Quality of Life Research

, Volume 8, Issue 8, pp 675–685

Cross-cultural differences in health-related quality of life of people with epilepsy: Findings from a European study

Authors

  • Deborah Buck
    • Centre for Health Services ResearchUniversity of Newcastle upon Tyne
  • Ann Jacoby
    • Centre for Health Services ResearchUniversity of Newcastle upon Tyne
  • Gus A. Baker
    • Department of NeurosciencesWalton Hospital
  • Helen Ley
    • Ashford Hospital
  • Nick Steen
    • Centre for Health Services ResearchUniversity of Newcastle upon Tyne
Article

DOI: 10.1023/A:1008916326411

Cite this article as:
Buck, D., Jacoby, A., Baker, G.A. et al. Qual Life Res (1999) 8: 675. doi:10.1023/A:1008916326411

Abstract

Purpose: To examine between-country differences in health-related quality of life (HRQOL) of adults with epilepsy across a large number of European countries. Methods: Self-completion postal questionnaire sent to large sample of adults with epilepsy, recruited from epilepsy support groups or epilepsy outpatient clinics. The questionnaire was developed in English and translated. Back-translations from each language were checked for accuracy. The questionnaire sought information on clinical and socio-demographic details, and contained a number of previously validated scales of psychosocial well-being (the SF-36, the perceived impact of epilepsy scale, and a feelings of stigma scale). Results: Controlling for socio-demographic and clinical characteristics, significant between-country differences were found in scores on the perceived impact of epilepsy scale, on seven of the eight SF-36 domains, and on the feelings of stigma scale. Respondents in Spain and the Netherlands fared consistently better, whilst those in France fared poorest, compared to those in other countries in terms of the various HRQOL measures used. Conclusion: Several possible reasons for the cross-cultural differences in HRQOL are proposed. Clearly, there is no single explanation and there may also be reasons which we have overlooked. This study emphasises the need for further comprehensive research in order that the position of people with epilepsy in different countries be more thoroughly understood in the social context.

Cross-cultural comparisonsEpilepsyHealth-related quality of lifeSF-36Stigma

Copyright information

© Kluwer Academic Publishers 1999