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Disseminating results: community response and input on Kisumu breastfeeding study

  • Original Research
  • Published:
Translational Behavioral Medicine

Abstract

Communicating findings to study participants and their communities is a practice that often gets overlooked or receives low prioritization by research investigators, but is crucially important. The purpose of this study was to describe the process and community response to the dissemination of results from the Kisumu Breastfeeding Study (KiBS), specifically in terms of (1) community research knowledge and expectations and (2) impressions of result dissemination efforts. A qualitative evaluation was completed for 10 result dissemination events using focus group discussions (FGDs) (n = 10; total number of participants = 98). An inductive, thematic qualitative data analysis was completed in NVivo 8.0. Overall, FGD participants expressed great appreciation for being given information on the study results. Participants had a good understanding of what research entails and had specific expectations for the process, including that the community receive information about the study, not only at the end of the study but also at regular intervals throughout the study’s conduct. They also wanted to receive the communications from a credible source, the principal investigator preferably. Other expectations centered on better community and research interactions and development and the use of community collaborators. Impressions of KiBS result dissemination events were positive, but suggestions for the future included having the event in a larger area, inviting more people, having more written materials, and putting the information in an entertaining format such as skits or movies. Sharing study findings with local community members is essential and beneficial to the researchers’ long-term engagement with communities and importantly, the successful implementation of study findings when appropriate. It is imperative that dissemination of results be embedded as an integral part of research project planning and development.

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Acknowledgments

We are indebted to the KiBS participants and staff and the Kisumu community who took part in the dissemination events and subsequently in the FGDs.

Conflict of interest

All authors were, at the time of working on this paper, employees of the US or Kenyan Government and have no conflicts of interest to disclose. The findings and conclusions in this report are published with the approval of the Director, Kenya Medical Research Institutes, are those of the authors, and do not necessarily represent the views of the Centers for Diseases Control and Prevention or that of the Kenya Medical Research Institute.

Funding source

Funding for this study was provided by the Centers for Disease Control and Prevention (CDC), Atlanta, GA, USA.

Author information

Authors and Affiliations

  1. Kenya Medical Research Institute, Center for Global Health Research, P.O. Box 1578, Kisumu, 40100, Kenya

    K. Ondenge BA Sociology, E. Awuonda Dsoc & F. Angira DCM, MPH (c)

  2. Centers for Disease Control and Prevention, Office of Infectious Diseases, National Center for HIV/AIDS, Viral Hepatitis, STD, and TB Prevention, Division of HIV/AIDS Prevention, Atlanta, GA, USA

    E. McLellan-Lemal MA Anthropology & T. Thomas MD

  3. Centers for Disease Control and Prevention, Kisumu, Kenya

    L. A. Mills MD, MSc

Authors
  1. K. Ondenge BA Sociology
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  2. E. McLellan-Lemal MA Anthropology
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  3. E. Awuonda Dsoc
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  4. F. Angira DCM, MPH (c)
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  5. L. A. Mills MD, MSc
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  6. T. Thomas MD
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Corresponding author

Correspondence to K. Ondenge BA Sociology.

Additional information

Implications

Policy: It is imperative that the dissemination of results be an integral part of research project planning and development, with explicit resource allocation and oversight by the institutional review boards (IRBs).

Research: Persuade researchers to prioritize returning study findings to the communities they study and enhance interaction and collaboration with the community members and their leaders.

Practice: Thoughtful, creative and community-informed presentation of study findings enable such populations to access relevant health information in order to make informed health decisions about seeking care and support, limiting avoidable health risks, and promoting their own health.

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Ondenge, K., McLellan-Lemal, E., Awuonda, E. et al. Disseminating results: community response and input on Kisumu breastfeeding study. Behav. Med. Pract. Policy Res. 5, 207–215 (2015). https://doi.org/10.1007/s13142-014-0303-y

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  • DOI: https://doi.org/10.1007/s13142-014-0303-y

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