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Randomized Trial of a Social Networking Intervention for Cancer-Related Distress

  • Original Article
  • Published:
Annals of Behavioral Medicine

Abstract

Background

Web and mobile technologies appear to hold promise for delivering evidence-informed and evidence-based intervention to cancer survivors and others living with trauma and other psychological concerns. Health-space.net was developed as a comprehensive online social networking and coping skills training program for cancer survivors living with distress.

Purpose

The purpose of this study was to evaluate the effects of a 12-week social networking intervention on distress, depression, anxiety, vigor, and fatigue in cancer survivors reporting high levels of cancer-related distress.

Methods

We recruited 347 participants from a local cancer registry and internet, and all were randomized to either a 12-week waiting list control group or to immediate access to the intervention. Intervention participants received secure access to the study website, which provided extensive social networking capabilities and coping skills training exercises facilitated by a professional facilitator.

Results

Across time, the prevalence of clinically significant depression symptoms declined from 67 to 34 % in both conditions. The health-space.net intervention had greater declines in fatigue than the waitlist control group, but the intervention did not improve outcomes for depression, trauma-related anxiety symptoms, or overall mood disturbance. For those with more severe levels of anxiety at baseline, greater engagement with the intervention was associated with higher levels of symptom reduction over time.

Conclusions

The intervention resulted in small but significant effects on fatigue but not other primary or secondary outcomes. Results suggest that this social networking intervention may be most effective for those who have distress that is not associated with high levels of anxiety symptoms or very poor overall psychological functioning.

Trial Registration Number

The trial was registered with the ClinicalTrials.gov database (ClinicalTrials.gov #NCT01976949).

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Corresponding author

Correspondence to Jason E. Owen PhD, MPH.

Ethics declarations

Jason E. Owen, Erin O’Carroll Bantum, Ian S. Pagano, and Annette Stanton declare that they have no conflict of interest. All procedures, including the informed consent process, were conducted in accordance with the ethical standards of the responsible committee on human experimentation (institutional and national) and with the Helsinki Declaration of 1975, as revised in 2000.

Funding Source

NCI #1R03CA137391-01A1

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The contents do not represent the views of the U.S. Department of Veterans Affairs or the United States Government.

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Owen, J.E., O’Carroll Bantum, E., Pagano, I.S. et al. Randomized Trial of a Social Networking Intervention for Cancer-Related Distress. ann. behav. med. 51, 661–672 (2017). https://doi.org/10.1007/s12160-017-9890-4

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  • DOI: https://doi.org/10.1007/s12160-017-9890-4

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