilities mental retardation developmental disabilities mental handicap quality of life family quality of life 

Copyright information

© Plenum Publishing Corporation 2003

Authors and Affiliations

  • Ivan Brown
    • 1
  • Sabrina Anand
    • 1
  • W. L. Alan Fung
    • 1
  • Barry Isaacs
    • 2
  • Nehama Baum
    • 3
  1. 1.University of TorontoToronto
  2. 2.Surrey Place CentreTorontoCanada
  3. 3.Muki Baum AssociationTorontoCanada