Assessment of the Effectiveness of Genetic Counseling by Telephone Compared to a Clinic Visit
Cite this article as: Sangha, K.K., Dircks, A. & Langlois, S. Journal of Genetic Counseling (2003) 12: 171. doi:10.1023/A:1022663324006 Abstract
Maternal serum screening, also known as the triple screen, is used during pregnancy to assess the risk of carrying a fetus with specific chromosome abnormalities or open spina bifida. All women in British Columbia who screen positive are eligible for genetic counseling and are offered amniocentesis. The purpose of this study is to determine what differences (if any) exist in patients' understanding and/or anxiety when genetic counseling for a positive triple screen is conducted in person versus over the telephone. Each patient who participated was given the choice of having genetic counseling in person or over the telephone, this after a randomized design failed to elicit any participants. Using a written postcounseling questionnaire, each patient was assessed for her understanding of the information presented in the session, and her anxiety regarding her risk. In this small pilot study, no large differences were detected in patients' understanding or anxiety when genetic counseling was conducted by telephone versus in person.
genetic counseling telephone maternal serum screen knowledge anxiety References
Abuelo DN, Hopmann MR, Barsel-Bowers G, Goldstein A (1991) Anxiety in women with low maternal serum alpha-fetoprotein screening results.
Bernhardt BA, Biesecker BB, Mastromarino CL (2000) Goals, benefits and outcomes of genetic counseling: Client and genetic counselor assessment.
Am J Med Genet
Carroll JC (1994) Maternal serum screening.
Can Fam Physician
Doyle-Waters MMR (1994) Anxiety scale for pregnancy: Development and validation. MA Thesis, University of British Columbia, Vancouver.
Gekas J, Gondry J, Mazur S, Cesbron P, Thepot F (1999) Informed consent to serum screening for Down syndrome: Are women given adequate information?
Goel V, Glazier R, Holzapfel S, Pugh P, Summers A (1996) Evaluating patient's knowledge of maternal serum screening.
Hallam L (1989) You've got a lot to answer for, Mr. Bell. A review of the use of the telephone in primary care.
Hornblow AR (1986) The evolution and effectiveness of telephone counseling services.
Hosp Community Psychiatry
Horowitz M, Wilner N, Alvarez W (1979) Impact of Events scale: A measure of subjective stress.
Koren G, Graham K, Feigenbaum A, Einarson T (1993) Evaluation and counseling of teratogenic risk: The Motherisk approach.
J Clin Pharmacol
Kornman LH, Wortelboer MJM, Beekhuis JR, Morssink LP, Mantingh A (1997) Women's opinions and the implications of first-versus second-trimester screening for fetal Down's syndrome.
Li KC, Lai SS, Lam ST (1999) Adequacy and pitfalls of G6PD deficiency counseling in Hong Kong.
Southeast Asian J Trop Med Public Health
30(Suppl 2): 79-83.
Lynch DL, Tamburrino MB, Nagel R (1997) Telephone counseling for patients with minor depression: Preliminary findings in a family practice setting.
J Fam Pract
Marteau TM (1995) Towards informed decisions about prenatal testing: A review.
McBride CM, Rimer BK (1999) Using the telephone to improve health behavior and health service delivery.
Patient Educ Counsel
Ormond KE, Haun J, Cook L, Duquette D, Ludowese C, Matthews AL (2000) Recommendations for telephone counseling.
J Genet Counsel
Quagliarini D, Betti S, Brambati B, Nicolini U (1998) Coping with serum screening for Down syndrome when the result is given as a numeric value.
Rayburn W, Wilson G, Schreck J, Louwsma G, Hamman J (1982) Prenatal counseling: A state-wide telephone service.
Shiloh S, Berkenstadt M, Meiran N, Bat-Miriam-Katznelson M, Goldman B (1997) Mediating effects of perceived personal control in coping with a health threat: The case of genetic counseling.
J Appl Soc Psychol
Soet JE, Basch CE (1997) The telephone as a communication medium for health education.
Health Educ Behav
Statistics Canada Web site: http://www.statcan.ca/english/Pgdb/People/Education/educ44a.htm
Tsu RC, Burm ML, Jennifer AG, Sells CW (2002) Telephone vs. face-to-face notification of HIV results in high-risk youth.
J Adolesc Health
Watson D, Clark LA, Tellegen A (1988) Development and validation of brief measures of positive and negative affect: The PANAS scales.
J Pers Soc Psychol
Wilson K, Williams A (2000) Visualism in community nursing: Implications for telephone work with service users.
Qual Health Res
Google Scholar Copyright information
© National Society of Genetic Counselors, Inc. 2003