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Mental health professionals and information sharing: carer perspectives

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Irish Journal of Medical Science (1971 -) Aims and scope Submit manuscript

Abstract

Background

The important role played by carers of those with mental health problems is frequently undervalued among healthcare professionals.

Aims

To identify the difficulties encountered by carers in relation to obtaining information from mental health teams.

Methods

Participants in the study included carers or family members of persons with mental illness who were affiliated with a support group in Ireland. Information was gathered using an 18-item self-report questionnaire. This is an amended version of the Carer Well-Being and Support Questionnaire for carers of people with a mental health problem or dementia.

Results

One-hundred and fifty-nine carers complete the questionnaire. On average respondents stated that they have been in the role of a carer for someone with a mental health problem for 14.4 years, spending a median of 20-h caring each week. Despite most carers maintaining that they are generally satisfied with the support offered to them from medical and/or care staff, the majority (56.3 %) of respondents stated that they have specifically encountered difficulties accessing information from the treating mental health team. The main reasons given to them by the mental health team for withholding information include: lack of patient consent (46.2 %) and unavailability of a team member (46.2 %). From a carer perspective, respondents stated that the main reason they feel there is difficulty in accessing information is a lack of concern for their role as a carer in the patient’s management (60.5 %). More than 75 % of all respondents are afraid of negative consequences for them or for the person in their care as a result of information being withheld by the treating team.

Conclusions

Carer involvement is essential for the complete and effective management of individuals with mental illness. Confidentiality should not be used as a reason for completely excluding carers.

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References

  1. McCrae J, Steffen S, Jones K et al (2007) EUFAMI physical healths survey—families/carers—2007. European Federation of Associations of Families of People with Mental Illness, Leuven

    Google Scholar 

  2. Expert Group on Mental Health Policy (2006) A vision for change: report of the expert group on mental health policy. The Stationery Office, Dublin

    Google Scholar 

  3. World Health Organization (2003) Organization of services for mental health. World Health Organization, Geneva

    Google Scholar 

  4. Pinfold V, Corry P (2003) Under pressure: the impact of caring on people supporting family members or friends with mental health problems. Rethink, London

    Google Scholar 

  5. O’Sullivan L (2008) Health and well-being of family carers in Ireland: results of a survey of recipients of the carer’s allowance. Care Alliance Ireland, Dublin

    Google Scholar 

  6. Care Alliance Ireland (2013) Family caring in Ireland. http://www.carealliance.ie/userfiles/file/Report%202013%20FA%20130513.pdf. Accessed 25 April 2014

  7. Department of Social Protection http://www.welfare.ie/en/Pages/Carers.aspx. Accessed 8 May 2014

  8. Department of Social Protection (2012) 2011 Statistical information on social welfare services. http://www.welfare.ie/EN/Policy/ResearchSurveysAndStatistics/Documents/2011stats.pdf. Accessed 25 April 2014

  9. The Carers Association (2013) Analysis of budget 2013 from a family carer perspective. http://www.corkfamilycarersforum.ie/files/Budget-Analysis.pdf. Accessed 8 May 2014

  10. Comhairle (2002) Supporting carers. Comhairle, Dublin. http://www.citizensinformationboard.ie/publications/social/social_research_carer.html. Accessed 8 May 2014

  11. Equality Authority (2005) Implementing equality for carers. Equality Authority, Dublin

    Google Scholar 

  12. Government of Ireland (2007) National Development Plan 2007–2013. Stationery Office, Transforming Ireland, Dublin

    Google Scholar 

  13. Government of Ireland (2007) National Action Plan for Social Inclusion 2007–2016. Stationery Office, Dublin

    Google Scholar 

  14. Department of Health (2012) The national carers strategy, recognised, supported, empowered. http://www.carealliance.ie/userfiles/file/national_carers_strategy.pdf. Accessed 1 April 2013

  15. Lloyd C, King R (2003) Consumer and carer participation in mental health services. Austral Psychiatry 11:180–184

    Article  Google Scholar 

  16. Lammers J, Happell B (2004) Mental health reforms and their impact on consumer and carer participation: a perspective from Victoria, Australia. Issues Ment Health Nurs 25:261–276

    Article  PubMed  Google Scholar 

  17. Wynaden D, Orb A (2005) Impact of patient confidentiality on carers of people who have a mental disorder. Int J Ment Health Nurs 14:166–171

