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Measurement properties of self-report questionnaires on health-related quality of life and functional health status in dysphonia: a systematic review using the COSMIN taxonomy

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Abstract

Purpose

The current review was conducted to identify all self-report questionnaires on functional health status (FHS) and/or health-related quality-of-life (HR-QoL) in adult populations with dysphonia (voice problems), and to evaluate the psychometric properties of the retrieved questionnaires.

Methods

A systematic review was performed in the electronic literature databases PubMed and Embase. The psychometric properties of the questionnaires were determined using the COnsensus-based Standards for the selection of health Measurement INstruments (COSMIN) taxonomy and checklist. Responsiveness was outside the scope of this review and as no agreed ‘gold standard’ measures are available in the field of FHS and HR-QoL in dysphonia, criterion validity was not assessed. Only questionnaires developed and published in English were included.

Results

Forty-eight studies reported on the psychometric properties of 15 identified questionnaires. As many psychometric data were missing or resulted from biased study designs or statistical analyses, only preliminary conclusions can be drawn. Based on the current available psychometric evidence in the literature, the Voice Handicap Index seems to be the most promising questionnaire, followed by the Vocal Performance Questionnaire.

Conclusions

More research is needed to complete missing data on psychometric properties of existing questionnaires in FHS and/or HR-QoL. Further, when developing new questionnaires, the use of item response theory is preferred above classical testing theory, as well as international consensus-based psychometric definitions and criteria to avoid bias in outcome data on measurement properties.

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Abbreviations

COSMIN:

Consensus-based standards for the selection of health measurement instruments

EASE:

Evaluation of the ability to sing easily

FHS:

Functional health status

GFI:

Glottal Function Index

HR-QoL:

Health-related quality of life

SVHI:

Singing Voice Handicap Index

SVHI-10:

Singing Voice Handicap Index-10

TSEQ:

Transgender Self-Evaluation Questionnaire

TVQMtF :

Transsexual Voice Questionnaire—Male to Female

VCQ:

Voice Capabilities Questionnaire

VDCQ:

Voice Disability Coping Questionnaire

VFI:

Vocal Fatigue Index

VHI or VHI-30:

Voice Handicap Index

VHI-10:

Voice Handicap Index-10

VoiSS:

Voice and Symptom Scale

VPQ:

Vocal Performance Questionnaire

V-RQOL:

Voice-related quality of life

VRS:

Voice Rating Scale

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Acknowledgements

The authors express their gratitude to Jessica Powell, Grace Martin and Melinda Licciardello for providing support during the start-up of this review.

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Authors and Affiliations

  1. Department of Special Needs Education, University of Oslo, Oslo, Norway

    Renée Speyer

  2. Department of Otorhinolaryngology and Head and Neck Surgery, Leiden University Medical Center, Leiden, The Netherlands

    Renée Speyer

  3. School of Occupational Therapy, Social Work and Speech Pathology, Curtin University, Perth, Australia

    Renée Speyer, Deborah Denman, Lauren Parsons & Reinie Cordier

  4. Department of Linguistics, Macquarie University, Sydney, Australia

    Jae-Hyun Kim

  5. College of Healthcare Sciences, James Cook University, Townsville, Australia

    Kenji Doma

  6. Faculty of Health Sciences, The University of Sydney, Sydney, NSW, Australia

    Yu-Wei Chen

  7. Department of Surgery, Faculty of Medicine, Nursing and Health Sciences, Monash University, Melbourne, Australia

    Debra Phyland

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  1. Renée Speyer
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Correspondence to Renée Speyer.

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Conflict of interest

DP authored one of the instruments included in this review (EASE); however, DP was not involved in COSMIN scorings or quality ratings of measurement properties of questionnaires; raters were blinded to the involvement of DP in the paper. All other authors declare that they have no competing interests.

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Speyer, R., Kim, JH., Doma, K. et al. Measurement properties of self-report questionnaires on health-related quality of life and functional health status in dysphonia: a systematic review using the COSMIN taxonomy. Qual Life Res 28, 283–296 (2019). https://doi.org/10.1007/s11136-018-2001-6

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