Parents of Children with Disabilities: Resilience, Coping, and Future Expectations
- Tali Heiman
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On the basis of characteristics of family resilience, the study examined the perspectives of parents of children with an intellectual, physical, or learning disability. Thirty-two parents were interviewed as to past, present, and the modes of coping. The questions examined various aspects of family ecology domains: parents' responses to the child's diagnosis; patterns of adjustment; family support and services used by parents; and parents' feelings and future expectations. Although, it was found that most parents had to make changes in their social life and expressed high levels of frustration and dissatisfaction, many try to maintain their routine life. The majority expressed the need for a strong belief in the child and in the child's future, an optimistic outlook, and a realistic view and acceptance of the disability. The study highlighted the importance of social resources and support, and the need for effective programs of intervention.
- Bachay, J. B., and Cingel, P. A. (1999). Restructuring resilience: Emerging voices. Affilia 14: 162–175.
- Blacher, J. (1984). Sequential stages of parent adjustment to the birth of a child with handicaps: Facts or artifact? Ment. Retard. 22: 55–68.
- Bower, A. M., and Hayes, A. (1998). Mothering in families with and without a child with disability. Int. J. Disabil. Dev. Educ. 45: 313–322.
- Dumont, M., and Provost, M. A. (1999). Resilience in adolescents: Protective role of social support, coping strategies, self-esteem, and social activities on experiences of stress and depression. J. Youth Adolesc. 28: 343–363.
- Falik, L. H. (1995). Family patterns of reaction to a child with a learning disability:Amediational perspective. J. Learn. Disabil. 28: 335–341.
- Freedman, R., and Boyer, N. C. (2000). The power to choose: Support for families caring for individuals with developmental disabilities. Health Soc. Work 25: 59–68.
- Hawley, D. R., and DeHaan, L. (1996). Toward a definition of family resilience: Integrating life span and family perspectives. Fam. Process 35: 283–298.
- Lardieri, L. A., Blacher, J., and Swanson, H. L. (2000). Sibling relationships and parent stress in families of children with and without learning disabilities. Learn. Disabil. Q. 23: 105–116.
- Lincoln, Y. S., and Guba, E. G. (1985). Naturalistic Inquiry, SAGE, Beverly Hills, CA.
- Littrell, J., and Beck, E. (1999). Perceiving oppression: Relationships with resilience, selfesteem, depressive symptoms, and reliance on God in African-American homeless men. J. Sociol. Soc. Welfare 26: 137–158.
- Lyons, R. F., Mickelson, K.D., Sullivan, M. J. L., and Coyne, J. C. (1998). Coping as a communal process. J. Soc. Pers. Relation. 15: 579–605.
- Margalit, M., and Heiman, T. (1986). Family climate and anxiety of families with learning disabled boys. J. Am. Acad. Child Psychiatry 25: 841–856.
- Marvin, R. S., and Pianta, R. C. (1996). Mothers' reactions to their child's diagnosis: Relations with security and attachment. J. Clin. Child Psychol. 25: 436–445.
- Quine, L., and Paul, J. (1985). Examining the causes of stress in families with severely mentally handicapped children. Br. J. Soc. Work 15: 501–517.
- Rimmerman, I., and Duvdevani, A. (1996). Parents of children and adolescents with severe mental retardation: Stress, family resources, normalization, and their application for outof-home placement. Res. Dev. Disabil. 17: 486–494.
- Roach, M. A., Ormond, G. I., and Barratt, M. S. (1999). Mothers and fathers of children with Down Syndrome: Parental stress and involvement in children. Am. J. Ment. Retard. 104: 422–436.
- Seligman, M., and Darling, R. B. (1989). Ordinary Families Special Children, Guilford Press, New York.
- Tangri, P., and Verma, P. (1992). A study of social burden felt by mothers of handicapped children. J. Pers. Clin. Stud. 8: 117–120.
- Turnbull, A. P., and Turnbull, H. R., III (1990). Families, Professionals, and Exceptionality: A Special Partnership, Rev. edn., Merrill, Columbus, OH.
- Valentine, D. P., McDermott, S., and Anderson, D. (1998). Mothers of adults with mental retardation: Is race a factor in perceptions of burdens and gratification? Fam. Soc. 79: 577–584.
- Waggoner, K., and Wilgosh, L. (1990). Concerns of families of children with learning disabilities. J. Learn. Disabil. 23: 97–113.
- Walsh, F. (1996). The concept of family resilience: Crisis and challenge. Fam. Process 35: 261–281.
- Werth, L. H., and Oseroff, A. B. (1987). Continual counseling intervention: Lifetime support for the family with a handicapped member. Am. J. Fam. Ther. 15: 333–342.
- Parents of Children with Disabilities: Resilience, Coping, and Future Expectations
Journal of Developmental and Physical Disabilities
Volume 14, Issue 2 , pp 159-171
- Cover Date
- Print ISSN
- Online ISSN
- Kluwer Academic Publishers-Plenum Publishers
- Additional Links
- Tali Heiman (1)
- Author Affiliations
- 1. Department of Education and Psychology, The Open University of Israel, Ramat Aviv, Tel Aviv, Israel