    Article  PubMed  Google Scholar 

  18. Gray B, Robinson C, Seddon D et al (2008) ‘Confidentiality smokescreens’ and carers for people with mental health problems: the perspectives of professionals. Health Soc Care Community 16(4):378–387

    Article  PubMed  Google Scholar 

  19. Dorland, Newman WA (2012) Dorland’s illustrated medical dictionary, 32nd edn. Elsevier Saunders, Philadelphia

  20. Council Medical (2009) Guide to professional conduct and ethics for registered medical practitioners, 7th edn. Medical Council, Dublin

    Google Scholar 

  21. General Medical Council (2009) Confidentiality. http://www.gmc-uk.org/Confidentiality_core_2009.pdf_27494212.pdf. Accessed 9 May 2014

  22. Rapaport J, Bellringer S, Pinfold V et al (2006) Carers and confidentiality in mental health care: considering the role of the carer’s assessment: a study of service users’, carers’ and practitioners’ views. Health Soc Care Community 14(4):357–365

    Article  PubMed  Google Scholar 

  23. Gold M, Philip J, McIver S et al (2009) Between a rock and a hard place: exploring the conflict between respecting the privacy of patients and informing their carers. Intern Med J 39:582–587

    Article  CAS  PubMed  Google Scholar 

  24. Dunne E (2006) The views of adult users of the public sector mental health services. Mental Health Commission, Dublin

    Google Scholar 

  25. Quirk A, Smith S, Hamilton S et al (2012) Development of the carer well-being and support (CWS) questionnaire. Mental Health Rev J 17:128–138

    Article  Google Scholar 

  26. Quirk A, Smith SC, Hamilton S et al (2009) Development and validation of the carer well-being and support (CWS) questionnaire: report for the National Institute for Health Research Service Delivery and Organisation Programme. http://www.sdo.nihr.ac.uk/files/project/144-final-report.pdf. Accessed 26 November 2010

  27. Department of Health (1995) Carers (Recognition and Services) Act 1995. Her Majesty’s Stationery Office, London

    Google Scholar 

  28. Department of Health (2001) Carers and Disabled Children Act 2000 and Carers (Equal Opportunities) Act 2004 combined policy guidance. Her Majesty’s Stationery Office, London

    Google Scholar 

  29. Feinberg L, Houser A (2012) Assessing family caregiver needs: policy and practice considerations fact sheet. AARP Public Policy Institute, Washington

    Google Scholar 

  30. The Carers Association (2011) Election manifesto 2011. http://www.carersireland.com/userfiles/file/Manifesto(1).pdf. Accessed 8 May 2014

  31. Mental Health Reform (2012) Guiding a vision for change—manifesto. Mental Health Reform, Dublin

    Google Scholar 

  32. Mingyuan Z, Heqin Y, Chendge Y et al (1993) Effectiveness of psychoeducation of relatives of schizophrenic patients: a prospective cohort study in five cities of China. Int J Ment Health 22:47–49

    Article  Google Scholar 

  33. Dixon L, Adams C, Lucksted A (2000) Update on family psychoeducation for schizophrenia. Schizophr Bull 26:5–20

    Article  CAS  PubMed  Google Scholar 

  34. Dixon L, Lehman A (1995) Family interventions for schizophrenia. Schizophr Bull 21:631–643

    Article  CAS  PubMed  Google Scholar 

  35. REFOCUS, College of psychiatrists of Ireland (2013) Who cares? Listening to the needs and experiences of carers of people with mental illness. http://www.irishpsychiatry.ie/Libraries/External_Affairs/REFOCUS_Who_cares_POST_Council_19_March_2013_2_FINAL.sflb.ashx. Accessed 1 April 2013

  36. Royal College of Psychiatrists (2010) Carers and confidentiality in mental health: issues involved in information sharing. Royal College of Psychiatrists, London

    Google Scholar 

  37. Slade M, Pinfold V, Rapaport J et al (2007) Best practice when service users do not consent to sharing information with carers. Br J Psychiatry 190:148–155

    Article  PubMed  Google Scholar 

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Correspondence to L. S. Wilson.

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Wilson, L.S., Pillay, D., Kelly, B.D. et al. Mental health professionals and information sharing: carer perspectives. Ir J Med Sci 184, 781–790 (2015). https://doi.org/10.1007/s11845-014-1172-6

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  • DOI: https://doi.org/10.1007/s11845-014-1172-6

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