Embodied Knowledge and Making Sense of Prenatal Diagnosis
- Abby Lippman
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Open-ended, qualitative interviews with women to whom amniocentesis was offered were analyzed to understand how women made sense of these tests. We found that women, whether tested or not, negotiated with biomedical information. They transformed it through identifiable processes, then wove it with their own instincts and beliefs and with their personal experiences, thereby creating “embodied” knowledge on which their decisions were based. Women who were and were not tested may have differed from each other when categorized on the basis of a final, binary choice, but they were more alike than unalike in reaching this point. The apparent importance of embodied knowledge suggests the critical role of the listening activities of the genetic counselor and of awareness of the validity and importance of women's complementary ways of knowing and doing in understanding the uses and meanings of prenatal genetic testing.
- Beaulieu A, Lippman A (1995) “Everything you need to know”: How women's magazines structure prenatal diagnosis for women over 35. Women and Health 23:59–74.
- Beeson D (1984) Technological rhythms in pregnancy. In: Duster T, Garrett K (eds) Cultural Perspectives on Biological Knowledge. Norwood, NJ: Ablex, pp 145–181.
- Beeson D (1997) Nuance, complexity, and context: Qualitative methods in genetic counseling research. J Genet Counsel 6:21–44.
- Beeson D, Doksum T (in press) Family values and resistance to genetic testing. In: Hoffmaster B (ed) Bioethics in Context. Cambridge: Cambridge University Press.
- Browner CH, Press N (1996) The production of authoritative knowledge in American prenatal care. Med Anthropol Quart 10:141–156.
- Brunger F, Lippman A (1995) Resistance and adherence to the norms of genetic counseling. J Genet Counsel 4:151–167.
- Chalmers K, Thomson K (1996) Coming to terms with the risk of breast cancer: Perceptions of women with first-degree relatives with breast cancer. Qual Health Res 6:256–282.
- Davis-Floyd R, Sargent C (1996) Introduction. Med Anthropol Quart 10:111–120.
- Evans MI, Pryde PG, Evans WJ, Johnson MP (1993) The choices women make about prenatal diagnosis. Fetal Diag Therap 8(suppl 1):70–80.
- Halliday J, Lumley J, Watson L (1995) Comparison of women who do and do not have amniocentesis or chorionic villus sampling. Lancet 345:704–709.
- Heyman B, Henricksen (1998). Probability and health risks. In: Heyman B (ed) Risk, Health and Health Care: A Qualitative Approach. London: Arnold, pp 65–105.
- Heyman B, Henricksen M, Maughan K (1998) Probabilities and health risks: A qualitative approach. Soc Sci Med 47:1295–1306.
- Hill SA (1994) Motherhood and the obfuscation of medical knowledge: The case of sickle cell disease. Gender and Society 8:29–47.
- Hunt LM, Jordan B, Irwin S (1989) Views of what's wrong: Diagnosis and patients' concepts of illness. Soc Sci Med 28:945–956.
- Katz Rothman B (1986) The Tentative Pregnancy: Prenatal Diagnosis and the Future of Motherhood. New York: Viking Press.
- Kessler S (1997) Psychological aspects of genetic counseling: 9. Teaching and counseling. J Genet Counsel 6:287–296.
- Kupperman M, Gates E, Washington AE (1996) Racial-ethnic differences in prenatal diagnostic test use and outcomes: Preferences, socioeconomics, or patient knowledge? Obstet Gynecol 87:675–682.
- Leuzinger M, Rambert B (1988) “I can feel it: My baby is healthy.” Repro Genet Engineer 1:239–250.
- Lippman A (1989) Prenatal diagnosis: Reproductive choice? Reproductive control? In: Overall C (ed) The Future of Human Reproduction. Toronto: Women's Press, pp 182–194.
- Lippman A (1991) Prenatal genetic testing and screening: Constructing needs and reinforcing inequities. Amer J Law Med 17(1/2):15–50.
- Lippman A (1992a) Mother matters: A fresh look at prenatal genetic testing. Issues Repro Genet Engineer 5:141–154.
- Lippman A (1992b) Prenatal diagnosis: Can what counts be counted? Women and Health 18:1–8.
- Metheny WP, Holzman GB, Taylor J, Young W, Higgins JV (1988) Amniocentesis use and risk awareness: Comparison of knowledge and beliefs among older gravida. Social Biol 35:50–61.
- Ota Wang V (1998) Curriculum evaluation and assessment of multicultural genetic counselor evaluation. J Genet Counsel 7:87–111.
- Press NA, Browner CH (1994) Collective silences, collective fictions: How prenatal diagnostic testing became part of routine prenatal care. In: Rothenberg KH, Thomson EJ (eds) Women and Prenatal Testing: Facing the Challenges of Genetic Technology. Columbus: Ohio State University Press, pp 201–218.
- Rapp R (1988a) Chromosomes and communication: The discourse of genetic counseling. Med Anthropol Quart 2:143–157.
- Rapp R (1988b) The power of “positive” diagnosis: Medical and maternal discourses on amniocentesis. In: Michaelson KL (ed) Childbirth in America. Hadley, MA: Bergin and Garvey, pp 103–116.
- Rapp R (1993) Women's responses to prenatal diagnosis: A sociocultural perspective on diversity. In: Rothenberg KH, Thomson EJ (eds) Women and Prenatal Testing: Facing the Challenges of Genetic Technology. Columbus: Ohio State University Press, pp 219–233.
- Sandelowski M, Jones LC (1996) “Healing fictions”: Stories of choosing in the aftermath of the detection of fetal anomalies. Soc Sci Med 42:353–361.
- Sjogren B, Uddenberg N (1988) Decision-making during the prenatal diagnostic procedure: A questionnaire and interview study of 211 women participating in prenatal diagnosis. Prenatal Diagnosis 8:263–273.
- White MT (1997) “Respect for autonomy” in genetic counseling: An analysis and a proposal. J Genet Counsel 6:297–313.
- Embodied Knowledge and Making Sense of Prenatal Diagnosis
Journal of Genetic Counseling
Volume 8, Issue 5 , pp 255-274
- Cover Date
- Print ISSN
- Online ISSN
- Kluwer Academic Publishers-Plenum Publishers
- Additional Links
- decision making
- embodied knowledge
- genetic counseling
- genetic counselors
- prenatal diagnosis
- qualitative research
- Industry Sectors
- Abby Lippman (1)
- Author Affiliations
- 1. Department of Epidemiology and Biostatistics, McGill University, Montreal, Quebec, Canada