The Development of Siblings' Understanding of Autism Spectrum Disorders
- Beth A. Glasberg
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While professionals commonly advocate sharing information about autism spectrum disorders with siblings, no guidelines currently exist that describe what types of information might be relevant for siblings at different ages. To address this issue, the interviewing method described by Bibace and Walsh (1979, 1980), which measures cognitive sophistication in thinking about illness, was adapted to examine perspectives on autism spectrum disorders. Sixty-three siblings of individuals with autism or related disorders were interviewed using this measure. Parents were given the same interview as their child, and asked to predict their child's responses. Children's reasoning became more mature with age, but developed at a delayed rate compared to norms for illness concepts. Although accurate in estimating their child's understanding of the definition and cause of their sibling' s; diagnosis, parents tended to overestimate their child's understanding of the disorder's impact.
- American Psychiatric Association (1994). Diagnostic and statistical manual of mental disorders (4th ed.) Washington, DC: Author.
- Bagenholm, A., & Gillberg, C. (1991). Psychosocial effects on siblings of children with autism and mental retardation: a population-based study. Journal of Mental Deficiency Research, 35, 291–307.
- Belchic, J. K., & Glasberg, B. A. (1995, May). Creating a discussion group for siblings of children with developmental disabilities. Program presented at the Philadelphia Conference on Developmental Disabilities for Parents and Professionals, Philadelphia, PA.
- Berry, S. L., Hayford, J. R., Ross, C. K., Pachman. L. M., & Lavigne, J. V. (1993). Conceptions of illness by children with Juvenile Rheumatoid Arthritis: A cognitive developmental approach. Journal of Pediatric Psychology, 18, 83–97.
- Bibace, R., & Walsh, M. E. (1979). Developmental stages in children's conceptions of illness. In G. C. Stone & N. E. Adler (Eds.), Health psychology (pp. 285–301). San Francisco: Jossey Bass.
- Bibace, R., & Walsh, M. E. (1980). Development of children's concepts of illness. Pediatrics, 66, 912–917.
- Brewster, A. B. (1982). Chronically ill hospitalized children's concepts of their illness. Pediatrics, 69, 355–362.
- Brodzinsky, D. M., Schechter, D., & Brodzinsky, A. B. (1986). Children's knowledge of adoption: Developmental changes and implications for adjustment. In R. D. Ashmore & D. M. Brodzinsky, (Eds.), Thinking about the family: Views of parents and children (pp. 205–232). Hillsdale, NJ: Erlbaum.
- Brodzinsky, D. M., Pappas, C., Singer, L. M., & Braff, A. M. (1981). Children's conception of adoption: A preliminary investigation. Journal of Pediatric Psychology, 6, 177–189.
- Burbach, D. J., & Peterson, L. (1986). Children's concepts of physical illness: A review and critique of the cognitive-developmental literature. Health Psychology, 5, 307–325.
- Carandang, M. L. A., Folkins, C. H., Hines, P. A., & Steward, M. S. (1979). The role of cognitive level and sibling illness in children's conceptualizations of illness. American Journal of Orthopsychiatry, 49, 474–481.
- Cooper, J. O., Heron, T. E., & Heward, W. L. (1987). Applied Behavior Analysis. Upper Saddle River, NJ: Prentice-Hall.
- Donovan, A. M. (1988). Family stress and ways of coping with adolescents who have handicaps: Maternal perceptions. American Journal on Mental Retardation, 92, 502–509.
- Dyson, L. L. (1989). Adjustment of siblings of handicapped children: A comparison. Journal of Pediatric Psychology, 14, 215–229.
- Glasberg, B. A., & Belchic, J. K. (1996, April). Creating a discussion group for siblings of children with developmental disabilities. Program presented at the meeting of the New Jersey Center for Outreach and Services for the Autistic Community, East Brunswick, NJ.
- Gold, N. (1993). Depression and social adjustment in siblings of boys with autism. Journal of Autism and Developmental Disorders, 23, 147–163.
- Harris, S. L. (1994). Siblings of children with autism: A guide for families. Bethesda, MD: Woodbine House.
- Holmes, N., & Carr, J. (1991). The pattern of care in families of adults with a mental handicap: A comparison between families of autistic adults and Down syndrome adults. Journal of Autism and Developmental Disorders, 21, 159–176.
- Lazarus, R. S. (1966). Psychological stress and the coping process. New York: McGraw-Hill.
- Lazarus, R. S. (1990). Theory-based stress measurement. Psychological Inquiry, 1, 3–13.
- Lazarus, R. S., & Folkman, S. (1984). Stress, appraisal, and coping. New York: Springer.
- Lazarus, R. S., & Folkman, S. (1986). Cognitive theories of stress and the issue of circularity. In M. H. Appley & R. Trumbull (Eds.), Dynamics of stress (pp. 63–98). New York: Plenum Press.
- Lobato, D. (1993). Issues and interventions for young siblings of children with medical and developmental problems. In Z. Stoneman & P. W. Berman (Eds.), The effects of mental retardation, disability, and illness on sibling relationship: Research issues and challenges (pp. 85–98). Baltimore, MD: Paul H. Brookes.
- Lobato, D., Faust, D., & Spirito, A. (1988). Examining the effects of chronic disease and disability on children's sibling relationships. Journal of Pediatric Psychology, 13, 389–407.
- McHale, S. M., Sloan, J., & Simeonsson, R. J. (1986). Sibling relationships of children with autistic, mentally retarded, and nonhandicapped brothers and sisters. Journal of Autism and Developmental Disorders, 16, 399–413.
- Miller, S. A. (1988). Parents' beliefs about children's cognitive development. Child Development, 59, 259–285.
- Morgan, S. B. (1988). The autistic child and family functioning: A developmental family-systems perspective. Journal of Autism and Developmental Disorders, 18, 263–280.
- Peterson, L., & Toler, S. M. (1986). An information seeking disposition in child surgery patients. Health Psychology, 5, 343–358.
- Piaget, J. (1929). The child's conception of the world. New York: Harcourt Brace Jovanovich.
- Rodrigue, J. R., Geffken, G. R., & Morgan, S. B. (1993). Perceived competence and behavioral adjustment of siblings of children with autism. Journal of Autism and Developmental Disorders, 23, 665–674.
- Townes, B. D., & Wold, D. A. (1977). Childhood leukemia. In E. M. Pattison (Ed.), The experience of dying (pp. 138–146). Englewood Cliffs, NJ: Prentice-Hall.
- Walsh, M. E., & Bibace, R. (1991). Children's conceptions of AIDS: A developmental analysis. Journal of Pediatric Psychology, 16, 273–285.
- Weiss, M. J. (1989). Unpublished doctoral dissertation. Rutgers, The State University of New Jersey, Piscataway, NJ.
- Whitt, J. K., Dykstra, W., & Taylor, C. A. (1979). Children's conceptions of illness and cognitive development: Implications for pediatric practitioners. Clinical Pediatrics, 18, 327–339.
- The Development of Siblings' Understanding of Autism Spectrum Disorders
Journal of Autism and Developmental Disorders
Volume 30, Issue 2 , pp 143-156
- Cover Date
- Print ISSN
- Online ISSN
- Kluwer Academic Publishers-Plenum Publishers
- Additional Links
- Sibling's understanding of autism
- Industry Sectors
- Beth A. Glasberg (1)
- Author Affiliations
- 1. The Douglass Developmental Disabilities Center—Rutgers, the State University of New Jersey, Piscataway, New Jersey, 08854