Sharing Heterogeneous Data: The National Database for Autism Research
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Abstract
The National Database for Autism Research (NDAR) is a secure research data repository designed to promote scientific data sharing and collaboration among autism spectrum disorder investigators. The goal of the project is to accelerate scientific discovery through data sharing, data harmonization, and the reporting of research results. Data from over 25,000 research participants are available to qualified investigators through the NDAR portal. Summary information about the available data is available to everyone through that portal.
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Inside
Within this Article
- Introduction
- NDAR Organization
- Unique Subject Identifier—The NDAR GUID
- Data Definitions Overview
- Genomics Data Definition
- Imaging Data Definition
- Data Federation
- The Autism Genetics Resource Exchange (AGRE)
- The Autism Tissue Program (ATP)
- The Interactive Autism Network (IAN)
- Federal Databases
- Using NDAR
- Human Subjects
- Conclusions
- Information Sharing Statement
- References
- References
